Browse Items (734 total)
- Tags: Infant
Practical Recommendations For Diagnosis And Management Of Respiratory Muscle Weakness In Late-onset Pompe Disease
Tags: 2016, Adult, Barrot Cortés E, Boentert M, Confalonieri M, Cough Assistance, Glycogen Storage Disease Type Ii/diagnosis, Glycogen Storage Disease Type Ii/pathology, Glycogen Storage Disease Type Ii/therapy, Humans, Infant, International Journal of Molecular Sciences, Jones HN, Mechanical Ventilation, Mellies U, Muscle Weakness/pathology, Muscle Weakness/therapy, Neuromuscular Disorders, October 2016 List, Pompe Disease, Prigent H, Respiratory Function Tests, Respiratory Insufficiency/therapy, Respiratory Muscle Weakness, Respiratory Muscles/pathology, Simonds AK, Surveys And Questionnaires, Várdi K, Wenninger S
Retrospective, multicentric study of 180 children with cytochrome C oxidase deficiency
Tags: 2006, Adolescent, Backlog, Bohm M, Carrier Proteins, Child, Cytochrome-c Oxidase Deficiency/diagnosis/genetics/mortality, Czech Republic, DNA, Female, Hansikova H, Houstek J, Houstkova H, Humans, Infant, Journal Article, Karczmarewicz E, Male, Membrane Proteins, Mierzewska H, Mitochondrial Proteins, Mitochondrial/genetics, Mutation, Newborn, Pediatric Research, Piekutowska-Abramczuk D, Poland, Preschool, Prognosis, Pronicka E, Pronicki M, Proteins/genetics, Q3 Scoping Review Results, Sequence Deletion, Slovakia, Sykut-Cegielska J, Tesarova M, Vesela K, Zeman J
Research prioritisation exercises related to the care of children and young people with life-limiting conditions, their parents and all those who care for them: A systematic scoping review
Neonatologist training to guide family decision making for critically ill infants
Tags: 2009, Archives Of Pediatrics & Adolescent Medicine, Arnold RM, Attitude Of Health Personnel, Backlog, Boss RD, Clinical Competence, Communication, Critical Illness, Decision Making, Donohue PK, Education, Fellowships And Scholarships, Graduate, Humans, Hutton N, Infant, Internet, Journal Article, Linear Models, Medical, Neonatology/education, Newborn, Nonparametric, Premature, Professional-family Relations, Questionnaires, Statistics, United States
Openness and avoidance--a longitudinal study of fathers of children with intellectual disability.
Tags: *Developmental Disabilities/px [Psychology], *Father-Child Relations, *Fathers/px [Psychology], *Intellectual Disability/px [Psychology], *Parenting/px [Psychology], 2014, 2023 SE4 - Parent Perspectives, Adult, Bostrom, P K, Broberg, M, Child, Preschool, Female, Humans, Infant, Journal Of Intellectual Disability Research, Longitudinal Studies, Male, Qualitative Research
Beta-endorphin and cholecystokinin 8 concentrations in peripheral blood mononuclear cells of autistic children
Tags: 1997, Adolescent, Autistic Disorder/blood/diagnosis/psychology, Backlog, beta-Endorphin/blood, Biomarkers of Pain, Brambilla F, Child, Child Development Disorders, Female, Guareschi-Cazzullo A, Humans, Infant, Journal Article, Male, Monocytes/metabolism, Musetti C, Neuropsychobiology, Panerai AE, Pervasive/blood/diagnosis/psychology, Preschool, Reference Values, Sacerdote P, Sincalide/blood, Tacchini C
Plasma morphine levels produced by continuous infusion in children
Survival in trisomy 13 and trisomy 18 cases ascertained from population based registers.
