Browse Items (74 total)
- Tags: Questionnaire
Opinions of Israeli neonatologists about life and death decisions in neonates
Tags: 2018, Adult, Age, Article, Bin-nun A, Demography, disabled person, Disease Severity, Dying, Ethnicity, Family Attitude, Female, Health Care Cost, Human, Israel, Israeli, Journal Of Perinatology, Kasirer MY, Male, Medical Decision Making, Medical Ethics, medicolegal aspect, Middle Aged, Mimouni FB, Neonatal Intensive Care Unit, Neonatologist, Normal Human, November 2018 List, Personal Experience, Physician Attitude, Prospective Study, psychological well being, Questionnaire, Religion, Schimmel MS, sex difference, Simulation, Terminal Care
Palliative care in 9 children with neurodegeneration with brain iron accumulation
Tags: 2020, April 2020 List, Article, body mass, Bone Density, bone strength, botulinum toxin, Child, Clinical Article, contracture, Controlled Study, Dangel T, Densitometry, Dystonia, facilitation, Female, femur, Home Care, Hospice And Palliative Care Nursing, Human, hypersalivation, iron, Januszaniec A, ketogenic diet, Kmiec T, Male, Multidisciplinary team, neurodegeneration with brain iron accumulation, Neurological Sciences, Pain, Palliative Therapy, pathologic fracture, Prevention, Questionnaire, School Child, skeleton, Spasticity, Spine, Thorax, Wazny B
Palliative radiation therapy for pediatric patients: Parental perceptions
Tags: 2017, Analgesia, Apkon D, Brain, Breathing, Cancer Staging, Child, Comfort, December 2017 List, Disease Course, Expectation, Female, Human, Institutional Review, International Journal Of Radiation Oncology Biology Physics, Lee BKY, Male, Marcus KJ, Palliative Therapy, Perception, Prevention, Prospective Study, Quality Of Life, Questionnaire, Radiotherapy, Spinal Cord Compression, Statistics, Wolfe J
Palliative radiotherapy for pediatric patients: Parental perceptions of indication, intent, and outcomes
Tags: 2020, Analgesia, Article, Boyle P J, Child, Clinical Article, Comfort, Controlled Study, Expectation, Female, Human, Lee B K, Male, Marcus K J, Oncology 2019 List, Palliative Therapy, Pediatric Blood and Cancer, pediatric patient, Perception, Prospective Study, Quality Of Life, Questionnaire, radiation oncology, Radiotherapy, Side Effect, Wolfe J, Zaslowe-Dude C
Parent and Provider Perspectives of a Hospital-Based Bereavement Support Program in Pediatric Palliative Care
Tags: 2023, Article, Bereavement, Bereavement Support, Bradford N, Bunker K, Child, Cross-sectional Study, Donovan L, Elvidge N, Expectation, Female, Grief, Gundry A, Herbert A, Human, Human Experiment, Journal of Pain and Symptom Management, Major Clinical Study, Male, May List 2023, Palliative Care, Palliative Therapy, Pediatric Hospital, program impact, Questionnaire
Parents' perspectives on losing a child due to life-limiting diagnoses: A population-based study
Tags: 2018, Adult, August 2018 List, Cause Of Death, Child, conference abstract, Denmark, Diagnosis, directory, Distress Syndrome, Ekholm O, Female, Human, Lykke C, Major Clinical Study, Male, Malignant Neoplasm, Olsen M, Palliative Medicine, Palliative Therapy, Quality Of Life, Questionnaire, Schmiegelow K, Sjogren P, Wales, Young Adult
Pediatric leukodystrophies: The role of the otolaryngologist
