Browse Items (73 total)
- Tags: Psychology
When a Child Dies in the PICU Despite Ongoing Life Support
Tags: 2018, Butt WW, Child, Clark JD, Death, Dryden-Palmer K, Family, Human, Human Relation, Lewis-Newby M, Long Term Care, March List 2024, Only Child, Palliative Therapy, Parshuram CS, Pediatric Critical Care Medicine, Pediatric Intensive Care Unit, Psychology, Resuscitation, Terminal Care, Treatment Outcome, Treatment Withdrawal, Truog RD, Uncertainty
What constitutes meaningful engagement for patients and families as partners on research teams?
Tags: 2018, 2023 SE1 - Parent Perspectives, Adult Aged, Aged, Attitude To Health, Black A, Canada, Caregivers, Chang W, Charlton SG, Family and Patient Participation, family engagement, Hamilton C, Journal of Health Services Research & Policy, McNamee K, patient engagement in research, Patient experience, patient-oriented research, Psychology, Qualitative, Research Subjects, Researcher-Subject Relations, Strain K, Wallsworth C, Young Adult
Variations of Stereotypies in Individuals With Rett Syndrome: A Nationwide Cross-Sectional Study in Taiwan
Tags: 2017, Autism, Autism Research, Behavioral Sciences, bruxism, CDKL5, characteristics, chinese patients, Disorders, Epilepsy, Ganglia, girls, hair pulling, Hung P L, Jan T Y, Lee W T, lip protrusion, manifestations, mecp2, mecp2 mutations, motor stereotypies, Movement Disorders, Psychology, retropulsion, Rett syndrome, stereotypies, stereotypy, tone and motor problems, Trajectory, Wong L C
Upholding Ethical Decision Making in Children With Life Limiting Illnesses
Undergraduate nursing students' attitudes and preparedness toward caring for dying persons - A longitudinal study
Tags: 2017, Adolescent, Adult, Attitude To Death, Bergh I, Browall M, Ek K, Female, Hammarlund K, Health Personnel Attitude, Henoch I, Human, January 2018 List, longitudinal study, Lundh Hagelin C, Male, Melin-Johansson C, Middle Aged, Nurse Education In Practice, nursing education, nursing student, Osterlind J, Procedures, Psychology, Questionnaire, Strang S, Sweden, Terminal Care, Westin L
Two Futures: Financial and Practical Realities for Parents of Living With a Life Limited Child
Tags: 2017, Adult, climacterium, Complication, Comprehensive Child and Adolescent Nursing, Coping Behavior, Critical Illness, economics, Empathy, etiology, Female, Human, June 2018 List, Male, Mental Stress, Nursing, Parent, Pediatric Intensive Care Unit, Psychology, Qualitative Research, Social Support
The Rett Syndrome Behaviour Questionnaire (RSBQ): refining the behavioural phenotype of Rett syndrome
Tags: 2002, Adolescents, behavioral problems, behavioural phenotype, breathing difficulties, Cass H, Charman T, Children, cpg-binding protein-2, Diagnosis, Epidemiology, Hastings R P, Intellectual Disability, Journal Of Child Psychology And Psychiatry, mecp2, mecp2 mutations, Mental Retardation, mental-retardation, Mount R H, population prevalence, Psychiatry, Psychology, psychopathology, Questionnaire, Reilly S, Rett syndrome, RSBQ, scale development, sleep disturbance, tone and motor problems, tool development, x-chromosome inactivation
The Phenomenon of Bereaved Parenting: An Integrative Review of Literature
Tags: 2021, Bereavement, Communication, Conflict (Psychology), Coping, Emotions, Family Role, Grief, Haylett WJ, Human, March 2021 List, Omega: Journal Of Death & Dying, Parental Role, Parenting, Parents -- Psychosocial Factors, Psychology, Science, Scott Tilley D, Social Work, Survivors, Systematic Review
The perceived benefit scales: measuring perceived positive life changes after negative events
The palliative care nurse's role in supporting the adolescent child of a dying patient
Tags: 2005, Adaptation, Adolescent Psychology/ethics Adult Attitude to Death Bereavement Female Helping Behavior Humans Information Services Internet Life Change Events Neoplasms/nursing/psychology Nurse's Role/, Backlog, International Journal of Palliative Nursing, Journal Article, Methods, PedPal Lit, Professional-Family Relations/ethics Prognosis Social Support Truth Disclosure/ethics, Psychological/ethics Adolescent, Psychology, psychology Palliative Care/ethics/, Sweetland C
The Impact of End-of-Life Care Among Nurses Working in the Pediatric Intensive Care Unit
The care for oncologic patients undergoing pediatric palliative care and the griefs of a health team
