Browse Items (117 total)
- Tags: Professional-family Relations
Engaging Fathers in Pediatric Palliative Care Research
Tags: *Father-Child Relations, *Fathers/px [Psychology], *Palliative Care/px [Psychology], *Paternal Behavior/px [Psychology], 2020, 2023 SE4 - Parent Perspectives, Adaptation, Psychological, Adult, Barrera, M., Beaune, L., Belletrutti, M., Blumberg, J., Caregiver, Child, Child Health, Controlled Study, Father, Health Care Personnel, Humans, Ing, S., Interview, Journal of social work in end-of-life and palliative care, Male, Nicholas, D., Palliative Therapy, Paternal caregivers, Pediatrics, Perception, Professional-family Relations, Qualitative Research, Rapoport, A., research engagement, sample recruitment challenges, Wellbeing
Characteristics of family conferences at the bedside versus the conference room in pediatric critical care
Tags: 2013, Attitude Of Health Personnel, Backlog, Child, Cohort Studies, Decision Making, Female, Health Care Surveys, Hinds PS, Humans, Intensive Care, Intensive Care Units, Journal Article, Male, October TW, Parents, Patient Care Team, Patient Participation, Pediatric, Pediatric Critical Care Medicine, Physicians, Professional-family Relations, Prospective Studies, Questionnaires, Watson Anne C
Medical ethics in pediatric critical care
Tags: 2013, Backlog, Child, Clinical, Critical Care, Critical Care Clinics, Decision Making, Dissent And Disputes, Ethics, Ethics Committees, Humans, Journal Article, Medical, Morrison WE, Orioles A, Parental Consent, Patient Rights, Pediatrics, Personal Autonomy, Professional-family Relations, Resource Allocation, Terminal Care, Tissue and Organ Procurement, Truth Disclosure, United States, Withholding Treatment
Parental explicit heuristics in decision-making for children with life-threatening illnesses
Tags: 2013, Adolescent, Aphorisms and Proverbs as Topic, Backlog, Carroll KW, Child, Choice Behavior, Chronic Disease/psychology/therapy, Cohort Studies, Communication, Critical Illness/psychology/therapy, Decision Making, Female, Feudtner C, Hospitals, Humans, Infant, Interview, Journal Article, Judgment, Kang T, Male, Palliative Care/psychology, Parent caregivers, Parents/psychology, Pediatric, Pediatrics, Philadelphia, Preschool, Problem Solving, Professional-family Relations, Prospective Studies, Psychological, Renjilian CB, Womer JW, Young Adult
Sharing the care: the key-working experiences of professionals and the parents of life-limited children
Tags: 2014, Adolescent, Adult, Backlog, Caregivers, Child, Child Health Services, Female, Focus Groups, Great Britain, Health Personnel, Health Services Needs And Demand, Humans, International Journal of Palliative Nursing, Journal Article, King N, Male, Middle Aged, Parents, Patient Care Planning, Professional-family Relations, Psychological, Questionnaires, Rodriguez A, Stress, Terminal Care
Cerebral palsy: what parents and doctors want to know
Tags: 2003, Adolescent, Backlog, Bmj (clinical Research Ed.), Cerebral Palsy/diagnosis/etiology/therapy, Child, Developmental Disabilities/etiology, Forecasting, Humans, Infant, Journal Article, Newborn, Parents, Patient Education as Topic, Physician's Role, Preschool, Professional-family Relations, Research/trends, Rosenbaum P
Close to home
"Safe passage": social work roles and functions in hospice care
From hospitalization to grief: meanings parents assign to their relationships with pediatric oncology professional
Addressing transition to adult health care for adolescents with special health care needs