Tags: 2002, Backlog, Brewer CM, Carothers AD, Chromosomes, FitzPatrick DR, Holloway SH, Human, Humans, Infant, Journal Article, Journal Of Medical Genetics, Longitudinal Studies, Newborn, Pair 13/genetics, Pair 18/genetics, Registries/statistics & numerical data, Scotland, Stone DH, Survival Analysis, Trisomy
Acute and chronic paediatric intensive care patients: current trends and perspectives on resource utilization
Tags: 2004, Acute Disease/mortality/therapy, Adolescent, Analysis of Variance, Artificial/methods, Backlog, Briassoulis G, Child, Chronic Disease/mortality/therapy, Female, Filippou O, Greece, Hatzis T, Health Resources/trends/utilization, Hospital Mortality, Humans, ICU Decision Making, Infant, Intensive Care Units, Journal Article, Length Of Stay, Male, Mavrikiou M, Monthly Journal Of The Association Of Physicians, Natsi L, Newborn, Pediatric/utilization, Preschool, Prospective Studies, Respiration, Severity Of Illness Index
Lactation Support as a Proxy Measure of Family-Centered Care Quality in Neonates with Life-Limiting Conditions-A Comparative Study
Tags: 2023, Article, Brannon M, breast feeding, breast pump, Brito S, Cerebral Palsy, Chahin N, Children, clinical assessment, Cognitive Defect, Cohort Analysis, Comparative Study, Congenital Heart Disease, Controlled Study, do not resuscitate order, Donor Milk, extracorporeal oxygenation, Family Centered Care, February List 2024, Female, Fox J, gastrointestinal disease, Genetic Disorder, Gestational Age, health disparity, Hendricks-Munoz KD, Hospital Admission, hospital discharge, Human, hypoxic ischemic encephalopathy, incurable disease, Infant, kidney disease, lactation, learning disorder, Length Of Stay, Life limiting condition, Lung Disease, Major Clinical Study, Male, McCarthy K, Mohammed T, Mortality, Neonatal Intensive Care Unit, Neurologic Disease, Nubayaat L, Nunlist S, nutritional deficiency, Retrospective Study, Seizure, sensory dysfunction, Williams A, Xu J
"I Didn't Want My Baby to Pass, But I Didn't Want Him Suffering Either": Comparing Bereaved Parents' Narratives With Nursing End-of-Life Assessments in the Pediatric Intensive Care Unit
Tags: 2022, Article, August 2022 List, Broden EG, Cancer Patient, Child, Chronic Disease, Comfort, Controlled Study, Curley MAQ, Distress Syndrome, Hinds PS, Human, Infant, Intensive Care, Interview, Journal of Hospice and Palliative Nursing, Major Clinical Study, Male, Malignant Neoplasm, Memory, Narrative, Nursing, Pain, Pediatric Intensive Care Unit, Perception, quantitative analysis, Sedation, Terminal Care, Werner-Lin AV
Recent trends in cerebral palsy survival. Part II: individual survival prognosis
Tags: 2014, Adolescent, Adult, Backlog, Brooks JC, California, Cerebral Palsy, Child, Developmental Medicine and Child Neurology, Disabled Persons, Female, Humans, Infant, Journal Article, Kaplan-Meier Estimate, Life Expectancy, Male, Mortality, Preschool, Prognosis, Rosenbloom L, Shavelle RM, Strauss DJ, Tran Linh M, Wu YW, Young Adult
Transition to a Primary Palliative Care Model in the NICU (FR441B)
Tags: 2020, Baxter R, Brown H, Bruner A, Comfort, conference abstract, Controlled Study, Documentation, Education, Female, Hospice, Human, Human Experiment, Infant, Journal of Pain and Symptom Management, Male, March 2020 List, Needs Assessment, Neonatologist, Nurse, Palliative Therapy, Satisfaction
Risk factors for long intensive care unit stay after cardiopulmonary bypass in children
Tags: 2003, Backlog, Brown KL, Cardiopulmonary Bypass, Child, Congenital/surgery, Critical Care Medicine, Goldman AP, Heart Defects, Hoskote A, Humans, ICU Decision Making, Infant, Intensive Care Units, Journal Article, Length Of Stay, Multivariate Analysis, Newborn, Pediatric, Penny DJ, Regression Analysis, Retrospective Studies, Ridout DA, Risk Factors, San Francisco, Treatment Outcome
