Browse Items (243 total)
- Tags: Controlled Study
Reiki intervention for supporting healthcare professional care behaviors in pediatric palliative care: A pilot study
Tags: 2023, alternative medicine, Article, Bottigelli C, Burnout, Campione G, care behavior, Child, Child Psychology, Ciappina S, Clinical Practice, clinical psychology, Controlled Study, diastolic blood pressure, Emotional Stress, Fagioli F, Health Care Personnel, Heart Rate, Human, Italy, Lijoi S, March List 2024, Nurse, oxygen saturation, Palliative And Supportive Care, Palliative Care, Palliative Therapy, Parrinello A, Pilot Projects, Pilot Study, Piu P, Psychologist, Quarello P, Reiki, Self Care, special situation for pharmacovigilance, systolic blood pressure, work environment, Workplace, Zucchetti G
Parental knowledge and opinions on palliative care for children
Tags: 2018, Ambulatory Care, Analysis of Variance, Awareness, Black C, Caucasian, Child, conference abstract, Controlled Study, Convenience Sample, Data Analysis Software, Ethnic Group, February 2020 List, Female, Granowetter L, high school, Human, Illinois, Institutional Review, legal guardian, Likert scale, Major Clinical Study, Male, New York, Palliative Therapy, Pediatrics, Physician, Randomized Controlled Trial, Spruill T M, Terminal Care, Zawistowski C A
Sleep disorders in Cornelia de Lange syndrome
Tags: 2016, Adolescent, Adult, Ajmone P, American Journal of Medical Genetics Part C - Seminars in Medical Genetics, Article, body mass, Canevini M P, characteristics, Child, Clinical Article, Comorbidity, Controlled Study, De Lange syndrome, Epilepsy, Female, Fossati C, Furia F, Gastroesophageal Reflux, gene, gene mutation, Gervasini C, HDAC8 gene, histone deacetylase 8, Human, Intellectual Impairment, Kullman G, Male, Masciadri M, NIPBL gene, Priority Journal, problem behavior, RAD21 gene, Russo S, Selicorni A, sleep disorder, sleep disturbance/disorders, SMC1A gene, SMC3 gene, Taiana M, Trajectory, Turner K, Vignoli A, Zambrelli E
Epidemiology of death in paediatric intensive care units (PICUS) in a developing country
Tags: 2018, Artificial Ventilation, Brain Death, Cause Of Death, Child, Chuah S L, conference abstract, Controlled Study, Decision Making, developing country, Developing World 2018 List, Drug Withdrawal, Female, Gan CS, Ho AMM, Human, inotropic agent, Isa MR, Jalil R, Length Of Stay, Life Sustaining Treatment, liver failure, Lum LC, Major Clinical Study, Male, Mortality Rate, organ donor, Palliative Therapy, Pediatric Critical Care Medicine, Pediatric Intensive Care Unit, Prospective Study, Resuscitation, Secondary Analysis, Tang SF, Teh K H, Total Quality Management, Zainal Abidin AS
Perceptions of Pediatric Palliative Care among Physicians Who Care for Pediatric Patients in South Korea
Tags: 2019, Article, care behavior, Caregiver, Child, Controlled Study, December 2019 List, Decision Making, Education, Human, Journal of Palliative Medicine, Kim CH, Kim MS, Moon YJ, Multicenter Study, Oncologist, Palliative Therapy, pediatric patient, Perception, Prognosis, Quality Of Life, Questionnaire, Shin HY, Song IG, South Korea, Terminal Care, tertiary care center, workforce, Yu J
Specialist palliative care service for children with life-threatening conditions in Japan: A nationwide survey of resources and utilization
Japanese physicians' attitudes toward end-of-life discussion with pediatric patients with cancer
Tags: 2018, Adolescent, Adult, anxiety, Article, Cancer Patient, Child, Controlled Study, Death, Dotani C, Human, Inoguchi H, Kato M, Kobayashi M, Malignant Neoplasm, Multicenter Study, Nakahara R, Ogawa C, Oncology 2018 List, Oshima Y, Palliative Therapy, pediatric patient, Pediatrician, Questionnaire, Shimizu K, Supportive Care In Cancer : Official Journal Of The Multinational Association Of Supportive Care In Cancer, Yoshida S
