Browse Items (111 total)
- Tags: Cross-sectional Studies
Pediatric nurses' individual and group assessments of palliative, end-of-life, and bereavement care
Tags: 2011, Attitude Of Health Personnel, Backlog, Bereavement, Cross-sectional Studies, Feinstein JA, Female, Feudtner C, Hexem KR, Hospital/psychology, Hospitals, Humans, Journal Article, Journal of Palliative Medicine, Kang T, Male, Nurses/psychology, Nursing Staff, Palliative Care, Pediatric, Santucci G, Terminal Care, Tubbs-Cooley HL
Pediatric advance directives: parents' knowledge, experience, and preferences
Tags: 2014, Adolescent, Adult, Advance Care Planning, Advance Directives, Advance Directives/px [Psychology], Attitude, Attitude To Health, Backlog, Child, Chronic Disease, Cross-sectional Studies, Decision Making, DNAR, End Of Life, Female, Health Services Needs And Demand, Hispanic Americans/sn [Statistics & Numerical Data], Humans, Infant, Journal Article, Liberman DB, Logistic Models, Male, Nager AL, Palliative Care, Parents, Parents/px [psychology], Pediatrics, Pham PK, Preschool, Prospective Studies, Socioeconomic Factors, Special-needs Children
Patient and Family Participation in Medication Decisions on Discharge to Hospice Care
Parents' experiences of pediatric palliative care and the impact on long-term parental grief.
Tags: 2014, Adult, Backlog, Cancer, Children, Communication, Continuity Of Patient Care, Cross-sectional Studies, Darlington Anne-Sophie E, Female, Grief, Humans, Journal Article, Journal of Pain and Symptom Management, Male, Michiels EMC, Middle Aged, Multivariate Analysis, Neoplasms/therapy, Palliative Care, Palliative Care/psychology, Parental Grief, Parents/psychology, Pediatrics, Pieters R, Retrospective Studies, Streng IC, Surveys And Questionnaires, Symptom Management, van den Heuvel-Eibrink MM, van der Geest IMM
Parent reports of quality of life for pediatric patients with cancer with no realistic chance of cure
Parent perceptions of the quality of information received about a child's cancer
Parent engagement in perinatal mortality reviews: an online survey of clinicians from six high-income countries
Tags: 2021, April 2021 List, Bakhbakhi D, Bereavement Care, Bjog, Boyle FM, Burden C, Cross-sectional Studies, Developed Countries, Female, Flenady V, Health Care Surveys, Horey D, Humans, Infant Newborn, Male, Medical Audit/methods, parent engagement, Parents, Patient Participation, Patient Safety, Perinatal Mortality, perinatal mortality review, Siassakos D, Silver RM, Stillbirth
Pain in children with cerebral palsy: a cross-sectional multicentre European study.
Tags: 2010, Acta Paediatrica, Age Factors, Backlog, Cerebral Palsy/co [Complications], Child, Colver A, Cross-sectional Studies, Dickinson HO, Europe/epidemiology, Gibson L, Humans, Journal Article, Pain/ep [Epidemiology], Pain/et [Etiology], Parent-child Relations, Prevalence, Questionnaires, Regression Analysis, Severity Of Illness Index
Paediatric fever management: continuing education for clinical nurses
Tags: 2006, Analgesics, Attitude Of Health Personnel, Attitudes, Backlog, Certification, Child, Clinical Competence/standards, Continuing/organization & administration, Courtney MD, Cross-sectional Studies, Education, Educational Status, Edwards HE, Evidence-Based Medicine/education, Female, Fever/nursing/prevention & control, Health Knowledge, Health Services Needs And Demand, Hospital/education/psychology, Hospitals, Humans, Journal Article, Male, Monaghan SJ, Negativism, Non-Narcotic/therapeutic use, Nurse Education Today, Nurse's Role, Nursing, Nursing Process, Nursing Staff, Pediatric, Pediatric Nursing/education, PedPal Lit, Practice, Questionnaires, Time Factors, Urban, Walsh AM, Wilson JE
Opioid switch to oral methadone in cancer pain
Tags: 2000, Administration, Analgesics, Backlog, Body JJ, Combined Modality Therapy, Cross-sectional Studies, Current Opinion In Oncology, Dose-Response Relationship, Drug, Humans, Journal Article, Lossignol DA, Mancini I, Methadone/administration & dosage/therapeutic use, Morphine/administration & dosage/therapeutic use, N-Methyl-D-Aspartate/antagonists & inhibitors, Neoplasms/complications, Opioid/administration & dosage/therapeutic use, Oral, Pain/drug therapy/etiology, Receptors
Opinions of members of the National Civil (Family Proceedings) and Criminal Courts in withholding or withdrawing of life support situations in pediatrics
Tags: 2016, Archivos Argentinos De Pediatria, Argentina, Attitude To Death, Child, Ciruzzi MS, Cross-sectional Studies, Decision-making, Ethics, Garcia HO, Health Care Surveys, Humans, Ledesma F, Legislation And Jurisprudence, Life Support Care/ legislation & jurisprudence, March 2018 List, Menendez C, Pediatric Intensive Care Unit, Pediatrics/ legislation & jurisprudence, Roitman AJ, Selandari JO, Withholding Treatment, Withholding Treatment/ legislation & jurisprudence
