Browse Items (291 total)
- Tags: Newborn
Your child is dead
Tags: 1991, Attitude Of Health Personnel, Attitude To Death, Backlog, Bereavement, Bmj (clinical Research Ed.), Cause Of Death, Child, Communication, Dallimore D, Female, Finlay I, France, Great Britain, Humans, Infant, Interviews As Topic, Journal Article, Male, Newborn, Nurses, Parents/psychology, Physicians, Police, Preschool, Professional-family Relations, Questionnaires, Tissue and Organ Procurement, Tissue Donors
Worth a Try? Describing the Experiences of Families during the Course of Care in the Neonatal Intensive Care Unit When the Prognosis is Poor
Withholding and withdrawal of life-sustaining treatments for neonate in Japan: Are hospital practices associated with physicians' beliefs, practices, or perceived barriers?
Tags: 2019, Advance Care Planning, Article, Early Human Development, February 2020 List, Female, Feudtner C, Honda J, hospital policy, Human, Human Experiment, Iijima K, institutional care, Intensive Care, Japan, Kizawa Y, Life Sustaining Treatment, Male, Nabetani M, Neonatologist, Newborn, Questionnaire, Yotani N
Withdrawal of ventilatory support outside the intensive care unit: guidance for practice
Tags: 2014, Adolescent, Archives of Disease in Childhood, Backlog, Bluebond-Langner M, Brierley J, Child, Craig F, Female, Guildlines, Humans, Infant, Intensive Care Units, Journal Article, Kelly P, Laddie J, Male, Mechanical, Newborn, Paediatric Intensive Care (PICU), Palliative Care, Pediatric, Place Of Death, Practice Guidelines As Topic, Preschool, Resuscitation Orders, Retrospective Studies, Ventilators
Withdrawal of mechanical ventilation in pediatric and neonatal intensive care units
Tags: 2007, Artificial, Backlog, Child, Diseases, Empathy, Humans, Infant, Intensive Care Units, Journal Article, Munson D, Neonatal, Newborn, Pediatric Clinics of North America, Premature, Professional-family Relations, Respiration, Social Support, United States, Withholding Treatment/legislation & jurisprudence
Withdrawal of artificial nutrition and hydration in neonatal intensive care: parents' and healthcare practitioners' views
Tags: 2017, Belghiti E, Brunet L, Decision Making/es [Ethics], Fournier V, France, Health Personnel/es [Ethics], Health Personnel/px [psychology], Humans, Infant, Intensive Care Units, Interviews As Topic, Medicine, Health Care & Philosophy, Morals, Neonatal/es [Ethics], Newborn, October 2018 List, Parents/px [psychology], September 2018 List, Spranzi M, Withholding Treatment/es [ethics]
Why Do Neonatologists in Scandinavian Countries and the Netherlands Make Life-and-death Decisions So Different?
Tags: 2018, Attitude Of Health Personnel, Clinical Decision-Making/mt [Methods], Humans, Infant, Infant Care/mt [Methods], Infant Care/px [Psychology], Infant Care/st [Standards], July 2019 List, Neonatologists/px [psychology], Neonatologists/st [Standards], Netherlands/ep [Epidemiology], Newborn, Pediatrics, Scandinavian and Nordic Countries/ep [Epidemiology], Survival Rate/td [Trends], Verhagen A A E, Withholding Treatment/st [Standards]
Whom are we comforting? An analysis of comfort medications delivered to dying neonates
Tags: 2011, Analgesics/administration & dosage, Andrews B, Attitude Of Health Personnel, Backlog, Bos Arend, Cardiopulmonary Resuscitation/methods, Decision Making/ethics, Humans, Hypnotics and Sedatives/administration & dosage, ICU Decision Making, Infant, Intensive Care Units, Janvier A, Journal Article, Lagatta J, Lane L, Leuthner SR, Meadow W, Medical Futility, Neonatal, Neuromuscular Blocking Agents/administration & dosage, Newborn, Nicu, Pain/drug Therapy, Palliative Care/methods, Physician Assisted Dying PAD, Prognosis, Psychological/drug therapy, Retrospective Studies, Stress, The Journal Of Pediatrics, Verhagen AAE
