Browse Items (170 total)
- Tags: Chronic Disease
Comparison of actigraphy with a sleep protocol maintained by professional caregivers and questionnaire-based parental judgment in children and adolescents with life-limiting conditions
Tags: 2024, actigraph, actimetry, Adolescent, April List 2024, Article, BMC Palliative Care, Caregiver, Child, Chronic Disease, Claus B, Clinical Article, Controlled Study, Decision Making, diagnostic procedure, Drug Therapy, Female, Human, Human Experiment, Kubek LA, Male, Palliative Therapy, Prospective Study, protocol, Questionnaire, Questionnaires, School Child, Sleep, sleep efficiency, sleep time, special situation for pharmacovigilance, stage 1 sleep, Therapy, Wager J, wake after sleep onset, Wakefulness, Zernikow B
Complex palliative care and transition: a case review
Congenital neurodevelopmental diagnoses and an intensive care unit: defining a population
Tags: 2004, Adolescent, Backlog, Boston/epidemiology, Burns JP, Chi-Square Distribution, Child, Chronic Disease, Cohort Studies, Critical Illness, Developmental Disabilities/classification/epidemiology, Dumas HM, Female, Graham RJ, Hospitals, Humans, ICU Decision Making, Infant, Intensive Care Units, Journal Article, Length Of Stay/statistics & Numerical Data, Male, Nonparametric, O'Brien JE, Pediatric, Pediatric Critical Care Medicine, Pediatric/statistics & Numerical Data, Preschool, Statistics
Contrasting emotional approach coping with passive coping for chronic myofascial pain
Tags: 2002, 80 And Over, Activities of Daily Living, Adaptation, Adult, Affect, Aged, Annals Of Behavioral Medicine: A Publication Of The Society Of Behavioral Medicine, Backlog, Chronic Disease, Depression, Emotions, Facial Pain, Female, Humans, Journal Article, Longo DJ, Lumley Mark A, Male, Middle Aged, Models, Multivariate Analysis, Pennsylvania, Psychological, Regression Analysis, Reproducibility of Results, Sex Factors, Smith JA, Socioeconomic Factors
Control beliefs, coping efforts, and adjustment to chronic pain
Coping with chronic pain
Tags: 2005, Adaptation, Adult, Aged, Attitude To Health, Backlog, Chronic Disease, Depression, Dysvik Elin, Eikeland Ole-Johan, Emotions, Female, Humans, International Journal Of Nursing Studies, Journal Article, Lindstrøm TC, Male, Middle Aged, Models, Multivariate Analysis, Natvig GK, Norway, Nurse's Role, Nursing Methodology Research, Pain, Predictive Value of Tests, Problem Solving, Psychiatric Status Rating Scales, Psychological, Questionnaires, Regression Analysis, Self Concept, Social Support, Stress
Coping with Dravet syndrome: parental experiences with a catastrophic epilepsy
Tags: 2006, Adaptation, Adolescent, Adult, Backlog, Camfield CS, Camfield PR, Caregivers/psychology, Child, Chronic Disease, Developmental Medicine and Child Neurology, Epilepsy/nursing/psychology, Family Health, Female, Humans, Journal Article, Male, Middle Aged, Nolan KJ, Parent-child Relations, Parents/psychology, Preschool, Psychological, Psychological/psychology, Q3 Scoping Review Results, Seizures/nursing/psychology, Severity Of Illness Index, Social Isolation, Social Support, Stress, Syndrome
Coping, self-efficacy and psychiatric history in patients with both chronic widespread pain and chronic fatigue
Tags: 2009, Activities of Daily Living, Adaptation, Adolescent, Adult, Aged, Attitude To Health, Backlog, Buchwald D, Chronic, Chronic Disease, Comorbidity, Depressive Disorder, Emotions, Fatigue, Fatigue Syndrome, Female, Fibromyalgia, General Hospital Psychiatry, Humans, Journal Article, Major, Male, Middle Aged, Pain, Post-traumatic, Problem Solving, Psychological, Questionnaires, Regression Analysis, Self Efficacy, Severity Of Illness Index, Smith WR, Strachan ED, Stress Disorders, Young Adult
Demographic and Clinical Differences Between Applied Definitions of Medical Complexity
Differences On Psychosocial Outcomes Between Male And Female Caregivers Of Children With Life-limiting Illnesses
Tags: 2011, Adaptation Psychological, Adult, Aged, Cadell S, Caregivers/ Psychology, Child, Chronic Disease, Cost Of Illness, Differences On Psychosocial Outcomes Between Male And Female Caregivers Of Children With Life-limiting Illnesses, Fathers/ Psychology, Female, Hemsworth D, Humans, Journal of Pediatric Nursing, Male, Middle Aged, Mothers/ Psychology, Palliative Care/ Psychology, Parent-child Relations, Schneider M, Sex Factors, Steele R, Stress Psychological/psychology, Young Adult