Tags: 2023, 2023 SE3 - Oncology, Alves RSF, anxiety, Article, Cancer Diagnosis, Chronic Disease, Clinical Article, coronavirus disease 2019, Cross-sectional Study, de Sena JGM, de Vasconcelos AV, Female, Follow Up, Health Service, Human, Male, Melo CF, Palliative Care, Palliative Therapy, Pandemic, Psicooncologia, Psychology, Questionnaire, Ruiz EM, Semi Structured Interview, Teixeira LC
The Association Between Repetitive, Self-Injurious and Aggressive Behavior in Children With Severe Intellectual Disability
Tags: 2012, adults, Aggression, Autism spectrum disorder, Bacarese-Hamilton M, behavioral problems, challenging behavior, challenging behaviors, characteristics, de-lange-syndrome, handicap, high frequency repetitive behavior, Intellectual Disability, Journal of Autism and Developmental Disorders, learning-disabilities, Mental, Oliver C, People, Petty J, Prevalence, Psychology, psychotropic medication, repetitive behavior, risk-factors, ritualistic behavior, Ruddick L, self-injury, severe intellectual disability, Stereotyped Behavior, total population, Trajectory, young-children
Spirituality in patients with advanced illness: The role of symptom control, resilience and social network
Tags: 2016, Adolescent, Adult, Aged, Barreto P, Clinical Trial, Cross Sectional Study, Cross-sectional Studies, Emotion, February 2018 List, Female, Fombuena M, Galiana L, Human, Journal Of Health Psychology, Male, Middle Aged, Multicenter Study, Oliver A, Palliative Therapy, Pascual A, Psychological Resilience, Psychology, Religion, Social Support, Soto-Rubio A, Terminal Care, terminally Ill Patient, Very Elderly, Young Adult
Short-term Focused Feedback: A Model to Enhance Patient Engagement in Research and Intervention Delivery
Tags: 2021, 2023 SE1 - Parent Perspectives, Academies and Institutes, Aftercare/psychology, Auger KA, Gold JM, House Calls, Medical Care, Patient Outcome Assessment, Patient Participation, Pediatric, Psychology, Sauers-Ford H, Shah SS, Simmons JM, Stakeholder Participation, Statile AM, statistics & numerical data, statistics & numerical data Child Focus Groups Hospitals, statistics & numerical data Humans Parents/psychology Patient Discharge, Time Factors, Transitional Care, Wade-Murphy S
Self-portraits of families with young adult cancer survivors: using photovoice
Tags: 2010, Adolescent, Backlog, Ethnic Groups/statistics & numerical data, Family/psychology, Female, Humans, Journal Article, Journal Of Psychosocial Oncology, Male, Narration, Neoplasms/ethnology/psychology, Photography, Psychology, Quality Of Life/psychology, Questionnaires, Self Concept, Semantics, Socioeconomic Factors, Survivors/psychology, Voice, Yi J, Young Adult, Zebrack B
Research Review: attention bias modification (ABM): a novel treatment for anxiety disorders
Tags: 2010, Adolescents, Analysis, Anxieties, anxiety, Anxiety Disorders, Anxiety Disorders - diagnosis, Anxiety Disorders - psychology, Anxiety Disorders - therapy, Attention, Attentional bias, Backlog, Bar-Haim Y, Care And Treatment, Child Psychology, Children, Cognitive Restructuring, Cognitive Therapy, Cognitive Therapy/methods, COGNITIVE-BEHAVIORAL THERAPY, DEVELOPMENTAL, Drug Therapy, EMOTIONAL FACES, EXPERIMENTAL MANIPULATION, Health Aspects, Journal Article, Journal Of Child Psychology And Psychiatry, Medical Research, Medical treatment, Outcomes of Treatment, Psychiatry, Psychology, RANDOMIZED CLINICAL-TRIAL, SCHIZOPHRENIA, SOCIAL PHOBIA, Therapy, THREAT, VISUAL-ATTENTION
Recommendations for using opioids in chronic non-cancer pain
Tags: 2003, Allan L, Analgesics, Backlog, Biomarkers of Pain, Chronic Disease, Dellemijn PL, Drug Administration Schedule, European Journal Of Pain, Faura CC, Humans, Ilias WK, Jensen TS, Journal Article, Kalso E, Opioid/therapeutic use, Pain/drug Therapy, Patient Education, Perrot S, Plaghki LH, Psychology, Quality Of Life/psychology, Zenz M
Quantitative Evaluation of the Clinical Efficacy of Attention Bias Modification Treatment for Anxiety Disorders
Tags: 2015, Anxieties, anxiety, Anxiety Disorders, Anxiety Disorders - therapy, Backlog, Bar‐Haim Yair, Children, Clinical, Clinical Trials, Cognition, COGNITIVE-BEHAVIORAL THERAPY, computer, Confidence Intervals, Depression, Depression And Anxiety, GENERALIZED SOCIAL PHOBIA, INDIVIDUALS, Internet technology, Journal Article, Linetzky M, Meta-Analysis, MODIFICATION PROGRAM, Pergamin-HL, Pine DS, Psychiatry, Psychology, RANDOMIZED CONTROLLED-TRIAL, STIMULI, THREAT, Treatment
Quality of life in chronic illness: perceptions of parents and paediatricians