Tags: 1309378-01-5 (botulinum toxin A), 1638949-86-6 (botulinum toxin A), 1800016-51-6 (botulinum toxin A), 2017, 93384-43-1 (botulinum toxin A), Adolescent, Adult, Aicardi-Goutières syndrome, anamnesis, Article, aspiration pneumonia, Assessment, Bernard G, botulinum toxin A/dt [Drug Therapy], breathing difficulties, characteristics, Child, Clinical Article, Cohort Analysis, Comorbidity, Daniel S J, Drool, drooling, Dysphagia, feeding difficulties, head and neck disease, hearing impairment, Human, hypersalivation/su [Surgery], International Journal of Pediatric Otorhinolaryngology, Kay-Rivest E, Khendek L, Krabbe disease, Leukodystrophy, leukodystrophy/dt [Drug Therapy], nose feeding, otolaryngologist, Pelizaeus-Merzbacher disease, physical examination, Physician Attitude, Priority Journal, Quality Of Life, quality of life assessment, Questionnaire, sleep disturbance, stomach tube, Trajectory, x-linked adreno-leukodystrophy
Pediatric palliative care and resident education
Tags: 2018, August 2018 List, Child, Comfort, conference abstract, Curriculum, Decision Making, Dietzen D, Exercise, Hospice, Hospital Patient, Human, Internal Medicine, Journal of Palliative Medicine, Kim G, Outpatient, Pain, Palliative Therapy, Pediatrician, Pediatrics, Penney J, primary medical care, Questionnaire, Resident, Simulation, Survival, terminal disease
Pediatric Palliative Telehealth Care from Hospital to Hospital: A Pilot Project (QI653)
Tags: 2020, Child, Clinical Article, Comfort, community hospital, conference abstract, Consensus, Education, Evan E, Feasibility Study, Female, Follow Up, Human, Human Experiment, Journal of Pain and Symptom Management, Likert scale, Male, March 2020 List, Mock K O, Palliative Therapy, Primary Health Care, program feasibility, Questionnaire, Sandesara A, Satisfaction, Telehealth, tertiary care center, Total Quality Management
Perceptions of Pediatric Palliative Care among Physicians Who Care for Pediatric Patients in South Korea
Tags: 2019, Article, care behavior, Caregiver, Child, Controlled Study, December 2019 List, Decision Making, Education, Human, Journal of Palliative Medicine, Kim CH, Kim MS, Moon YJ, Multicenter Study, Oncologist, Palliative Therapy, pediatric patient, Perception, Prognosis, Quality Of Life, Questionnaire, Shin HY, Song IG, South Korea, Terminal Care, tertiary care center, workforce, Yu J
Perceptions on good death among parents of pediatric patients with hematology-oncology disease in advance
Tags: 2019, Cancer Patient, Child, conference abstract, Controlled Study, Female, Health Status, Hematology, Human, interdisciplinary education, Journal Of Clinical Oncology, Kim J Y, Leukemia, living will, Lymphoma, middle school, Oncology 2019 List, outpatient department, Park B K, pediatric patient, Perception, Quality Of Life, Questionnaire, Stress, Terminal Care
Perinatal palliative care after a stillbirth - Midwives experiences of using Cubitus baby
Tags: 2017, Bmc Pregnancy And Childbirth, Cold, Cold Temperature, Content Analysis, cooling, February 2018 List, Female, Human, Human Dignity, Infant, Listermar KH, Major Clinical Study, Male, midwife, Midwifery, Palliative Care, Palliative Therapy, Parents, Questionnaire, Rådestad I, Refrigeration, Stillbirth, Sweden
Physician perspectives on end-of-life care and pediatric palliative care for children in the Republic of Korea
Tags: 2017, Adult, Advance Care Planning, Child, Cogent Medicine, conference abstract, Death, Deterioration, Diagnosis, Female, financial management, Human, Interview, June 2018 List, Kim C H, Kim M S, Life Sustaining Treatment, Male, Organization, Palliative Therapy, Perception, psychosocial care, Questionnaire, Song IG, South Korea, tertiary care center, Yu J
Preferences regarding end-of-life care among adolescents and young adults with cancer: results from a comprehensive multicenter survey in Japan
