Browse Items (920 total)
- Tags: Human
The Quality of Life of Children with Advanced Cancer: The Perspective of Children and Parents
Tags: 2018, Advanced Cancer, Avoine-Blondin J, Child, conference abstract, Daoust L, Duval M, Fasse L, Human, Humbert N, Interdisciplinary Communication, Journal of Pain and Symptom Management, Lopez C, Oncology, Oncology 2019 List, Palliative Therapy, physical well-being, pleasure, Qualitative Research, quality of life assessment, Semi Structured Interview, Sultan S, Thematic Analysis
The qualitative study on the experience and perception of healthcare professionals in pediatric palliative care
Tags: 2018, August 2018 List, Awareness, Child, conference abstract, constant comparative method, Death, Diagnosis, Grounded Theory, Home Care, Hospice, Human, Interview, Ireland, Major Clinical Study, Male, Palliative Medicine, Palliative Therapy, pediatric nurse, Pediatric Nursing, Perception, Qualitative Research, Quality Of Life, Salvaggio E
The Psychological Experience of Grandparents: Proposal of a Qualitative Clinical Assessment Tool in Pediatric Palliative Care
Tags: 2024, Adolescent, April List 2024, Article, Caregiver, Child, Clinical Article, clinical assessment tool, Clinical Practice, Clinics and Practice, Coping, Coping Strategy Questionnaire, Family, Female, grandchild, grandparent, Human, Male, Nogueira AJ, Palliative Care, Palliative Therapy, Portugal, psychologic assessment, Ribeiro MT, Semi Structured Interview, Sibling, Social Support
The positive impact of children with an intellectual disability on the family.
The Photographs of Meaning Program for Pediatric Palliative Caregivers: Feasibility of a Novel Meaning-Making Intervention
Tags: 2019, Action Research, Adaptation, Adult, American Journal of Hospice & Palliative Medicine, August 2019 List, Beaupin L K, Breier J M, Byrwa D J, Caregiver, Caregiver Support, Caregivers -- Psychosocial Factors, Coefficient Alpha, Criterion-Related Validity, Data Analysis Software, Depner R M, Descriptive Statistics, Discriminant Validity, Female, Grant P C, Health Facilities, Human, Internal Consistency, Levy K, Life Purpose, Married Women, meaning-centered psychotherapy, Middle Age, Mothers, Multimethod Studies, Narratives, New York, Pailler M E, Paired T-Tests, Palliative Care -- Psychosocial Factors, Pediatric, Pediatric Care, pediatric caregiver, Pediatric Palliative Care, Personal Satisfaction, Photography, photovoice, Pilot Studies, Pretest-Posttest Design, Program Development, Program Evaluation, Program Implementation, Psychological, Psychotherapy -- Methods, Questionnaires, Reliability, Research Subject Recruitment, Semi-Structured Interview, social media, surveys, Tenzek K E, Whites
The Phenomenon of Bereaved Parenting: An Integrative Review of Literature
Tags: 2021, Bereavement, Communication, Conflict (Psychology), Coping, Emotions, Family Role, Grief, Haylett WJ, Human, March 2021 List, Omega: Journal Of Death & Dying, Parental Role, Parenting, Parents -- Psychosocial Factors, Psychology, Science, Scott Tilley D, Social Work, Survivors, Systematic Review
The Pediatric Serious Illness Conversation Program: Understanding challenges and experiences for clinicians after advance care planning training
Tags: 2023, Advance Care Planning, Article, August List 2030, Awareness, Child, Comfort, Conversation, Doherty M, Frenette M, Gujral P, Hospice Care, Human, Lusney N, Medical Education, Neonatology, Nurse, Palliative And Supportive Care, Palliative Therapy, Physician, Skill, Social Worker, tertiary care center, Thematic Analysis, van Breemen C
The Nesting Dolls Design: A Methodology for the Recruitment of Bereaved Parents for Partnership Activities Related to Palliative Care and Bereavement Support in Paediatric Psycho-Oncology
