Browse Items (147 total)
- Tags: Prognosis
Unexpected Survivors: Children With Life-Limiting Conditions of Uncertain Prognosis
Tags: 2018, American Journal of Hospice & Palliative Medicine, Child, Cohort Studies, Congenital Abnormalities/mo [Mortality], Critical Illness/mo [Mortality], Female, Humans, Hurst A, Male, Nageswaran S, North Carolina, November 2018 List, Palliative Care/sn [Statistics & Numerical Data], Preschool, Prognosis, Radulovic A, Retrospective Studies, Survivors/sn [Statistics & Numerical Data], Survivorship
Unexpected survivors: Children with life-limiting conditions of uncertain prognosis
Palliative care integration in pediatric cardiac intensive care units: A novel champion-based model
Tags: 2019, Bailey V, Child, Comorbidity, Conceptual Framework, conceptual model, conference abstract, Consensus, coronary care unit, Critical Care Medicine, December 2019 List, Feasibility Study, heart development, heart disease, Hospitalization, Human, Kaye E, Morbidity, Moynihan K, outcome assessment, Palliative Therapy, Prognosis, Rotation, Simulation, Snaman J, Thiagarajan R, Total Quality Management, Wolfe J
Implementing Palliative care, based on family-centered care, in a highly complex neonatal unit
Tags: 2023, Article, Blanco DE, Camprubi CM, Cause Of Death, Child, Clotet CJ, Congenital Malformation, Controlled Study, February List 2024, Female, Human, intimacy, Jornal De Pediatria, Major Clinical Study, Male, Morillo PA, Mortality, Neonatal Intensive Care Unit, Newborn Death, Observational Study, Palliative Therapy, Prognosis, Retrospective Study, Riverola de Veciana A, Silla GJ, Terminal Care, Transitional Care
Parent-Reported Outcomes of Prognostic Communication in Hospitalized Children with Advanced Heart Disease (S762)
Tags: 2020, Adult, Blume E, Cardiology, Caucasian, Child, Cohort Analysis, conference abstract, Controlled Study, Conversation, Decision Making, Expectation, Female, Feraco A, Goldberg S, heart single ventricle, high school, Hospitalization, Hospitalized Child, Human, Infant, Intubation, Journal of Pain and Symptom Management, Length Of Stay, Major Clinical Study, Male, March 2020 List, married person, Medical Record Review, Miller M K, Morell E, Mother, Prognosis, Prospective Study, pulmonary hypertension, pulmonary vein stenosis, Recall, Reichman J, Sahakian L, Sleeper L, Young Adult
Gastroesophageal reflux
Tags: 2007, Adolescent, Backlog, Child, Diagnosis, Diagnostic Techniques, Differential, Digestive System, Enzyme Inhibitors/therapeutic use, Gastroesophageal Reflux/complications/diagnosis/physiopathology/therapy, Histamine H2 Antagonists/therapeutic use, Humans, Infant, Journal Article, Medical History Taking/methods, Michail S, Nervous System Diseases/complications, Nutritional Failure, Pediatrics In Review / American Academy Of Pediatrics, Pediatrics/methods, Preschool, Prognosis, Proton Pumps/antagonists & inhibitors, Respiratory Tract Diseases/etiology/prevention & control, Vomiting/diagnosis/etiology
Parental perspectives on end-of-life care in the pediatric intensive care unit
Tags: 2002, Adult, Backlog, Boston, Burns JP, Child, Critical Care Medicine, Death and Euthanasia, Decision Making, Empirical Approach, Female, Griffith JL, Humans, ICU Decision Making, Intensive Care Units, Journal Article, Male, Meyer EC, Pain, Parents/psychology, Pediatric, Prognosis, Quality Of Health Care, Quality Of Life, Questionnaires, Terminal Care, Truog RD, Withholding Treatment
Factors related to the quality of life in adolescents with chronic pain
