Enhancing the care of children with chronic diseases through the narratives of patient, physician, nurse and carer

Title

Enhancing the care of children with chronic diseases through the narratives of patient, physician, nurse and carer

Creator

Continisio GI; Nunziata F; Coppola C; Bruzzese D; Spagnuolo MI; Guarino A

Identifier

Publisher

Scandinavian Journal of Psychology

Date

2020

Subject

children; chronic disease; qualitative research; bio-psycho-social model; Narrative medicine

Description

We tested the hypothesis that a narrative approach may enhance a bio-psycho-social model (BPS) in caring for chronically ill children. Forty-eight narratives were collected from 12 children with six different medical conditions, their mothers, physicians, and nurses. By a textual analysis, narratives were classified on their predominant focus as disease (biological focus), illness (psychologic focus), or sickness (social focus). Sixty-one percent of narrative' text were classified as illness, 28% as disease and 11% as sickness. All narratives had a degree of illness focus. Narratives by patients and physicians on the one hand, and nurses' and mothers' on the other were disease focused. Narratives were also evaluated with respect to the type of medical condition: Illness was largely prevalent in all but Crohn's disease and HIV infection, the latter having a predominance of sickness most probably related to stigma. Narrative exploration proved a valuable tool for understanding and addressing the needs of children with complex conditions. Narrative approaches allow identification of the major needs of different patients according to health conditions and story tellers. In the narratives, we found a greater illness and disease focus and surprisingly a low sickness focus, except with HIV stories. Narrative medicine provides a tool to strengthen the BPS model in health care.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

January 2021 List

Collection

Citation

Continisio GI; Nunziata F; Coppola C; Bruzzese D; Spagnuolo MI; Guarino A, “Enhancing the care of children with chronic diseases through the narratives of patient, physician, nurse and carer,” Pediatric Palliative Care Library, accessed November 27, 2021, https://pedpalascnetlibrary.omeka.net/items/show/17306.

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