Treatment Decision Making and Regret in Parents of Children With Incurable Cancer
Tags: 2021, 2023 SE3 - Oncology, Article, Cancer Nursing, Cheng MH, Child, Controlled Study, Decision Making, Education, Female, Human, incurable cancer, Liang J, Liang MZ, Male, Multicenter Study, Only Child, Palliative Therapy, Propensity Score, Prospective Study, risk factor, risk perception, Sun Z, Tang Y, Ye ZJ, Yu YL, Zhang XY
The aggressive end-of-life care in pediatric cancer patients in taiwan
Tags: 2018, Cancer Chemotherapy, Cancer Patient, Child, conference abstract, Controlled Study, Death, Diagnosis, do not resuscitate order, Female, Hospice Care, Human, Intensive Care Unit, Intubation, Major Clinical Study, Male, Medical Record Review, Oncology 2018 List, patent, Pediatric Blood and Cancer, Retrospective Study, School Child, Taiwan, Wu LM
Vulnerable Populations Receiving Palliative Radiation in a Children's Hospital: Reporting on the Underreported
Tags: 2019, Adult, Anesthesia, Asia, cancer radiotherapy, Central Nervous System Tumor, Child, conference abstract, Controlled Study, Death, electronic medical record, employer, Female, Follow Up, fraud, housing, Human, Hwang L, immigration, International Journal Of Radiation Oncology Biology Physics, Lee H J, Liu K X, lowest income group, Major Clinical Study, Male, Medical Record Review, Mental Stress, Neuroblastoma, Olch A J, Oncology 2019 List, Organization, Pain, Poverty, race, radiation oncologist, Radiotherapy, Retrospective Study, Rhabdomyosarcoma, School Child, South and Central America, Terminal Care, vulnerable population, Wong K, Young Adult
Courageous conversations: Advance care planning and family communication
Tags: 2018, Adult, Advance Care Planning, anxiety assessment, anxiety disorder, Battles H, conference abstract, Controlled Study, Conversation, Cooperation, De Arruda Colli MNF, Donovan KA, Fasciano K, Follow Up, Heath C, Human, Leonard S, Lyon M, Oncology 2018 List, Pao M, Pediatric Blood and Cancer, social media, Wiener L, Young Adult, Zadeh BS
Children with palliative care needs in Papua New Guinea, and perspectives from their parents and health care workers: a qualitative study
Tags: 2023, 2023 SE5 - Low Resource Setting, acute lymphoblastic leukemia/di [Diagnosis], Adolescent, Adult, Anga G, Article, BMC Palliative Care, bronchiectasis/di [Diagnosis], Cerebral Palsy/di [Diagnosis], Child, Child Health Care, Clinical Article, congenital heart disease/di [Diagnosis], congenital malformation/di [Diagnosis], Controlled Study, Descriptive Research, Duke T, dyspnea/co [Complication], Female, germ cell tumor/di [Diagnosis], Guillain Barre syndrome/di [Diagnosis], health care need, Health Care Personnel, Health Care Quality, hemosiderosis/di [Diagnosis], Human, Human immunodeficiency virus infection/di [Diagnosis], Infant, Interview, job experience, Kilalang C, knowledge gap, Male, malignant neoplasm/di [Diagnosis], Medical Record, Melanesia, neuroblastoma/di [Diagnosis], Only Child, Pacific Islands, Pain/co [complication], Palliative Care, Palliative Therapy, Papua New Guinea, Parent, pediatric ward, Preschool Child, pulmonary hypertension/di [Diagnosis], Pulsan F, Qualitative Research, retinoblastoma/di [Diagnosis], School Child, thalassemia/di [Diagnosis], Thematic Analysis, tuberculosis/di [Diagnosis], Vince JD, Watch V
Community-Based Pediatric Palliative Care: How Services Support Children's and Families' Quality of Life
