Browse Items (221 total)
- Tags: Young Adult
Spirituality in patients with advanced illness: The role of symptom control, resilience and social network
Tags: 2016, Adolescent, Adult, Aged, Barreto P, Clinical Trial, Cross Sectional Study, Cross-sectional Studies, Emotion, February 2018 List, Female, Fombuena M, Galiana L, Human, Journal Of Health Psychology, Male, Middle Aged, Multicenter Study, Oliver A, Palliative Therapy, Pascual A, Psychological Resilience, Psychology, Religion, Social Support, Soto-Rubio A, Terminal Care, terminally Ill Patient, Very Elderly, Young Adult
Social media use in adolescents and young adults with serious illnesses: an integrative review
Sleep in individuals with Cri du Chat syndrome: a comparative study
Tags: 2009, Adolescent, Adult, Braam W, characteristics, Child, Child Preschool, Cri-du-chat, Cri-du-Chat Syndrome/ep [Epidemiology], Cri-du-Chat Syndrome/ge [Genetics], Curfs L M, Didden R, Female, Genetic Testing, Humans, Infant, Infant Newborn, Journal Of Intellectual Disability Research, Korzilius H, Maas A P, Male, Middle Aged, Prevalence, Severity Of Illness Index, sleep disturbance/disorders, Sleep Wake Disorders/di [Diagnosis], Sleep Wake Disorders/ep [Epidemiology], Smits M G, Statistics Nonparametric, Surveys And Questionnaires, Trajectory, Young Adult
Sleep disturbances in children, adolescents, and young adults with severe psychomotor impairment: impact on parental quality of life and sleep
Tags: 2014, Adolescent, Adult, Backlog, Blankenburg M, Caregivers, Child, Developmental Medicine and Child Neurology, Female, Health Status, Humans, Infant, Journal Article, Male, Michel E, Newborn, Parents, Preschool, Psychomotor Disorders, Quality Of Life, Questionnaires, Retrospective Studies, Sleep Disorders, Tietze AL, Young Adult, Zernikow B
Siblings Caring for and about Pediatric Palliative Care Patients
Tags: 2013, Adolescent, Anticipation, Backlog, Caregivers, Child, Communication, Female, Gaab EM, Grief, Humans, Journal Article, Journal of Palliative Medicine, Macleod RD, Male, New Zealand, Owens GR, Palliative Care, Preschool, Psychological, Qualitative Research, Siblings, Terminally Ill, Young Adult
Sibling Mortality Burden in Low-Income Countries: A Descriptive Analysis of Sibling Death in Africa, Asia, and Latin America and the Caribbean
Tags: 2020, 2021 Special Edition 1 - Low Resource Settings, Adolescent, Adult, Asia, Caribbean Region, Child, Child Preschool, Cost Of Illness, Developing Countries, Female, Global Health, Humans, Infant, Infant Newborn, Latin America, Male, Middle Aged, Mortality/trends, PLoS One, Poverty, Siblings, Smith-Greenaway E, Socioeconomic Factors, Weitzman A, West Indies, Young Adult
Shutting the World Out': An Interpretative Phenomenological Analysis Exploring the Paternal Experience of Parenting a Young Adult with a Developmental Disability.
Tags: *Adult Children, *Developmental Disabilities, *Fathers/px [Psychology], *Parenting/px [Psychology], 2018, 2023 SE4 - Parent Perspectives, Adult, Eatough, Virginia, Humans, Journal Of Applied Research In Intellectual Disabilities, Male, Middle Aged, Qualitative Research, Thackeray, Lisa A, Young Adult
Short Break And Emergency Respite Care: What Options For Young People With Life-limiting Conditions?
Service providers face difficult decisions about how best to develop services for the increasing numbers of young people with life-limiting conditions who require palliative care.
