Browse Items (81 total)
- Tags: Interview
Parents with a child throughout the end-of-course: A qualitative study
Importance of parental involvement in paediatric palliative care in Hong Kong: Qualitative case study
Tags: 2023, Archives of Disease in Childhood, Article, Caregiver, Case Study, Chan SCW, Child, Child Health, Chiu ATG, Diagnosis, February List 2024, Female, Fung CW, Health Care Personnel, Ho ACH, Ho EKY, Ho JMC, Hong Kong, Human, Internet, Interview, Lai TC, Lam KKW, Lee LPY, Lee SWY, Li CH, Li CK, Male, Medical Information, Nurse, Palliative Therapy, Physician, Semi Structured Interview, Social Support, Therapy, Tsui KW, Wong FKY
Children with palliative care needs in Papua New Guinea, and perspectives from their parents and health care workers: a qualitative study
Tags: 2023, 2023 SE5 - Low Resource Setting, acute lymphoblastic leukemia/di [Diagnosis], Adolescent, Adult, Anga G, Article, BMC Palliative Care, bronchiectasis/di [Diagnosis], Cerebral Palsy/di [Diagnosis], Child, Child Health Care, Clinical Article, congenital heart disease/di [Diagnosis], congenital malformation/di [Diagnosis], Controlled Study, Descriptive Research, Duke T, dyspnea/co [Complication], Female, germ cell tumor/di [Diagnosis], Guillain Barre syndrome/di [Diagnosis], health care need, Health Care Personnel, Health Care Quality, hemosiderosis/di [Diagnosis], Human, Human immunodeficiency virus infection/di [Diagnosis], Infant, Interview, job experience, Kilalang C, knowledge gap, Male, malignant neoplasm/di [Diagnosis], Medical Record, Melanesia, neuroblastoma/di [Diagnosis], Only Child, Pacific Islands, Pain/co [complication], Palliative Care, Palliative Therapy, Papua New Guinea, Parent, pediatric ward, Preschool Child, pulmonary hypertension/di [Diagnosis], Pulsan F, Qualitative Research, retinoblastoma/di [Diagnosis], School Child, thalassemia/di [Diagnosis], Thematic Analysis, tuberculosis/di [Diagnosis], Vince JD, Watch V
A Qualitative Investigation of Fathers' Experiences of Looking After a Child with a Life-Limiting Illness, In Process and In Retrospect
Tags: 2007, Adaptation, Adult, Attitude To Death, Backlog, Caregivers/psychology, Child, Chronic Disease/psychology, Clinical Child Psychology And Psychiatry, father experience, Father-child Relations, Fathers/psychology, Female, Gender Identity, Grief, Home Nursing/psychology, Humans, Interview, Journal Article, Life Change Events, Male, Marriage/psychology, Palliative Care/psychology, Professional-family Relations, Psychological, Raval H, Social Support, Terminal Care/psychology, Ware J
Community-Based Pediatric Palliative Care: How Services Support Children's and Families' Quality of Life
Tags: 2023, Adolescent, Article, Bateman S, Beitman A, Bereavement Support, Caregiver, Child, Clinician, Community, community integration, Controlled Study, Convenience Sample, Cost Effectiveness Analysis, Disease Management, Family, February List 2024, Ferreira E, Gabovitch E, Human, Interpersonal Communication, Interview, Journal of Palliative Medicine, Jozan A, Male, Mental Health, Merriam G, Padgett K, Pain, Palliative Therapy, participatory research, physical well-being, Psychological Well-being, Quality Of Life, Savageau J, Self Care, Sibling, Socialization, Spiritual Care, Wang Y, Young M
Parental experiences with a paediatric palliative care team: A qualitative study
Tags: 2017, Bosman DK, Case Management, Child, Clinical Article, Colenbrander DA, concrete, Coordination, Expectation, Female, Grootenhuis MA, Human, Interview, Jagt CT, January 2018 List, Kars MC, Male, Palliative Medicine, Palliative Therapy, Pediatrics, Qualitative Research, Schouten-Van Meeteren AYN, Thematic Analysis, van Delden JJM, Verberne LM
Aims And Tasks In Parental Caregiving For Children Receiving Palliative Care At Home: A Qualitative Study
Tags: 2017, Bosman DK, Child, Child Parent Relation, Clinical Article, Colenbrander DA, Controlled Study, European Journal of Pediatrics, Family Life, Grootenhuis MA, Home Care, Human, Interview, Kars MC, March 2017 List, Palliative Therapy, Personal Experience, Qualitative Research, Schouten-Van Meeteren AYN, Sound, Symptom, Thematic Analysis, van Delden JJ, Verberne LM
Parental experiences and coping strategies when caring for a child receiving paediatric palliative care: a qualitative study