Discontinuation of follow-up care for young people with complex chronic conditions: conceptual definitions and operational components
Efficacy and optimal dose of daily polyethylene glycol 3350 for treatment of constipation and encopresis in children
Tags: 2001, Backlog, Bishop WP, Cathartics/therapeutic use, Child, Chronic Disease, Constipation/drug therapy, Defecation/drug effects, Encopresis/drug therapy, Female, Humans, Infant, Journal Article, Male, Non-U.S. Gov't, Pashankar DS, Patient Satisfaction, Polyethylene Glycols/therapeutic use, Preschool, Research Support, The Journal Of Pediatrics
Enabling the transition to hospice through effective palliative care
Tags: 2005, Attitude To Death/ethnology, Backlog, Bomba PA, Case Management/organization & administration, Chronic Disease, Continuity of Patient Care/organization & Disease Progression, Hospice Care/organization & administration/psychology, Humans, Journal Article, Life Expectancy, Models, Needs Assessment, Organizational, Organizational Objectives, Palliative Care/organization & Professional Role, Prognosis, Quality Of Life, Referral and Consultation/organization & United States, The Case Manager
Enhancing the care of children with chronic diseases through the narratives of patient, physician, nurse and carer
Ensuring that difficult decisions are honored--even in school settings
Tags: 2005, Adolescent, Adult, Backlog, Cardiopulmonary Resuscitation/contraindications, Child, Choice Behavior, Chronic Disease, Death and Euthanasia, Decision Making, Disabled Children/legislation & jurisprudence, Emergency Medical Services/ethics/legislation & jurisprudence/standards, Humans, ICU Decision Making, Journal Article, Levetown M, Minors, Parents, Resuscitation Orders/ethics/legislation & jurisprudence, School Health Services/ethics/legislation & jurisprudence/standards, Schools/ethics/legislation & jurisprudence/standards, State Government, Students, The American Journal Of Bioethics, United States
Evaluating a novel hospital-based online health community to address palliative and psychosocial care factors for chronically ill adolescent and young adult patients
Tags: 2023, Adolescent, Adult, Article, Chronic Disease, Chronic Patient, Clinical Article, Collins S, Controlled Study, Data Analysis, Expectation, Female, Hart M, Human, Interview, Lebeau K, Male, Marchi E, May List 2023, Palliative And Supportive Care, Palliative Therapy, Personal Experience, Phenomenology, Pomeranz JL, psychosocial care, Qualitative Analysis, Questionnaire, solidarity, Walker D, Young Adult, Zori G
Evaluating the Cost-Effectiveness of Home-Based Palliative Care for Children with Special Health Care Needs: A Review Study
Exploring the Palliative Care Needs of Children in Refugee Settlements in Uganda
Tags: 2023, 2023 SE5 - Low Resource Setting, Adult, Bagasha P, Child, Chronic Disease, conference abstract, Data Analysis, Distress Syndrome, Downing J, Grant L, Howarth K, Human, Ikong H, Leng M, Maku S, McGeough K, mentor, Nabirye L, Nalutaaya F, Namukwaya E, Needs Assessment, Only Child, Opia V, Oziti G, Palliative Care, Palliative Medicine, Palliative Therapy, refugee, refugee camp, Santiago T, Smith C, Thermometer, uganda, Venkatesh C
Factors related to the quality of life in adolescents with chronic pain
Tags: 2006, Adolescent, Backlog, Child, Chronic Disease, Cross-sectional Studies, Female, Hazebroek-Kampschreur AA, Humans, Hunfeld JA, Journal Article, Koes BW, Male, Merlijn VP, Netherlands/epidemiology, Pain Measurement, Pain/diagnosis/epidemiology/psychology, Passchier J, PedPal Lit, Prognosis, Psychology, Quality Of Life, Questionnaires, Risk Assessment/methods, Risk Factors, The Clinical Journal Of Pain, van der Wouden JC
Financial effects for families after the death of a disabled or chronically ill child: a neglected dimension of bereavement
Functional electrical stimulation therapy for recovery of reaching and grasping in severe chronic pediatric stroke patients