OBJECTIVE:
To explore alternative short break and…
Tags: 2016, Adolescent, Adult, Emergency Medical Services, Focus Groups, Humans, International Journal of Palliative Nursing, Interviews As Topic, Jack BA, Knighting K, Life-limiting Conditions, May 2016 List, Mitchell TK, O’Brien MR, Palliative Care, Respite Care, Short Breaks, Terminally Ill, Transition, Young Adult, Young People
Sharing care at the End of life for adolescent patients with neuro-disability: A case series
Tags: 2023, Adolescent, Adult, ADULTHOOD, Aspey H, August List 2031, Bereavement Support, BMJ Supportive and Palliative Care, Bond E, Case Study, Child, Clinical Article, Community Health Nursing, conference abstract, Deterioration, Elverson J, family support, Female, groups by age, health hazard, Hoskins R, Hospital Admission, hospital discharge, Human, Learning, Mackerness C, Male, Neurodisability, Palliative Therapy, Patient Care, Shiell A, Terminal Care, Young Adult
Shared Spiritual Beliefs between Adolescents with Cancer and Their Families
Tags: 2020, 2021 Special Edition - Oncology, Adolescent, Adolescent Behavior, Adolescents, Adult, Advance Care Planning/statistics & Numerical Data, Baker JN, Cancer, Cheng YI, congruence, Cross-sectional Studies, Decision Making, Family, Family/psychology, Female, Follow-up Studies, Friebert S, funding from the American Cancer Society to adapt/translate this protocol into, Humans, Livingston J, Longitudinal Studies, Lyon ME, Male, Neoplasms/psychology/therapy, Pediatric Blood & Cancer, Prognosis, Quality Of Life, Religion and Medicine, Single-Blind Method, Spanish. There are no other conflicts of interest to disclose., Spirituality, study from the National Institutes of Health. Maureen E. Lyon is also receiving, Thompkins J, Tweddle M, Wang J, Young Adult
Self-requested euthanasia for children in Belgium
Tags: 2014, Active, Adolescent, Backlog, Belgium, Choice Behavior, Dan B, de Cléty Stéphan Clément, Decision Making, Europe, Euthanasia, Fonteyne C, Humans, Journal Article, Lancet, Mental Competency, Minors, Palliative Care, Patient Rights, Personal Autonomy, Quality Of Life, Voluntary, Wedge Argument, Young Adult
Self-portraits of families with young adult cancer survivors: using photovoice
Tags: 2010, Adolescent, Backlog, Ethnic Groups/statistics & numerical data, Family/psychology, Female, Humans, Journal Article, Journal Of Psychosocial Oncology, Male, Narration, Neoplasms/ethnology/psychology, Photography, Psychology, Quality Of Life/psychology, Questionnaires, Self Concept, Semantics, Socioeconomic Factors, Survivors/psychology, Voice, Yi J, Young Adult, Zebrack B
Safety and pharmacokinetics of medical cannabis preparation in a monocentric series of young patients with drug resistant epilepsy
Tags: 2020, Adolescent, Adult, Astuni P, Barco S, Calevo MG, Cangemi G, Cannabidiol (CBD), Child, Child Preschool, childhood, Complementary Therapies in Medicine, De Grandis E, Delta-9-tetrahydrocannabinol (THC), Dose-Response Relationship Drug, Drug Resistant Epilepsy/drug therapy, Drug-resistant epilepsy, Female, Fucile C, Gherzi M, Humans, January 2021 List, Male, Mancardi MM, Manfredini L, Marini V, Mattioli F, Medical cannabis galenic preparation, Medical Marijuana/administration & dosage/adverse effects/pharmacokinetics, Milano G, Nobili L, Prospective Studies, Young Adult
Role of palliative care in adolescent and young adult oncology
Risk Stratification For Opioid Misuse In Children, Adolescents, And Young Adults: A Quality Improvement Project
The Pediatric Palliative and Comfort Care Team (PACT) at Cincinnati Children's Hospital Medical Center (CCHMC) provides opioids to a large population of patients in the ambulatory setting. Before this project, PACT had no reliable system…
Rising national prevalence of life-limiting conditions in children in England.