Tags: 2023, Adolescent, Article, Bateman S, Beitman A, Bereavement Support, Caregiver, Child, Clinician, Community, community integration, Controlled Study, Convenience Sample, Cost Effectiveness Analysis, Disease Management, Family, February List 2024, Ferreira E, Gabovitch E, Human, Interpersonal Communication, Interview, Journal of Palliative Medicine, Jozan A, Male, Mental Health, Merriam G, Padgett K, Pain, Palliative Therapy, participatory research, physical well-being, Psychological Well-being, Quality Of Life, Savageau J, Self Care, Sibling, Socialization, Spiritual Care, Wang Y, Young M
Aims And Tasks In Parental Caregiving For Children Receiving Palliative Care At Home: A Qualitative Study
Tags: 2017, Bosman DK, Child, Child Parent Relation, Clinical Article, Colenbrander DA, Controlled Study, European Journal of Pediatrics, Family Life, Grootenhuis MA, Home Care, Human, Interview, Kars MC, March 2017 List, Palliative Therapy, Personal Experience, Qualitative Research, Schouten-Van Meeteren AYN, Sound, Symptom, Thematic Analysis, van Delden JJ, Verberne LM
Parental experiences and coping strategies when caring for a child receiving paediatric palliative care: a qualitative study
Tags: 2019, anxiety, Article, Bosman D K, Caregiving, Child, Child Care, Child Parent Relation, Clinical Article, Colenbrander D A, Controlled Study, Coping, Coping Behavior, Decision Making, European Journal of Pediatrics., Experiences, Female, Grief, Grootenhuis M A, Human, Interview, July 2019 List, Kars M C, Male, Paediatrics, Palliative Care, Palliative Therapy, Parents, Pediatrics, Perception, Qualitative Research, Schouten-van Meeteren A Y N, tension, Thematic Analysis, Uncertainty, van Delden J J M, van den Bergh E M M, Verberne L M
Little lights: Hospital bereavement photography program
Tags: 2018, August 2018 List, Bereavement, Bishop C, Bryan D, burn, Child, Child Death, conference abstract, Controlled Study, E-mail, Emergency Ward, Female, Gestational Age, hospital personnel, Human, Infant, Journal of Palliative Medicine, Light, Major Clinical Study, mourning, Nurse Practitioner, Photography, respiratory therapist, Terminal Care, Vandergrift PS, Volunteer, Work engagement
The Dutch Multidisciplinary Clinical Practice Guideline for Pediatric Palliative Care
Tags: 2022, Advance Care Planning, Bereavement Support, Borggreve B, Child, Clinical Practice, conference abstract, Controlled Study, December List 2022, Female, Human, Kremer L, Male, Michiels E, Mulder R, Netherlands, Palliative Therapy, Pediatric Blood and Cancer, Practice Guideline, Randomized Controlled Trial (topic), shared decision making, Systematic Review, Van Teunenbroek K, Verhagen AAE
Home-Based Palliative Care for Children With Incurable Cancer: Long-term Perspectives of and Impact on General Practitioners
Tags: 2017, Bindels PJE, Cancer Epidemiology, Child, Controlled Study, Cross-sectional Study, Darlington ASE, Death, Distress Syndrome, Doctor Patient Relation, Fatigue, General Practitioner, Human, Human Versus Animal Comparison, Journal of Pain and Symptom Management, Major Clinical Study, Michiels EMC, Nonhuman, Oncology 2017 List, Pain, Palliative Therapy, Panic, Pieters R, Pluijm SMF, Powerlessness, Questionnaire, Sadness, Symptom, Thermometer, van den Heuvel-Eibrink MM, van der Geest IMM, van der Heide A
"It Could Have Been Me": An Interpretive Phenomenological Analysis of Health Care Providers' Experiences Caring for Adolescents and Young Adults with Terminal Cancer
Tags: 2019, Adult, Article, Canada, Clinician, Controlled Study, Drake E K, Health Care Delivery, Health Care Personnel, Human, Journal of adolescent and young adult oncology., Nurse, Oncology 2019 List, Semi Structured Interview, Terminal Care, Tutelman P R, Uncertainty, Urquhart R, Wellbeing, Young Adult
Pediatric Resident Experience Caring for Children at the End of Life in a Children's Hospital
