Browse Items (81 total)
- Tags: Interview
Integrating Palliative Care Into School Communities
Tags: 2016, Bereavement, Child, Controlled Study, Cree V, Curriculum, Hospice, Hospices, Human, Human Experiment, Information Processing, Interview, May 2017 List, Model, Murray S, Only Child, Palliative Care, Palliative Medicine, Palliative Therapy, Paul S, Primary School, School Child, Scotland, Skill, Staff, Terminal Care
Aims And Tasks In Parental Caregiving For Children Receiving Palliative Care At Home: A Qualitative Study
Tags: 2017, Bosman DK, Child, Child Parent Relation, Clinical Article, Colenbrander DA, Controlled Study, European Journal of Pediatrics, Family Life, Grootenhuis MA, Home Care, Human, Interview, Kars MC, March 2017 List, Palliative Therapy, Personal Experience, Qualitative Research, Schouten-Van Meeteren AYN, Sound, Symptom, Thematic Analysis, van Delden JJ, Verberne LM
'Why Does It Happen Like This?' Consulting With Users and Providers Prior to an Evaluation of Services for Children with Life Limiting Conditions and their Families
Tags: 2015, Adolescent, Brown E, Chambers L, Chesworth B, Child, Child Health Care, Coad J, Family, Hacking S, Handicapped Child, Health Service, Health Services Research, Human, Hunt A, Information Processing, Interview, Journal of child health care : for professionals working with children in the hospital and community, Patient Referral, Rehabilitation, September 2017 List, Staniszewska S, Supply And Distribution
Parental experiences with a paediatric palliative care team: A qualitative study
Tags: 2017, Bosman DK, Case Management, Child, Clinical Article, Colenbrander DA, concrete, Coordination, Expectation, Female, Grootenhuis MA, Human, Interview, Jagt CT, January 2018 List, Kars MC, Male, Palliative Medicine, Palliative Therapy, Pediatrics, Qualitative Research, Schouten-Van Meeteren AYN, Thematic Analysis, van Delden JJM, Verberne LM
Palliative care in children with spinal muscular atrophy type 1: How do they die? Results from a French multicentric study (National Hospital clinical Research Program)
Tags: 2017, 50-48-6 (amitriptyline), 52-26-6 (morphine), 549-18-8 (amitriptyline), 57-27-2 (morphine), Amitriptyline, Barnerias C, benzodiazepine derivative, Child, Clinical Article, Clinical Practice, Clinical Research, Desguerre I, Diagnosis, Drug Therapy, European Journal of Paediatric Neurology, Female, Follow Up, Hully M, Human, Infant, Intensive Care Unit, Interview, January 2018 List, Male, Morphine, Multicenter Study, nasogastric tube, Noninvasive Ventilation, Palliative Therapy, Psychologist, quantitative analysis, Resuscitation, time of death, Vanesse S, Viallard ML, Werdnig Hoffmann disease
Communication with parents of children with cancer
Tags: 1994, Adaptation, Adolescent, Adult, Backlog, Black I, Child, Communication, Defense Mechanisms, Eden OB, Emery AE, Female, Follow-up Studies, Grief, Human, Infant, Interview, Journal Article, Leukemia/psychology, MacKinlay GA, Male, Neoplasms/psychology, Palliative Medicine, Parent-child Relations, Parents/education/psychology, Patient Care Team, Preschool, Professional-family Relations, Psychological, Truth Disclosure
Adolescent sibling bereavement as a catalyst for spiritual development: a model for understanding.
Designing pain research from the patient's perspective: What trial end points are important to patients with chronic pain?