Tags: 2006, Adolescent, Backlog, Child, Chronic Disease, Cross-sectional Studies, Female, Hazebroek-Kampschreur AA, Humans, Hunfeld JA, Journal Article, Koes BW, Male, Merlijn VP, Netherlands/epidemiology, Pain Measurement, Pain/diagnosis/epidemiology/psychology, Passchier J, PedPal Lit, Prognosis, Psychology, Quality Of Life, Questionnaires, Risk Assessment/methods, Risk Factors, The Clinical Journal Of Pain, van der Wouden JC
Unilateral pediatric "do not attempt resuscitation" orders: the pros, the cons, and a proposed approach
Gender Differences in Depressive Symptoms Following Child Death in Later
Tags: 2023, Adaptation Psychological, Adult, Age Factors, Aged, Bereavement, Child, Comparative Studies, Depression, Evaluation, Father-child Relations, Fathers, Female, Funding Source, Human, In Adulthood, In Middle Age, In Old Age, Journals of Gerontology Series B: Psychological Sciences & Social, Male, Mellencamp KA, Middle Age, Mortality, Mother-child Relations, Mothers, November List 2034, Only Child, Parent-child Relations, Prognosis, Psychosocial Factors, Recovery, Risk Factors, Sex Factors, Trends, United States, VULNERABILITY
The use of a modified Delphi procedure for the determination of 26 prognostic factors in the sub-acute stage of stroke
Tags: 2003, Activities of Daily Living, Backlog, Cerebrovascular Accident/rehabilitation, De Haan R, Delphi Technique, Disability Evaluation, Hospitalization, Humans, Ihnenfeldt D, International Journal Of Rehabilitation Research, Journal Article, Meijer R, Non-U.S. Gov't, Patient Discharge, Prognosis, Recovery of Function, Research Design, Research Support, Residence Characteristics, Social Support, Subacute Care/organization & administration, Van Limbeek J, Vermeulen M
Parents' perspectives on physician-parent communication near the time of a child's death in the pediatric intensive care unit
Tags: 2008, Adult, Anand KJ, Backlog, Bereavement, Carcillo J, Child, Communication, Dean JM, Death, Eggly S, Female, Hospital Mortality, Hospitals, Human Development Collaborative Pediatric Critical Care Research Network, Humans, Intensive Care Units, Interviews As Topic, Journal Article, Male, Meert KL, Middle Aged, National Institute of Child Health, Newth CJ, Nicholson C, Parents/psychology, Pediatric, Pediatric Critical Care Medicine, Physician's Role, Pollack M, Preschool, Professional-family Relations, Prognosis, Truth Disclosure, United States, Willson DF, Zimmerman J
Feeding jejunostomy in patients with neurologic disorders
Tags: 1981, Adolescent, Adult, Aged, Anesthesia, Archives Of Surgery (chicago, Ill. : 1960), Backlog, Deglutition Disorders/etiology/therapy, Enteral Nutrition/methods, Female, General/adverse effects, Humans, Jejunum/surgery, Journal Article, Male, Matino JJ, Methods, Middle Aged, Nervous System Diseases/complications, Postoperative Complications/mortality, Prognosis, Retrospective Studies, Risk
Surgical Intervention In Trisomy 18-supporting Pallative Care
Tags: 2017, Archives of Disease in Childhood, Birth Weight, Clinical Article, Cragie R, Diagnosis, Edi-Osagie N, Female, Gastrointestinal Symptom, Heart, Hospital, Human, Infant, Intestine Obstruction, Male, Masood Y, Meningomyelocele, Palliative Therapy, Pathology, Pregnancy, Prognosis, September 2017 List, Spiers H, Surgery, Tracheoesophageal Fistula, Trisomy 18
Early mortality in children with acute lymphoblastic leukemia in a developing country: the role of malnutrition at diagnosis. A multicenter cohort MIGICCL study