Tags: 2005, Adolescent, African Americans/statistics & numerical data, Aging, Backlog, Case Management, Chronic Disease/epidemiology/therapy, Continuity Of Patient Care/organization & Administration, Cross-sectional Studies, European Continental Ancestry Group/statistics & numerical data, Family Characteristics, Female, Health Services Needs And Demand, Health Surveys, Hispanic Americans/sn [Statistics & Numerical Data], Humans, Insurance Coverage/statistics & numerical data, Ireland M, Journal Article, Male, Parents/psychology, Pediatrics, Poverty, Professional-family Relations, Questionnaires, Sampling Studies, Scal P, Socioeconomic Factors, United States/epidemiology
Supporting Pediatric Patients and Their Families at the End of Life: Perspectives From Bereaved Parents
Tags: 2020, Academic Medical Centers, American Journal of Hospice & Palliative Medicine, Anticipatory Guidance, Bereavement, Chi Square Test, Child, Childhood Neoplasms, Communication, Cousino M K, Data Analysis Software, Decision Making, Descriptive Statistics, Family, Female, Funding Source, Health Resource Utilization, Human, Hutchinson R, Male, McCaffery H, Midwestern United States, November 2020 List, Parental Attitudes – Evaluation, Patient Preference, Paul T K, Pituch K, Professional-family Relations, Professional-patient Relations, psychosocial, Quality Of Life, Questionnaires, Record Review, Retrospective Design, Sedig L K, Shared, Spruit J L, Support, Terminal Care – In Infancy and Childhood
Experiences at the End of Life From the Perspective of Bereaved Parents: Results of a Qualitative Focus Group Study
Tags: 2020, 2022 Special Edition 2 - Parent Perspectives, Adult, American Journal Of Hospice And Palliative Care, Bereavement, Cancer, Child, Communication, Cousino MK, End Of Life, Focus Groups, Hospice Care, Humans, Hutchinson R, Palliative Care, Parents, Paul TK, Pituch K, Professional-family Relations, Quality Of Life, Sedig LK, Spruit JL, Time Factors
Dimensions of the role of the social worker in palliative care
Tags: 2000, Anxiety/rehabilitation, Attitudes, Backlog, Great Britain, Health Knowledge, Humans, Journal Article, Judgment, Palliative Care/organization & Administration, Palliative Medicine, Practice, Professional Practice, Professional-family Relations, Questionnaires, Sheldon FM, Social Work/organization & administration
Palliative care and pediatric surgery
Tags: 2011, Backlog, Child, Critical Illness, Gastrostomy, Humans, Intratracheal, Intubation, Jackson GP, Journal Article, Palliative Care, Patient Care Team, Physician-patient Relations, Pleurodesis, Professional-family Relations, Prognosis, Quality Of Life, Resuscitation Orders, Shelton J, Terminal Care, The Surgical Clinics Of North America, Tracheostomy
Pain assessment in nonverbal children with severe cognitive impairments: the Individualized Numeric Rating Scale (INRS)
Tags: 2003, Backlog, Child, Children W/SNI, Cognition Disorders/complications/nursing, Curley MA, Disabled Children, Humans, Infant, Journal Article, Journal of Pediatric Nursing, Male, Nonverbal Communication, Nursing Evaluation Research, Pain Measurement/instrumentation/nursing/standards, Pain/etiology/nursing, Parent-child Relations, Pediatric Nursing/instrumentation/methods, Preschool, Professional-family Relations, Reproducibility of Results, Solodiuk J
Learning that leads to action: impact and characteristics of a professional education approach to improve the care of critically ill children and their families
Tags: 2010, Archives Of Pediatrics & Adolescent Medicine, Backlog, Browning DM, Canada, Child, Continuing/methods, Curriculum, Dokken DL, Education, Educational, Humans, Interdisciplinary Communication, Journal Article, Merriman MP, Models, Palliative Care, Patient Advocacy, Pediatrics/education, Professional-family Relations, Program Evaluation, Quality Of Health Care, Rushton CH, Solomon MZ, United States
Life threatening illness and hospice care.
