Browse Items (93 total)
- Tags: Diagnosis
Parents' perspectives on losing a child due to life-limiting diagnoses: A population-based study
Tags: 2018, Adult, August 2018 List, Cause Of Death, Child, conference abstract, Denmark, Diagnosis, directory, Distress Syndrome, Ekholm O, Female, Human, Lykke C, Major Clinical Study, Male, Malignant Neoplasm, Olsen M, Palliative Medicine, Palliative Therapy, Quality Of Life, Questionnaire, Schmiegelow K, Sjogren P, Wales, Young Adult
Improving Prenatal Palliative Care Consultation Using Diagnostic Trigger Criteria: Improving Prenatal Palliative Care Consultation through Quality Improvement
Tags: 2023, Ackerman O, Andescavage N, Article, Child, Congenital Malformation, Consultation, Controlled Study, Diagnosis, eligibility, February List 2024, Female, Fisher D, Human, Journal of Pain and Symptom Management, Lanzel AF, Lin M, Mahmood LA, outcome assessment, Palliative Therapy, Patient Referral, Pregnancy, Rholl E, Total Quality Management
Palliative Care in the Neonatal Intensive Care Unit: An Evolutionary Concept Analysis of Uncertainty in Anticipated Loss
Tags: 2024, Advances in Neonatal Care, Article, Complication, Concept analysis, Confusion, Diagnosis, Dick T, Drug Administration, Dudding KM, Fazeli PL, Genetic Disorder, genetic screening, Human, Infant, Infant Newborn, Lenington K, March List 2024, Neonatal Intensive Care Unit, Neonatal Nurse, Newborn Intensive Care, Nurse, Palliative Care, Palliative Therapy, Patrician P, Prognosis, Uncertainty
Myopathy with mitochondrial changes presenting as respiratory failure in two brothers
Tags: 1999, Backlog, Biopsy, Child, Diagnosis, Differential, Fatal Outcome, Humans, Interstitial/diagnosis/pathology, Journal Article, Lemos AB, Lung Diseases, Male, Mate A, Mitochondrial Myopathies/diagnosis/genetics/pathology, Mosquera J, Needle, Nuclear Family, Pediatric Pulmonology, Q3 Scoping Review Results, Respiratory Function Tests, Respiratory Insufficiency/etiology, Sirvent J
Relevance of Potential Contributing Factors for the Development and Maintenance of Irritability of Unknown Origin in Pediatric Palliative Care
Early peripheral nervous system manifestations of infantile Krabbe disease
Tags: 2003, Backlog, Biopsy, Demyelinating Diseases/pathology/physiopathology, Diagnosis, Differential, Dor-Wollman T, Family Health, Female, Globoid Cell/pathology/physiopathology, Humans, Hurvitz H, Inclusion Bodies/pathology, Infant, Journal Article, Korn-Lubetzki I, Leukodystrophy, Male, Nevo Y, Pediatric Neurology, Peripheral Nervous System/pathology/physiopathology, Raas-Rothschild A, Retrospective Studies, Schwann Cells/pathology, Soffer D
Physician perspectives on end-of-life care and pediatric palliative care for children in the Republic of Korea
Tags: 2017, Adult, Advance Care Planning, Child, Cogent Medicine, conference abstract, Death, Deterioration, Diagnosis, Female, financial management, Human, Interview, June 2018 List, Kim C H, Kim M S, Life Sustaining Treatment, Male, Organization, Palliative Therapy, Perception, psychosocial care, Questionnaire, Song IG, South Korea, tertiary care center, Yu J
Palliative care referral patterns for children with cancer: A three-year retrospective study
Tags: 2018, Cancer Patient, Central Nervous System, Child, conference abstract, Diagnosis, Emergency Ward, Female, Hospice, Hospital Patient, Human, Infant, Intensive Care Unit, Kim CH, Kim MS, Korea, Leukemia, Lymphoma, Major Clinical Study, Male, Moon YJ, Oncology, Oncology 2018 List, outpatient department, Palliative Therapy, Patient Referral, Pediatric Blood and Cancer, pediatric ward, Quality Of Life, Resuscitation, Retrospective Study, School Child, Shin HY, solid malignant neoplasm, Song IG, statistical analysis, Terminal Care, time of death
Communication and the Appraisal of Uncertainty: Exploring Parents' Communication with Credible Authorities in the Context of Chronic Childhood Illness
Update on genetic disorders affecting white matter
Cataplexy in variant forms of Niemann-Pick disease