Tags: 2017, Adolescent, Age Factors, Alvarez-Rodriguez FJ, Amador-Sanchez R, Body Weights and Measures, Bolea-Murga V, Cardenas-Cardos R, Child, Child Preschool, Children, Comorbidity, de Diego Flores-Chapa J, Developing Countries, Developing World 2018 List, Dorantes-Acosta EM, Duarte-Rodriguez DA, Espinosa-Elizondo RM, Fajardo-Gutierrez A, Female, Flores-Lujano J, Flores-Villegas LV, Gil-Hernandez AE, Gonzalez-Bonilla CR, Humans, Infant, Infant Newborn, Jimenez-Hernandez E, Leukemia, Leukemia & Lymphoma, Male, malnutrition, Malnutrition/diagnosis/epidemiology, Martin-Trejo JA, Martinez-Avalos A, Medina-Sanson A, Mejia-Arangure JM, Mexico/epidemiology, Mortality, Nunez-Enriquez JC, Nunez-Villegas NN, Paredes-Aguilera R, Penaloza-Gonzalez JG, Perez-Saldivar ML, Population Surveillance, Precursor Cell Lymphoblastic Leukemia-Lymphoma/epidemiology/ mortality/therapy, Prevalence, Prognosis, Proportional Hazards Models, Rangel-Lopez A, Remission Induction, Reyes-Zepeda NC, Rivera-Luna R, Rodriguez-Zepeda MD, Socioeconomic Factors, Torres-Nava JR, Velazquez-Avina MM
A clinical rating scale for Batten disease Reliable and relevant for clinical trials
Tags: 2005, Adams H, Adolescent, Adult, Backlog, Child, Children W/SNI, Clinical Trials/standards, de Blieck EA, DeYoung J, Disease Progression, Dure L, Female, Humans, Journal Article, Levy Erika, Longitudinal Studies, Male, Marshall FJ, McDonough T, Messing S, Mink JW, Neurologic Examination/methods/standards, Neurology, Neuronal Ceroid-Lipofuscinoses/diagnosis/physiopathology/psychology, Neuropsychological Tests/standards, others, Personality Tests/standards, Predictive Value of Tests, Preschool, Prognosis, Rothberg PG, Severity Of Illness Index, Treatment Outcome
Certainty and mortality prediction in critically ill children.
Tags: 2004, Backlog, Child, Clinical Competence, Critical Illness/mortality, Death and Euthanasia, Empirical Approach, Health Care and Public Health, Hospital, Hospital Mortality, Humans, Intensive Care Units, Journal Article, Journal of Medical Ethics, Longitudinal Studies, Marcin JP, Medical Staff, Patel KM, Pediatric, Pollack MM, Pretzlaff RK, Professional Patient Relationship, Prognosis, Prospective Studies, Risk Assessment, Ruttimann UE
Hope and prognostic disclosure
Tags: 2007, Adolescent, Adult, Attitude To Health, Backlog, Child, Cleary PD, Cook EF, Female, Grier HE, Humans, Infant, Journal Article, Journal Of Clinical Oncology, Mack JW, Male, Multivariate Analysis, Parent-child Relations, Physician-patient Relations, Preschool, Prognosis, Quality Of Life, Truth Disclosure, Weeks JC, Wolfe J
Early integration of pediatric palliative care: For some children, palliative care starts at diagnosis.
Communicating about prognosis: ethical responsibilities of pediatricians and parents
Racial and Ethnic Differences in Communication and Care for Children With Advanced Cancer
Tags: 2020, Bagatell R, Baker J N, Cancer, Cohn S L, Communication, Diller L R, Disparities, end-of-life, Fernandez J H, Glade Bender J, Granger M M, Journal of Pain and Symptom Management, Mack J W, Marachelian A, Oncology 2020 List, Park J R, Pediatric, Prognosis, Rosenberg A R, Shusterman S, Twist C J, Uno H
Shared Spiritual Beliefs between Adolescents with Cancer and Their Families
Tags: 2020, 2021 Special Edition - Oncology, Adolescent, Adolescent Behavior, Adolescents, Adult, Advance Care Planning/statistics & Numerical Data, Baker JN, Cancer, Cheng YI, congruence, Cross-sectional Studies, Decision Making, Family, Family/psychology, Female, Follow-up Studies, Friebert S, funding from the American Cancer Society to adapt/translate this protocol into, Humans, Livingston J, Longitudinal Studies, Lyon ME, Male, Neoplasms/psychology/therapy, Pediatric Blood & Cancer, Prognosis, Quality Of Life, Religion and Medicine, Single-Blind Method, Spanish. There are no other conflicts of interest to disclose., Spirituality, study from the National Institutes of Health. Maureen E. Lyon is also receiving, Thompkins J, Tweddle M, Wang J, Young Adult