Tags: 1989, Adolescent, Archives of Disease in Childhood, Attitude To Health, Backlog, Baum JD, Bereavement, Child, Consumer Satisfaction, Employment, Family Health, Forrest GC, Hospices, Humans, Journal Article, Longitudinal Studies, Marriage, Mental Disorders/psychology, Non-U.S. Gov't, Parents, Preschool, Professional-family Relations, Research Support, Respite Care, Retrospective Studies, Social Support, Stein A, Terminal Care/psychology, Woolley H
Sources of stress for family caregivers of institutionalized dementia patients
Tags: 1991, Alzheimer Disease/psychology, Backlog, Caregivers/psychology, Female, Health Facility Environment, Home Nursing/psychology, Humans, Institutionalization, Interpersonal Relations, Journal Article, Journal Of Applied Gerontology, Kinney JM, Middle Aged, Non-U.S. Gov't, Nursing Homes, Ogrocki PK, Ohio, Professional-family Relations, Psychological/etiology, Research Support, Stephens MA, Stress
Conflict in the care of patients with prolonged stay in the ICU: types, sources, and predictors
Tags: 2003, 80 And Over, Adult, Aged, Backlog, Boston, Brennan T, Burns JP, Case-Control Studies, Communication Barriers, Decision Making, Dissent And Disputes, Family Relations, Female, Galper BZ, Humans, ICU Decision Making, Intensive Care Medicine, Intensive Care Units/statistics & numerical data, Intensive Care/statistics & numerical data, Interprofessional Relations, Journal Article, Length Of Stay, Male, Mello MM, Middle Aged, Professional-family Relations, Prospective Studies, Puopolo AL, Reproducibility of Results, Studdert DM, Time Factors, Truog RD
Symptoms in the palliative phase of children with cancer
Tags: 2007, Adolescent, Age Factors, Anorexia, Attitude To Death, Backlog, Brain Neoplasms, Caregivers, Child, Emotions, Fatigue, Fear, Female, Gastrointestinal Diseases, Hoogerbrugge PM, Humans, Infant, Journal Article, Leukemia, Male, Mobility Limitation, Neoplasms, Pain, Pain Management, Palliative Care, Parent-child Relations, Parents, Pediatric Blood & Cancer, Physician-patient Relations, Preschool, Prins JB, Professional-family Relations, Psychological, Questionnaires, Retrospective Studies, Social Support, Stress, Terminal Care, Theunissen JMJ, Treatment Failure, van Achterberg T, van den Ende CHM, Vernooij-Dassen M
Exhaust All Measures: Ethical Issues In Pediatric End-of-life Care
Tags: 2016, Cimino AN, Decision Making, Family, Health Personnel/px [psychology], Humans, Interviews As Topic, Journal of Social Work in End-of-Life & Palliative Care, Parents/px [psychology], Pediatrics, Professional-family Relations, Rueda HA, September 2017 List, Social Workers/px [psychology], Terminal Care/es [ethics], Terminal Care/px [psychology], Terminal Care/st [standards], Thieleman KJ, Wallace C, Withholding Treatment/es [ethics]
Communication between physician, patient, and family in the pediatric intensive care unit
Tags: 1993, Adaptation, Anxiety/prevention & control/psychology, Attitude Of Health Personnel, Backlog, Child, Communication, Critical Care Medicine, Defense Mechanisms, Education, Empathy, Grief, Humanism, Humans, ICU Decision Making, Intensive Care Units, Internal-External Control, Journal Article, Kinesics, Medical/methods, Parents/education/psychology, Patient Care Team, Patient Satisfaction, Pediatric, Physician-patient Relations, Physician's Role, Power (psychology), Professional-family Relations, Psychological, Todres ID
Parental decision making in pediatric cancer end-of-life care: Using focus group methodology as a prephase to seek participant design input
Tags: 2006, Adaptation, Attitude To Health, Backlog, Barrera M, Baruchel S, Bouffet E, Capra M, Child, Decision Making, European Journal Of Oncology Nursing, Focus Groups/methods, Focus Groups/utilization, Gammon J, Geenberg ML, Helping Behavior, Hinds PS, Humans, Journal Article, Llewellyn-Thomas HA, Morale, Needs Assessment, Neoplasms, Nurse's Role, Nursing Methodology, Oncologic Nursing, Parents/psychology, Patient Selection, Patient-centered Care, Pediatric Nursing, PedPal Lit, Professional-family Relations, Program Development, Psychological, Qualitative Research, Quality Of Life/psychology, Questionnaires, Social Support, Sung L, Terminal Care, Tomlinson D, Volpe J
Relational autonomy: moving beyond the limits of isolated individualism
Tags: 2014, Adolescent, Adolescent Psychology, Backlog, Child, Child Psychology, Communication, Female, Humans, Journal Article, Male, Models, Palliative Care, Parents, Pediatrics, Personal Autonomy, Physician-patient Relations, Professional-family Relations, Psychological, Ross LF, Walter JK, Withholding Treatment
A Qualitative Investigation of Fathers' Experiences of Looking After a Child with a Life-Limiting Illness, In Process and In Retrospect
Tags: 2007, Adaptation, Adult, Attitude To Death, Backlog, Caregivers/psychology, Child, Chronic Disease/psychology, Clinical Child Psychology And Psychiatry, father experience, Father-child Relations, Fathers/psychology, Female, Gender Identity, Grief, Home Nursing/psychology, Humans, Interview, Journal Article, Life Change Events, Male, Marriage/psychology, Palliative Care/psychology, Professional-family Relations, Psychological, Raval H, Social Support, Terminal Care/psychology, Ware J
Bereavement care in the critical care setting
Supporting the family after the death of a child.