Tags: 1982, Adult, Annals Of Neurology, Backlog, Cataplexy/complications/diagnosis, Child, Diagnosis, Differential, Electroencephalography, Emerson RG, Epilepsy/diagnosis, Female, Humans, Journal Article, Kandt RS, Male, Moser HW, Niemann-Pick Diseases/complications/diagnosis, Ophthalmoplegia/complications, Preschool, REM, Singer HS, Sleep, Splenomegaly/complications, Valle DL
Challenges in assessing the need for beds in palliative care-The example of inpatient hospice care for children, adolescents and young adults
Tags: 2018, Adult, Artificial Ventilation, August 2018 List, calculation, Child, conference abstract, Death, Diagnosis, disabled person, Female, Funding, Germany, Home Care, Hospice Care, Hospital Patient, Human, Jansky M, Jaspers B, Length Of Stay, Likert scale, Long Term Care, Major Clinical Study, Male, Mortality, Nauck F, occupation, Palliative Medicine, Palliative Therapy, Politics, Prevalence, psychosocial care, quantitative analysis, Resident, Semi Structured Interview, Statistics, Young Adult
Palliative care in children with spinal muscular atrophy type 1: How do they die? Results from a French multicentric study (National Hospital clinical Research Program)
Tags: 2017, 50-48-6 (amitriptyline), 52-26-6 (morphine), 549-18-8 (amitriptyline), 57-27-2 (morphine), Amitriptyline, Barnerias C, benzodiazepine derivative, Child, Clinical Article, Clinical Practice, Clinical Research, Desguerre I, Diagnosis, Drug Therapy, European Journal of Paediatric Neurology, Female, Follow Up, Hully M, Human, Infant, Intensive Care Unit, Interview, January 2018 List, Male, Morphine, Multicenter Study, nasogastric tube, Noninvasive Ventilation, Palliative Therapy, Psychologist, quantitative analysis, Resuscitation, time of death, Vanesse S, Viallard ML, Werdnig Hoffmann disease
Enabling flourishing: novel approaches in palliative medicine for children with advanced kidney disease
Quality Of Care Collaborative For Paediatric Palliative Care In Australia (quocca)
Tags: 2017, anxiety, Australia, Baggio S, Burr C, Child, Clinical Trial, Delaney A, Diagnosis, Donovan L, Duc J, Duffield J, Dyspnea, Education, Family Study, Female, Fleming S, Herbert A, Heywood M, Human, Hynson J, Irving H, Johnson S, Major Clinical Study, Male, McLarty A, Momber S, Nausea, Nurse, October 2017 List, Pain, Palliative Therapy, Patient Referral, Pedersen LA, Pediatric Blood and Cancer, Phillips M, Questionnaire, Ryan S, Seizure, Slater P, Staff, Symptom, Telehealth, Terminal Care, Trethewie S
Discerning differences: gastroesophageal reflux and gastroesophageal reflux disease in infants
Tags: 2004, Advances in Neonatal Care, Backlog, Diagnosis, Differential Directories Gastroesophageal Reflux, Henry SM, Journal Article, Newborn Infant, Nursing, PedPal Lit, physiology Internet Nursing Assessment%X Gastroesophageal reflux (GER) is a frequently encountered problem in infancy, physiopathology, Premature, therapy Health Education Humans Infant Infant
Decisions in diagnosing and managing chronic gastroesophageal reflux disease in children
Lung disease in Niemann-Pick disease
Tags: 2007, Backlog, Biopsy, Bronchoalveolar Lavage, Bronchoalveolar Lavage Fluid/cytology, Child, Clement A, de Villemeur TB, Diagnosis, Differential, Fauroux B, Female, Guillemot N, Humans, Infant, Interstitial/diagnosis/etiology/physiopathology, Journal Article, Lung Diseases, Male, Niemann-Pick Diseases/complications, Pediatric Pulmonology, Preschool, Prognosis, Q3 Scoping Review Results, Radiography, Respiratory Function Tests, Severity Of Illness Index, Thoracic, Troadec C
Infantile neuroaxonal dystrophy (Seitelberger's disease)
Tags: 2002, Auditory, Backlog, Brain Stem/physiology, Brain/pathology/physiopathology, Developmental Medicine and Child Neurology, Diagnosis, Differential, Disease Specific, Electroencephalography, Evoked Potentials, Gordon N, Humans, Journal Article, Magnetic Resonance Imaging, Neuroaxonal Dystrophies/complications/diagnosis, Pantothenate Kinase-Associated Neurodegeneration/diagnosis, Seizures/diagnosis/etiology, Visual/physiology
A Qualitative Study of Parents' Experiences of Bonding in End-of-Life Care in a Neonatal Intensive Care Unit