Tags: 2001, Adult, Aged, Article, Asch DA, Backlog, Casarett D, Chronic Pain/dt [Drug Therapy], Clinical Article, Clinical Study, Controlled Study, Demography, Disease Severity, Dose Response, Empiricism, Evaluation, Female, Health Center, Hirschman K, Human, Interview, Journal Article, Karlawish J, Male, Medical Decision Making, Medical Information, Medical Research, Methodology, Opiate/do [Drug Dose], Opiate/dt [drug Therapy], Outcomes Research, Pain Assessment, Pain Clinic, Pain Medicine, Perception, Qualitative Analysis, Rating Scale, Sankar P, Sleep, Urban Area
Death of a child at home or in the hospital: subsequent psychological adjustment of the family
Tags: 1983, Adaptation, Adult, Backlog, Child, Comparative Study, Death, Family, Female, Grief, Hoffmann RG, home care services, Hospitalization, Humans, Interview, Journal Article, Lauer ME, Location Of Death, Male, Middle Aged, MMPI, Mulhern RK, Neoplasms/therapy, Non-U.S. Gov't, P.H.S., Pediatrics, Personality Inventory, Psychological, Research Support, Terminal Care/methods, U.S. Gov't
The assessment of values in laryngeal cancer: reliability of measurement methods
Tags: 1984, Adult, Aged, Attitude To Health, Backlog, Boyd NF, Ciampi A, Etezadi-Amoli J, Evaluation Studies, Female, Humans, Interview, Journal Article, Journal Of Chronic Diseases, Laryngeal Neoplasms/psychology/radiotherapy, Llewellyn-Thomas HA, Male, Middle Aged, Non-U.S. Gov't, Psychological, Research Support, Social Values, Sutherland HJ, Till JE, Time Factors, Voice, Voice Quality
Bereaved parents' experience of research participation.
Tags: 2004, Accidents/psychology, Adolescent, Adult, Attitude, Backlog, Bereavement, Biomedical and Behavioral Research, Child, Dyregrov K, Empirical Approach, Ethics, Female, Follow-up Studies, Humans, Infant, Interview, Journal Article, Longitudinal Studies, Male, Medical/methods, Middle Aged, Multi-site Ethics, Newborn, Norway, Parents/psychology, Preschool, Psychological, Registries, Regression Analysis, Research, Research Subjects/psychology, Social science & medicine, Sociology, Sudden Infant Death, Suicide/psychology
Adverse childhood experiences and lifetime suicide ideation: a cross-sectional study in a non-psychiatric hospital setting
Tags: 2006, Adolescent, Adult, Arensman E, Backlog, Child, Child Abuse/prevention & control/psychology, Corcoran P, Cross-sectional Studies, Emergency Service, Female, Gallagher J, General, Hospital, Hospitals, Humans, Interview, Ireland, Irish Medical Journal, Journal Article, Keeley HS, Male, Non-U.S. Gov't, PedPal Lit, Perry IJ, Psychological, Research Support, Suicide/prevention & control/psychology
Psychiatric morbidity in children with medically unexplained chronic pain: diagnosis from the pediatrician's perspective
Tags: 2006, Adolescent, Backlog, Buitelaar JK, Child, Chronic Disease, de Graeff-Meeder ER, Humans, Interview, Journal Article, Kimpen JL, Konijnenberg AY, Mental Disorders/complications/diagnosis, Pain/psychology, Pediatrics, PedPal Lit, Psychological, Psychometrics, Questionnaires, Uiterwaal CS, van der Hoeven J
Research with bereaved parents: A question of how not why.
Tags: 2006, Adult, Aroni R, Attitude, Backlog, Bauld C, Bereavement, Child, Ethics, Female, Humans, Hynson JL, Interview, Journal Article, Longitudinal Studies, Male, Palliative Care, Palliative Medicine, Parents/psychology, Preschool, Psychological, Research, Research Subjects/psychology, Sawyer SM
Resilience to loss in bereaved spouses, bereaved parents, and bereaved gay men
Tags: 2005, Affect, Backlog, Bereavement, Bonanno GA, Extramural, Folkman S, Homosexuality, Humans, Interview, Journal Article, Journal Of Personality And Social Psychology, Male, Male/psychology, Middle Aged, Moskowitz JT, N.I.H., P.H.S., Papa A, Parents/psychology, Psychological, Research Support, Social Behavior, Spouses/psychology, U.S. Gov't
Attitudes of adolescent cancer survivors toward end-of-life decisions for minors.