Brain damage markers in children. Neurobiological and clinical aspects
Tags: 2002, Acta Paediatrica, Backlog, Biological Markers/blood, Brain Damage, Brain Injuries/blood/diagnosis, Child, Chronic/blood/diagnosis, Dammann O, Female, Glial Fibrillary Acidic Protein/blood, Humans, Journal Article, Leviton A, Male, Nerve Growth Factors, Phosphopyruvate Hydratase/blood, Predictive Value of Tests, Preschool, Prognosis, S100 Proteins/blood, Sensitivity and Specificity
Barriers to Pediatric Palliative Care: Trainee and Faculty Perspectives Across Two Academic Centers
Tags: 2023, Agrawal AK, Article, August List 2038, Bogetz JF, Child, Communication Barrier, Controlled Study, Education, Female, Fogel AH, Human, Journal of Palliative Medicine, Lelkes E, Levine A, Life Sustaining Treatment, Major Clinical Study, Male, McPoland P, Multicenter Study, Palliative Care, Palliative Therapy, Pediatric Hospital, Perception, personnel shortage, Physician, Prognosis, Resident, Thematic Analysis, United States, Winn PA
Palliative Care in the Neonatal Intensive Care Unit: An Evolutionary Concept Analysis of Uncertainty in Anticipated Loss
Tags: 2024, Advances in Neonatal Care, Article, Complication, Concept analysis, Confusion, Diagnosis, Dick T, Drug Administration, Dudding KM, Fazeli PL, Genetic Disorder, genetic screening, Human, Infant, Infant Newborn, Lenington K, March List 2024, Neonatal Intensive Care Unit, Neonatal Nurse, Newborn Intensive Care, Nurse, Palliative Care, Palliative Therapy, Patrician P, Prognosis, Uncertainty
Moral distress in PICU and neonatal ICU practitioners: A cross-sectional evaluation
Tags: 2017, Adult, Article, Burnout, Correlation Analysis, Cross-sectional Study, Demography, Distress Syndrome, Dryden-Palmer KD, Female, Gibbons C, health practitioner, Hospital care, Human, Intensive Care, January 2018 List, Larson CP, linear regression analysis, Major Clinical Study, Male, Maslach Burnout Inventory Depersonalization Subscale, Middle Aged, Mishel Parent Perception of Uncertainty Scale, Morality, Neonatal Intensive Care Unit, Nurse, outcome assessment, Parshuram CS, Pediatric Critical Care Medicine, Pediatric Intensive Care Unit, Physician, Priority Journal, Prognosis, Questionnaire, Rating Scale, Revised Moral Distress Scale, Terminal Care, tertiary care center, Uncertainty, Work, Young Adult
Complexities in prognostication in advanced cancer: "to help them live their lives the way they want to"
Tags: 2003, 80 And Over, Adenocarcinoma/drug therapy/secondary, Aged, algorithms, Antineoplastic Agents, Backlog, Christakis NA, Female, Hormonal/therapeutic use, Human, JAMA, Journal Article, Lamont EB, Non-U.S. Gov't, P.H.S., Patient Participation, Physician-patient Relations, Prognosis, Skin Neoplasms/drug therapy/secondary, Stomach Neoplasms/drug therapy/pathology, Support, Survival Analysis, Tamoxifen/therapeutic use, Truth Disclosure, U.S. Gov't
Anorexia/cachexia-related quality of life for children with cancer
Tags: 2005, Adolescent, Age Distribution, Anorexia/diagnosis/epidemiology/psychology/therapy, Backlog, Barocas J, Cachexia/diagnosis/epidemiology/psychology/therapy, Cancer, Cella D, Child, Comparative Study, Cross-sectional Studies, Female, Goldman S, Humans, Incidence, Journal Article, Lai JS, Male, Neoplasms/diagnosis/epidemiology/psychology, Non-U.S. Gov't, Nutritional Failure, Peterman A, Prognosis, Psychometrics, Quality Of Life, Questionnaires, Research Support, Risk Assessment, Severity Of Illness Index, Sex Distribution, Sickness Impact Profile
Usefulness of consecutive biomarkers measurement in the management of community-acquired pneumonia.