Tags: 2023, Adult, Article, Child, Clinical Article, Content Analysis, Decision Making, Diagnosis, Edner A, February List 2024, Funkquist EL, Health Care Personnel, Human, Infant, Interview, Journal of Perinatal & Neonatal Nursing, Lindquist A, Neonatal Intensive Care Unit, Newborn, Newborn Intensive Care, Parent, parenthood, Pilot Study, Powerlessness, Qualitative Research, shame, Terminal Care
"I don't want this to be in my biography": A qualitative study of the experiences of grandparents losing a grandchild due to a neurological or oncological disease
Tags: 2018, August 2018 List, Becker G, Bergstrasser E, Cause Of Death, Child, Clinical Article, Comfort, conference abstract, Diagnosis, Flury M, friend, grandchild, grandparent, Human, literature, Male, Memory, Oncology, Orellana-Rios C, Palliative Medicine, Palliative Therapy, Qualitative Research, Semi Structured Interview, son, Switzerland, Terminal Care
Assessing the suitability of the Carer Support Needs Assessment Tool (CSNAT-Paediatric) for use with parents of children with a life-limiting condition: A qualitative secondary analysis
Tags: 2023, Article, Atkin K, care behavior, Caregiver, Child, Clinical Article, Content Analysis, Diagnosis, Ewing G, Father, February List 2024, Female, Fisher V, Fraser LK, Grande G, Human, Male, Needs Assessment, Palliative Medicine, Palliative Therapy, Parent, School Child, Secondary Analysis, social media, special situation for pharmacovigilance
Practice parameter: screening and diagnosis of autism: report of the Quality Standards Subcommittee of the American Academy of Neurology and the Child Neurology Society
Tags: 2000, Accardo PJ, Ashwal S, Asperger Syndrome/diagnosis, Autistic Disorder/diagnosis/genetics, Backlog, Baranek GT, Child, Childhood/diagnosis, Cook EH, Dawson G, Developmental Disabilities/diagnosis, Diagnosis, Differential, Disease Management, Electrophysiology, Filipek PA, Gordon B, Gravel JS, Humans, Infant, Johnson CP, Journal Article, Kallen RJ, Lead Poisoning, Levy SE, Mass Screening/methods/standards, Minshew NJ, Nervous System, Neurology, Neuropsychological Tests, Non-U.S. Gov't, Ozonoff S, P.H.S., Predictive Value of Tests, Preschool, Prizant BM, Rapin I, Research Support, Risk Assessment, Rogers SJ, Stone WL, Teplin SW, Tuchman RF, U.S. Gov't, Volkmar FR
Use of opioids in palliative care of children with advanced cancer
Tags: 2016, 52-26-6 (morphine), 53663-61-9 (opiate), 57-27-2 (morphine), 8002-76-4 (opiate), 8008-60-4 (opiate), Adjuvant, Advanced Cancer, Analgesia, Article, Child, Childhood Cancer, Cid Barria L, Constipation, Diagnosis, Drug Efficacy, Drug Safety, Female, Fernandez Urtubia B, Human, Major Clinical Study, Male, Medical Record, Morphine, Morphine/dt [drug Therapy], Nonsteroid Antiinflammatory Agent, Nonsteroid Antiinflammatory Agent/dt [drug Therapy], Oncology 2017 List, Opiate/dt [drug Therapy], Pain Intensity, Pain/dt [drug Therapy], Palliative Therapy, Palma Torres C, Retrospective Study, Revista Chilena De Pediatria, Rodriguez Zamora N, School Child, Sedation, Trevigno Bravo A, Visual Analog Scale
Shared decision-making in pediatric palliative care in the Netherlands
Tags: 2024, Aae V, Advance Care Planning, Article, Child, Clinical Article, Current Problems in Pediatric and Adolescent Health Care, Cy J, Decision Making, Diagnosis, Em M, evidence based practice, Health Care Personnel, Human, Jl A, March List 2024, Mc K, Netherlands, Palliative Care, Palliative Therapy, shared decision making
Attention Bias Modification Treatment for Pediatric Anxiety Disorders: A Randomized Controlled Trial
Tags: 2012, Adolescents, American Journal Of Psychiatry, Anxieties, Anxiety in children, Apter A, Attentional bias, Backlog, Bar-Haim Y, Care And Treatment, Child & adolescent psychiatry, childhood, Children, Clinical outcomes, Depression, Diagnosis, Eldar S, FACIAL EXPRESSIONS, Fox NA, INDIVIDUALS, Influence, Journal Article, Lotan D, Management, MANIPULATION, Naim R, Perez-Edgar K, Pine DS, Psychiatry, THREAT, VULNERABILITY
Disputes over Diagnosing Death: Is It Ethical to Test for Death by Neurologic Criteria over Parental Objection?