Where infants die: examination of place of death and hospice/home health care options in the state of Wisconsin
Tags: 2004, Abnormalities/mortality, Backlog, Boldt AM, Brain/mortality, Cause Of Death, Death Certificates, Home Care Services/utilization, Hospice Care/utilization, Humans, Hypoxia-ischemia, Infant, Infant Care/methods, Infant Mortality, Journal Article, Journal of Palliative Medicine, Kirby RS, Leuthner SR, Location Of Death, Newborn, Non-U.S. Gov't, Premature, Research Support, Terminal Care/methods, Wisconsin/epidemiology
Where do children with complex chronic conditions die? Patterns in Washington State, 1980-1998
Tags: 2002, Adolescent, Backlog, Cause Of Death, Child, Christakis DA, Chronic Disease/mortality, Female, Feudtner C, Humans, ICU Decision Making, Infant, Journal Article, Location Of Death, Male, Newborn, P.H.S., Pediatrics, Preschool, Research Support, Retrospective Studies, Silveira MJ, Survival Analysis, U.S. Gov't, Washington/epidemiology
Where children die: A retrospective analysis of child death overview panel (CDOP) data
Tags: 2019, anonymised data, Archives of Disease in Childhood, Asian, August 2019 List, British citizen, Cancer Diagnosis, Cause Of Death, Child, Child Death, Chromosome Aberration, Clarkson L, conference abstract, Congenital Malformation, Controlled Study, Data Analysis Software, Ethnic Group, Ethnicity, Female, Gender, Hartley D, Hospice, Human, Lyles L, Major Clinical Study, Male, Mayer A, McKeating C, Mortality Rate, Newborn, Palliative Therapy, Renton K, Retrospective Study, strategic planning, Terminal Care
Utilizing an oral sucrose solution to minimize neonatal pain
Tags: 2005, Administration, administration & dosage, adverse effects Treatment Outcome, Backlog, Diagnosis, Diseases, Drug Therapy, etiology, Journal Article, Journal for Specialists in Pediatric Nursing, methods Pain, Newborn, Newborn Infant, Nursing, nursing Pain Measurement Randomized Controlled Trials Risk Assessment Severity of Illness Index Sucrose, Oral Comparative Study Evidence-Based Medicine Female Follow-Up Studies Humans Infant, PedPal Lit, therapy Intensive Care Units Male Neonatal Nursing, Thompson DG
Utilization and costs for children who have special health care needs and are enrolled in a hospital-based comprehensive primary care clinic
Tags: 2005, Adolescent, Backlog, Berman S, Child, Cohort Studies, Colorado, Costs And Cost Analysis, Disabled Children, Dryer LJ, Elias E, Exceptional, Female, Health Expenditures, Health Maintenance Organizations/economics/utilization, Health Resources/statistics & numerical data, Health Services Needs and Demand/economics, Hospital Costs, Hospital Departments/economics/utilization, Hospital/economics/utilization, Hospitalization/statistics & numerical data, Hospitals, Humans, Infant, Inpatients, Jones MD, Journal Article, Laboratories, Male, Medicaid/economics/utilization, Medical/economics, Moore L, Needs Assessment/economics, Newborn, Outpatient Clinics, Outpatients, Pediatric/economics/organization & administration, Pediatrics, Preschool, Primary Health Care/economics/utilization, Rannie M, Specialties
Use of analgesic agents for invasive medical procedures in pediatric and neonatal intensive care units
Unusual clinical presentations in four cases of Leigh disease, cytochrome C oxidase deficiency, and SURF1 gene mutations
