Browse Items (117 total)
- Tags: Professional-family Relations
Family-centered care and the pediatrician's role
Fathers' experiences in the neonatal intensive care unit: a search for control.
Tags: *Fathers/px [Psychology], *Intensive Care Units, Neonatal, *Internal-External Control, 2008, 2023 SE4 - Parent Perspectives, Albersheim, Susan, Arockiasamy, Vincent, Communication, Critical Illness, Father-child Relations, Holsti, Liisa, Humans, Infant, Newborn, Infant, Premature, Intensive Care Units, Neonatal/og [Organization & Administration], Interviews As Topic, Male, Pediatrics, Professional-family Relations, Qualitative Research, Religion, Stress, Psychological
Finding a way with words: Delphi study to develop a discussion prompt list for paediatric palliative care
Tags: 2020, Advance Care Planning, April 2021 List, Bradford NK, Child, Communication, Danby S, Delphi Technique, Ekberg S, Family/psychology, Herbert A, Humans, Johns K, Paediatrics, Palliative Care, Palliative Medicine, Pediatrics, Professional-family Relations, prompt list, Reminder Systems/instrumentation, Sansone H, Stakeholder Participation, Tarrant G, Yates P
Focuses and trends of the studies on pediatric palliative care:A bibliometric analysis from 2004 to 2018
Forgoing life-sustaining treatments: how the decision is made in French pediatric intensive care units
Tags: 2001, Adolescent, Backlog, Child, Critical Care Medicine, Cross-sectional Studies, Death and Euthanasia, Decision Making, Devictor DJ, Empirical Approach, Female, France, Groupe Francophone de Reanimationet d'Urgences Pediatriques, Humans, ICU Decision Making, Infant, Intensive Care Units, Journal Article, Life Support Care, Male, Newborn, Nguyen DT, Patient Care Team, Pediatric, Practice Guidelines, Preschool, Professional Patient Relationship, Professional-family Relations, Prospective Studies
From hospitalization to grief: meanings parents assign to their relationships with pediatric oncology professional
Guidelines for assistance to terminally ill children with cancer: a report of the SIOP Working Committee on psychosocial issues in pediatric oncology
Tags: 1999, Ablin AR, Anxiety/prevention & control, Attitude To Death, Backlog, Bereavement, Chesler MA, Child, Child Care, Counseling, D'Angio GJ, Eden T, Family Health, Fear/psychology, Female, Human, Jankovic M, Journal Article, Male, Martins AG, Masera G, Medical & Pediatric Oncology, Mulhern RK, Neoplasms/psychology/therapy, Oppenheim D, Pain/prevention & control, Palliative Care, Parent-child Relations, Preschool, Professional-family Relations, Professional-patient Relations, Quality Of Life, Social Support, Spinetta J, Terminal Care, Topf R, Van Dongen-Melman J
Having Therapeutic Conversations With Fathers Grieving the Death of a Child
Tags: 2021, April 2021 List, Bereavement, Carnevale F, Castiglione S, Child, Conversation, Death -- In Infancy and Childhood, Dupuis F, Father-child Relations, Fathers -- Psychosocial Factors, Grief, Legault A, Martinez AM, Omega: Journal Of Death & Dying, Professional-family Relations, Proulx MC, Support Psychosocial -- Methods
Health Professionals' Views on Pediatric Palliative Care: A Mixed Methods Systematic Review
Tags: 2022, Anastasopoulou E, April List 2023, Attitude Of Health Personnel, Collaboration, Communication, Communities, Dousis E, Education, Evaluation, Health Services Accessibility, Hospitals, Human, International Journal of Caring Sciences, Multidisciplinary Care Team, Multimethod Studies, Palliative Care, Pediatric Care, Professional-family Relations, Professional-patient Relations, PubMed, Reward, Systematic Review, Terminal Care
Healthcare users' experiences of communicating with healthcare professionals about children who have life-limiting conditions: a qualitative systematic review protocol