Tags: 2005, Acute/psychology/rehabilitation Longitudinal Studies Pain Measurement Parents/, Adolescent Arthritis, Archives of Disease in Childhood, at baseline and follow up, Backlog, but also after a period of follow up, differences at follow up did not decrease compared to baseline. CONCLUSION: At the onset of a chronic disease, especially in the subjective attributes. Systematic assessment of quality of life may contribute to better understanding between(TRUNCATED), Gemke RJ, Janse AJ, Journal Article, juvenile idiopathic arthritis, Juvenile Rheumatoid/psychology/rehabilitation Asthma/psychology/rehabilitationAttitude of Health Personnel Child Child, Kimpen JL, Lymphocytic, not only at diagnosis but also after a period of follow up. Differences were particularly clear in the subjective attributes emotion (range of agreement 28-68%) and pain/discomfort (range of agreement 11-33%). In all patient groups, Pediatrics Perception Pneumonia/complications, PedPal Lit, Preschool Chronic Disease/psychology/rehabilitation Cystic Fibrosis/complications/psychology/rehabilitation Emotions Health Status Humans Infant Leukemia, Psychology, Quality Of Life, quality of life of paediatric patients may be misunderstood by healthcare professionals, Sinnema G, the paediatrician asse ssed the patient to have less pain/discomfort in comparison to the parents. Despite a prolonged patient- paediatrician relationship, Uiterwaal CS
Psychosocial Health Outcomes for Family Caregivers Following the First Year of Bereavement
Tags: 2015, Adolescent, Adult, Aged, August 2017 List, Bereavement, Caregivers/ Psychology, Corner G, Death studies, Depression/epidemiology/etiology, Health Status, Humans, Hurley KE, Kissane DW, Masterson MP, Middle Aged, Psychiatric Status Rating Scales, Psychological Tests, Psychology, Schuler T, Social Adjustment, Spouses/psychology, Stress Psychological/epidemiology, Stress Psychological/etiology, Time Factors, Young Adult, Zaider T
Psychosocial and spiritual needs of children living with a life-limiting illness
Tags: 2007, Activities of Daily Living, Backlog, Carroll JM, Child, Chronic Disease, Expressed Emotion, Health Services Needs And Demand, Humans, Interdisciplinary Communication, Journal Article, Kang T, Kehoe K, McSherry M, Pain/psychology/therapy, Palliative Care/methods, Patient Care Team, Pediatric Clinics of North America, Psychology, Rourke MT, Sibling Relations, Social Support, Spirituality
Psychosocial adjustment in siblings of young people with Duchenne muscular dystrophy
Tags: 2010, Adaptation Psychological, Adolescent, Child, December 2017 List, European Journal of Paediatric Neurology, Female, Garralda ME, Humans, Kinali M, Male, Mental Health, Muntoni F, Muscular Dystrophy Duchenne/px [psychology], Psychiatric Status Rating Scales, Psychology, Read J, Siblings/px [psychology], Surveys And Questionnaires
Psychologists as Pivotal Members of the Pediatric Palliative Care Team
Tags: 2024, Adolescent, April List 2024, Article, Child, Consensus, Diagnosis, Drug Therapy, evidence based practice, Human, interdisciplinary research, Journal of Pain and Symptom Management, Kentor RA, McCarthy SR, Palliative Care, Palliative Therapy, Psychologist, Psychology, Quality Of Life, Schaefer MR, Therapy, Thompson AL
Problems And Hopes Perceived By Mothers, Fathers And Physicians Of Children Receiving Palliative Care
Tags: 2015, Adolescent, Carroll K W, Child, Decision Making, Faerber J A, Father, Female, Feudtner C, Health Expectations, Hexem K R, Hill D L, Hope, Human, Human Relation, Infant, Kang T, Male, Miller V A, Mother, Newborn, Palliative Therapy, Physician, Preschool Child, Problem Solving, Psychology, Quality Of Life, September 2017 List, Young Adult
Posttraumatic growth in hospitalized children and adolescents
Play in Children With Life-Threatening and Life-Limiting Conditions: A Scoping Review
Pediatric Advance Care Planning and Families' Positive Caregiving Appraisals: An RCT
Parents' perspectives on conflict in paediatric healthcare: A scoping review
Parents' Decision-Making for their Foetus or Neonate with a Severe Congenital Heart Defect
Tags: Child, Female, Fetus, Infant, Male, Newborn, Parents, Qualitative Research, 2022, Adult, Brown H, Cardiology In The Young, Congenital, Decision-making, Delaney RK, Donofrio MT, Fagerlin A, Heart Defects, Humans, Karasawa M, Miller SG, November 2022 List, Ozanne EM, Patel A, Pinto NM, Pregnancy, Psychology, Stark LA, Steltzer MM, Watt MH, Zickmund SL
Parental grieving after a child dies from cancer: is stress from stem cell transplant a factor?