Tags: 2018, 52315-07-8 (cypermethrin), 65731-84-2 (cypermethrin), 66841-24-5 (cypermethrin), 67375-30-8 (cypermethrin), Bereavement Support, Bourque C J, Cardinal G, Child, Clinical Article, Clinician, conference abstract, Confidentiality, Content Analysis, Controlled Study, cypermethrin, Death, Dumont E, evaluation research, Female, filter, Follow Up, Human, information center, Intensive Care, Interview, Journal of Pain and Symptom Management, Male, Neonatology, nesting, Oncology 2019 List, Palliative Therapy, Pediatrics, Psycho-Oncology, Questionnaire, research ethics, Sultan S, writing
The NeoPACE study: study protocol for the development of a core outcome set for neonatal palliative care
Tags: 2023, Adult, Article, Bluebond-Langner M, BMC Palliative Care, Chant K, Child, Controlled Study, Delphi Study, February List 2024, Gallagher K, Health Care Personnel, Human, Interview, Male, Mancini A, Marlow N, Newborn, Newborn Death, Newborn Intensive Care, Palliative Therapy, Perinatal Death, Systematic Review, Terminal Care, Therapy, Total Quality Management
The Neonatal Palliative Care Attitude Scale: Psychometric properties for Portuguese neonatal nurses
Tags: 2022, alpha, Analysis, Article, Attitude, Barbosa J, CARE, Clinical, coefficient, confirmatory, consistency, controlled, convergent, Cronbach, degree, discriminant, Education, end-of-life, error, experiment, Face, factor, Female, Figueira AR, Fradique E, Freedom, Human, intensive, internal, Major, Male, mean, Neonatal, Newborn, Nurse, Nursing, October 2022 List, Of, Palliative, Palliative & Supportive Care, quantitative, Rebotim AM, Reliability, Roldao MG, root, Santos Curado MA, Scale, Software, Sousa F P, squared, study, supportive, terminal, Therapy, Unit, VALIDATION, Validity
The needs of parents during end-of-life care for terminally ill child
Tags: 2018, August 2018 List, Child, Clinical Article, conference abstract, Data Analysis, Death, Father, Female, Genetic Disorder, genetic transcription, Grounded Theory, Human, Human Tissue, Identity, immune deficiency, Interview, Leukemia, Loucka M, Male, Mother, Palliative Medicine, Palliative Therapy, Polakova K, Qualitative Research, risk factor, solid malignant neoplasm, Terminal Care, terminally Ill Patient
The needs of healthcare personnel who provide home-based pediatric palliative care: a mixed method systematic review
The need of patients living with cancer for palliative care
Tags: 2023, 2023 SE3 - Oncology, Abdalrahim MS, Adolescence, Adult, Aged, Aged 80 And Over, Alnajar MK, Amro K, anxiety, cancer patients, Chi Square Test, Convenience Sample, Cross Sectional Studies, Darawad MW, Data Analysis Software, Depression, Descriptive Research, Descriptive Statistics, Farhan M, Health Services Accessibility, Health Services Needs And Demand, Human, International Journal of Palliative Nursing, Jordan, Middle Age, Mosleh SM, Neoplasms, Nursing, Palliative Care, Palliative Care Nursing, Patient Attitudes, Psychological Distress, Psychometrics, Questionnaires, Self Report, Spiritual Care, Stress Psychological
The Need for a Shared Understanding: Domains of Care and Composition of Team in Pediatric Palliative Care Guidelines
Tags: 2017, Adolescence, Child, CINAHL Database, De Clercq E, Elger BS, February 2018 List, Health, Human, In Infancy and Childhood, Infant, Journal Of Hospice & Palliative Nursing, Nomenclature, Palliative Care, Practice Guidelines, Preschool, Psycinfo, PubMed, Reference Databases, Rost M, Search Engines, Spiritual Care, Systematic Review, Wangmo Tenzin
The natural history of Unverricht-Lundborg disease: a report of eight genetically proven cases