The use of haloperidol in the agitated, critically ill pediatric patient with burns
Tags: 1996, Adolescent, Antipsychotic Agents/administration & dosage/adverse effects/therapeutic use, Backlog, Brown RL, Burns/complications/drug therapy, Child, Critical Illness, Female, Greenhalgh DG, Haloperidol/administration & dosage/adverse effects/therapeutic use, Henke A, Humans, Infant, Journal Article, Male, Medical Records, Preschool, Psychomotor Agitation/drug therapy/etiology/physiopathology, Retrospective Studies, The Journal Of Burn Care & Rehabilitation, Treatment Outcome, Warden GD
Pyruvate dehydrogenase E3 binding protein (protein X) deficiency
Tags: 2006, Backlog, Brown GK, Brown RM, Child, Developmental Medicine and Child Neurology, DNA Mutational Analysis, Female, Head RA, Humans, Infant, Journal Article, Male, Morris AA, Preschool, Protein Subunits/deficiency/genetics, Pyruvate Dehydrogenase Complex Deficiency Disease/diagnosis/genetics/metabolism, Pyruvate Dehydrogenase Complex/genetics/metabolism, Q3 Scoping Review Results, Raiman JA, Severity Of Illness Index, Walter JH, Whitehouse WP
The death of a twin
End-of-life Decisions For Extremely Preterm Infants - A Matter Of Language, Gender And Education?
Tags: 2017, Acta Paediatrica, April 2017 List, Artificial Ventilation, Bührer C, Editorial, Education, Ethical Decision Making, Female, France, Gender, Germany, Human, Human Experiment, Infant, Italy, Language, Male, Physician Attitude, Prematurity, Prematurity/dm [disease Management], Priority Journal, Quality Of Life, Shared Decision-making, Switzerland, Terminal Care
End-of-life care in the pediatric intensive care unit after the forgoing of life-sustaining treatment
Tags: 2000, Analgesics/administration & dosage, Attitude Of Health Personnel, Backlog, Burns JP, Critical Care Medicine, Geller M, Griffith JL, Humans, Hypnotics and Sedatives/administration & dosage, ICU Decision Making, Infant, Intensive Care Units, Job Satisfaction, Journal Article, Life Support Care, Mitchell C, Outwater KM, Pediatric, Prospective Studies, Terminal Care/methods, Todres ID, Truog RD, Ventilator Weaning
End-of-life care in the pediatric intensive care unit: research review and recommendations
Tags: 2004, Adult, Analgesia/ethics/standards, Attitude Of Health Personnel, Attitude To Death, Attitudes, Backlog, Bereavement, Burns JP, Child, Conscious Sedation/ethics/standards, Critical Care Clinics, Decision Making, Evidence-based Medicine, Forecasting, Health Care/organization & administration, Health Knowledge, Humans, ICU Decision Making, Infant, Infant Mortality, Intensive Care Units, Intensive Care/ethics/organization & administration/psychology, Journal Article, Parents/psychology, Pediatric/ethics/organization & administration, Practice, Practice Guidelines, Quality Assurance, Resuscitation/ethics/standards, Rushton CH, Terminal Care/ethics/organization & administration/psychology, United States/epidemiology, Withholding Treatment/ethics/standards
Early palliative care reduces stress in parents of neonates with congenital heart disease: validation of the "Baby, Attachment, Comfort Interventions"
Tags: 2019, anxiety, Article, Brumarie L, Callahan K, Child Parent Relation, Cohort Analysis, Comfort, Congenital Heart Disease, Controlled Study, emotional attachment, Female, Health Care Quality, Human, Infant, Journal of perinatology : official journal of the California Perinatal Association., Male, Mental Stress, Newborn, November 2019 List, Palliative Therapy, Parravicini E, Prospective Study, Schechter S, Steinwurtzel R