Tags: 2012, Adolescent, AIM, Backlog, Child, Chronic Disease, Counseling, Death, Disabled Children, Grief, Guidelines As Topic, Guilt, HEALTH COMMITTEE ON PSYCHOSOCIAL ASPECTS OF CHILD AND FAMILY, Humans, IM, Infant, Journal Article, Mortality, Parenting, Parents, Pediatrics, Physician's Role, Premature, Preschool, Professional-family Relations, sibling bereavement, Siblings, Social Support, Substance-Related Disorders, Sudden, Sudden Infant Death, Suicide, Wender E
The experiences of Chinese family members of terminally ill patients - a qualitative study
Tags: 2007, 80 And Over, Adaptation, Adolescent, Adult, Aged, Anger, Attitude To Death/ethnology, Attitude to Health/ethnology, Attitudes, Backlog, Chan SW, Family/ethnology, Female, Grief, Health Education, Health Knowledge, Health Services Needs And Demand, Hong Kong, Hospital/psychology, Humans, Journal Article, Journal of Clinical Nursing, Male, Middle Aged, Nurse's Role/psychology, Nursing Methodology Research, Nursing Staff, Palliative Care/organization & administration/psychology, Practice, Professional-family Relations, Psychological, Qualitative Research, Questionnaires, Social Support, Wong MS
Disease trajectories and ACT/RCPCH categories in paediatric palliative care
Tags: 2010, Attitude To Health, Backlog, Barnes E, Caregivers, Caregivers/psychology, Child, Disease Progression, Family, Family/psychology, Female, Focus Groups, Hain R, Humans, Interviews As Topic, Journal Article, Male, Palliative Care, Palliative Care/psychology, Palliative Medicine, PEDI Study, Professional-family Relations, Qualitative Research, Simpson S, Wales, Wood F
Provision Of Services In Perinatal Palliative Care: A Multicenter Survey In The United States.
Congenital anomalies account for 20% of neonatal and infant deaths in the United States. Perinatal palliative care is a recent addition to palliative care and is meant to meet the needs of families who choose to continue a pregnancy…
Tags: 2016, Bereavement, Côté-Arsenault D, Critical Care/organization & Administration, Cross-sectional Studies, Denney-Koelsch E, Female, Fetal Mortality, Humans, Infant Newborn, Journal of Palliative Medicine, Kavanaugh K, Kim S, March 2016 List, Palliative Care/organization & Administration, Parents/psychology, Perinatal Care/organization & Administration, Perry Black B, Pregnancy, Professional-family Relations, Surveys And Questionnaires, United States, Wool C
Cornerstone care for families of children with life-threatening illness.
