The Need for a Shared Understanding: Domains of Care and Composition of Team in Pediatric Palliative Care Guidelines

Title

The Need for a Shared Understanding: Domains of Care and Composition of Team in Pediatric Palliative Care Guidelines

Creator

Rost M; De Clercq E; Wangmo Tenzin; Elger BS

Publisher

Journal Of Hospice & Palliative Nursing

Date

2017

Subject

Adolescence; Child; CINAHL Database; Health; Human; infant; In Infancy and Childhood; Nomenclature; Palliative Care; Practice Guidelines; Preschool; PsycINFO; PubMed; Reference Databases; Search Engines; spiritual care; systematic review

Description

Conceptual confusion is a primary barrier to providing quality palliative care. This study aimed to analyze pediatric palliative care (PPC) guidelines from a conceptual perspective to facilitate a shared understanding of palliative care in pediatrics. Five online databases were searched systematically, in addition to a Google search. Analysis focused on the language used to determine the domains of PPC and on the composition of the PPC team. Guidelines express consensus on 4 core domains: physical, psychological, social, and spiritual care. However, conceptual vagueness exists with respect to the latter 3 because terminology is used inconsistently both within and across guidelines. An inconsistent use of terminology affects the quality of PPC nursing in various ways. Therefore, a shared understanding and unambiguous language must be envisaged. Furthermore, although guidelines agree on the most prominent team members, they do not clearly indicate how these occupational groups should collaborate.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Collection

Citation

Rost M; De Clercq E; Wangmo Tenzin; Elger BS, “The Need for a Shared Understanding: Domains of Care and Composition of Team in Pediatric Palliative Care Guidelines,” Pediatric Palliative Care Library, accessed August 4, 2021, https://pedpalascnetlibrary.omeka.net/items/show/11267.

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