Financial effects for families after the death of a disabled or chronically ill child: a neglected dimension of bereavement

Title

Financial effects for families after the death of a disabled or chronically ill child: a neglected dimension of bereavement

Creator

Corden A; Sloper P; Sainsbury R

Publisher

Child: Care, Health And Development

Date

2002

Subject

Child; Humans; Family; Income; bereavement; Chronic disease; Parent caregivers; disabled children; Employment

Description

AIM: To investigate the financial circumstances of families whose child had died after a long-term illness and the factors contributing to financial difficulties. RESEARCH METHODS: Qualitative exploration involved semi-structured interviews with a purposive sample of 16 families whose child had died in the last 2 years and who were in touch with a children's hospice. RESULTS: All parents were affected by loss of or reduction in social security benefits. This could result in an immediate drop in income of as much as 72%. Paying for funerals and headstones could be hard. Financial problems after the child's death often had origins in the period of care, when parents had reduced incomes but faced extra costs of care. Some families had got into debt. Re-engaging with employment could be a slow process, and it was not clear where professional responsibility lay in providing financial advice and support. Insensitive treatment by administrative agencies increased problems for parents. DISCUSSION: Findings provide further evidence of the financial impact for families of caring for severely disabled children. This study shows how this impact can extend far into the period after death. Findings indicate the need for financial advice and support to families both during the period of care and after bereavement.
2002

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Type

Journal Article

Citation List Month

Backlog

Citation

Corden A; Sloper P; Sainsbury R, “Financial effects for families after the death of a disabled or chronically ill child: a neglected dimension of bereavement,” Pediatric Palliative Care Library, accessed July 13, 2024, https://pedpalascnetlibrary.omeka.net/items/show/12955.