Tags: 2009, Adolescent, Advance Directives, Assisted/px [Psychology], Attitude To Death, Backlog, Benoit Y, Bilsen J, Bomans A, Child, De Wilde J, Decision Making, Deliens L, DNAR, Euthanasia, Euthanasia/px [Psychology], Female, Humans, Informed Consent/px [Psychology], Interview, Journal Article, Male, Minors/px [Psychology], Mortier F, Neoplasms/px [psychology], Netherlands, Palliative Care/px [psychology], Passive, Pediatrics, Pousset G, Psychological, Right to Die, Sick Role, Suicide, Survivors/px [psychology], Terminal Care/px [psychology], Truth Disclosure, Verlooy J
A Qualitative Investigation of Fathers' Experiences of Looking After a Child with a Life-Limiting Illness, In Process and In Retrospect
Tags: 2007, Adaptation, Adult, Attitude To Death, Backlog, Caregivers/psychology, Child, Chronic Disease/psychology, Clinical Child Psychology And Psychiatry, father experience, Father-child Relations, Fathers/psychology, Female, Gender Identity, Grief, Home Nursing/psychology, Humans, Interview, Journal Article, Life Change Events, Male, Marriage/psychology, Palliative Care/psychology, Professional-family Relations, Psychological, Raval H, Social Support, Terminal Care/psychology, Ware J
International comparison study on the primary concerns of terminally ill cancer patients in short-term life review interviews among Japanese, Koreans, and Americans
Tags: 2009, 80 And Over, Aged, Ahn SH, Ando M, Backlog, Cross-cultural Comparison, Female, Hospices, Humans, Ide S, Interview, Japan, Journal Article, Life Change Events, Male, Marquez-Wong F, Mental Recall, Middle Aged, Morita T, Neoplasms/ethnology/psychology, Palliative & Supportive Care, Personality Inventory/statistics & numerical data, Psychological, Psychometrics, Religion and Psychology, Republic of Korea, Social Values/ethnology, Spirituality, Terminal Care/psychology, United States
Parental explicit heuristics in decision-making for children with life-threatening illnesses
Tags: 2013, Adolescent, Aphorisms and Proverbs as Topic, Backlog, Carroll KW, Child, Choice Behavior, Chronic Disease/psychology/therapy, Cohort Studies, Communication, Critical Illness/psychology/therapy, Decision Making, Female, Feudtner C, Hospitals, Humans, Infant, Interview, Journal Article, Judgment, Kang T, Male, Palliative Care/psychology, Parent caregivers, Parents/psychology, Pediatric, Pediatrics, Philadelphia, Preschool, Problem Solving, Professional-family Relations, Prospective Studies, Psychological, Renjilian CB, Womer JW, Young Adult
Parenting in Childhood Life-Threatening Illness: A Mixed-Methods Study
Tags: 2018, April 2018 List, Article, Child, Child Parent Relation, childhood, Controlled Study, Deatrick JA, Decision Making, Female, Feudtner C, Human, Human Experiment, Interview, Journal of Palliative Medicine, Male, Meghani SH, Mooney-Doyle K, Only Child, Palliative Therapy, Perception, Problem Solving, Sibling, Social Work, Ulrich CM
Physician perspectives on end-of-life care and pediatric palliative care for children in the Republic of Korea
Tags: 2017, Adult, Advance Care Planning, Child, Cogent Medicine, conference abstract, Death, Deterioration, Diagnosis, Female, financial management, Human, Interview, June 2018 List, Kim C H, Kim M S, Life Sustaining Treatment, Male, Organization, Palliative Therapy, Perception, psychosocial care, Questionnaire, Song IG, South Korea, tertiary care center, Yu J
Memory making in neonatal end-of-life care
The cyberspace use by adolescents, in palliative care: An ethnographic approach
The needs of parents during end-of-life care for terminally ill child