Tags: 2012, 80 And Over, Adult, Aged, Andreo F, Ausina V, Backlog, Bas A, Biomarkers/blood, Community-Acquired Infections/complications/diagnosis/etiology/pathology, Critical Care, Diagnostic Tests, Dominguez J, European Journal Of Clinical Microbiology & Infectious Diseases, Female, Humans, Journal Article, Lacoma A, Male, Middle Aged, Perez M, Pneumonia/diagnosis/etiology/pathology, Prat C, Prognosis, Ramirez A, Rodriguez N, Routine/methods, Ruiz-Manzano J, Severity Of Illness Index, Survival Analysis
Long-term follow-up, neurological outcome and survival rate in 28 Nordic patients with glutaric aciduria type 1
Tags: 2004, Adolescent, Adult, Amino Acid Metabolism, Backlog, Child, Christensen E, European Journal of Paediatric Neurology, Female, Finland/epidemiology, Follow-up Studies, Glutarates/urine, Glutaryl-CoA Dehydrogenase, Hagberg G, Holme E, Humans, Inborn Errors/complications/diagnosis/mortality, Infant, Journal Article, Kyllerman M, Lonnquist T, Male, Nervous System Diseases/etiology, Newborn, Oxidoreductases Acting on CH-CH Group Donors/deficiency, Preschool, Prognosis, Q3 Scoping Review Results, Rotwelt T, Scandinavia/epidemiology, Skjeldal O, Skov L, Survival Rate, Time Factors, von Dobeln U
Neonatal management of trisomy 18: Clinical details of 24 patients receiving intensive treatment.
Tags: 2006, American Journal Of Medical Genetics.Part A, Baba A, Backlog, Birth Weight, Cause Of Death, Children W/SNI, Chromosome Disorders/genetics/mortality/therapy, Chromosomes, Female, Fetal Diseases/diagnosis/genetics, Fukushima Y, Gestational Age, Human, Humans, Infant, Journal Article, Kawame H, Kosho T, Longitudinal Studies, Male, Nakamura T, Newborn, Pair 18/genetics, Pregnancy, Prenatal Diagnosis, Prognosis, Survival Analysis, Survival Rate, Tamura M, Trisomy/diagnosis/genetics
The natural history of degenerative ataxia: a retrospective study in 466 patients
Tags: 1998, Abele M, Adolescent, Adult, Age of Onset, Aged, Backlog, Boesch S, Brain, Brice A, Burk K, Cerebellar Ataxia/genetics/mortality/physiopathology, Child, Dichgans J, Disease Progression, Female, Friedreich Ataxia/genetics/mortality/physiopathology, Gait, Humans, Inzelberg R, Journal Article, Klockgether T, Kramer B, Laccone F, Lopes-Cendes I, Ludtke R, Male, Middle Aged, Multiple System Atrophy/genetics/mortality/physiopathology, Preschool, Prognosis, Q3 Scoping Review Results, Retrospective Studies, Riess O, Risk Factors, Schols L, Sex Characteristics, Spinocerebellar Degenerations/genetics/mortality/physiopathology, Survival Analysis, Time Factors, Trinucleotide Repeats, Wheelchairs, Zilber N
Congenital disorder of glycosylation type Ia (CDG-Ia): phenotypic spectrum of the R141H/F119L genotype
Tags: 2001, Adolescent, Adult, Archives of Disease in Childhood, Ataxia/genetics/metabolism, Atrophy/genetics/metabolism, Backlog, Carbohydrate-Deficient Glycoprotein Syndrome/genetics/metabolism, Cephalometry, Cerebellum/pathology, Child, Developmental Disabilities/genetics/metabolism, Facies, Failure to Thrive/genetics/metabolism, Female, Genotype, Glycosylation, Growth Disorders/genetics/metabolism, Humans, Infant, Journal Article, Kjaergaard S, Liver Function Tests, Male, Newborn, Phenotype, Preschool, Prognosis, Q3 Scoping Review Results, Schwartz M, Seizures/genetics/metabolism, Skovby F
Development of an innovative program to improve provision of palliative and hospice care to children and families in the community: The story of QoLA Kids