Tags: 2005, Adaptation, Backlog, Drew D, Foreman T, Goodenough B, Grief Health Services Needs and Demand Humans Male Mass Screening Neoplasms/psychology/, International Journal of Palliative Nursing, Journal Article, Maurice L, Non-U.S. Gov't Risk Assessment Risk Factors Stem Cell Transplantation/, PedPal Lit, Psychological Adult Analysis of Variance Anxiety/psychology Attitude to Death Attitude to Health Case-Control Studies Child Cross-Sectional Studies Depression/psychology Female, Psychological/diagnosis/etiology/, Psychology, psychology Questionnaires Research Support, Stress (Psychology), therapy New South Wales Nursing Assessment Nursing Methodology Research Parents/, Willis L
Parent reports of quality of life for pediatric patients with cancer with no realistic chance of cure
Parent Priorities in End-of-Life Care for Children With Cancer
Tags: 2023, 2023 SE3 - Oncology, Ananth P, Bayes Theorem, Boyden JY, Child, Child Parent Relation, Cross-sectional Study, de Oliveira S, Death, Female, Feudtner C, Gross CP, Human, JAMA Network Open, Kirch R, Lindsay M, Ma X, McCollum S, Middle Aged, Mun S, neoplasm/th [Therapy], Pitafi S, Psychology, Shabanova V, Terminal Care, Wolfe J
Palliative care management of a child with juvenile onset Huntington's disease
Tags: 2005, Adolescent Adolescent Psychology Attitude to Death Attitude to Health Conscious Sedation, Backlog, complications, etiology, International Journal of Palliative Nursing, Journal Article, King N, Methods, methods England Family, methods Grief Helping Behavior Hospices, organization & administration, organization & administration Humans Huntington Disease, Organizational Nursing Assessment Pain, PedPal Lit, prevention & control Palliative Care, Psychology, psychology Female Gastrostomy, psychology Patient Care Planning Patient Care Team, the issues around terminal care management are very similar to those for any neuro-degenerative disorder, therapy Models
Palliative Care for Infants in the Neonatal Intensive Care Unit: A Scoping Review
Medical, surgical, and health outcomes of gastrostomy feeding
Tags: 2006, Adolescent, Anthropometry, Backlog, Carr LJ, Cass H, Child, Cognition Disorders/epidemiology, Craig GM, Developmental Medicine and Child Neurology, Diet Records, Disabled Children, Female, Gastrostomy/statistics & numerical data, Hastings RP, Health Status, Humans, Infant, Journal Article, Lawson M, Male, Motor Skills Disorders/epidemiology, Nutritional Failure, Nutritional Status, Postoperative Complications/epidemiology, Preschool, Prospective Studies, Psychology, Reilly S, Ryan M, Spitz L, Townsend J
Loss and meaning: How do people make sense of loss
Longitudinal Perinatal Palliative Care for Severe Fetal Neurologic Diagnoses
Listening To Parents: The Role Of Symptom Perception In Pediatric Palliative Home Care
Tags: 2016, Adult, Borasio GD, Brandstatter M, Cross Sectional Study, Death, Duroux A, Dyspnea/di [diagnosis], Female, Führer M, Grasser M, Home Care, Human, January 2017 List, Male, Pain/di [diagnosis], Palliative & Supportive Care, Palliative Therapy, Parent, Pediatrics, Perception, Procedures, Psychology, Quality Of Life, Questionnaire, Retrospective Study, Standards, Symptom Assessment, Vollenbroich R