Tags: 2019, adolescent and young adult, Adult, Adverse Drug Reaction, anxiety, Article, Cancer, Cancer Prognosis, Cancer Survival, cancer survivor, Cancer Therapy, Chemotherapy, Child, Controlled Study, End-of-life Care, Female, Health Care Personnel, Higuchi A, Hirano H, Horibe K, Human, Japan, Journal of Pain and Symptom Management, Kawachi A, Major Clinical Study, Male, Multicenter Study, Oncology 2019 List, Ozawa M, Palliative Therapy, patient history of chemotherapy, preference, Prognostic Disclosure, Questionnaire, Shimizu C, Shimizu K, Side Effect, Tatara R, Terminal Care, Yoshida S, Young Adult
Psychological support in end-of-life decision-making in neonatal intensive care units: Full population survey among neonatologists and neonatal nurses
Tags: 2019, Article, Beernaert K, Belgium, Burnout, Chambaere K, Cohen J, Controlled Study, Cools F, Cornette L, Counseling, Decision Making, Deliens L, Dombrecht L, Goossens L, Human, January 2020 List, Laroche S, Likert scale, Naulaers G, Neonatal Intensive Care Unit, Neonatal Nurse, Neonatologist, Newborn, Palliative Medicine, Perinatal Death, Questionnaire, Terminal Care, Theyskens C, Van de Broek H, Vandeputte C
Qualitative evaluation of the impact of a paediatric palliative care family support volunteering project
Tags: 2018, August 2018 List, Chambers L, Child, conference abstract, Controlled Study, Female, gardening, housekeeping, Human, Human Experiment, Leadership, Major Clinical Study, Male, McNamara K, Palliative Medicine, Palliative Therapy, Qualitative Analysis, Quality Of Life, Questionnaire, Scott R, Semi Structured Interview, shopping, Sibling, Skill, Staff, Volunteer
Quality Of Care Collaborative For Paediatric Palliative Care In Australia (quocca)
Tags: 2017, anxiety, Australia, Baggio S, Burr C, Child, Clinical Trial, Delaney A, Diagnosis, Donovan L, Duc J, Duffield J, Dyspnea, Education, Family Study, Female, Fleming S, Herbert A, Heywood M, Human, Hynson J, Irving H, Johnson S, Major Clinical Study, Male, McLarty A, Momber S, Nausea, Nurse, October 2017 List, Pain, Palliative Therapy, Patient Referral, Pedersen LA, Pediatric Blood and Cancer, Phillips M, Questionnaire, Ryan S, Seizure, Slater P, Staff, Symptom, Telehealth, Terminal Care, Trethewie S
Simulated learning for staff at a children's hospice: a quality improvement project
Tags: 2023, anxiety, Article, care behavior, Chadwick A, Child, Conversation, Education, Hospice, Hospices, Human, Learning, November List 2027, Nurse, Nursing Children and Young People, Only Child, Palliative Therapy, paramedical personnel, Price J, Questionnaire, Richardson S, Sheedy G, Simulation, Skill, Terminal Care, Total Quality Management
Sleep problems in individuals with 11q terminal deletion disorder (Jacobsen syndrome)
Tags: 11q terminal deletion disorder, 2008, Behavior, Biotechnology & Applied Microbiology, Braam W J, characteristics, Children, Curfs L M G, Didden R, Disabilities, disturbance, Ethics, Genetic Counseling, Genetics & Heredity, Grossfeld P D, Jacobsen syndrome, Korzilius H, Maas A, Medical, Questionnaire, Research & Experimental Medicine, Sleep, sleep disturbance/disorders, sleep problems, Smits M G, Trajectory
Specialist palliative care service for children with life-threatening conditions in Japan: A nationwide survey of resources and utilization
The care for oncologic patients undergoing pediatric palliative care and the griefs of a health team