Tags: 2005, Akman HO, Backlog, Bonilla E, Cytochrome-c Oxidase Deficiency/complications/genetics/pathology, De Vivo DC, DiMauro S, DNA Mutational Analysis, Female, Frameshift Mutation, Humans, Infant, Journal Article, Journal of Child Neurology, Kidney Diseases/etiology, Leigh Disease/complications/genetics/pathology, Male, Membrane Proteins, Mitochondrial Proteins, Morales A, Morales JF, Muscle, Newborn, Phenotype, Proteins/genetics, Q3 Scoping Review Results, Sacconi S, Shanske S, Skeletal/pathology, Tay SK
Unilateral pediatric "do not attempt resuscitation" orders: the pros, the cons, and a proposed approach
Trisomy 18 in neonates: prenatal diagnosis, clinical features, therapeutic dilemmas and outcome
Tags: 2006, Abnormalities, Backlog, Bober K, Central Nervous System/abnormalities, Chromosomes, Congenital/diagnosis/genetics/therapy, Female, Goc B, Heart Defects, Human, Humans, Infant, Journal Article, Journal Of Applied Genetics, Krzystolik-Ladzinska J, Longitudinal Studies, Multiple/diagnosis/genetics/mortality/therapy, Newborn, Pair 18, Poland/epidemiology, Pregnancy, Prenatal Diagnosis, Prognosis, Retrospective Studies, Swietlinski J, Trisomy, Walencka Z, Wiecek-Wlodarska D, Wloch A, Wojciechowska E
Treatment of pain in pediatric oncology: a Swedish nationwide survey
Tags: 1996, Adolescence, Antineoplastic Agents/adverse effects, Backlog, Berg T, Child, Combined Modality Therapy, Continuing, Drug Administration Routes, Education, Female, Gordh T, Hospital Departments, Human, Infant, Journal Article, Kreuger A, Ljungman G, Male, Medical, Morphine/adverse effects, Neoplasms/complications, Newborn, Non-U.S. Gov't, Nursing, Pain, Pain Measurement, Pain/etiology/therapy, Physician's Practice Patterns, Preschool, Questionnaires, Radiotherapy/adverse effects, Rawal N, Sorensen S, Support, Sweden
Training perinatal nurses in palliative communication by using scenario-based simulation: A quasi-experimental study
Tags: 2024, Article, Chen HW, Cheng SF, Chuang YH, Communication Skill, continuing education, Controlled Study, Delivery Room, experimental design, Female, Health Care Personnel, Hsiung Y, Human, Intensive Care Unit, Interpersonal Communication, Kuo CL, Learning, Liu TY, March List 2024, Newborn, Nurse, Nurse Education In Practice, Palliative Therapy, Purposive Sample, quasi experimental study, registered nurse, Simulation, structured questionnaire, Taiwan, Teaching, terminal disease, Therapy, Training
Tracking neonatal nosocomial infection: the continuous quality improvement cycle
Tags: 2011, Aydon L, Backlog, Biggs S, Cross Infection/epidemiology/prevention & control, Gill AW, Humans, Incidence, Infant, Infant Care/methods/organization & administration/standards, Infection Control/methods/organization & administration/standards, Jones C, Journal Article, Keil AD, Newborn, Quality Improvement/organization & administration/standards, The Journal Of Hospital Infection
Timing of Pediatric Palliative Care Consults in Hospitalized Patients with Heart Disease
Tags: 2023, Advance Care Planning, April List 2023, Article, Artificial Ventilation, Bennett E, Bodily S, Cardiomyopathy, Catheterization, Child, Congenital Heart Disease, Consultation, Cook L, Delgado-Corcoran C, Disease Course, extracorporeal oxygenation, Female, Green DJ, heart disease, Hospital Patient, Hospitalization, Hospitalized Child, Human, Infant, information technology, Intensive Care Unit, Journal of Pediatric Intensive Care, Length Of Stay, Life Sustaining Treatment, Major Clinical Study, Male, Mansfield KJ, Medical Decision Making, Moore D, Mortality, Myocarditis, myopericarditis, Newborn, Olson LM, Palliative Care, Palliative Therapy, Patient Referral, pediatric patient, Pediatrics, pericarditis, pulmonary hypertension, Retrospective Study, Terminal Care, Wawrzynski S, Wilkins V
Thinking outside the box: prenatal care and the call for a prenatal advance directive