Tags: 2018, August 2018 List, Child, Clinical Article, conference abstract, Data Analysis, Death, Father, Female, Genetic Disorder, genetic transcription, Grounded Theory, Human, Human Tissue, Identity, immune deficiency, Interview, Leukemia, Loucka M, Male, Mother, Palliative Medicine, Palliative Therapy, Polakova K, Qualitative Research, risk factor, solid malignant neoplasm, Terminal Care, terminally Ill Patient
The qualitative study on the experience and perception of healthcare professionals in pediatric palliative care
Tags: 2018, August 2018 List, Awareness, Child, conference abstract, constant comparative method, Death, Diagnosis, Grounded Theory, Home Care, Hospice, Human, Interview, Ireland, Major Clinical Study, Male, Palliative Medicine, Palliative Therapy, pediatric nurse, Pediatric Nursing, Perception, Qualitative Research, Quality Of Life, Salvaggio E
Exploring the vagueness of Religion & Spirituality in complex pediatric decision-making: A qualitative study
Tags: 2018, Article, Barfield RC, BMC Palliative Care, Brandon DH, Child, Decision Making, Docherty SL, Father, genetic transcription, Health Care Personnel, Human, Human Tissue, Intensive Care, Interview, Life Sustaining Treatment, Major Clinical Study, Male, Medical Record, Mother, Narrative, Neonatology, November 2018 List, Palliative Therapy, Prognosis, Qualitative Research, Religion, Superdock AK, Thematic Analysis, Treatment Withdrawal
A possibility for strengthening family life and health: Family members' lived experience when a sick child recieves home care in sweden
Tags: 2018, Attention, Castor C, Child, Childhood Cancer, Clinical Article, conference abstract, December 2018 List, Expectation, Family Life, Father, Female, genetic transcription, Hansson H, Home Care, Human, Interview, Kristensson HI, Landgren K, lion, Male, Mother, Nonhuman, Pediatric Blood and Cancer, Personal Experience, responsibility, Sibling, Sweden, welfare, Wellbeing
Facilitating transition from children's to adult services for young adults with life-limiting conditions (TASYL): Programme theory developed from a mixed methods realist evaluation
Tags: 2018, Adult, Article, Child, childhood, Clinical Article, December 2018 List, Decision Making, Drawing, Female, Human, Human Experiment, International Journal Of Nursing Studies, Interview, Kerr H, Male, Nicholl H, O'Halloran P, Palliative Therapy, Price J, Skill, staff training, theoretical study, Transition To Adult Care, Young Adult
Bereaved parents' experiences of research participation
Brazilian Neonatal Nurses' Palliative Care Experiences
Tags: 2018, Article, Borges Silva AR, Brazil, Carmona EV, Cleveland LM, Clinical Article, Controlled Study, Convenience Sample, Darilek U, de Castro de Oliveira F, Developing World 2018 List, Education, Exploratory Research, Female, genetic transcription, Grief, Human, Human Experiment, Infant, Interview, Male, Neonatal Intensive Care Unit, Neonatal Nurse, Newborn, Palliative Therapy, Quality Of Life, quality of nursing care, registered nurse, teaching hospital, The Journal Of Perinatal & Neonatal Nursing, Thematic Analysis, vulnerable population
Conflicting realities experienced by children with life-limiting and life-threatening conditions when transitioning to adult health services
Tags: 2018, Adult, Adult Child, Article, Bennett V, Child, Controlled Study, dilution, facilitation, February 2019 List, Female, Human, Interview, joint, Journal Of Advanced Nursing, Learning, Major Clinical Study, Male, Non Profit Organization, Noyes J, Palliative Therapy, Pritchard A, Pritchard S, Qualitative Analysis, Rees S, Secondary Analysis, Sibling, Skill, Social Isolation, social media, Social Support, Total Quality Management, Transition To Adult Care
Memory-Making in Neonatal End-of-Life Care
Family experiences and viewpoints of palliative and supportive care for children with cancer: Can we do better?
