Openness and avoidance--a longitudinal study of fathers of children with intellectual disability.

Title

Openness and avoidance--a longitudinal study of fathers of children with intellectual disability.

Creator

Bostrom, P K; Broberg, M

Identifier

Publisher

Journal of Intellectual Disability Research

Date

2014

Subject

Humans; Child, Preschool; Female; Male; Infant; Longitudinal Studies; Adult; Qualitative Research; *Fathers/px [Psychology]; *Father-Child Relations; *Intellectual Disability/px [Psychology]; *Parenting/px [Psychology]; *Developmental Disabilities/px [Psychology]

Description

BACKGROUND: Fathers' interactions with children who have intellectual disabilities (ID) or developmental delays (DD) have increased over the past few decades and may be expected to continue to increase as maternal and paternal roles, along with other gender roles, become more equal. The aim of the present study was to explore fathers' experiences of parenthood in relation to a child with ID/DD from the initial discovery of the disability to 5 years later., METHODS: Fathers' experiences of parenting children with ID/DD were explored in a longitudinal framework. Seven Swedish fathers of young children with ID/DD participated in a series of semi-structured interviews from 2005 to 2010, and their accounts were subjected to interpretative phenomenological analysis., RESULTS: The analysis revealed three themes: (1) An interrupted path - no longer taking things for granted, which describes the fathers' reactions to their children's diagnosis; (2) Being a good father, which describes the fathers' overall perceptions of their parenting of a child with ID/DD; and (3) Dealing with the unexpected, which describes fathers' individual ways of integrating, managing, and living with the knowledge of their child's disability over the 5 years during which fathers were interviewed., CONCLUSIONS: Fathers' individual paths need to be taken into consideration when offering psychological support to families of children with ID/DD. Copyright © 2013 MENCAP and International Association of the Scientific Study of Intellectual and Developmental Disabilities and John Wiley & Sons Ltd.

Rights

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Citation List Month

2023 SE4 - Parent Perspectives

Citation

Bostrom, P K; Broberg, M, “Openness and avoidance--a longitudinal study of fathers of children with intellectual disability.,” Pediatric Palliative Care Library, accessed May 26, 2024, https://pedpalascnetlibrary.omeka.net/items/show/19417.