Early integration of pediatric palliative care: For some children, palliative care starts at diagnosis.

Title

Early integration of pediatric palliative care: For some children, palliative care starts at diagnosis.

Creator

Mack JW; Wolfe J

Publisher

Current Opinion In Pediatrics

Date

2006

Subject

Child; Humans; Palliative Care; Terminal Care; Prognosis; Communication; Longitudinal Studies; Time Factors; quality of life; bereavement; decision making

Description

PURPOSE OF REVIEW: Pediatric palliative care, with its emphasis on symptom management and quality of life, is an important aspect of care of children with life-threatening illnesses. We review recent publications with implications for care of these children. RECENT FINDINGS: Invasive and life-sustaining measures continue to be part of care for many children with life-threatening illnesses, even at the end of life. While these measures may seem reasonable when recovery is possible, they may not fit with a family's preferences for end-of-life care. One possible cause of the prevalence of invasive measures in children at the end of life is that complex illness trajectories in children make it difficult to predict the timing of death. Inadequate communication by clinicians can also lead to poor preparation for the end-of-life period. Early integration of palliative care allows for improved symptom management, parental adjustment, and preparation for the end-of-life care period. Families who have the opportunity to prepare for the end-of-life period, including learning what to expect, are more likely to feel that their care has been of high quality. Bereaved parents also recognize the value of talking about death with their children. SUMMARY: Early integration of palliative care can allow children and families to make decisions about care that fit with their values, and should become a standard of care for all children with life-threatening illnesses.
2006

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Type

Journal Article

Citation List Month

Backlog

Pages

10-14

Issue

1

Volume

18

Citation

Mack JW; Wolfe J, “Early integration of pediatric palliative care: For some children, palliative care starts at diagnosis.,” Pediatric Palliative Care Library, accessed May 17, 2022, https://pedpalascnetlibrary.omeka.net/items/show/13511.

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