Tags: 2012, Adolescent, Adult, Aldridge J, Backlog, Child, Critical Illness/epidemiology, England/epidemiology, Female, Fraser LK, Hain R, Humans, Infant, Journal Article, Male, McKinney PA, Miller M, Newborn, Norman P, Palliative Care, Parslow RC, Pediatrics, Preschool, Prevalence, Retrospective Studies, Terminally Ill/statistics & numerical data, Young Adult
Responsiveness of the motor function measure in neuromuscular diseases
Tags: 2012, Adolescent, Adult, Aged, Archives Of Physical Medicine And Rehabilitation, Berard C, Child, Disability Evaluation, Ecochard R, Female, Fermanian J, Girardot F, Humans, Iwaz J, Male, MFM, Middle Aged, Mobility Limitation, motor function measure, Motor Skills, Muscular Dystrophy Duchenne/physiopathology/rehabilitation, Neuromuscular Diseases/physiopathology/rehabilitation, Payan C, Perception, Physical Therapy Modalities, Prospective Studies, Q3 conditions, scale development, SMA1, tone and motor problems, tool development, Vuillerot C, Young Adult
Resource Utilization Among Individuals Dying Of Pediatric Life-threatening Diseases
Tags: 2013, Adolescent, British Columbia, Chavoshi N, Child, Child Preschool, Female, Health Resources/ Utilization, Health Services Needs And Demand, Humans, Infant, Infant Newborn, Journal of Palliative Medicine, Length Of Stay/statistics & Numerical Data, Male, Miller T, Patient Discharge/statistics & Numerical Data, Resource Utilization Among Individuals Dying Of Pediatric Life-threatening Diseases, Siden H, Terminal Care, Young Adult
Relationships and Resources Supporting Children With Serious Illness and Their Parents
Recent trends in cerebral palsy survival. Part II: individual survival prognosis
Tags: 2014, Adolescent, Adult, Backlog, Brooks JC, California, Cerebral Palsy, Child, Developmental Medicine and Child Neurology, Disabled Persons, Female, Humans, Infant, Journal Article, Kaplan-Meier Estimate, Life Expectancy, Male, Mortality, Preschool, Prognosis, Rosenbloom L, Shavelle RM, Strauss DJ, Tran Linh M, Wu YW, Young Adult
R Package for Pediatric Complex Chronic Condition Classification
Tags: 0 (Enzyme Inhibitors), 0 (Lamin Type A), 0 (Piperidines), 0 (prelamin A), 0 (Pyridines), 2018, Adolescent, Adult, Brazier J, Campbell SE, Cause Of Death, Child, Cohort Studies, D'Agostino Sr RB, EC 2.7.4.- (farnesyl phosphate kinase), EC 2.7.4.- (Phosphotransferases (Phosphate Group Acceptor)), Enzyme Inhibitors/therapeutic use, Female, Gordon LB, Humans, IOW153004F (lonafarnib), JAMA., July 2018 List, Kaplan-Meier Estimate, Kieran MW, Kleinman ME, Lamin Type A/biosynthesis/metabolism, Male, Massaro J, Phosphotransferases (Phosphate Group Acceptor)/antagonists & inhibitors, Piperidines/therapeutic use, Post-Translational, Progeria/drug therapy/genetics/mortality, Protein Processing, Pyridines/therapeutic use, Shappell H, Young Adult
Quantifying physical decline in juvenile neuronal ceroid lipofuscinosis (Batten disease)
Tags: 2011, Adams H, Adolescent, Adult, Analysis of Variance, Augustine E F, Beck C A, Child, Child Preschool, Cialone J, Cross-sectional Studies, Deblieck E A, Disabled Persons, Disease Progression, Dure L S, Genotype, Homozygote, Humans, Kwon J M, Levy E, Marshall F J, Membrane Glycoproteins, Mink J W, Molecular Chaperones, Mutation, NCL3, Neurology, Neuronal Ceroid-Lipofuscinoses, Neuropsychological Tests, Newhouse N J, Prospective Studies, Ramirez-Montealegre D, Regression Analysis, Reproducibility of Results, Rose K R, Rothberg P G, scale development, tone and motor problems, tool development, UBDRS, Vierhile A, Young Adult
Quality of end of life care in adolescent and young adults with cancer in Japan
Tags: 2018, Adolescent, Adult, Bone, Brain, Cancer Chemotherapy, Cancer Diagnosis, Cancer Patient, conference abstract, Emergency Care, Female, Health Care Personnel, Human, Ishida Y, Japan, Major Clinical Study, Male, Medical Record, Noguchi-Abe K, Oncology 2018 List, Palliative Therapy, Retrospective Study, soft tissue, solid malignant neoplasm, Supportive Care In Cancer, Terminal Care, time of death, Tsumura A, Young Adult
Pulmonary metastasectomy in pediatric/adolescent patients with synovial sarcoma: an institutional review