Tags: 2005, Advance Directives/ethics/legislation & jurisprudence/psychology, Backlog, Catlin A, Decision Making/ethics Female Feminism Fetal Viability Humans Infant, Education, Ethics, Infant, Journal Article, Journal of Perinatal & Neonatal Nursing, legislation & jurisprudence, legislation & jurisprudence Intensive Care, legislation & jurisprudence Nurse's Role, legislation & jurisprudence Parents, Neonatal, Newborn, PedPal Lit, Premature Informed Consent, Prenatal Care/ethics/legislation & jurisprudence United States, psychology Mass Media Neonatal Nursing, psychology Parental Consent, psychology Practice Guidelines Pregnancy
The role of the courts in disagreements over the care of seriously ill babies
The relationship between grief adjustment and continuing bonds for parents who have lost a child
Tags: 2009, Adaptation, Adolescent, Adult, Attitude To Death, Backlog, Davies B, Female, Field NP, Grief, Humans, Infant, Interpersonal Relations, Journal Article, Kramer R, Life Change Events, Long JK, Male, Newborn, Object Attachment, Omega, Packman W, Parent-child Relations, Parents/psychology, Psychological, Quality Of Life, Questionnaires, Ronen R
The NeoPACE study: study protocol for the development of a core outcome set for neonatal palliative care
Tags: 2023, Adult, Article, Bluebond-Langner M, BMC Palliative Care, Chant K, Child, Controlled Study, Delphi Study, February List 2024, Gallagher K, Health Care Personnel, Human, Interview, Male, Mancini A, Marlow N, Newborn, Newborn Death, Newborn Intensive Care, Palliative Therapy, Perinatal Death, Systematic Review, Terminal Care, Therapy, Total Quality Management
The Neonatal Palliative Care Attitude Scale: Psychometric properties for Portuguese neonatal nurses
Tags: 2022, alpha, Analysis, Article, Attitude, Barbosa J, CARE, Clinical, coefficient, confirmatory, consistency, controlled, convergent, Cronbach, degree, discriminant, Education, end-of-life, error, experiment, Face, factor, Female, Figueira AR, Fradique E, Freedom, Human, intensive, internal, Major, Male, mean, Neonatal, Newborn, Nurse, Nursing, October 2022 List, Of, Palliative, Palliative & Supportive Care, quantitative, Rebotim AM, Reliability, Roldao MG, root, Santos Curado MA, Scale, Software, Sousa F P, squared, study, supportive, terminal, Therapy, Unit, VALIDATION, Validity
The natural history of Niemann-Pick disease type C in the UK
Tags: 2007, Adolescent, Adult, Backlog, Besley GT, Child, Dasgupta S, Female, Fensom AH, Genetic, Great Britain, Harris C, Heptinstall L, Humans, Imrie J, Infant, Jacklin E, Journal Article, Journal Of Inherited Metabolic Disease, Knight S, Lipid Metabolism Disorders/diagnosis/metabolism, Lipids/chemistry, Male, Middle Aged, Models, Newborn, Niemann-Pick Disease, Preschool, Q3 Scoping Review Results, Type C/diagnosis/epidemiology, Vanier MT, Ward C, Whitehouse C, Wraith JE
The natural history of medium-chain acyl CoA dehydrogenase deficiency in the Netherlands: clinical presentation and outcome
Tags: 2006, Acyl-CoA Dehydrogenase/deficiency/genetics, Adolescent, Adult, Backlog, Child, Cohort Studies, Derks TG, Disease Progression, Gerver WJ, Humans, Inborn Errors/complications/diagnosis/genetics, Infant, Journal Article, Longitudinal Studies, Metabolism, Middle Aged, Mutation/genetics, Netherlands, Newborn, Preschool, Prognosis, Reijngoud DJ, Retrospective Studies, Sauer PJ, Severity Of Illness Index, Smit GP, The Journal Of Pediatrics, van den Berg MP, Waterham HR
The Groningen protocol--euthanasia in severely ill newborns
Tags: 2005, Backlog, Death and Euthanasia, Euthanasia/ethics/legislation & jurisprudence, Humans, Infant, Intensive Care/ethics/legislation & jurisprudence, Journal Article, Netherlands, Newborn, Practice Guidelines, Prognosis, Sauer PJ, The New England Journal Of Medicine, Third-Party Consent/legislation & jurisprudence, Verhagen E