New guidelines for the management of migraine in primary care
Tags: 2002, algorithms, Backlog, Current Medical Research And Opinion, Diagnosis, Differential, Dowson AJ, Humans, Journal Article, Lipscombe S, Medical History Taking, Migraine Disorders/diagnosis/prevention & control/therapy, Migraine In Primary Care Advisors (MIPCA) - Migraine Guidelines Development Group, Non-U.S. Gov't, Patient Care Team, Patient Education, Primary Health Care, Questionnaires, Rees T, Referral And Consultation, Research Support, Sender J, Watson D
Characteristics of a Perinatal Palliative Care Program Over 10 years
Tags: 2018, Child, Comfort, conference abstract, Controlled Study, Diagnosis, Doherty M, Dumond LG, February 2019 List, Female, Genetics, Hospice, Human, Infant, Journal of Pain and Symptom Management, Major Clinical Study, Male, Medical Record, Neonatal Intensive Care Unit, Neonatologist, obstetrician, Palliative Therapy, Patient Referral, positive end expiratory pressure, Resuscitation, Retrospective Study, Stoppels N, Williams R
Utilization of palliative care in pediatric oncology: An interprofessional evaluation of knowledge, beliefs, perceived barriers, and involvement of services
Tags: 2017, Adolescent, Bell C, Child, Childhood Cancer, Controlled Study, Data Analysis Software, Diagnosis, Diver J, Doctor Patient Relation, E-mail, Family, Female, Hematology, Human, Male, Nurse, Oncology 2017 List, Palliative Therapy, Pediatric Blood and Cancer, Pediatrics, Prince-Paul M, Professional Standard, Toly V
A Survey Of Perinatal Palliative Care Programs In The United States: Structure, Processes, And Outcomes.
Perinatal palliative care (PPC) programs are proliferating nationwide, but little is known about their structure, process, or desired outcomes, to inform future program development.
OBJECTIVE:
To explicate structure, processes, and…
Frequency and Clinical Characteristics Associated With Pediatric Deaths In a Tertiary Hospital in a Developing Country - Opportunities for Pediatric Palliative Care
Tags: 2018, antibiotic therapy, Artificial Ventilation, Brain Death, Cause Of Death, Child, Clinical Feature, Comfort, conference abstract, Controlled Study, Cuervo Suarez M I, Demography, developing country, Developing World 2019 List, Diagnosis, Drug Withdrawal, Female, Garcia X, Health Care Quality, Hospital Patient, Human, Human Tissue, inotropism, Journal of Pain and Symptom Management, Life Sustaining Treatment, Major Clinical Study, Male, Medical Record, Munoz M, Neonatal Intensive Care Unit, Newborn, Palliative Therapy, pediatric patient, Resuscitation, Retrospective Study, Sedation, statistical analysis, Terminal Care, tertiary care center
Role of palliative care in fetal neurological consultations: Guiding through uncertainty and hope
Tags: 2023, August List 2029, Brain, Consultation, Cortezzo DE, Counseling, Decision Making, Diagnosis, encephalocele, Fetus, Frontiers in Pediatrics, Grief, Human, Infant, Medical Care, Neurology, Palliative Care, Palliative Therapy, Patient Care, Pregnancy, prenatal period, Prognosis, Referral And Consultation, Review, shared decision making, Shoaib A, social belief, Uncertainty, Vawter-Lee M, Venkatesan C, vignette
Fetal alcohol spectrum disorder: Canadian guidelines for diagnosis