Tags: 2023, 2023 SE3 - Oncology, Alves RSF, anxiety, Article, Cancer Diagnosis, Chronic Disease, Clinical Article, coronavirus disease 2019, Cross-sectional Study, de Sena JGM, de Vasconcelos AV, Female, Follow Up, Health Service, Human, Male, Melo CF, Palliative Care, Palliative Therapy, Pandemic, Psicooncologia, Psychology, Questionnaire, Ruiz EM, Semi Structured Interview, Teixeira LC
The chameleon project: A children's end of life care quality improvement project: Preliminary results
Tags: 2019, Archives of Disease in Childhood, August 2019 List, Bereavement, Brown J, Child, Child Death, conference abstract, Connolly A, Controlled Study, Cost Control, Documentation, Dorsett C, England, Griffin H, Haynes S, Hospital Admission, Human, Kelly N, Newborn, Palliative Therapy, Pediatric Intensive Care Unit, preliminary data, Questionnaire, Teaching, Terminal Care, Total Quality Management, Turnbull J, Wolff A
The efficacy of educational interventions on neonatal intensive care unit nurses knowledge and attitude toward neonatal palliative care
Tags: 2023, Abuhammad S, adjuvant therapy, Adult, Aggression, analgesic activity, anxiety, Article, Attitude, care behavior, Chronic Pain, cocaine, Controlled Study, Death, Demographics, drowsiness, drug dependence, Education Program, Educational Status, El-Bashir M, Elayyan M, electrolyte disturbance, Electronic Journal of General Medicine, emotional deprivation, Family, Fatigue, Female, Grief, Hospital Admission, Human, Human Experiment, Infant Newborn, Intestine, Jordan, June 2022 List, Knowledge, Male, Marriage, Morphine, Nausea And Vomiting, Neonatal Intensive Care Unit, neonatal intensive care unit attitude scale, Nurse, Nursing, Opiate, Pain, Palliative Care, Palliative Therapy, pethidine, pretest posttest design, Prognosis, Questionnaire, Respiration Depression, scoring system, Sedation, work experience
The Impact of End-of-Life Care Among Nurses Working in the Pediatric Intensive Care Unit
The Nesting Dolls Design: A Methodology for the Recruitment of Bereaved Parents for Partnership Activities Related to Palliative Care and Bereavement Support in Paediatric Psycho-Oncology
Tags: 2018, 52315-07-8 (cypermethrin), 65731-84-2 (cypermethrin), 66841-24-5 (cypermethrin), 67375-30-8 (cypermethrin), Bereavement Support, Bourque C J, Cardinal G, Child, Clinical Article, Clinician, conference abstract, Confidentiality, Content Analysis, Controlled Study, cypermethrin, Death, Dumont E, evaluation research, Female, filter, Follow Up, Human, information center, Intensive Care, Interview, Journal of Pain and Symptom Management, Male, Neonatology, nesting, Oncology 2019 List, Palliative Therapy, Pediatrics, Psycho-Oncology, Questionnaire, research ethics, Sultan S, writing
The Rett Syndrome Behaviour Questionnaire (RSBQ): refining the behavioural phenotype of Rett syndrome
Tags: 2002, Adolescents, behavioral problems, behavioural phenotype, breathing difficulties, Cass H, Charman T, Children, cpg-binding protein-2, Diagnosis, Epidemiology, Hastings R P, Intellectual Disability, Journal Of Child Psychology And Psychiatry, mecp2, mecp2 mutations, Mental Retardation, mental-retardation, Mount R H, population prevalence, Psychiatry, Psychology, psychopathology, Questionnaire, Reilly S, Rett syndrome, RSBQ, scale development, sleep disturbance, tone and motor problems, tool development, x-chromosome inactivation
The use of a theatre workshop in developing effective communication in paediatric end of life care
Tags: 2019, Article, Bereavement Support, Child, Clinical Practice, Communication Skill, Convenience Sample, Human, Human Experiment, Learning, May 2019 List, Neilson S J, Nurse Education In Practice, nursing student, Perception, quantitative analysis, Questionnaire, Reeves A, Registration, Statistics, Teaching, Terminal Care