Tags: 2019, anxiety, Article, Bosman D K, Caregiving, Child, Child Care, Child Parent Relation, Clinical Article, Colenbrander D A, Controlled Study, Coping, Coping Behavior, Decision Making, European Journal of Pediatrics., Experiences, Female, Grief, Grootenhuis M A, Human, Interview, July 2019 List, Kars M C, Male, Paediatrics, Palliative Care, Palliative Therapy, Parents, Pediatrics, Perception, Qualitative Research, Schouten-van Meeteren A Y N, tension, Thematic Analysis, Uncertainty, van Delden J J M, van den Bergh E M M, Verberne L M
Shepherding parents to prepare for end-of-life decision-making: a critical phenomenological study of the communication approach of paediatricians caring for children with life-limiting conditions in Australia
Tags: 2023, Article, Australia, Bmj Open, care behavior, Child, courage, Decision Making, Gillam L, Human, Hynson J, Interpersonal Communication, Interview, Male, March List 2024, O'Neill J, Palliative Therapy, Parent, Pediatrician, Phenomenology, shared decision making, Signal Transduction, Simulation, Vemuri S, Williams K
Memory making in neonatal end-of-life care
Memory-Making in Neonatal End-of-Life Care
Compassionate Design: Applying Design Thinking Principles to Pediatric End-of-Life Care (FR452)
Tags: 2019, bath, Child, college, Comfort, conference abstract, Controlled Study, Feasibility Study, Grossoehme D, Human, illumination, injury, Intensive Care Unit, Interview, Job Satisfaction, Journal of Pain and Symptom Management, Lane J, Light, March 2019 List, Memory, Morality, mourning, Posthumous Care, Privacy, Staff, Student, Terminal Care, Thienprayoon R, thinking
Exploring the vagueness of Religion & Spirituality in complex pediatric decision-making: A qualitative study
Tags: 2018, Article, Barfield RC, BMC Palliative Care, Brandon DH, Child, Decision Making, Docherty SL, Father, genetic transcription, Health Care Personnel, Human, Human Tissue, Intensive Care, Interview, Life Sustaining Treatment, Major Clinical Study, Male, Medical Record, Mother, Narrative, Neonatology, November 2018 List, Palliative Therapy, Prognosis, Qualitative Research, Religion, Superdock AK, Thematic Analysis, Treatment Withdrawal
Qualitative Study of Nurses' Experiences as They Learned to Provide Neonatal Palliative Care
Tags: 2023, Adult, Article, Benzies K, Canadian, Clinical Article, Curriculum, Female, Human, immersion, Infant Newborn, Interview, Journal of obstetric, gynecologic, and neonatal nursing, Male, March List 2024, meaning-making, Neonatal Intensive Care Unit, Neonatal Nurse, Newborn, Newborn Intensive Care, Nurse, nursing education, Palliative Care, Palliative Therapy, Qualitative Research, Raffin-Bouchal S, Sinclair S, St Louis J, Thematic Analysis, Therapy
Public Attitudes Toward Ethics and Practices in End-of-Life Decision-Making for Neonates
Tags: 2024, Adolescent, Adult, Aged, April List 2024, Attitude To Health, Bührer C, Comprehension, Conference Paper, Cross-sectional Study, Decision Making, Euthanasia, Female, Garten L, German (language), Germany, Human, Infant Newborn, Interview, JAMA Network Open, Life Sustaining Treatment, Major Clinical Study, Male, Medical Ethics, Middle Aged, Newborn, Parent, Physician, Quality Of Life, Roll S, Schneider K, shared decision making, sociodemographics, Socioeconomics, Terminal Care, Tissen-Diabate T, Treatment Withdrawal
The qualitative study on the experience and perception of healthcare professionals in pediatric palliative care
Tags: 2018, August 2018 List, Awareness, Child, conference abstract, constant comparative method, Death, Diagnosis, Grounded Theory, Home Care, Hospice, Human, Interview, Ireland, Major Clinical Study, Male, Palliative Medicine, Palliative Therapy, pediatric nurse, Pediatric Nursing, Perception, Qualitative Research, Quality Of Life, Salvaggio E
Parents' experiences of palliative care decision-making in neonatal intensive care units: An interpretative phenomenological analysis
Tags: 2024, Acta Paediatrica, ambivalence, Article, Clinical Article, Decision Making, Father, Female, Human, Infant Newborn, Intensive Care Units, Interview, Lamore K, Life Sustaining Treatment, Male, March List 2024, meaning-making, Medical Ethics, Mur S, Nandrino JL, Neonatal Intensive Care Unit, Newborn Intensive Care, Palliative Therapy, Parent, Prieur C, Qualitative Research, Rethore S, SaintDenny K, shared decision making, Storme L