Ocular characteristics in 10 children with long-chain 3-hydroxyacyl-CoA dehydrogenase deficiency: a cross-sectional study with long-term follow-up
Tags: 2008, 3-Hydroxyacyl CoA Dehydrogenases/deficiency, Acta Ophthalmologica, Alm J, Atrophy, Backlog, Child, Choroid Diseases/etiology/pathology, Cross-sectional Studies, Disease Progression, Electroretinography, Eye Diseases/diagnosis/etiology/physiopathology, Fahnehjelm KT, Female, Follow-up Studies, Haglind CB, Halldin M, Holmstrom G, Humans, Hypoglycemia/complications, Inborn Errors/complications/genetics, Infant, Journal Article, Male, Metabolism, Mutation, Myopia/etiology/physiopathology, Nemeth A, Nordenstrom A, Preschool, Q3 Scoping Review Results, Retinal Diseases/etiology/pathology, Severity Of Illness Index, Vision Disorders/etiology/physiopathology, Visual Acuity, von Dobeln U, Ying L
Neuropathic cancer pain: prevalence, severity, analgesics and impact from the European Palliative Care Research Collaborative-Computerised Symptom Assessment study
Tags: (EPCRC) European Palliative Care Research Collaborative, 2013, 80 And Over, Aass N, Adolescent, Adult, Aged, Analgesics, Backlog, Bennett MI, Caraceni A, Cross-sectional Studies, Fainsinger R, Female, Heitzer E, Hjermstad MJ, Humans, Journal Article, Kaasa S, Life Expectancy, Male, Middle Aged, Neoplasm Metastasis, Neoplasms, Neuralgia, Pain Measurement, Palliative Medicine, Prevalence, Quality Of Life, Rayment C, Strasser F, Symptom Assessment, Young Adult
Neuroimaging-use trends in nonacute pediatric headache before and after clinical practice parameters
Tags: 2008, Adolescent, Alexander JJ, Backlog, Child, Cross-sectional Studies, Female, Graf WD, Headache/diagnosis, Humans, Journal Article, Kayyali HR, Magnetic Resonance Imaging/utilization, Male, Morriss MC, Pediatrics, Physician's Practice Patterns/statistics & numerical data, Preschool, Retrospective Studies, Simon SD, Tomography, X-Ray Computed/utilization
Neonatal Palliative Care: Assessing the Nurses Educational Needs for Terminally Ill Patients
Multidisciplinary Health Care Professionals' Perceptions About Pediatric End of Life Discussions: A Cross-Sectional Survey and Needs Analysis
Moving on from paediatric to adult health care: an initial evaluation of a transition program for young people with cystic fibrosis
Tags: 2007, Adolescent, Adolescent Health Services, Adolescent Transitions, Adult, Age Factors, Backlog, Bibby H, Chronic Disease, Continuity Of Patient Care/organization & Administration, Craig SL, Cross-sectional Studies, Cystic Fibrosis/psychology/therapy, Female, Humans, International Journal Of Adolescent Medicine And Health, Journal Article, Male, Middle Aged, Patient Satisfaction, Program Development, Program Evaluation, Quality Of Life, Questionnaires, Sickness Impact Profile, Time Factors, Towns S
Mothers' recollections of the Paediatric Intensive Care Unit: associations with psychopathology and views on follow up
Tags: 2006, Acute/diagnosis/prevention & control/psychology, Adult, Aftercare/organization & administration/psychology, Attitude To Health, Backlog, Child, Colville GA, Communication, Cross-sectional Studies, Female, Gracey D, Health Services Needs And Demand, Hospitalized, Humans, ICU Decision Making, Infant, Intensive and Critical Care Nursing, Intensive Care Units, Journal Article, Male, Mass Screening, Mothers/psychology, Nursing Methodology Research, Pediatric/organization & Administration, Preschool, Professional-family Relations, Psychiatric Status Rating Scales, Questionnaires, Retrospective Studies, Risk Factors, Severity Of Illness Index, Social Support, Stress Disorders, Traumatic
Moral Distress of Clinicians in Canadian Pediatric and Neonatal ICUs
Tags: 2020, Canada, Child, Cross-sectional Studies, Dryden-Palmer K, Humans, Infant Newborn, Intensive Care Units Neonatal, Janvier A, Larson CP, March 2021 List, McNeil C, Moore G, Morals, Parshuram CS, Pediatric Critical Care Medicine, Roumeliotis N, Stress Psychological/diagnosis/epidemiology, Surveys And Questionnaires, Tomlinson G
Missing clinical information during primary care visits
Tags: 2005, Araya-Guerra R, Backlog, Bublitz C, Communication, Cross-sectional Studies, Dickinson LM, Family Practice/organization & administration, Humans, JAMA, Journal Article, Medical Records, Pace WD, Parnes B, Primary Health Care/organization & administration, Smith PC, United States, Van Vorst R, Westfall JM
Mental Health Services for Parents Who Lost a Child to Cancer: If We Build Them, Will They Come?