Tags: 2008, Adolescent, Adult, Age Factors, Atrophy/complications/pathology, Auditory, Backlog, Bhatia KP, Brain Stem/physiology, Brain/pathology/physiopathology, Cerebellar Ataxia/complications/diagnosis, Cerebellum/pathology/physiopathology, Chew NK, Child, Chromosomes, Cordivari C, Dementia/complications/diagnosis, Diagnosis, Differential, Disease Progression, Dystonia/complications/diagnosis, Edwards MJ, Electroencephalography, Electromyography, Evoked Potentials, Evoked Potentials/physiology, Female, Human, Humans, Journal Article, Kim HT, Magnetic Resonance Imaging, Male, Martino D, Mir P, Movement Disorders: Official Journal Of The Movement Disorder Society, Myoclonus/complications/diagnosis, Neuropsychological Tests, Pair 21/genetics, Q3 Scoping Review Results, Quinn NP, Schneider SA, Seizures/complications/diagnosis, Severity Of Illness Index, Unverricht-Lundborg Syndrome/diagnosis/genetics/physiopathology
The mother's risk of premature death after child loss across two centuries
The most painful estrangement: Death at birth
Tags: 2024, alienation, April List 2024, Article, avoidance behavior, Bereavement, Cacciatore J, Child Death, community care, complicated grief/dt [Drug Therapy], continuing education, Coping, Decision Making, Depression, Emotion, Emotional Stress, emotional support, family history, Family Stress, Fear, Guilt, Human, Identity, lactation, Loneliness, mourning, naltrexone/dt [Drug Therapy], Palliative Therapy, Personal Experience, PostTraumatic Stress Disorder, Prevalence, rage, regret, Sadness, Self Concept, Seminars in Perinatology, shame, social bonding, Social Support, sorrow, spontaneous abortion, Stigma, Stillbirth, Suicide, traffic accident
The meaning of dying and death for children, their carers, and families: a scoping review
The McGill Quality of Life Questionnaire: a measure of quality of life appropriate for people with advanced disease. A preliminary study of validity and acceptability
Tags: 1995, 80 And Over, Adult, Aged, Backlog, Bui F, Cohen SR, Comparative Study, Female, Human, Journal Article, Karnofsky Performance Status, Male, Middle Age, Mount BM, Neoplasms/psychology/therapy, Non-U.S. Gov't, Palliative Care, Palliative Medicine, Predictive Value of Tests, Quality Of Life, Questionnaires, Reproducibility of Results, Strobel MG, Support
The Long-Term Care Experiences and Care Needs of Parents Caring for Children With Adrenoleukodystrophy
Tags: 2019, Descriptive Research, Guilt, Helplessness Learned, Hospice Care, Human, Individualized Medicine, Interviews, Journal of Nursing, Jui-Chun F, Long Term Care, March 2019 List, Miao-Ju C, Needs Assessment, Parental Attitudes, Peroxisomal Disorders -- Psychosocial Factors, Psychosocial Aspects of Illness, Qualitative Studies, Shu-Yuan L, Su-Fen C, Wei-Wen W U
The Landscape of Outpatient Pediatric Palliative Care: A National Cross-Sectional Assessment
Tags: 2023, Advance Care Planning, Analgesia, Article, Autrey AK, Cesarean Section, Child, Controlled Study, Demographics, Funding, Hospital Patient, Human, James C, Journal of Pain and Symptom Management, Kaye EC, May List 2023, Miller EG, Morvant A, Mothi SS, Outpatient, Palliative Care, Palliative Therapy, Patient Referral, Program Development, School Child, Stafford C, United States, workflow
The integration of palliative care in Dr Congo "a Model of Sustainability": A field study
Tags: 2018, Analgesia, capacity building, Caregiver, Child, conference abstract, Congo, Congolese (Kinshasa), Developing World 2019 List, doctor nurse relation, Female, field study, Home Care, Human, Journal of Global Oncology, Leadership, Major Clinical Study, Male, Mubeneshayi Kananga A, Organization, Palliative Therapy, Practice Guideline, Primary Health Care, sensitization, Training, uganda, Volunteer
The Incidence and Evolution of Parkinsonian Rigidity in Rett Syndrome: A Pilot Study
Tags: 2016, 5 hydroxyindoleacetic acid, Adolescent, Adult, Age, ankle, Article, Barrowman N, Canadian Journal of Neurological Sciences, Cerebrospinal Fluid, characteristics, Child, Cohort Analysis, Cross-sectional Study, Disease Severity, Dopamine, Dystonia, Female, genetic susceptibility, homovanillic acid, homovanillic acid/ec [Endogenous Compound], Human, Humphreys P, hva, Incidence, Major Clinical Study, mecp2, methyl CpG binding protein 2, methyl CpG binding protein 2/ec [Endogenous Compound], missense mutation, mobilization, muscle rigidity, muscle tone, musculoskeletal disease assessment, neck, parkinsonism, Pharmacokinetics, Pilot Study, Priority Journal, Prospective Study, Quantitative Study, Rett syndrome, Rett syndrome rigidity distribution score, rigidity, scoring system, Speech, tone and motor problems, Trajectory, walking difficulty