Parental explicit heuristics in decision-making for children with life-threatening illnesses
Tags: 2013, Adolescent, Aphorisms and Proverbs as Topic, Backlog, Carroll KW, Child, Choice Behavior, Chronic Disease/psychology/therapy, Cohort Studies, Communication, Critical Illness/psychology/therapy, Decision Making, Female, Feudtner C, Hospitals, Humans, Infant, Interview, Journal Article, Judgment, Kang T, Male, Palliative Care/psychology, Parent caregivers, Parents/psychology, Pediatric, Pediatrics, Philadelphia, Preschool, Problem Solving, Professional-family Relations, Prospective Studies, Psychological, Renjilian CB, Womer JW, Young Adult
Balancing pandemic public health restrictions and family support at the end of life: palliative care and bereavement experiences of parents whose child died during the COVID-19 pandemic
Tags: 2023, Adolescent, Article, Bereavement Support, BMC Palliative Care, Canada, Child, Chronic Disease, Controlled Study, Coping Behavior, coronavirus disease 2019, family support, February List 2024, Female, Health Care Access, health care facility, Health Care Policy, Health Service, Health Status, Human, Infant, Infection Control, Interview, Male, Nicholas DB, Palliative Therapy, Pandemic, Parental Attitude, Personal Experience, physical activity, Public Health, Qualitative Research, Rapoport A, Risk Assessment, Social Support, Terminal Care, Zulla RT
Attitudes of adolescent cancer survivors toward end-of-life decisions for minors.
Tags: 2009, Adolescent, Advance Directives, Assisted/px [Psychology], Attitude To Death, Backlog, Benoit Y, Bilsen J, Bomans A, Child, De Wilde J, Decision Making, Deliens L, DNAR, Euthanasia, Euthanasia/px [Psychology], Female, Humans, Informed Consent/px [Psychology], Interview, Journal Article, Male, Minors/px [Psychology], Mortier F, Neoplasms/px [psychology], Netherlands, Palliative Care/px [psychology], Passive, Pediatrics, Pousset G, Psychological, Right to Die, Sick Role, Suicide, Survivors/px [psychology], Terminal Care/px [psychology], Truth Disclosure, Verlooy J
The needs of parents during end-of-life care for terminally ill child
Tags: 2018, August 2018 List, Child, Clinical Article, conference abstract, Data Analysis, Death, Father, Female, Genetic Disorder, genetic transcription, Grounded Theory, Human, Human Tissue, Identity, immune deficiency, Interview, Leukemia, Loucka M, Male, Mother, Palliative Medicine, Palliative Therapy, Polakova K, Qualitative Research, risk factor, solid malignant neoplasm, Terminal Care, terminally Ill Patient
Integrating Palliative Care Into School Communities
Tags: 2016, Bereavement, Child, Controlled Study, Cree V, Curriculum, Hospice, Hospices, Human, Human Experiment, Information Processing, Interview, May 2017 List, Model, Murray S, Only Child, Palliative Care, Palliative Medicine, Palliative Therapy, Paul S, Primary School, School Child, Scotland, Skill, Staff, Terminal Care
Caregiver-reported impact on quality of life and disease burden in patients diagnosed with metachromatic leukodystrophy: Results of an online survey and a qualitative interview
Tags: 2020, Adolescent, Adult, April 2020 List, biomedical technology assessment, Bone Marrow Transplantation, Calcagni C, Caregiver, Child, Clinical Article, conference abstract, Controlled Study, Disease Burden, enzyme replacement, European Quality of Life 5 Dimensions Questionnaire, Female, Follow Up, France, Germany, Howie K, Human, Human Tissue, Infant, Institutional Review, Interview, investment, juvenile, Male, Metachromatic Leukodystrophy, Molecular Genetics and Metabolism, Multicenter Study, Palliative Therapy, Pang F, Patient Advocacy, Patient Care, preliminary data, Quality Of Life, Recall, Sample Size, Shapovalov Y, Walz M, Wellbeing, Wilds A
What do parents think about the quality and safety of care provided by hospitals to children and young people with an intellectual disability? A qualitative study using thematic analysis
Tags: 2023, Adolescent, Adverse Drug Reaction, Aged, Article, Burgess A, Child, Child Parent Relation, Controlled Study, Disability, Drug Therapy, February List 2024, Female, Health Care System, Health Expectations, Hospital care, Human, Intellectual Impairment, Interpersonal Communication, Interview, kindness, Long J, Lucien A, Male, Ong N, Palliative Therapy, Parent, Patient Safety, Pediatric Hospital, Preschool Child, Qualitative Research, School Child, Semi Structured Interview, Side Effect, special situation for pharmacovigilance, Thematic Analysis, Walton M, Weise J