Context of a neonatal death affects parental perception of end-of-life care, anxiety and depression in the first year of bereavement
Tags: 2023, anxiety, Bereavement, BMC Palliative Care, Cambonie G, Combes C, de Balanda KB, Depression, Desage C, Female, Gavotto A, Humans, Infant, Infant Newborn, July List 2023, Lemaitre A, Parents/px [psychology], Perception, Perinatal Death, Prospective Studies, Terminal Care, Terminal Care/px [psychology], Thaller P
Evidence for healing interventions with perinatal bereavement
Tags: 2005, Adaptation, Adult, Age Factors, Attitude To Death, Backlog, Bereavement, Capitulo KL, Child, Child Psychology, Evidence-based Medicine, Female, Funeral Rites, Funeral Rites/psychology, Health Services Needs And Demand, Helping Behavior, Humans, Infant, Intervention, Interventions, Journal Article, Male, Maternal-Child Nursing, Maternal-Child Nursing/organization & administration, Newborn, Nurse's Role, Nurse's Role/psychology, Nursing Evaluation Research, Parents, Parents/education/psychology, Professional-family Relations, Psychological, Self-Help Groups, Sex Factors, sibling bereavement, Social Support, Spirituality, Symbolism, The American Journal Of Maternal Child Nursing
Unilateral closed-lip schizencephaly and epilepsy: a comparison with cases of unilateral polymicrogyria
Tags: 2004, Adolescent, Adult, Backlog, Brain & Development, Brain/abnormalities/pathology, Caraballo RH, Cersosimo RO, Child, Electroencephalography, Epilepsy/pathology, Fejerman N, Female, Follow-up Studies, Frontal Lobe/pathology, Gait Disorders, Humans, Infant, Journal Article, Magnetic Resonance Imaging, Male, Neurologic/complications/pathology, Preschool, Q3 Scoping Review Results, Temporal Lobe/pathology, Tomography, X-Ray Computed
Parental involvement in treatment decisions regarding their critically ill child: a comparative study of France and Quebec
Tags: 2007, Backlog, Canoui P, Carnevale FA, Child, Communication, Consumer Participation/px [Psychology], Consumer Satisfaction, Cremer R, Critical Illness/th [therapy], Cultural Characteristics, Doussau A, Farrell C, Female, France, Hubert P, Humans, ICU Decision Making, IM, Infant, Intensive Care Units, Journal Article, Lacroix J, Leclerc F, Male, Nurse's Role/px [Psychology], Parents/px [psychology], Paternalism, Pediatric Critical Care Medicine, Pediatric/og [Organization & Administration], Physician's Role/px [Psychology], Preschool, Professional-family Relations, Qualitative Research, Quebec, Seguin MJ
The moral experience of parents regarding life-support decisions for their critically-ill children: a preliminary study in France
Tags: 2006, Adaptation, Attitude to Health/ethnology, Backlog, Canoui P, Carnevale FA, Child, Clinical Competence, Communication, Decision Making, Doussau A, Farrell C, Grief, Guilt, Health Services Needs And Demand, Hospitalized/psychology, Hospitals, Hubert P, Humans, ICU Decision Making, Infant, Intensive Care Units, Intensive Care/psychology, Journal Article, Journal Of Child Health Care, Lacroix J, Leclerc F, Life Support Care/psychology, Morals, Nursing Methodology Research, Parental Consent/psychology, Parents/education/psychology, Paris, Pediatric, Physician's Role/psychology, Professional-family Relations, Psychological, Qualitative Research, Questionnaires, Seguin MJ, Social Support
Factors associated with health professionals decision to initiate paediatric advance care planning: A systematic integrative review
Circumstances surrounding the deaths of hospitalized children: opportunities for pediatric palliative care.