Tags: 2018, Awareness, Basic Needs, Child, Clinical Article, conference abstract, Du Plessis J, error, Exploratory Research, Female, financial management, Grounded Theory, Human, Interview, Male, Meiring M, Oncology, Oncology 2018 List, Palliative Therapy, Pediatric Blood and Cancer, psychosocial care, Qualitative Research, Sibling, South Africa, Staff, Stones D
Social worker and chaplain activities with parents of critically ill children with cancer
Tags: 2018, Arenson M, audio recording, Cancer Patient, cancer stem cell, Child, Clergy, Clinical Article, Content Analysis, Critical Care Medicine, Critically Ill Patient, Female, Heap N, Human, human cell, Interview, Lentini N, Male, Martinez E, Michelson K, Mortality, Oncology 2018 List, Palliative Therapy, Pediatric Intensive Care Unit, Self Care, Social Worker, Statistics
Care with love: Parents' experiences in caring their child with cancer under palliative care
Tags: 2018, Allenidekania A, Caregiver, Child, Clinical Article, conference abstract, daily life activity, Data Analysis, Fatigue, Fear, Female, Human, Interview, jealousy, Male, Malignant Neoplasm, Nafratilova M, Nurse, Oncology 2018 List, Palliative Therapy, Pediatric Blood and Cancer, Phenomenology, primary medical care, Sibling, Uncertainty, Wanda D
Parents with a child throughout the end-of-course: A qualitative study
Introduction to a Novel Palliative Care Intervention for Family Caregivers of Children and Adolescents Living with Rare Diseases (TH308)
Tags: 2019, Adolescent, Advance Care Planning, Alderfer M, Caregiver, Child, Comorbidity, conference abstract, Controlled Study, Feasibility Study, Female, Fraser J, Fratantoni K, Friebert S, Gaines J, health disparity, Human, Human Experiment, Human Immunodeficiency Virus, Interview, Journal of Pain and Symptom Management, Lyon M, Major Clinical Study, Male, Malignant Neoplasm, March 2019 List, Medical Care, Needle J, Needs Assessment, Nonhuman, Palliative Therapy, Pediatrics, Rare Disease, rigor, Skill, Social Isolation, Uncertainty, videorecording, Wellbeing, Wiener L
Compassionate Design: Applying Design Thinking Principles to Pediatric End-of-Life Care (FR452)
Tags: 2019, bath, Child, college, Comfort, conference abstract, Controlled Study, Feasibility Study, Grossoehme D, Human, illumination, injury, Intensive Care Unit, Interview, Job Satisfaction, Journal of Pain and Symptom Management, Lane J, Light, March 2019 List, Memory, Morality, mourning, Posthumous Care, Privacy, Staff, Student, Terminal Care, Thienprayoon R, thinking
Parental experiences and coping strategies when caring for a child receiving paediatric palliative care: a qualitative study
Tags: 2019, anxiety, Article, Bosman D K, Caregiving, Child, Child Care, Child Parent Relation, Clinical Article, Colenbrander D A, Controlled Study, Coping, Coping Behavior, Decision Making, European Journal of Pediatrics., Experiences, Female, Grief, Grootenhuis M A, Human, Interview, July 2019 List, Kars M C, Male, Paediatrics, Palliative Care, Palliative Therapy, Parents, Pediatrics, Perception, Qualitative Research, Schouten-van Meeteren A Y N, tension, Thematic Analysis, Uncertainty, van Delden J J M, van den Bergh E M M, Verberne L M