Tags: 2019, Academic pediatrics., Article, Bamat T, Burnout, Child, Controlled Study, Death, Drug Withdrawal, Education, End-of-life Care, Female, Feudtner C, Griffis H, Human, Life Sustaining Treatment, Major Clinical Study, Male, McConathey E, Medical Record Review, October 2019 List, Palliative Care, Palliative Therapy, postgraduate student, Resident, resident education, Resuscitation, Retrospective Study, Statistics, Terminal Care, Trowbridge A, Walter J K
Assessing well-being in pediatric palliative care: A pilot study about views of children, parents and health professionals
Tags: 2023, Article, Bolance C, Camprodon-Rosanas E, Child, Clinical Article, Controlled Study, Cross-sectional Study, Demography, Emotion, emotional well-being, Female, Guillen M, health practitioner, Human, Limonero JT, Male, May List 2023, Navarro Vilarrubi S, Palliative And Supportive Care, Palliative Care, Palliative Therapy, Perception, Pilot Projects, Pilot Study, psychologic assessment, School Child, Toro-Perez D, vision, Visual Analog Scale, Wellbeing
Feasibility and Acceptability of Recruiting Very Young Hospitalized Children Receiving Palliative Care to an Integrative Therapy Study (S743)
Tags: 2020, Adolescent, Allmendinger-Goertz K, Child, conference abstract, Controlled Study, Critically Ill Patient, Feasibility Study, Female, Follow Up, Foster Care, Friebert S, Hospitalized Child, Human, Ibach M, Infant, Journal of Pain and Symptom Management, Major Clinical Study, Male, March 2020 List, Palliative Therapy, Pilot Study, Reiki, Shaner V, Thrane S
Memory-Making in Neonatal End-of-Life Care
Compassionate Design: Applying Design Thinking Principles to Pediatric End-of-Life Care (FR452)
Tags: 2019, bath, Child, college, Comfort, conference abstract, Controlled Study, Feasibility Study, Grossoehme D, Human, illumination, injury, Intensive Care Unit, Interview, Job Satisfaction, Journal of Pain and Symptom Management, Lane J, Light, March 2019 List, Memory, Morality, mourning, Posthumous Care, Privacy, Staff, Student, Terminal Care, Thienprayoon R, thinking
The 'good death' in pediatric oncology
Tags: 2019, Adult, Advanced Cancer, advanced practice provider, Aged, avoidance behavior, Barton K, Childhood Cancer, Clergy, Clinical Article, Cohort Analysis, conference abstract, Content Analysis, Controlled Study, Female, genetic transcription, Human, Male, Medical Staff, music, Oncology 2019 List, Pediatric Blood and Cancer, Pediatric Hospital, physiotherapist, Prospective Study, Rosenberg A, Semi Structured Interview, Software, sudden death, Taylor M, Terminal Care, Young Adult
Approaches to community-based palliative care provision by children's hospices in the UK
Tags: 2019, Advance Care Planning, Article, Child, Child Health, Controlled Study, Female, Human, Human Experiment, Internet, Major Clinical Study, Male, November 2019 List, Nursing children and young people., out-of-hours care, palliative nursing, prescription, Questionnaire, registered nurse, Tatterton MJ, Telephone, workforce
Parental experience of hope in pediatric palliative care: Critical reflections on an exemplar of parents of a child with trisomy 18
Tags: 2020, Article, care behavior, Child, child protection, Controlled Study, Edwards syndrome, family counseling, Female, Grounded Theory, Human, Intensive Care Unit, Male, March 2020 List, Nursing Inquiry, Pain, Palliative Therapy, Patient Education, Pediatrics, personnel management, Practice Guideline, son, Szabat M
Comparison of treatment modalities in syndromic children with Obstructive Sleep Apnea-A randomized cohort study