Tags: 2015, Adaptation, Adolescent, Adult, Age Factors, Backlog, Baser RE, Breitbart W, Cause Of Death, Child, Corner GW, Cross-sectional Studies, Female, Grief, Health Services Accessibility, Humans, Infant, Journal Article, Journal Of Clinical Oncology, Kissane DW, Li Y, Lichtenthal WG, Male, Mental Health Services, Middle Aged, Minority Groups, Neoplasms, Parents, Patient Acceptance of Health Care, Preschool, Prigerson HG, Psychological, Psychotherapy, Psychotropic Drugs, Roberts KE, Self Report, Self-Help Groups, Sweeney CR, Time Factors, United States, Wiener L, Young Adult
Mechanical Ventilation In Children With Life-limiting Conditions
Tags: 2016, Adult, Artificial Ventilation, Cancer Epidemiology, Cantero EQ, Carro CC, Cerebral Palsy, Child, Chromosome Disorder, Cognitive Defect, Controlled Study, Cross-sectional Studies, Cross-sectional Study, Death, European Respiratory Journal, Follow Up, Gaboli M, Garrido MM, Human, Lung Disease, Major Clinical Study, May 2017 List, Mucopolysaccharidosis, Neuromuscular Disease, Only Child, Palliative Care, Palliative Therapy, Pecellin ID, Quality Of Life, Respiration Artificial, Respiratory Insufficiency, Rodriguez LMR, Spain, University Hospital, Valencia JPG, Ventilators Mechanical, Young Adult
Long term posttraumatic growth after breast cancer: prevalence, predictors and relationships with psychological health
Tags: 2010, Adaptation, Adult, Aged, Attitude To Health, Backlog, Bonnaud-Antignac A, Breast Neoplasms/epidemiology/psychology, Cross-sectional Studies, Disease-Free Survival, Female, Florin A, Follow-up Studies, Humans, Journal Article, Journal Of Clinical Psychology In Medical Settings, Lelorain S, Middle Aged, Post-Traumatic/diagnosis/epidemiology/psychology, Predictive Value of Tests, Prevalence, Psychological, Quality Of Life/psychology, Retrospective Studies, Stress Disorders
Listening To Parents: The Role Of Symptom Perception In Pediatric Palliative Home Care
This study analyzes symptom perception by parents and healthcare professionals and the quality of symptom management in a pediatric palliative home care setting and identifies which factors contribute to a high quality of palliative and…
Tags: 2016, Adult, Borasio GD, Brandstatter M, Cross-sectional Studies, Death, Duroux A, Dyspnea/diagnosis, Dyspnea/psychology, End-of-life Symptoms, Female, Führer M, Grasser M, Home Care Services/standards, Humans, Male, November 2016 List, Pain/diagnosis, Pain/psychology, Palliative & Supportive Care, Palliative Care/methods, Palliative Care/psychology, Parents/psychology, Pediatric Palliative Home Care, Pediatrics/methods, Perception, Quality Of Life/psychology, Retrospective Studies, Surveys And Questionnaires, Symptom Assessment/psychology, Symptom Perception, Vollenbroich R
Limitation of Futile Therapy in the Opinion of Nursing Staff Employed in Polish Hospitals-Results of a Cross-Sectional Study
Tags: 2022, Adult, Attitude Of Health Personnel, Cesarean Section, Child, Cross-sectional Studies, Damps M, Gajda M, Human, International Journal of Environmental Research and Public Health, Kowalska M, Kucewicz-Czech E, March List 2023, Medical Futility, Nursing Staff, Poland, Quality Of Life, Surveys And Questionnaires
Level of purposeful hand function as a marker of clinical severity in Rett syndrome
Tags: 2010, Adolescent, Adult, Age Factors, Bebbington A, characteristics, Child, Child Preschool, Cross-sectional Studies, Databases as Topic, Developmental Medicine and Child Neurology, Downs J, Female, Genotype, Ghosh S, Hand, Humans, Jacoby P, Kaufmann W E, Leonard H, Methyl-CpG-Binding Protein 2, Motor Activity, Mutation, Phenotype, Registries, Rett syndrome, Severity Of Illness Index, tone and motor problems, Trajectory, Video Recording, Walking, Williams A, Young Adult
Incidental neuroimaging findings in nonacute headache
