Exploring perceptions of psychological services in a children's hospice in the United Kingdom

Title

Exploring perceptions of psychological services in a children's hospice in the United Kingdom

Creator

Wray Jo; Lindsay B; Crozier K; Andrews L; Leeson J

Publisher

Palliative & Supportive Care

Date

2013

Subject

Child; Humans; Young Adult; Palliative Care; Great Britain; hospice care; Adult; Critical Illness; Parents; Professional-Family Relations; disabled children; Child Health Services; Focus Groups; Stress; Palliative Care; Psychological

Description

BACKGROUND: The provision of emotional and psychological support for all family members who need it is an essential element of holistic palliative care. Within East Anglia's Children's Hospice, teams of professionally trained and experienced workers offer psychosocial support to all family members at all times during the child's and family's journey. However, the effectiveness and appropriateness of current psychosocial provision is unclear, as is the requirement for any additional psychological services. OBJECTIVE: The purpose of this study was to elicit perceptions about current psychological support within the hospice from a group of stakeholders (parents, hospice staff, and external professionals). METHOD: Forty-five parents participated in family focus groups, telephone interviews, individual interviews in their home, or a web-based survey. Ninety-five hospice staff (including nurses, carers, play specialists, therapists, and family support practitioners) and 28 external staff (including physicians, nurses, and commissioning managers) were seen using a mixture of focus group and individual meetings. Focus groups and meetings were held at the hospice building or at an external venue. Interviews were recorded and transcribed verbatim and analyzed using thematic coding. RESULTS: Two main themes addressing perceptions of current psychological provision emerged: "understanding psychological support" and "unmet psychological need." Subthemes linked to support included choice, staff roles and labels, communication, and flexibility, whereas the themes within unmet need had a stronger focus on people and problems. SIGNIFICANCE OF RESULTS: Understanding different user perspectives is an important first step in enhancing current psychological provision; operationalizing the findings will be challenging.
2013-10

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Type

Journal Article

Citation List Month

Backlog

Pages

373-382

Issue

5

Volume

11

Citation

Wray Jo; Lindsay B; Crozier K; Andrews L; Leeson J, “Exploring perceptions of psychological services in a children's hospice in the United Kingdom,” Pediatric Palliative Care Library, accessed August 3, 2021, https://pedpalascnetlibrary.omeka.net/items/show/14741.

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