Tags: 2005, Abnormalities, Adult, Alcohol Drinking/prevention & control, Alcoholism/diagnosis/prevention & control, Backlog, Canada/epidemiology, Canadian Medical Association Journal, Child, Chudley AE, Conry J, Cook JL, Diagnosis, Differential, Ethanol, Female, Fetal Alcohol Syndrome/diagnosis/epidemiology/prevention & control, Humans, Infant, Journal Article, LeBlanc N, Loock C, Mass Screening/standards, Medical History Taking/standards, Multiple/diagnosis, Nervous System Diseases/diagnosis, Newborn, Non-U.S. Gov't, Physical Examination/standards, Pregnancy, Pregnancy Complications/diagnosis/prevention & control, Prenatal Exposure Delayed Effects, Public Health Agency of Canada's National Advisory Committee on Fetal Alcohol Spectrum Disorder, Referral and Consultation/standards, Research Support, Risk Factors, Rosales T
Providing cost-effective and coordinated care for children with medical complexity
Tags: 2019, administrative personnel, Adolescent, Archives of Disease in Childhood, Artificial Ventilation, Caregiver, Cerebral Palsy, Child, Chow C, conference abstract, Congenital Heart Disease, Controlled Study, Diagnosis, Fatigue, Female, Gastrostomy, Home Care, Human, limited mobility, machine, Major Clinical Study, Male, Medical Technology, Multicenter Study, Multidisciplinary team, Neuromuscular Disease, Nurse, October 2019 List, Outpatient, Pediatrician, salary, Shahdadpuri R, Stress, Tracheostomy, ventilator, working time
Clinical spectrum of children receiving palliative care in Malaysian Hospitals
Tags: 2017, Abdul Manaf AM, Abdul Shukor INC, Acute Lymphoblastic Leukemia, Adolescent, Adult, Alias E, Bereavement, Caregiver, Cerebral Palsy, Chieng CH, Child, Child Care, Chong LA, Chromosome, Chromosome Aberration, Clinical Trial, Congenital Malformation, Controlled Clinical Trial, Controlled Study, Cross Sectional Study, Diagnosis, Duchenne Muscular Dystrophy, Education, Female, Follow Up, Hedra ZS, Hospital, Hospital Admission, Human, Icd-10, Infant, Khalid F, Khoo TB, Kuan GL, Major Clinical Study, malaysia, Male, Malignant Neoplasm, Medical Journal Of Malaysia, Multicenter Study, Needs Assessment, Newborn, Observational Study, Ong GB, Palliative Therapy, Patient Referral, Pediatrician, Prognosis, Razali H, Review, Spinal Muscular Atrophy, Teh SH, Wang JJ
The natural history of Unverricht-Lundborg disease: a report of eight genetically proven cases
Tags: 2008, Adolescent, Adult, Age Factors, Atrophy/complications/pathology, Auditory, Backlog, Bhatia KP, Brain Stem/physiology, Brain/pathology/physiopathology, Cerebellar Ataxia/complications/diagnosis, Cerebellum/pathology/physiopathology, Chew NK, Child, Chromosomes, Cordivari C, Dementia/complications/diagnosis, Diagnosis, Differential, Disease Progression, Dystonia/complications/diagnosis, Edwards MJ, Electroencephalography, Electromyography, Evoked Potentials, Evoked Potentials/physiology, Female, Human, Humans, Journal Article, Kim HT, Magnetic Resonance Imaging, Male, Martino D, Mir P, Movement Disorders: Official Journal Of The Movement Disorder Society, Myoclonus/complications/diagnosis, Neuropsychological Tests, Pair 21/genetics, Q3 Scoping Review Results, Quinn NP, Schneider SA, Seizures/complications/diagnosis, Severity Of Illness Index, Unverricht-Lundborg Syndrome/diagnosis/genetics/physiopathology
Systemic carnitine deficiency--a treatable inherited lipid-storage disease presenting as Reye's syndrome
Tags: 1980, Angelini C, Backlog, Brown WJ, Carnitine/deficiency/metabolism/therapeutic use, Cederbaum SD, Chapoy PR, Child, Diagnosis, Differential, Humans, Inborn Errors/diagnosis, Journal Article, Lipid Metabolism, Liver/metabolism, Male, Muscles/metabolism, Preschool, Q3 Scoping Review Results, Reye Syndrome/diagnosis, Shug AL, Stiff JE, The New England Journal Of Medicine