Tags: 2014, adenotonsillectomy, apnea hypopnea index, Article, Arumugam S V, breathing difficulties, Child, Clinical Effectiveness, Continuous Positive Airway Pressure, Controlled Study, CPAP device, Down Syndrome, Epworth sleepiness scale, ess-c, Female, Follow Up, Human, International Journal of Pediatric Otorhinolaryngology, Kameswaran M, Major Clinical Study, Male, MPSI, MPSII, MPSIII, MPSIIIA, MPSIIIB, MPSVI, MPSVII, Mucopolysaccharidoses, Mucopolysaccharidosis, Murali S, osa-18, outcome assessment, Paramasivan V K, Pediatric obstructive sleep apnea, physical interventions, positive end expiratory pressure, Priority Journal, Quality Of Life, radiofrequency ablation device, Randomized Controlled Trial, sleep disordered breathing/su [Surgery], sleep disordered breathing/th [Therapy], Sudarsan S S, surgical interventions, Treatment Outcome
Changing times-PICU and palliative care
Evaluation Of Temporal Health System Factors Influencing Parallel Palliative Care Referral For Children With Complex Cardiorespiratory Diagnosis And Treatment
Tags: 2023, Adolescent, Aidoo E, apparent life threatening event, Archives of Disease in Childhood, Artificial Ventilation, Awareness, Chan-Dominy A, Child, Clinical Article, Clinical Nurse Specialist, community care, conference abstract, Consultation, Controlled Study, Decision Making, Demographics, Diagnosis, E-mail, Education, Female, Follow Up, Freitas D, heart graft, Hospice, hospital discharge, Human, Infant, Length Of Stay, Life Sustaining Treatment, Male, Nkulu G, Nurse, Nursing Staff, October List 2031, organizational restructuring, outcome assessment, Oxygenation, Palliative Care, Palliative Therapy, Patient Referral, Pediatric Intensive Care Unit, Practice Guideline, Quality Of Life, Retrospective Study, Subhash S, Surgery, Trust, writing
Decision-making at the limit of viability: The Austrian neonatal choice context
Tags: 2019, Article, August 2019 List, Austria, Bmc Pediatrics, Choice context, Communication strategies, Controlled Study, Decision-making, ethicist, framing bias, Hawlik K, head, high income country, Human, Limit of viability, Neonatologist, Neonatology, nervous system malformation, Newborn, Nicu, Palliative Therapy, Pregnancy, Prematurity, Semi Structured Interview, shared decision making, Stanak M, Statistics, Systematic Review
A Investigation into Hope, Self-Efficacy, Distress and Uncertainty in Parents Who Have A Child with A Life-Threatening or Life-Limiting Illness
Tags: 2022, Article, Bally J, Behavior, Burles M, CARE, Caregiver, Child, Children, Controlled Study, Demographics, Distress, exploratory, Families, financial management, Hope, Human, Journal of Pediatric Nursing, life-limiting illness, Life-threatening illness, McHaro K, Nurse, October 2022 List, parental leave, Pediatric, quantitative analysis, Research, Self Concept, Self-efficacy, Spurr S, Syndrome, Uncertainty
Talking to families when death becomes a likely outcome-a pilot simulation programme to improve end of life conversations during and around PICU admission
Tags: 2018, Advanced Cancer, Bone Marrow Transplantation, Cancer Staging, Cerebrovascular Accident, Child, conference abstract, Controlled Study, Conversation, craniofacial surgery, Death, Du Pre P, Experimental Therapy, Human, Immunology, Life Sustaining Treatment, Multidisciplinary team, November 2018 List, nursing role, Oncology, Palliative Therapy, Pediatric Critical Care Medicine, pulmonary hypertension, Sidgwick P, Simulation, Skellett S, Treatment Failure
Palliative Care Nurse: A Quantitative Study of Caring for Neonates at End-Of-Life Stage
Tags: Article, Infant, Newborn, Nurse, Terminal Care, 2022, Annals of Medicine and Surgery, care behavior, Checklist, content validity, Controlled Study, correlation coefficient, face validity, Health Care Quality, Human, Intensive Care, Neonatal Intensive Care Unit, Nourian M, November 2022 List, Nursing Care, Palliative Therapy, Pourhoseingholi MA, Practice Guideline, Rassouli M, Reliability, Shahintab S
Development and integration of a perinatal palliative care program at a tertiary care center
