The Need for a Shared Understanding: Domains of Care and Composition of Team in Pediatric Palliative Care Guidelines
Title
The Need for a Shared Understanding: Domains of Care and Composition of Team in Pediatric Palliative Care Guidelines
Creator
Rost M; De Clercq E; Wangmo Tenzin; Elger BS
Identifier
Publisher
Journal Of Hospice & Palliative Nursing
Date
2017
Subject
Adolescence; Child; CINAHL Database; Health; Human; infant; In Infancy and Childhood; Nomenclature; Palliative Care; Practice Guidelines; Preschool; PsycINFO; PubMed; Reference Databases; Search Engines; spiritual care; systematic review
Description
Conceptual confusion is a primary barrier to providing quality palliative care. This study aimed to analyze pediatric palliative care (PPC) guidelines from a conceptual perspective to facilitate a shared understanding of palliative care in pediatrics. Five online databases were searched systematically, in addition to a Google search. Analysis focused on the language used to determine the domains of PPC and on the composition of the PPC team. Guidelines express consensus on 4 core domains: physical, psychological, social, and spiritual care. However, conceptual vagueness exists with respect to the latter 3 because terminology is used inconsistently both within and across guidelines. An inconsistent use of terminology affects the quality of PPC nursing in various ways. Therefore, a shared understanding and unambiguous language must be envisaged. Furthermore, although guidelines agree on the most prominent team members, they do not clearly indicate how these occupational groups should collaborate.
Rights
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Citation List Month
February 2018 List
Collection
Citation
Rost M; De Clercq E; Wangmo Tenzin; Elger BS, “The Need for a Shared Understanding: Domains of Care and Composition of Team in Pediatric Palliative Care Guidelines,” Pediatric Palliative Care Library, accessed April 21, 2025, https://pedpalascnetlibrary.omeka.net/items/show/11267.