The ethics of withholding/withdrawing nutrition in the newborn
The Effects of Chronic Disease on Ambulatory Care–Sensitive Hospitalizations for Children or Youth
Tags: 2019, Adolescence, Adolescent, Age Factors, Ambulatory Care -- In Adolescence, Ambulatory Care -- In Infancy and Childhood, Child, Chronic Disease, Confidence Intervals, Cross Sectional Studies, Data Analysis Software, Descriptive Statistics, Female, Health Services Insights, Hospitalized, Human, Infant, January 2020 List, Kum H C, Logistic Regression, Male, Models, Newborn, Nwaiwu O, Odds Ratio, Ohsfeldt R, Patient Discharge, Phillips C D, Post Hoc Analysis, Preschool, Probability, Race Factors, ROC Curve, Sex Factors, statistical, Texas, Truong C
The death of a twin
The clinical spectrum of mitochondrial disease in 75 pediatric patients
Tags: 2003, Adolescent, Age of Onset, Backlog, Bernert G, Child, Clinical Pediatrics, Female, Humans, Infant, Journal Article, Konstantopoulou V, Male, Mitochondrial Diseases/diagnosis/epidemiology, Newborn, Plecko-Startinig B, Preschool, Q3 Scoping Review Results, Retrospective Studies, Skladal D, Sperl W, Stockler-Ipsiroglu S, Sudmeier C, Zeman J
The clinical and demographic characteristics of nonneuronopathic Gaucher disease in 887 children at diagnosis
Tags: 2006, Adolescent, AIM, Andersson HC, Anemia/et [Etiology], Archives Of Pediatrics & Adolescent Medicine, Backlog, Bone Diseases/et [Etiology], Child, Female, Gaucher Disease/co [Complications], Gaucher Disease/di [Diagnosis], Growth Disorders/et [Etiology], Hepatomegaly/et [Etiology], Humans, IM, Infant, Journal Article, Kacena KA, Kaplan P, Longitudinal Studies, Male, Newborn, Preschool, Q3 Scoping Review Results, Splenomegaly/et [Etiology], Thrombocytopenia/et [Etiology], Yee JD
The chameleon project: A children's end of life care quality improvement project: Preliminary results
Tags: 2019, Archives of Disease in Childhood, August 2019 List, Bereavement, Brown J, Child, Child Death, conference abstract, Connolly A, Controlled Study, Cost Control, Documentation, Dorsett C, England, Griffin H, Haynes S, Hospital Admission, Human, Kelly N, Newborn, Palliative Therapy, Pediatric Intensive Care Unit, preliminary data, Questionnaire, Teaching, Terminal Care, Total Quality Management, Turnbull J, Wolff A
The attitudes of neonatal professionals towards end-of-life decision-making for dying infants in Taiwan
Tags: 2013, Adult, Attitude Of Health Personnel, Attitude To Death, Backlog, Chang YC, Chen CH, Clinical, Continuing, Cross-sectional Studies, Decision Making, Education, Ethics Committees, Female, Hospital, Huang L-C, Humans, Infant, Intensive Care Units, Journal Article, Journal of Medical Ethics, Lee Ho-Yu, Liu Hsin-Li, Male, Medical, Medical Staff, Middle Aged, Neonatal, Neonatology, Newborn, Nursing Staff, Peng Niang-Huei, Questionnaires, Referral And Consultation, Resuscitation Orders, Self Report, Taiwan, Terminal Care, Wang Teh-Ming, Withholding Treatment
Task force 1: the changing profile of congenital heart disease in adult life
Tags: 2001, Adolescent, Adolescent Transitions, Adult, Aged, Backlog, Child, Congenital/mortality/rehabilitation, Cross-sectional Studies, Danielson GK, Dore A, Female, Great Britain/epidemiology, Harris L, Heart Defects, Hoffman JI, Humans, Incidence, Infant, Journal Article, Journal of the American College of Cardiology, Liberthson R, Male, Middle Aged, Newborn, Patient Care Team, Preschool, Prognosis, Somerville J, Survival Rate, United States/epidemiology, Warnes CA, Webb GD, Williams RG