Tags: 2015, Adolescent, Adult, Bradford N, Child, Communication, Critical Illness/px [psychology], Danby S, Ekberg S, Female, Health Personnel/px [psychology], Herbert A, Humans, Infant, Jbi Database Of Systematic Reviews And Implementation Reports, Male, March 2018 List, Newborn, Palliative Care/px [psychology], Parents/px [psychology], Preschool, Professional-family Relations, Qualitative Research, Yates P, Young Adult
Home management of the dying NICU patient
Tags: 2003, Attitude Of Health Personnel, Backlog, Caregivers/standards, Craig F, Female, Goldman A, Holistic Health, Home Nursing, Humans, Infant, Intensive Care, Journal Article, Male, Neonatal/standards, Newborn, Palliative Care/organization & Administration, Parents/psychology, Patient Care Team/standards, Professional-family Relations, Seminars In Neonatology
Hospice Use for Infants With Life-Threatening Health Conditions, 2007 to 2010
Tags: 2017, Andersen model, California, Cardiovascular Diseases, Complex Chronic Conditions, Congenital Abnormalities, End Of Life, Hospice, Hospice Care/statistics & numerical data/ utilization, Humans, Infant, Infants, Insurance Claim Review/statistics & numerical data, Journal Of Pediatric Health Care, Length of Stay/economics/ statistics & numerical data, Lindley LC, March 2018 List, Medicaid, Medicaid/ statistics & numerical data, Newnam KM, Nurse-patient Relations, Nurse's Role, Palliative Care/statistics & numerical data/ utilization, Parents/ Psychology, Pediatric Nurse Practitioners, Professional-family Relations, Respiratory Insufficiency, United States
Hospital staff and family perspectives regarding quality of pediatric palliative care.
Tags: 2004, Attitude Of Health Personnel, Attitude To Health, Backlog, Bereavement, Child, Cohen HJ, Communication, Contro N, Data Collection, Family/psychology, Hospital/psychology, Humans, Journal Article, Larson J, Longitudinal Studies, Non-U.S. Gov't, Pain/therapy, Palliative Care/standards, Pediatrics, Pediatrics/education/standards, Personnel, Professional-family Relations, Quality Of Health Care, Research Support, Scofield S, Sourkes B
How Parents And Physicians Experience End-of-life Decision-making For Children With Profound Intellectual And Multiple Disabilities.
End-of-life decisions (EoLD) often concern children with profound intellectual and multiple disabilities (PIMD). Yet, little is known about how parents and physicians discuss and make these decisions.
AIMS:
The objective of this research…
Tags: 2016, Adolescent, Adult, Attitude Of Health Personnel, Attitude To Health, Caregiver, Cerebral Palsy, Child, Child Preschool, de Vos MA, Decision Making, Disabled Children, Dissent And Disputes, End Of Life, Ewals FV, Female, Healthcare Professional, Humans, Infant, Infant Newborn, Intellectual Disability, Male, Middle Aged, Neurologists, Palliative Care, Parents, Pediatricians, Professional-family Relations, Qualitative Research, Research in Developmental Disabilities, Resuscitation Orders, Retrospective Studies, September 2016 List, Severity Of Illness Index, Shared Decision-making, Terminal Care, van Goudoever JB, Willems DL, Young Adult, Zaal-Schuller IH
Identifying as a Good Parent: Considering the Communication Theory of Identity for Parents of Children Receiving Palliative Care
Tags: 2021, 2022 Special Edition 2 - Parent Perspectives, Adolescence, Child, Communication, compassion, Conceptual Framework, Coping, Family Centered Care, Hecht ML, Hinds PS, Journal of Palliative Medicine, Kellas JK, Male, Palliative Care, Parental Attitudes, Parenting, Parents, Pediatric Care, Personality, Professional-family Relations, Social Identity, Stress, Support, Theoretical models, Weaver MS