Tags: 2014, Articular, Backlog, Bernstein J, Child, Chronic, Chronic Disease, Disability Evaluation, Electric Stimulation Therapy, Female, functional electrical stimulation therapy, grasping, Hand Strength, Humans, Journal Article, Journal of Child Neurology, Kapadia Naaz M, Male, Nagai MK, Pediatrics, Popovic MR, Psychomotor Performance, Range of Motion, Recovery of Function, Rumney P, severe, Severity Of Illness Index, Stroke, Treatment Outcome, Upper Extremity, Woodhouse J, Zivanovic V
Gabapentin Successfully Manages Chronic Unexplained Irritability in Children With Severe Neurologic Impairment
Tags: 2007, Adolescent, Adult, Amines/therapeutic use, Analgesics/therapeutic use, Backlog, Charnas L, Child, Chronic Disease, Cyclohexanecarboxylic Acids/therapeutic use, Female, gamma-Aminobutyric Acid/therapeutic use, Hauer JM, Humans, Infant, Irritable Mood/drug effects, Journal Article, Male, Nervous System Diseases/complications, Pediatrics, Preschool, Remission Induction, Retrospective Studies, Severity Of Illness Index, Wical BS
Goal-Concordance in Children with Complex Chronic Conditions
Goals of Care Among Parents of Children Receiving Palliative Care
Tags: 2023, Article, August List 2032, Beight LJ, Bogetz JF, Boyden JY, Child, Chronic Disease, Cohort Analysis, Comfort, Controlled Study, Demographics, Feudtner C, Friebert SE, Hall M, Hill DL, Hinds PS, Human, JAMA Pediatrics, Johnston EE, Kang TI, life extension, Major Clinical Study, Male, Nye RT, Palliative Care, Palliative Therapy, Patient Care Planning, Quality Of Life, Wolfe J
Good-parent beliefs of parents of seriously ill children
Tags: 2015, Acute Disease, Adaptation, Adolescent, Attitudes, Backlog, Carroll KW, Child, Child welfare, Chronic Disease, Cross-sectional Studies, Faerber JA, Female, Feudtner C, Health Knowledge, Hill DL, Hinds PS, Humans, Infant, JAMA Pediatrics, Journal Article, Kang T, Male, Miller VA, Mollen CJ, Morrison WE, Munson DA, Newborn, Parent-child Relations, Parents, Philadelphia, Practice, Preschool, Psychological, Questionnaires, Stress, Walter JK
Healthcare Utilization and Spending for Constipation in Children With Versus Without Complex Chronic Conditions
Tags: 2017, Adolescent, Ambulatory Care/ economics/utilization, Berry JG, Child, Child Preschool, Chronic Disease, Constipation/economics/ therapy, DeJong N, Delivery of Health Care/ economics, Emergency Service Hospital/utilization, Female, Hall M, Health Care Costs, Hospitalization/economics, Humans, Infant, January 2018 List, Journal Of Pediatric Gastroenterology And Nutrition, Male, Medicaid, Multiple Chronic Conditions, Patient Acceptance of Health Care, Prevalence, Retrospective Studies, Richardson T, Rodean J, Steiner MJ, Stephens JR, United States
Hidden consequences of success in pediatrics: parental health-related quality of life--results from the Care Project
Tags: 2008, Adolescent, Adult, Backlog, Caregivers, Child, Chronic Disease, Family Health, Female, Ferrer-i-Carbonell A, Grootenhuis MA, Hatzmann J, Health Care Surveys, Health Status, Heymans HS, Humans, Infant, Journal Article, Male, Middle Aged, Parents, Pediatrics, Preschool, Quality Of Life, Retrospective Studies, van Praag BM
Home care needs of paediatric palliative patients perceived by professionals: A grounded theory
Tags: 2023, Atenci—n Domiciliaria de Salud, Chronic Disease, Continuidad de la Atenci—n al Paciente, Continuity Of Patient Care, Cuidados paliativos, Enfermedad Cr—nica, Enfermeria Clinica, home care services, Home Nursing, Investigaci—n cualitativa, June 2022 List, Paediatrics, Palliative Care, Pediatr’a, Qualitative Research, Rodr’guez-Su‡rez CA, Santana-Medina J
How Do Children Die in PICUs Nowadays? A Multicenter Study From Spain
How Do Children With Medical Complexity Die? A Scoping Review
Tags: 2024, April List 2024, biological marker, Bourassa MH, Chan Ng GM, Child, Child Death, Chronic Disease, Chronic Patient, Clinical Practice, Cohort Analysis, Health Care Utilization, Human, Journal of Palliative Medicine, knowledge gap, North America, Only Child, Patel H, Personal Experience, Place Of Death, Qualitative Research, Quality Of Life, Review, Systematic Review
How do teens view the physical and social impact of asthma compared to other chronic diseases?
