'why Does It Happen Like This?' Consulting With Users And Providers Prior To An Evaluation Of Services For Children With Life Limiting Conditions And Their Families

Title

'why Does It Happen Like This?' Consulting With Users And Providers Prior To An Evaluation Of Services For Children With Life Limiting Conditions And Their Families

Creator

Hunt A; Brown E; Coad J; Staniszewska S; Hacking S; Chesworth B; Chambers L

Identifier

10.1177/1367493513510630

Publisher

Journal Of Child Health Care : For Professionals Working With Children In The Hospital And Community

Date

2015

Subject

Family; Patient Referral; Rehabilitation; Supply And Distribution; Adolescent; Child; Child Health Care; Handicapped Child; Health Service; Health Services Research; Human; Information Processing; Interview

Description

Children with life limiting conditions and their families have complex needs. Evaluations must consider their views and perspectives to ensure care is relevant, appropriate and acceptable. We consulted with children, young people, their parents and local professionals to gain a more informed picture of issues affecting them prior to preparing a bid to evaluate services in the area. Multiple methods included focus groups, face-to-face and telephone interviews and participatory activities. Recordings and products from activities were analysed for content to identify areas of relevance and concern. An overarching theme from parents was 'Why does it happen like this?' Services did not seem designed to meet their needs. Whilst children and young people expressed ideas related to quality of environment, services and social life, professionals focused on ways of meeting the families' needs. The theme that linked families' concerns with those of professionals was 'assessing individual needs'. Two questions to be addressed by the evaluation are (1) to what extent are services designed to meet the needs of children and families and (2) to what extent are children, young people and their families consulted about what they need? Consultations with families and service providers encouraged us to continue their involvement as partners in the evaluation.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

September 2017 List

Notes

Using Smart Source Parsing ( (pp Date of Publication: 01 Sep 2015

Citation

Hunt A; Brown E; Coad J; Staniszewska S; Hacking S; Chesworth B; Chambers L, “'why Does It Happen Like This?' Consulting With Users And Providers Prior To An Evaluation Of Services For Children With Life Limiting Conditions And Their Families,” Pediatric Palliative Care Library, accessed July 30, 2021, https://pedpalascnetlibrary.omeka.net/items/show/10916.

Social Bookmarking