Tags: 2013, Adolescent, Backlog, Child, Christison-Lagay ER, Female, Humans, Infant, Journal Article, Journal Of Pediatric Surgery, La Quaglia MP, Lung Neoplasms, Metastasectomy, Meyers PA, Preschool, Reoperation, Retrospective Studies, Sarcoma, Stanelle EJ, Survival Rate, Synovial, Treatment Outcome, Wolden SL, Young Adult
Psychosocial Health Outcomes for Family Caregivers Following the First Year of Bereavement
Tags: 2015, Adolescent, Adult, Aged, August 2017 List, Bereavement, Caregivers/ Psychology, Corner G, Death studies, Depression/epidemiology/etiology, Health Status, Humans, Hurley KE, Kissane DW, Masterson MP, Middle Aged, Psychiatric Status Rating Scales, Psychological Tests, Psychology, Schuler T, Social Adjustment, Spouses/psychology, Stress Psychological/epidemiology, Stress Psychological/etiology, Time Factors, Young Adult, Zaider T
Psychological health in siblings who lost a brother or sister to cancer 2 to 9 years earlier: Psychological health in siblings who lost a brother or sister to cancer
Tags: 2013, Adaptation, Adult, Backlog, Bereavement, Case-Control Studies, Child, Cohort Studies, Eilegård A, Female, Follow-up Studies, Health Status, Humans, Journal Article, Kreicbergs U, Male, Mental Health, Neoplasms, Nyberg T, Psycho-Oncology, Psychological, Questionnaires, Self Concept, sibling bereavement, Siblings, Sleep Initiation and Maintenance Disorders, Steineck G, Sweden, Young Adult
Promoting resilience among parents and caregivers of children with cancer
Tags: 2013, Adult, Aged, Back AL, Backlog, Baker KS, Bereavement, Caregivers, Child, Female, Hospitals, Humans, Journal Article, Journal of Palliative Medicine, Male, Middle Aged, Neoplasms, Parent caregivers, Parents, Preschool, Psychological, Qualitative Research, Resilience, Rosenberg AR, Syrjala KL, Terminal Care, Urban, Washington, Wolfe J, Young Adult
Problems And Hopes Perceived By Mothers, Fathers And Physicians Of Children Receiving Palliative Care
Tags: 2015, Adolescent, Carroll K W, Child, Decision Making, Faerber J A, Father, Female, Feudtner C, Health Expectations, Hexem K R, Hill D L, Hope, Human, Human Relation, Infant, Kang T, Male, Miller V A, Mother, Newborn, Palliative Therapy, Physician, Preschool Child, Problem Solving, Psychology, Quality Of Life, September 2017 List, Young Adult
Prevalence and Incidence of Anxiety and Depression among Children, Adolescents, and Young Adults with Life-Limiting Conditions: A Systematic Review and Meta-analysis
Tags: 2019, Adolescent, Adult, anxiety, Article, Barker MM, Beresford B, Bland M, Child, data extraction, Depression, Embase, Female, Fraser LK, Human, Human Tissue, Incidence, Interview, JAMA Pediatrics., Male, Medline, meta analysis, Monitoring, Organisation for Economic Co-operation and Development, Prevalence, psychologic assessment, Psycinfo, Regression Analysis, September 2019 List, synthesis, Systematic Review, Young Adult
Preferences regarding end-of-life care among adolescents and young adults with cancer: results from a comprehensive multicenter survey in Japan
Tags: 2019, adolescent and young adult, Adult, Adverse Drug Reaction, anxiety, Article, Cancer, Cancer Prognosis, Cancer Survival, cancer survivor, Cancer Therapy, Chemotherapy, Child, Controlled Study, End-of-life Care, Female, Health Care Personnel, Higuchi A, Hirano H, Horibe K, Human, Japan, Journal of Pain and Symptom Management, Kawachi A, Major Clinical Study, Male, Multicenter Study, Oncology 2019 List, Ozawa M, Palliative Therapy, patient history of chemotherapy, preference, Prognostic Disclosure, Questionnaire, Shimizu C, Shimizu K, Side Effect, Tatara R, Terminal Care, Yoshida S, Young Adult
Prediction of pediatric death in the year after hospitalization: a population-level retrospective cohort study
Tags: 2009, Adolescent, Backlog, Child, Cohort Studies, Feinstein JA, Female, Feudtner C, Hexem KR, Hospital Mortality, Humans, Infant, Journal Article, Journal of Palliative Medicine, Logistic Models, Male, Models, Mortality, Newborn, Patient Discharge, Pediatrics, Pennsylvania/epidemiology, Preschool, Prognosis, Retrospective Studies, Shabbout M, Silber JH, Sochalski J, Theoretical, Young Adult
Posttraumatic growth in parents caring for a child with a life-limiting illness: A structural equation model.