I am not the kind of woman who complains of everything': illness stories on self and shame in women with chronic pain
Impact of a chronic illness in childhood: siblings' perceptions
Tags: 1996, Adolescent, Attitude To Health, Backlog, Child, Chronic Disease, Cystic Fibrosis, Derouin D, Female, Humans, Issues In Comprehensive Pediatric Nursing, Jessee PO, Journal Article, Male, Nursing Methodology Research, Pediatric Nursing, Questionnaires, sibling bereavement, Sibling Relations
Impact of COVID-19 on Admissions and Outcomes for Children With Complex Chronic Conditions
Implementation of an Innovative Palliative Care Screening Tool in the Pediatric Intensive Care Unit: A Pilot Study
Tags: 2023, Article, Child, Chronic Disease, Comorbidity, Congenital Malformation, Controlled Study, Deeter DM, Eckman ST, Even KM, February List 2024, Female, Freeman MC, Hodge CH, Human, Intensive Care, Journal of Palliative Medicine, Kerris EW, Major Clinical Study, Male, Palliative Therapy, Pediatric Intensive Care Unit, Pilot Study, Prospective Study, tertiary health care
Initial experiences with medicinal extracts of cannabis for chronic pain: results from 34 'N of 1' studies
Tags: 2004, Administration, Adult, Aged, Anaesthesia, Analgesics, Backlog, Cannabidiol/adverse effects/therapeutic use, Chronic Disease, Cross-Over Studies, Depressive Disorder/drug therapy, Double-Blind Method, Drug Combinations, Female, Humans, Journal Article, Male, Middle Aged, Miller R, Multiple Sclerosis/drug therapy, Newport S, Non-Narcotic/adverse effects/therapeutic use, Notcutt W, Pain Measurement/methods, Pain/drug Therapy, Patient Selection, Phillips C, Price M, Sansom C, Simmons S, Sleep/drug effects, Sublingual, Tetrahydrocannabinol/adverse effects/therapeutic use, Treatment Outcome
Is there any evidence to support the use of anti-depressants in painful rheumatological conditions? Systematic review of pharmacological and clinical studies
Tags: 2008, Antidepressive Agents/therapeutic use, Arthritis/complications/drug therapy, Backlog, CEDR (Cercle d'Etude de la Douleur en Rhumatologie France) Pain Study Section French Rheumatological Society, Chronic Disease, Evidence-based Medicine, Fibromyalgia/drug therapy, Humans, Javier RM, Journal Article, Laroche F, Le Jeunne C, Low Back Pain/drug therapy, Marty M, Pain/drug therapy/etiology, Perrot S, Randomized Controlled Trials as Topic, Rheumatic Diseases/complications/drug therapy, Rheumatology
Ketamine in chronic pain management: an evidence-based review
Life-Limiting Conditions at a University Pediatric Tertiary Care Center: A Cross-Sectional Study
Low prevalence of palliative care and ethics consultations for children with chronic critical illness
Tags: 2018, Acta Paediatrica, International Journal of Paediatrics, Article, Artificial Ventilation, Boss RD, childhood disease th [Therapy], Chronic Disease, Consultation, Critical Illness, Donohue PK, Ethics, Falck A, Goloff N, Hospital Admission, Human, Hutton N, Intensive Care Unit, Length Of Stay, Miles A, November 2018 List, Palliative Therapy, Prevalence, Priority Journal, Shapiro M, Tracheostomy, Weiss EM