Improving comfort and communication in the ICU: a practical new tool for palliative care performance measurement and feedback
Tags: 2006, Adams LL, Backlog, Communication, Cooperative Behavior, Critical Care/psychology/standards, Decision Making, Feedback, Health Care, Health Care/organization & administration, Hospitals, Humans, Intensive Care Units/standards, Journal Article, Mulkerin CM, Nelson JE, Pain Measurement, Palliative Care/psychology/standards, Patient Satisfaction, Pilot Projects, Professional-family Relations, Program Development, Pronovost PJ, Proxy, Quality & Safety in Health Care, Quality Assurance, Quality Indicators, Spirituality, United States, Voluntary/organization & administration/standards
Improving the quality of end-of-life care in the pediatric intensive care unit: parents' priorities and recommendations
Tags: 2006, Adolescent, Backlog, Burns JP, Child, Communication, Decision Making, Humans, Infant, Intensive Care Units, Journal Article, Meyer EC, Newborn, Non-U.S. Gov't, Palliative Care/psychology, Parent-child Relations, Parents/psychology, Pediatric, Pediatrics, PedPal Lit, Preschool, Professional-family Relations, Questionnaires, Research Support, Ritholz MD, Terminal Care/psychology, Truog RD
Informing social work practice through research with parent caregivers of a child with a life-limiting illness
Tags: 2012, Adaptation, Adult, Attitude To Health, Cadell S, Caregivers, Child, Female, Focus Groups, Hemsworth D, Humans, Journal of Social Work in End-of-Life & Palliative Care, Kennedy K, Male, Middle Aged, Palliative Care, Parent-child Relations, Parents, Professional-family Relations, Psychological, Social Support, Social Work, Stress, Terminal Care
Junior versus senior physicians for informing families of intensive care unit patients
Tags: 2004, Adrie C, Adult, Aged, Alberti C, American Journal Of Respiratory And Critical Care Medicine, Annane D, Azoulay E, Backlog, Communication, Comprehension, Critical Illness, Family Health, Female, Garrouste-Orgeas M, Goldgran-Toledano D, Hospital, Humans, ICU Decision Making, Intensive Care, Intensive Care Units, Internship And Residency, Jourdain M, Journal Article, Lefrant JY, Male, Medical Staff, Middle Aged, Moreau D, Papazian L, Personal Satisfaction, Pochard F, Professional-family Relations, Prospective Studies, Quinio P
Key Factors Affecting Dying Children And Their Families
Tags: 2005, Adolescent, Baker J, Bereavement, Child, Communication, Decision Making, Family/px [psychology], Hinds PS, Humans, Journal of Palliative Medicine, May 2017 List, Only Child, Palliative Care/st [standards], Professional-family Relations, Quality Of Health Care, Schum L, Stress Psychological/et [etiology], Terminal Care, Terminal Care/st [standards], Wolfe J
Key factors affecting dying children and their families
Tags: 2005, Adolescent, Backlog, Baker JN, Bereavement, Child, Communication, Decision Making, Family/psychology, Hinds PS, Humans, Journal Article, Journal of Palliative Medicine, Palliative Care/standards, Professional-family Relations, Psychological/etiology, Quality Of Health Care, Schum L, Stress, Terminal Care/standards, Wolfe J
Learning that leads to action: impact and characteristics of a professional education approach to improve the care of critically ill children and their families
Tags: 2010, Archives Of Pediatrics & Adolescent Medicine, Backlog, Browning DM, Canada, Child, Continuing/methods, Curriculum, Dokken DL, Education, Educational, Humans, Interdisciplinary Communication, Journal Article, Merriman MP, Models, Palliative Care, Patient Advocacy, Pediatrics/education, Professional-family Relations, Program Evaluation, Quality Of Health Care, Rushton CH, Solomon MZ, United States
Life threatening illness and hospice care.