Tags: 2014, Adult, Aged, Cadell S, Caregivers/psychology, Child, Davies E, Disabled Children/psychology, Hemsworth D, Human Development, Humans, Liben S, Male, Middle Aged, Models Psychological, Palliative Care/psychology, Parents/psychology, Siden H, Smit QT, Steele R, Straatman L, The American Journal Of Orthopsychiatry, Young Adult
Polypharmacy in children and young people with life-limiting conditions from 2000-2015: a repeated cross-sectional study in England
Tags: 2022, Adult, Age, Article, August 2022 List, Child, Chronic Disease, Cohort Analysis, congenital disorder, Controlled Study, Cross-sectional Study, Doran T, England, Female, Fraser LK, Gibson-Smith D, Hills M, Human, Jarvis S, Journal of Pain and Symptom Management, Major Clinical Study, Male, Neefjes V, Nervous System, Observational Study, Papworth A, Pediatrics, Polypharmacy, Prevalence, Taylor J, Young Adult
Place of death of children and young adults with a life-limiting condition in England: a retrospective cohort study
Period prevalence of epilepsy in children in BC: a population-based study
Tags: 2009, Adolescent, Age Distribution, Backlog, British Columbia/epidemiology, Child, Community Health Planning, Cross-sectional Studies, Databases, Epilepsy/epidemiology, Factual/statistics & numerical data, Farrell K, Female, Hoube JS, Humans, Infant, International Classification of Diseases, Journal Article, Lisonkova S, Longitudinal Studies, Male, Newborn, Preschool, Prevalence, Retrospective Studies, Schiariti V, Socioeconomic Factors, The Canadian Journal Of Neurological Sciences.Le Journal Canadien Des Sciences Neurologiques, Young Adult
Perceptions Of The Pediatric Hospice Experience Among English- And Spanish-speaking Families
Many children who die are eligible for hospice enrollment but little is known about parental perceptions of the hospice experience, the benefits, and disappointments. The objective of this study was to explore parental perspectives of the…
Tags: 2016, Adolescent, Adult, Attitude To Death/ethnology, Caregivers/psychology, Child, Child Preschool, Communication, Ethnic Groups/psychology, European Continental Ancestry, Family/psychology, Female, Funes M, Group/psychology, Hispanic Americans/psychology, Hospice Care/psychology, Humans, Infant, Journal of Palliative Medicine, Lee SC, Male, Marks E, Martinez-Puente LM, Middle Aged, Neoplasms/nursing, Neoplasms/psychology, October 2016 List, Thienprayoon R, Winick N, Young Adult
Perceptions of discrimination among Mexican American families of seriously ill children
Pediatric Primary Care Involvement In End-of-life Care For Children
Tags: 2017, Adolescent, Age Factors, American Journal of Hospice and Palliative Medicine, California, Child, Child Preschool, Female, Home Care Services/sn [statistics & Numerical Data], Hospice Care/sn [statistics & Numerical Data], Humans, Infant, Lindley LC, Male, Nageswaran S, Primary Health Care/sn [statistics & Numerical Data], Retrospective Studies, September 2017 List, Terminal Care/sn [statistics & Numerical Data], Young Adult
Pediatric palliative care patients: a prospective multicenter cohort study
Tags: 2011, Adolescent, Backlog, Child, Chronic Disease, Chronic Disease/epidemiology/therapy, Dussel V, Eligibility Determination, Eligibility Determination/methods, Female, Feudtner C, Follow-up Studies, Friebert SE, Friedrichsdorf SJ, Hays Ross M, Hexem KR, Hospitalization, Hospitalization/trends, Humans, Infant, Journal Article, Kang T, Male, Medical Audit, Medical Audit/organization & administration, Newborn, Osenga K, Palliative Care, Palliative Care/organization & Administration, PEDI Study, Pediatrics, Preschool, Prevalence, Prospective Studies, Siden H, United States, United States/epidemiology, Wolfe J, Young Adult