Tags: 2019, Abortion, anencephalus, Child, Clergy, Comfort, conference abstract, Controlled Study, electronic medical record, Female, Fetus Malformation, Hospice, Human, Intensive Care, Journal Of Investigative Medicine, June 2019 List, May R, Neonatologist, Newborn, Nurse, Oklahoma, Palliative Therapy, Perinatal Care, Practice Guideline, Prenatal Diagnosis, Shah B A, Social Worker, tertiary care center, White L, Wlodaver A
How Do Hospitalised Children Die? The Context of Death and End-Of-Life Decision-Making
Tags: 2023, Advance Care Planning, April List 2023, Article, Astigarraga I, Cardiovascular Disease, Carmona-Nunez A, Child, Childhood Mortality, Controlled Study, Decision Making, Demographics, Documentation, Drug Withdrawal, Female, Hospitalized Child, Human, Infant, Intensive Care Unit, Journal of Paediatrics and Child Health, Life Sustaining Treatment, Lopez-Bayon J, Major Clinical Study, Male, Martin-Irazabal G, Medical Record, Nervous System, Observational Study, Only Child, Palliative Therapy, pediatric patient, Respiratory Tract Disease, Resuscitation, Retrospective Study, Sanchez-Echaniz J, Serrano-Pejenaute I, Treatment Withdrawal, Zorrilla-Sarriegui A
Are pediatric patients just short adults? most commonly prescribed drugs for pediatric hospice patients
Tags: 2018, acid, Adult, Cancer Patient, central nervous system cancer, Chi Square Test, Child, conference abstract, Constipation, Controlled Study, Corticosteroid, Death, Diagnosis, diazepam, diphenhydramine, drug formulation, Drug Therapy, Dyspnea, Female, Genetic Disorder, Haloperidol, Hospice Care, hospice patient, Human, hyoscyamine, Institutional Review, laxative, Length Of Stay, levetiracetam, Lorazepam, macrogol, Major Clinical Study, McPherson ML, metoclopramide, Morgan J, Morphine, Nausea, November 2018 List, ondansetron, Opiate, Pain, Paracetamol, patient information, pediatric patient, Postgraduate Medicine, Practice Guideline, Preschool Child, prochlorperazine, Retrospective Study, salbutamol, Seizure, Sera L, Unclassified Drug, vitamin
Otorhinolaryngological, Audiovestibular and swallowing manifestations of patients with Niemann-Pick disease Type C
Tags: 2016, Adolescent, Aksoy S, Akyol U, Article, aspiration scale, auditory response, Balance disorders, body equilibrium, characteristics, Child, Clinical Article, Controlled Study, Demir N, Dysphagia, Endoscopy, feeding difficulties, Female, Flexible endoscopy, hearing, hearing impairment, Hearing problems, Human, International Journal of Pediatric Otorhinolaryngology, Kuscu O, Male, Niemann Pick disease/di [Diagnosis], Niemann-Pick Disease, NPC, Otorhinolaryngology, penetration, postural imbalance, Preschool Child, Priority Journal, Prospective Study, pure tone audiometry, School Child, Senirli R T, stabilography, Swallowing, Swallowing disorders, tone and motor problems, Topcu M, Trajectory, vestibular system, Yigit O
Qualitative evaluation of the impact of a paediatric palliative care family support volunteering project
Tags: 2018, August 2018 List, Chambers L, Child, conference abstract, Controlled Study, Female, gardening, housekeeping, Human, Human Experiment, Leadership, Major Clinical Study, Male, McNamara K, Palliative Medicine, Palliative Therapy, Qualitative Analysis, Quality Of Life, Questionnaire, Scott R, Semi Structured Interview, shopping, Sibling, Skill, Staff, Volunteer
The Impact of COVID-19 on Palliative Care for Children Within the UK
Tags: 2022, Bluebond-Langner M, Braybrook D, Bristowe K, Child, conference abstract, Controlled Study, Coombes L, COVID-19, Ellis-Smith C, Farsides B, Fraser L, Harardottir D, Harding R, Murtagh F, Palliative Care, Palliative Medicine, Roach A, Scott H, Semi-Structured Interview, September 2022 List, United Kingdom, VULNERABILITY, workload