Tags: 2019, Baker J N, Blazin L J, Cancer Patient, Cancer Prognosis, catchment, Child, Childhood Cancer, conference abstract, Controlled Study, Counselor, Distress Syndrome, Female, Hospice Care, hospital personnel, Human, Kaye E C, Kiefer A C, magnet, Major Clinical Study, Male, March 2020 List, Nurse Practitioner, Outpatient, Palliative Therapy, Patient Referral, Pediatric Hospital, pediatric patient, Pediatrics, Prognosis, program impact, Quality Of Life, registered nurse, Social Worker
Pediatric Palliative Care in Iran: Applying Regionalization of Health Care Systems
Tags: 2018, Akbari Sari A, Asian Pacific Journal Of Cancer Prevention, Cancer Care Facilities/og [Organization & Administration], Cancer Care Facilities/ut [Utilization], Child, Delivery of Health Care/og [Organization & Administration], Developing World 2018 List, Eshghi P, Follow-up Studies, Health Services Accessibility/og [Organization & Administration], Heravi Karimooi M, Humans, Khanali ML, Neoplasms/th [therapy], Palliative Care/og [Organization & Administration], Prognosis, Qualitative Research, Quality Of Health Care, Rassouli M, Shirin Abadi Farahani A, Tahmasebi M, Zendedel K
Changing mortality in congenital heart disease
Tags: 2010, Abrahamowicz M, Adolescent, Adolescent Transitions, Age Factors, Aged, Backlog, Cardiac Surgical Procedures/methods/mortality, Cause Of Death, Child, Cohort Studies, Congenital/diagnosis/mortality/surgery, Female, Heart Defects, Humans, Infant, Ionescu-Ittu R, Journal Article, Journal of the American College of Cardiology, Khairy P, Mackie AS, Male, Marelli AJ, Middle Aged, Newborn, Pilote L, Preschool, Prognosis, Quebec, Retrospective Studies, Sex Factors, Survival Analysis, Young Adult
Niemann-Pick disease type C: diagnosis and outcome in children, with particular reference to liver disease
Tags: 1993, Age Factors, Backlog, Biopsy, Child, Developmental Disabilities/etiology, Female, Humans, Infant, Journal Article, Kelly DA, Kupffer Cells/pathology, Lake BD, Liver Diseases/diagnosis/etiology/mortality, Liver Function Tests, Liver/pathology, Male, Mowat AP, Niemann-Pick Diseases/complications/diagnosis/mortality, Portmann B, Preschool, Prognosis, Q3 Scoping Review Results, Retrospective Studies, Sherlock S, Splenomegaly/etiology, The Journal Of Pediatrics
Parent and clinician preferences for location of end-of-life care: Home, hospital or freestanding hospice?
Tags: 2013, Adolescent, Alexander S, Attitude To Death, Backlog, Child, Choice Behavior, Female, Follow-up Studies, home care services, Hospice Care, Hospitals, Humans, Journal Article, Kassam A, Male, Neoplasms, Parents, Pediatric Blood & Cancer, Physicians, Preschool, Prognosis, Quality Of Life, Questionnaires, Residence Characteristics, Skiadaresis J, Terminal Care, Wolfe J
Predictive factors for do-not-resuscitate designation among terminally ill cancer patients receiving care from a palliative care consultation service.
Tags: 2014, Aged, Backlog, Chen JS, Chou WC, DNAR, Family/px [psychology], Female, Hsieh C-H, Hsu H-C, Huang K-G, Humans, Hung Y-S, Jaing T-H, Journal Article, Journal of Pain and Symptom Management, Kao Chen-Yi, Liau Chi-Ting, Lin Yung-Chang, Liu Chien-Ying, Liu Keng-Hao, Liver Neoplasms/di [Diagnosis], Liver Neoplasms/pp [Physiopathology], Liver Neoplasms/px [Psychology], Liver Neoplasms/th [Therapy], Male, Middle Aged, Multivariate Analysis, Neoplasms/di [Diagnosis], Neoplasms/pp [Physiopathology], Neoplasms/px [psychology], Neoplasms/th [therapy], Palliative Care, Prognosis, Referral And Consultation, Resuscitation Orders, Resuscitation Orders/px [Psychology], Retrospective Studies, Sex Factors, Shen W-C, Su Po-Jung, Taiwan, Tang Shu-Chuan, Terminally Ill, Terminally Ill/px [Psychology], Time Factors, Wang Hung-Ming, Wu Jin-Hou