Tags: 2004, Academic Medical Centers, Adolescent, Backlog, Carter BS, Child, et al, Female, Gilmer MJ, Hospital Mortality, Hospitalization, Hospitalized, Howenstein M, Humans, Infant, Journal Article, Length Of Stay, Longitudinal Studies, Male, Newborn, Non-U.S. Gov't, Pain/diagnosis/drug therapy, Palliative Care, Pediatrics, Preschool, Research Support, Retrospective Studies, Terminal Care, Terminally Ill, Withholding Treatment
The ethics of withholding/withdrawing nutrition in the newborn
Pediatric palliative care in Sweden
Thinking outside the box: prenatal care and the call for a prenatal advance directive
Tags: 2005, Advance Directives/ethics/legislation & jurisprudence/psychology, Backlog, Catlin A, Decision Making/ethics Female Feminism Fetal Viability Humans Infant, Education, Ethics, Infant, Journal Article, Journal of Perinatal & Neonatal Nursing, legislation & jurisprudence, legislation & jurisprudence Intensive Care, legislation & jurisprudence Nurse's Role, legislation & jurisprudence Parents, Neonatal, Newborn, PedPal Lit, Premature Informed Consent, Prenatal Care/ethics/legislation & jurisprudence United States, psychology Mass Media Neonatal Nursing, psychology Parental Consent, psychology Practice Guidelines Pregnancy
Creation of a neonatal end-of-life palliative care protocol
Tags: 2002, Backlog, Carter B, Catlin A, Clinical Protocols, Counseling, Culture, Delphi Technique, Empathy, Euthanasia, Family/ethnology/psychology, Humans, Infant, Internet, Journal Article, Journal Of Perinatology, Neonatology/standards, Newborn, Non-U.S. Gov't, Palliative Care/standards, Passive/psychology, Professional-family Relations, Questionnaires, Research Support, Social Support, Terminal Care/standards, Tissue and Organ Procurement, United States, Ventilator Weaning
Morbidity and mortality after percutaneous endoscopic gastrostomy in children with neurological disability
Tags: 2006, Adolescent, Adult, Australia/epidemiology, Backlog, Catto-Smith AG, Child, Comorbidity, Endoscopy, Female, Gastrointestinal/mortality, Gastrostomy/mortality, Humans, Incidence, Infant, Jimenez S, Journal Article, Journal Of Gastroenterology And Hepatology, Male, Malnutrition/mortality/prevention & control, Nervous System Diseases/mortality/surgery, Nutritional Failure, Preschool, Risk Assessment/methods, Risk Factors, Survival Analysis, Survival Rate, Treatment Outcome
More qualitative research is needed to unpack the complexities of resuscitation decisions for preterm infants
Tags: 2023, Acta Paediatrica, International Journal of Paediatrics, Cavolo A, Gastmans C, Gestational Age, Human, Infant, Infant Premature, Letter, Medical Decision Making, November List 2037, Palliative Therapy, pediatric patient, Practice Guideline, Prematurity, Qualitative Research, Resuscitation
Italian Nurses' Attitudes Towards Neonatal Palliative Care: A Cross-Sectional Survey
Laboratory integration and utilization of tandem mass spectrometry in neonatal screening: a model for clinical mass spectrometry in the next millennium
Tags: 1999, Acta Paediatrica, Backlog, Biomarkers of Pain, Chace DH, Clinical Laboratory Techniques/instrumentation, DiPerna JC, Female, Forecasting, Humans, Inborn Errors/diagnosis, Infant, Journal Article, Male, Mass Spectrometry/trends/utilization, Metabolism, Naylor EW, Neonatal Screening/methods, Newborn, Sensitivity and Specificity, United States
End-of- Life Decision-making For Newborns: A 12-year Experience In Hong Kong. Archives Of Disease In Childhood Fetal & Neonatal Edition
Neonatal end-of-life decisions could be influenced by cultural and ethnic backgrounds. These practices have been well described in the West but have not been systematically studied in an Asian population.
OBJECTIVES
To determine: (1)…
Tags: 2016, April 2016 List, Archives of Disease in Childhood, Cause Of Death, Chan LC, Cheung HM, Decision Making, Ethics, Female, Hong Kong, Humans, Infant, Infant Mortality/trends, Infant Newborn, Lam HS, Ma TP, Male, Ng PC, Palliative Care, Poon TC, Retrospective Studies, Terminal Care/trends, Withholding Treatment/trends
Mortality trends for pediatric life-threatening conditions.
Tags: 2014, Adolescent, British Columbia, Cause Of Death, Chavoshi N, Child, Child Mortality/trends, Child Preschool, Female, Hospice, Hospice Care/statistics & Numerical Data, Humans, Illness, Infant, Infant Newborn, Life-threatening Conditions, Male, Miller T, Mortality, Palliative, Palliative Care/statistics & Numerical Data, Pediatric, Pediatrics, Siden H, The American Journal of Hospice & Palliative Care