Tags: 2010, Abdelmoity AT, Adolescent, Backlog, Child, Cohort Studies, Comorbidity, Cross-sectional Studies, Female, Graf WD, Headache Disorders/epidemiology/pathology/radiography, Humans, Incidental Findings, Journal Article, Journal of Child Neurology, Kayyali HR, Male, Morriss MC, Nervous System Malformations/epidemiology/pathology/radiography, Preschool, Retrospective Studies, Williams AR, Womelduff GL
Impact of holding the baby following stillbirth on maternal mental health and well-being: findings from a national survey
Tags: 2016, Adolescent, Adult, Anxiety/epidemiology, Bereavement, Bmj Open, care practice, Cross-sectional Studies, Depression/epidemiology, England, Family Conflict/psychology, February 2018 List, Female, Gestational Age, Health Surveys, Henderson J, Hennegan JM, hold, Humans, Infant, infant contact, Mother-Child Relations/ psychology, Mothers/ Psychology, Newborn, Post-traumatic, Post-Traumatic/epidemiology, Postpartum Period/ psychology, Pregnancy, Qualitative Research, Redshaw M, Self Report, Self-Fertilization, Stillbirth, Stillbirth/ psychology, Stress Disorders, touch, Young Adult
Impact of COVID-19 on Admissions and Outcomes for Children With Complex Chronic Conditions
Identifying the Know-Do Gap in Evidence-Based Neonatal Care Practices among Informal Health Care Providers-A Cross-Sectional Study from Ujjain, India
Tags: 2020, 2021 Special Edition 1 - Low Resource Settings, Adult, Baghel SS, BMC Health Services Research, Clinical Competence, Cross-sectional Studies, Diwan V, Evidence-based Practice, Health Personnel/psychology/statistics & numerical data, Humans, India, Infant Care, Infant Newborn, Informal healthcare providers, Knowledge, Lundborg CS, Middle Aged, Mungai IG, Neonatal Care, Pathak A, Sharma M, Soni S, Tamhankar AJ, Vagela S
Hospitalizations for mitochondrial disease across the lifespan in the U.S
Tags: 2017, Adolescent, Adult, Child, Cost Of Illness, Cross-sectional Studies, Cunningham ZZ, Damrauer SM, Databases, Factual, Falk MJ, Female, Ganetzky RD, Goldstein A, Health Services Research, Hospital Mortality, Hospitalization/ec [Economics], Hospitalization/sn [Statistics & Numerical Data], Humans, Infant, Karlsson M, Kilbaugh TJ, Longitudinal Studies, Male, McCormack SE, Middle Aged, Mitochondrial Diseases/ec [Economics], Mitochondrial Diseases/ep [Epidemiology], Mitochondrial Diseases/mo [Mortality], Molecular Genetics and Metabolism, Preschool, September 2018 List, United States/ep [Epidemiology], Xiao Rui, Young Adult
Good-parent beliefs of parents of seriously ill children
Tags: 2015, Acute Disease, Adaptation, Adolescent, Attitudes, Backlog, Carroll KW, Child, Child welfare, Chronic Disease, Cross-sectional Studies, Faerber JA, Female, Feudtner C, Health Knowledge, Hill DL, Hinds PS, Humans, Infant, JAMA Pediatrics, Journal Article, Kang T, Male, Miller VA, Mollen CJ, Morrison WE, Munson DA, Newborn, Parent-child Relations, Parents, Philadelphia, Practice, Preschool, Psychological, Questionnaires, Stress, Walter JK
Gender differences in violence exposure among university students attending campus health clinics in the United States and Canada
Tags: 2009, Adolescent, Backlog, Brown D, Canada, Cross-sectional Studies, Female, Fleming MF, Humans, Journal Article, Male, Midwestern United States, Mundt MP, Pacific States, Plane M, Saewyc EM, Sex Factors, Student Health Services, Students/psychology, The Journal Of Adolescent Health : Official Publication Of The Society For Adolescent Medicine, Violence/psychology, Wiegel J, Young Adult, Zakletskaia L
Gender differences in burden and depression among informal caregivers of demented elders in the community
Tags: 2002, Adult, Aged, Alzheimer Disease/psychology, Backlog, Baumgarten M, Canada, Caregivers/psychology, Cost Of Illness, Cross-sectional Studies, Depressive Disorder/diagnosis/epidemiology/psychology, Female, Gallicchio L, Gender Identity, Humans, International Journal Of Geriatric Psychiatry, Journal Article, Langenberg P, Male, Middle Aged, Non-U.S. Gov't, Research Support, Siddiqi N