Tags: 1989, Adolescent, Archives of Disease in Childhood, Attitude To Health, Backlog, Baum JD, Bereavement, Child, Consumer Satisfaction, Employment, Family Health, Forrest GC, Hospices, Humans, Journal Article, Longitudinal Studies, Marriage, Mental Disorders/psychology, Non-U.S. Gov't, Parents, Preschool, Professional-family Relations, Research Support, Respite Care, Retrospective Studies, Social Support, Stein A, Terminal Care/psychology, Woolley H
Long-term nurse-parent relationships in paediatric palliative care: a narrative literature review
Maintaining Integrity: How Nurses Navigate Boundaries in Pediatric Palliative Care
Tags: 2017, August 2018 List, Child, Critical Care Nursing/mt [Methods], Davies B, Erikson A, Female, Hospital/og [Organization & Administration], Hospital/px [Psychology], Humans, Journal of Pediatric Nursing, Male, Nurse-patient Relations, Nurse's Role/px [Psychology], Nursing, Nursing Methodology Research, Nursing Staff, Palliative Care/mt [methods], Palliative Care/px [psychology], Philosophy, Professional-family Relations, Qualitative Research
Managing communication with young people who have a potentially life threatening chronic illness: qualitative study of patients and parents
Tags: 2003, Adolescent, Backlog, Bmj (clinical Research Ed.), Child, Chronic Disease, Communication, Critical Illness, Dixon-Woods M, Empirical Approach, Female, Heney D, Humans, Journal Article, Male, Neoplasms/psychology/therapy, Parent caregivers, Physician-patient Relations, Professional Patient Relationship, Professional-family Relations, Windridge KC, Young B
Medical ethics in pediatric critical care
Tags: 2013, Backlog, Child, Clinical, Critical Care, Critical Care Clinics, Decision Making, Dissent And Disputes, Ethics, Ethics Committees, Humans, Journal Article, Medical, Morrison WE, Orioles A, Parental Consent, Patient Rights, Pediatrics, Personal Autonomy, Professional-family Relations, Resource Allocation, Terminal Care, Tissue and Organ Procurement, Truth Disclosure, United States, Withholding Treatment
Meeting the needs of siblings of children with life-limiting illnesses
More Than Medication: Perinatal Palliative Care
Tags: 2016, Archives of Disease in Childhood. Fetal and Neonatal Edition, Carter BS, Decision Making/ethics, Humans, Infant Extremely Premature, Infant Newborn, Intensive Care Units Neonatal, Maternal-fetal Relations/psychology, November 2016 List, Palliative Care/ethics, Palliative Care/legislation & Jurisprudence, Palliative Care/psychology, Parental Consent/ethics, Parental Consent/legislation & Jurisprudence, Parental Consent/psychology, Patient Rights/ethics, Patient Rights/legislation & Jurisprudence, Perinatal Care/ethics, Perinatal Care/legislation & Jurisprudence, Perinatal Care/standards, Personhood, Professional-family Relations, Resuscitation Orders/ethics, Resuscitation Orders/legislation & Jurisprudence, Resuscitation Orders/psychology
Mothers' recollections of the Paediatric Intensive Care Unit: associations with psychopathology and views on follow up
Tags: 2006, Acute/diagnosis/prevention & control/psychology, Adult, Aftercare/organization & administration/psychology, Attitude To Health, Backlog, Child, Colville GA, Communication, Cross-sectional Studies, Female, Gracey D, Health Services Needs And Demand, Hospitalized, Humans, ICU Decision Making, Infant, Intensive and Critical Care Nursing, Intensive Care Units, Journal Article, Male, Mass Screening, Mothers/psychology, Nursing Methodology Research, Pediatric/organization & Administration, Preschool, Professional-family Relations, Psychiatric Status Rating Scales, Questionnaires, Retrospective Studies, Risk Factors, Severity Of Illness Index, Social Support, Stress Disorders, Traumatic
Navigator-Based Intervention to Support Communication in the Pediatric Intensive Care Unit: A Pilot Study
Tags: 2020, Adolescent, American Journal of Critical Care, Aniciete DY, Attitude Of Health Personnel, August 2021 List, Brown M, Charleston E, Child, Ciolino JD, Clayman ML, Communication, Decision Making, Emotions, Family/psychology, Fragen P, Infant, Intensive Care Units Pediatric/organization & administration/standards, Jones V A, Malakooti M, Michelson KN, Parents/psychology, Patient Discharge, Persell SD, Pilot Projects, Preschool Child, Professional-family Relations, Rychlik K, Socioeconomic Factors, Sorce LR, Spadino P, White D
Neonatologist training to guide family decision making for critically ill infants