The Impact of Music Therapy in Paediatric Palliative Care in Residential Hospice
The impact of home-based physical rehabilitation program on parents' experience with children in palliative care: a qualitative study
Tags: 2019, Adult, Article, Child, Chocarro-Gonzalez L, Education, European journal of physical and rehabilitation medicine, genetic transcription, Gueita-Rodriguez J, home environment, Human, Martino-Alba R, October 2019 List, Pain, Palacios-Cena D, Palliative Therapy, Practice Guideline, Qualitative Research, Quality Of Life, Rico-Mena P, Semi Structured Interview, Spain, Thematic Analysis, Young Adult
The Impact of End-of-Life Care Among Nurses Working in the Pediatric Intensive Care Unit
The Impact Of A Sibling's Life-limiting Genetic Condition On Adult Brothers And Sisters
Tags: 2017, Adult, American Journal of Medical Genetics Part A, Article, Brother, Brown E, Coad J, Coping Behavior, Family Attitude, Female, Franklin A, Genetic Disorder, Grief, Human, Male, Parental Attitude, Peer Group, Priority Journal, Psychological Resilience, Qualitative Analysis, September 2017 List, Sibling, Sibling Attitude, Sister, Structured Interview, Trisomy 13, Trisomy 18, Wellbeing
The funding of specialised paediatric palliative care in Switzerland: a conceptualisation and modified Delphi study on obstacles and priorities
Tags: 2023, Adult, Aged, Article, Bergstrasser E, Clinical Practice, Consensus Development, Delphi Study, Delphi Technique, evidence based medicine, Female, Fink G, Funding, Gerber AK, Health Care Cost, Health Care Delivery, Health Service, Human, Male, March List 2024, Mitterer S, modified Delphi study, Palliative Care, Palliative Therapy, Pediatrics, Practice Guideline, program effectiveness, Program Sustainability, Reimbursement, Simon M, Swiss Medical Weekly, Switzerland, Zimmermanna K
The FATHER Model of Loss and Grief After Child's Life-Limiting Illness
Tags: 2023, ambivalence, anxiety, Article, August List 2045, Child, Cinahl, Davies S, Deterioration, directory, disenfranchised grief, ethnography, Father, Fatigue, Female, Grief, Guilt, Hamilton J, Human, injury, Male, Medline, Mental Health, meta analysis, Michael A, Mother, Mukaetova-Ladinska EB, Only Child, Palliative Therapy, Pediatrics, Postavaru GI, Practice Guideline, Preferred Reporting Items for Systematic Reviews and Meta-Analyses, quality control, ScienceDirect, Scopus, Swaby H, Swaby R, Systematic Review, unresolved grief
The experiences, attitudes and practices of nurses working in a paediatric intensive care unit caring for babies and children at the end of life: A qualitative study
Tags: 2018, Archives of Disease in Childhood, Brierley J, Child, Clinical Article, conference abstract, Documentation, Du Pre P, Female, genetic transcription, Hospice, Human, Human Experiment, Infant, June 2018 List, Koffman J, Male, Nurse, Pediatric Intensive Care Unit, Personal Experience, Qualitative Research, Sampling, Scientist, Semi Structured Interview, Terminal Care, Uncertainty
The Experiences of Bereaved Parents After the Loss of a Child to Cancer: A Qualitative Metasynthesis
Tags: 2020, Alvarenga W de A, Bereavement, Child, Childhood Neoplasms – Mortality, de Montigny F, Death – Psychosocial Factors – In Infancy and Childhood, Human, Journal Of Pediatric Oncology Nursing, Leite A C A B, Life Experiences, Meta Synthesis, Nascimento L C, Neris R R, Oncology 2020 List, Parental Attitudes, Parents – Psychosocial Factors, Polita N B, Qualitative Studies, Silva-Rodrigues F M