Frequency and determinants of formal respite service use among caregivers of children with cerebral palsy in Ontario
Tags: 2004, Adult, Attitude To Health, Backlog, Caregivers, Cerebral Palsy/complications/rehabilitation, Child, Child: Care, Health and Development, Cross-sectional Studies, Damiani G, Female, Health Services Accessibility, Humans, Journal Article, Male, Non-U.S. Gov't, Patient Acceptance of Health Care, Quality Of Health Care, Research Support, Respite Care, Rosenbaum P, Russell D, Sex Factors, Social Support, Socioeconomic Factors, Swinton M
Forgoing life-sustaining treatments: how the decision is made in French pediatric intensive care units
Tags: 2001, Adolescent, Backlog, Child, Critical Care Medicine, Cross-sectional Studies, Death and Euthanasia, Decision Making, Devictor DJ, Empirical Approach, Female, France, Groupe Francophone de Reanimationet d'Urgences Pediatriques, Humans, ICU Decision Making, Infant, Intensive Care Units, Journal Article, Life Support Care, Male, Newborn, Nguyen DT, Patient Care Team, Pediatric, Practice Guidelines, Preschool, Professional Patient Relationship, Professional-family Relations, Prospective Studies
Follow-up in children with Joubert syndrome
Tags: 1997, Adolescent, Adult, Ataxia/diagnosis/genetics/physiopathology, Backlog, Boltshauser E, Cerebellum/abnormalities, Child, Cross-sectional Studies, Developmental Disabilities/diagnosis/genetics/physiopathology, Disease Progression, Disease Specific, Facies, Female, Follow-up Studies, Humans, Infant, Journal Article, Kidney Diseases/complications, Landau K, Male, Mental Retardation/complications, Mesencephalon/abnormalities, Muscle Hypotonia/diagnosis/genetics/physiopathology, Neuropediatrics, Newborn, Ocular Motility Disorders/complications, Preschool, Respiration Disorders/complications, Retrospective Studies, Schmid M, Steinlin M, Survivors/classification, Syndrome
Family support in pediatric palliative care: how are families impacted by their children's illnesses?
Tags: 2010, Adaptation, Adolescent, Adult, Backlog, Child, Cross-sectional Studies, Curtis CM, Female, Florida, Health Care Surveys, Humans, Infant, Journal Article, Journal of Palliative Medicine, Knapp CA, Madden VL, Male, Multivariate Analysis, Palliative Care/organization & Administration, Parent-child Relations, Pediatrics/organization & Administration, Preschool, Professional-family Relations, Program Evaluation, Psychological, Psychometrics, Quality Of Life, Regression Analysis, Shenkman EA, Sloyer P, Social Support, Telephone, Young Adult
Family satisfaction with family conferences about end-of-life care in the intensive care unit: increased proportion of family speech is associated with increased satisfaction
Tags: 2004, Backlog, Communication, Consumer Satisfaction, Critical Care, Critical Care Medicine, Cross-sectional Studies, Curtis JR, Elliott TB, Engelberg RA, Family/psychology, Female, Hospital Mortality, Humans, Intensive Care Units, Journal Article, Male, McDonagh JR, Middle Aged, Patrick DL, Questionnaires, Rubenfeld GD, Shannon SE, Terminal Care/psychology, Treece PD, Washington
Family function in families of children with Duchenne muscular dystrophy
Tags: 2007, Adaptation, Adult, Age Factors, Backlog, Caregivers/psychology, Chen JY, Child, Clark MJ, Cost Of Illness, Cross-sectional Studies, Disabled Children, Duchenne/economics/physiopathology, Family & Community Health, Family Health, Family Relations, Female, Humans, Journal Article, Male, Middle Aged, Muscular Dystrophy, Parents/psychology, Preschool, Psychological, Questionnaires, Sickness Impact Profile, Social Support, Socioeconomic Factors, Stress, Taiwan