The utilization of palliative care units by children with cancer: A nationwide survey
Undergraduate nursing students' attitudes and preparedness toward caring for dying persons - A longitudinal study
Tags: 2017, Adolescent, Adult, Attitude To Death, Bergh I, Browall M, Ek K, Female, Hammarlund K, Health Personnel Attitude, Henoch I, Human, January 2018 List, longitudinal study, Lundh Hagelin C, Male, Melin-Johansson C, Middle Aged, Nurse Education In Practice, nursing education, nursing student, Osterlind J, Procedures, Psychology, Questionnaire, Strang S, Sweden, Terminal Care, Westin L
Unfolding parental knowledge, attitudes, and beliefs toward palliative care for children with cancer
Tags: 2023, 2023 SE3 - Oncology, Abboud MR, Article, Caregiver, Child, Childhood Cancer, Demography, Education, Educational Status, Emotion, Fares S, Female, Huijer HAS, Human, Lebanon, Major Clinical Study, Male, Multicenter Study, Noureddine S, Pain, Palliative Care, Palliative Therapy, Pediatric Blood and Cancer, Pediatrics, quantitative analysis, Questionnaire, Rassam RS, Smith EML, Structured Interview, Wolfe J
Unrealistic parental expectations for cure in poor-prognosis childhood cancer
Tags: 2020, Article, Bagatell R, Baker J N, Cancer, Cancer Palliative Therapy, Cancer Prognosis, Cancer Recurrence, cancer risk, Child, Childhood Cancer, Clinical Decision Making, Cohn S L, Cohort Analysis, confidence interval, Controlled Study, Cronin A M, Diller L R, Expectation, Female, Glade Bender J, Granger M M, High Risk Population, Human, Interpersonal Communication, Levine A, Mack J W, Major Clinical Study, Male, Marachelian A, Medical Record, Neuroblastoma, Odds Ratio, Oncology 2020 List, parental behavior, Park J, Patient Care, pediatric patient, Priority Journal, Prospective Study, Quality Of Life, Questionnaire, Rosenberg A, Shusterman S, Taddei S, theoretical model, Twist C J, Uno H
Volunteer Activity In Specialist Paediatric Palliative Care: A National Survey
Tags: 2015, Adolescent, Adult, BMJ Supportive & Palliative Care, Bravery R, Burbeck R, Candy B, Cross-sectional Study, England, Female, Health Care Survey, Home Care, Hospice, Hospice Care, Hospital Volunteer, Human, Internet, Low J, Male, Organization And Management, Palliative Therapy, Pediatrics, Procedures, Questionnaire, Sampson E L, Scott R, September 2017 List, Specialization, Statistics And Numerical Data, Young Adult
What do transplant physicians think about palliative care? A national survey study
Tags: 2017, Adult, Blood, bone marrow, Burns LJ, Caregiver, Child, conference abstract, Denzen E, El-Jawahri A, Female, friend, Graft Recipient, graft versus host reaction, hematologic disease, Hematopoietic stem cell transplantation, Hispanic, Hospice, Human, Human Tissue, LeBlanc TW, Male, March 2018 List, Mau LW, medical oncologist, Meyer CL, outpatient care, Palliative Therapy, Patient Referral, Perception, Petersdorf E, Questionnaire, Roeland EJ, Trust, United States, Wood WA
Withholding and withdrawal of life-sustaining treatments for neonate in Japan: Are hospital practices associated with physicians' beliefs, practices, or perceived barriers?
Tags: 2019, Advance Care Planning, Article, Early Human Development, February 2020 List, Female, Feudtner C, Honda J, hospital policy, Human, Human Experiment, Iijima K, institutional care, Intensive Care, Japan, Kizawa Y, Life Sustaining Treatment, Male, Nabetani M, Neonatologist, Newborn, Questionnaire, Yotani N