The experiences of bereaved family caregivers with advance care planning for children with medical complexity
Tags: 2019, Advance Care Planning, Amin R, Caregiver, Child, Clinical Article, Cohen E, conference abstract, Consultation, Content Analysis, Conversation, Death, Female, genetic transcription, Health Care Personnel, Hellman J, Human, Human Tissue, Informed Consent, Lord S, Male, Moore C, Netten K, October 2019 List, Orkin J, Paediatrics and Child Health (Canada), Perception, Personal Experience, Rappaport A, Semi Structured Interview
The Experience of Pediatric Palliative Caregiving: A Qualitative Analysis From the Photographs of Meaning Program
Tags: 2019, Article, Beaupin LK, care behavior, Caregiver, Child, Curriculum, December 2019 List, Depner RM, Female, Grant PC, Human, Human Experiment, Levy K, Male, meaning making, Narrative, Pailler ME, Palliative Therapy, Pediatrics, Photography, Qualitative Analysis, Qualitative Research, social media, Tenzek KE, The American Journal of Hospice & Palliative Care
The Emotional Experience of Caring for Children in Pediatric Palliative Care: A Qualitative Study among a Home-Based Interdisciplinary Care Team
Tags: 2023, Adult, Article, Burnout, care behavior, Case Study, Castel-Sanchez M, Child, Child Death, Children, collaborative care team, Emotion, Emotional Stress, Emotions, Female, Gueita-Rodriguez J, Health Personnel Attitude, Home Care, Human, Job Satisfaction, July List 2023, Male, Martino-Alba R, Palacios-Cena D, Palliative Care, Palliative Therapy, Pediatrics, Qualitative Research, Rico-Mena P, Satisfaction, Semi Structured Interview, Thematic Analysis
The efficacy of educational interventions on neonatal intensive care unit nurses knowledge and attitude toward neonatal palliative care
Tags: 2023, Abuhammad S, adjuvant therapy, Adult, Aggression, analgesic activity, anxiety, Article, Attitude, care behavior, Chronic Pain, cocaine, Controlled Study, Death, Demographics, drowsiness, drug dependence, Education Program, Educational Status, El-Bashir M, Elayyan M, electrolyte disturbance, Electronic Journal of General Medicine, emotional deprivation, Family, Fatigue, Female, Grief, Hospital Admission, Human, Human Experiment, Infant Newborn, Intestine, Jordan, June 2022 List, Knowledge, Male, Marriage, Morphine, Nausea And Vomiting, Neonatal Intensive Care Unit, neonatal intensive care unit attitude scale, Nurse, Nursing, Opiate, Pain, Palliative Care, Palliative Therapy, pethidine, pretest posttest design, Prognosis, Questionnaire, Respiration Depression, scoring system, Sedation, work experience
The Effects of Chronic Disease on Ambulatory Care–Sensitive Hospitalizations for Children or Youth
Tags: 2019, Adolescence, Adolescent, Age Factors, Ambulatory Care -- In Adolescence, Ambulatory Care -- In Infancy and Childhood, Child, Chronic Disease, Confidence Intervals, Cross Sectional Studies, Data Analysis Software, Descriptive Statistics, Female, Health Services Insights, Hospitalized, Human, Infant, January 2020 List, Kum H C, Logistic Regression, Male, Models, Newborn, Nwaiwu O, Odds Ratio, Ohsfeldt R, Patient Discharge, Phillips C D, Post Hoc Analysis, Preschool, Probability, Race Factors, ROC Curve, Sex Factors, statistical, Texas, Truong C
The effect of web-based pediatric palliative care education on the palliative care knowledge level and practices of nursing students
The Effect of Pediatric Palliative Care Policy on Hospice Utilization Among California Medicaid Beneficiaries
The effect of L 5 hydroxytryptophan on self mutilation in Lesch Nyhan disease: a negative report
Tags: 1976, Anderson L T, automutilation, behavioral problems, carbidopa, Child, Clinical Study, Clinical Trial, Controlled Study, Dancis J, Drug Therapy, Herrmann L, Human, L-5-hydroxyl-tryptophan, Lesch Nyhan syndrome, Major Clinical Study, Neuropadiatrie, pharmacologic intervention, PLACEBO, self-mutilation, Therapy