Tags: 2009, Archives Of Pediatrics & Adolescent Medicine, Arnold RM, Attitude Of Health Personnel, Backlog, Boss RD, Clinical Competence, Communication, Critical Illness, Decision Making, Donohue PK, Education, Fellowships And Scholarships, Graduate, Humans, Hutton N, Infant, Internet, Journal Article, Linear Models, Medical, Neonatology/education, Newborn, Nonparametric, Premature, Professional-family Relations, Questionnaires, Statistics, United States
Pain assessment in nonverbal children with severe cognitive impairments: the Individualized Numeric Rating Scale (INRS)
Tags: 2003, Backlog, Child, Children W/SNI, Cognition Disorders/complications/nursing, Curley MA, Disabled Children, Humans, Infant, Journal Article, Journal of Pediatric Nursing, Male, Nonverbal Communication, Nursing Evaluation Research, Pain Measurement/instrumentation/nursing/standards, Pain/etiology/nursing, Parent-child Relations, Pediatric Nursing/instrumentation/methods, Preschool, Professional-family Relations, Reproducibility of Results, Solodiuk J
Palliative care and pediatric surgery
Tags: 2011, Backlog, Child, Critical Illness, Gastrostomy, Humans, Intratracheal, Intubation, Jackson GP, Journal Article, Palliative Care, Patient Care Team, Physician-patient Relations, Pleurodesis, Professional-family Relations, Prognosis, Quality Of Life, Resuscitation Orders, Shelton J, Terminal Care, The Surgical Clinics Of North America, Tracheostomy
Palliative care for infants, children, adolescents, and their families
Tags: 2006, Adolescent, Backlog, Child, Decision Making, Ethics, Health Services Accessibility, Himelstein BP, Humans, Infant, Journal Article, Journal of Palliative Medicine, Medical, Newborn, Palliative Care, Parent caregivers, Pediatrics, Preschool, Professional-family Relations, Professional-patient Relations
Parent and health care provider communication and decision making in the intensive care nursery
Tags: 1989, Abel-Boone H, Attitude To Health, Backlog, Best Practices (Davies), Children's Health Care, Communication, Decision Making, Dokecki PR, Humans, ICU Decision Making, Infant, Intensive Care Units, Interviews, Journal Article, Life Support Care/psychology, Neonatal, Newborn, Parents, Professional-family Relations, Smith MS, Social Support, United States
Parent perceptions of the quality of information received about a child's cancer
Parent Perspectives of Neonatal Intensive Care at the End-of-Life
Tags: 2016, Adaptation Psychological, Adult, Bereavement, Christian BJ, Currie ER, Day S, Decision Making, Female, Hinds PS, Humans, Infant Newborn, Intensive Care Neonatal/st [standards], Intensive Care Neonatal/td [trends], Intensive Care Units Neonatal, Interviews As Topic, Journal of Pediatric Nursing, Male, Meneses K, November 2017 List, Palliative Care/mt [methods], Palliative Care/px [psychology], Parents/px [psychology], Perception, Perna SJ, Professional-family Relations, Qualitative Research, Robinson C, Stress Psychological, Terminal Care/mt [methods], Terminal Care/px [psychology], United States
Parental decision making in pediatric cancer end-of-life care: Using focus group methodology as a prephase to seek participant design input
Tags: 2006, Adaptation, Attitude To Health, Backlog, Barrera M, Baruchel S, Bouffet E, Capra M, Child, Decision Making, European Journal Of Oncology Nursing, Focus Groups/methods, Focus Groups/utilization, Gammon J, Geenberg ML, Helping Behavior, Hinds PS, Humans, Journal Article, Llewellyn-Thomas HA, Morale, Needs Assessment, Neoplasms, Nurse's Role, Nursing Methodology, Oncologic Nursing, Parents/psychology, Patient Selection, Patient-centered Care, Pediatric Nursing, PedPal Lit, Professional-family Relations, Program Development, Psychological, Qualitative Research, Quality Of Life/psychology, Questionnaires, Social Support, Sung L, Terminal Care, Tomlinson D, Volpe J
Parental explicit heuristics in decision-making for children with life-threatening illnesses
Tags: 2013, Adolescent, Aphorisms and Proverbs as Topic, Backlog, Carroll KW, Child, Choice Behavior, Chronic Disease/psychology/therapy, Cohort Studies, Communication, Critical Illness/psychology/therapy, Decision Making, Female, Feudtner C, Hospitals, Humans, Infant, Interview, Journal Article, Judgment, Kang T, Male, Palliative Care/psychology, Parent caregivers, Parents/psychology, Pediatric, Pediatrics, Philadelphia, Preschool, Problem Solving, Professional-family Relations, Prospective Studies, Psychological, Renjilian CB, Womer JW, Young Adult