Tags: 1991, Adaptation, Backlog, Baum JD, Brain Diseases/psychology/therapy, Child, Continuity Of Patient Care, Developmental Medicine and Child Neurology, Family/psychology, Forrest GC, Grief, Home Nursing/psychology, Hospices, Humans, Journal Article, Longitudinal Studies, Neuromuscular Diseases/psychology/therapy, Patient Care Team, Professional-family Relations, Psychological, Public Assistance, Sick Role, Social Support, Stein A, Terminal Care/psychology, Woolley H
Exploring perceptions of psychological services in a children's hospice in the United Kingdom
Tags: 2013, Adult, Andrews L, Backlog, Child, Child Health Services, Critical Illness, Crozier K, Disabled Children, Focus Groups, Great Britain, Hospice Care, Humans, Journal Article, Leeson J, Lindsay B, Palliative & Supportive Care, Palliative Care, Parents, Professional-family Relations, Psychological, Stress, Wray Jo, Young Adult
Caring Decisions: The Development Of A Written Resource For Parents Facing End-of-life Decisions
Tags: 2015, Adult, Advance Care Planning/ethics, Advance Care Planning/standards, Attitude Of Health Personnel, Australia, Child, Consumer Health Information/methods, Cossich M, Decision Making/ethics, Gillam L, Humans, Hynson J, Internet, Journal of Palliative Medicine, July 2017 List, Parents/education, Parents/psychology, Pilot Projects, Professional-family Relations, Publications, Sullivan J, Terminal Care/methods, Terminal Care/standards, Wilkinson D, Xafis V
Death Talk: Basic Linguistic Rules And Communication In Perinatal And Paediatric End-of-life Discussions.
This paper considers clinician/parent communication difficulties noted by parents involved in end-of-life decision-making in the light of linguistic theory.
METHODS:
Grice's Cooperative Principle and associated maxims, which enable…
Tags: 2016, Communication, Consumer Health Information, Death, Decision Making, Decision-making, End-of-life Care, Female, Health Communication, Humans, Linguistics, Male, May 2016 List, Parents/psychology, Patient Education and Counseling, Pediatrics, Perinatal Death, Pregnancy, Professional-family Relations, Terminal Care/methods, Terminally Ill, Watkins A, Wilkinson D, Xafis V
A longitudinal method of teaching pediatric palliative care to interns: preliminary findings regarding changes in interns' comfort level
Tags: 2010, Adult, Attitude Of Health Personnel, Attitude To Death, Backlog, Chung PJ, Curriculum/standards, Documentation/standards, Evan E, Female, Humans, Internship And Residency, Journal Article, Longitudinal Studies, Male, Palliative & Supportive Care, Palliative Care/methods, Pediatrics/education, Professional Competence, Professional-family Relations, Professional-patient Relations, Questionnaires, Roubinov D, Teaching/methods, Yazdani S, Young Adult, Zeltzer L
Managing communication with young people who have a potentially life threatening chronic illness: qualitative study of patients and parents
Tags: 2003, Adolescent, Backlog, Bmj (clinical Research Ed.), Child, Chronic Disease, Communication, Critical Illness, Dixon-Woods M, Empirical Approach, Female, Heney D, Humans, Journal Article, Male, Neoplasms/psychology/therapy, Parent caregivers, Physician-patient Relations, Professional Patient Relationship, Professional-family Relations, Windridge KC, Young B
How Parents And Physicians Experience End-of-life Decision-making For Children With Profound Intellectual And Multiple Disabilities.
End-of-life decisions (EoLD) often concern children with profound intellectual and multiple disabilities (PIMD). Yet, little is known about how parents and physicians discuss and make these decisions.
AIMS:
The objective of this research…
Tags: 2016, Adolescent, Adult, Attitude Of Health Personnel, Attitude To Health, Caregiver, Cerebral Palsy, Child, Child Preschool, de Vos MA, Decision Making, Disabled Children, Dissent And Disputes, End Of Life, Ewals FV, Female, Healthcare Professional, Humans, Infant, Infant Newborn, Intellectual Disability, Male, Middle Aged, Neurologists, Palliative Care, Parents, Pediatricians, Professional-family Relations, Qualitative Research, Research in Developmental Disabilities, Resuscitation Orders, Retrospective Studies, September 2016 List, Severity Of Illness Index, Shared Decision-making, Terminal Care, van Goudoever JB, Willems DL, Young Adult, Zaal-Schuller IH