Conflicting realities experienced by children with life-limiting and life-threatening conditions when transitioning to adult health services
Tags: 2018, Adult, Adult Child, Article, Bennett V, Child, Controlled Study, dilution, facilitation, February 2019 List, Female, Human, Interview, joint, Journal Of Advanced Nursing, Learning, Major Clinical Study, Male, Non Profit Organization, Noyes J, Palliative Therapy, Pritchard A, Pritchard S, Qualitative Analysis, Rees S, Secondary Analysis, Sibling, Skill, Social Isolation, social media, Social Support, Total Quality Management, Transition To Adult Care
Engaging Fathers in Pediatric Palliative Care Research
Tags: *Father-Child Relations, *Fathers/px [Psychology], *Palliative Care/px [Psychology], *Paternal Behavior/px [Psychology], 2020, 2023 SE4 - Parent Perspectives, Adaptation, Psychological, Adult, Barrera, M., Beaune, L., Belletrutti, M., Blumberg, J., Caregiver, Child, Child Health, Controlled Study, Father, Health Care Personnel, Humans, Ing, S., Interview, Journal of social work in end-of-life and palliative care, Male, Nicholas, D., Palliative Therapy, Paternal caregivers, Pediatrics, Perception, Professional-family Relations, Qualitative Research, Rapoport, A., research engagement, sample recruitment challenges, Wellbeing
Care with love: Parents' experiences in caring their child with cancer under palliative care
Tags: 2018, Allenidekania A, Caregiver, Child, Clinical Article, conference abstract, daily life activity, Data Analysis, Fatigue, Fear, Female, Human, Interview, jealousy, Male, Malignant Neoplasm, Nafratilova M, Nurse, Oncology 2018 List, Palliative Therapy, Pediatric Blood and Cancer, Phenomenology, primary medical care, Sibling, Uncertainty, Wanda D
Death of a child at home or in the hospital: subsequent psychological adjustment of the family
Tags: 1983, Adaptation, Adult, Backlog, Child, Comparative Study, Death, Family, Female, Grief, Hoffmann RG, home care services, Hospitalization, Humans, Interview, Journal Article, Lauer ME, Location Of Death, Male, Middle Aged, MMPI, Mulhern RK, Neoplasms/therapy, Non-U.S. Gov't, P.H.S., Pediatrics, Personality Inventory, Psychological, Research Support, Terminal Care/methods, U.S. Gov't
Supportive care for cancer-related symptoms in pediatric oncology: a qualitative study among healthcare providers
Tags: 2023, 2023 SE3 - Oncology, acupressure, Acupuncture, Acute Lymphoblastic Leukemia, Adult, Aged, alternative medicine, anxiety, Arcury TA, Aromatherapy, Article, BMC Complementary Medicine and Therapies, Canada, Cancer Chemotherapy, Cancer Therapy, Childhood Cancer, Clinical Article, Constipation, Content Analysis, dietitian, Education, Fatigue, Female, Germany, Health Care Personnel, Human, insomnia, Integrative Medicine, Interview, Jong MC, Kristoffersen AE, Leukemia, Male, Massage, Mora DC, Music Therapy, Nausea, Netherlands, Norway, Nurse, Palliative Therapy, Philosophy, Play Therapy, Professional Practice, psychodrama, Qualitative Research, Quality Of Life, Quandt SA, Semi Structured Interview, Stub T, United States, vincristine, Vomiting
Parenting in Childhood Life-Threatening Illness: A Mixed-Methods Study
Tags: 2018, April 2018 List, Article, Child, Child Parent Relation, childhood, Controlled Study, Deatrick JA, Decision Making, Female, Feudtner C, Human, Human Experiment, Interview, Journal of Palliative Medicine, Male, Meghani SH, Mooney-Doyle K, Only Child, Palliative Therapy, Perception, Problem Solving, Sibling, Social Work, Ulrich CM
I feel like my house was taken away from me': Parents' experiences of having home adaptations for their medically complex, technology-dependent child
Tags: 2022, Adolescent, Adult, Article, August 2022 List, biotechnology, Blake L, Bray L, Carter B, Child, Chronic Patient, Conceptual Framework, Controlled Study, Decision Making, Dickinson A, disabled person, England, Father, Female, Health And Social Care In The Community, Heat, Home Care, Human, Human Experiment, Interview, Male, Mitchell TK, Mother, Patient Care, Preschool Child, regeneration, Scotland, Thematic Analysis, thinking, Wales, Wellbeing
Parental experiences of end of life care decision-making for children with life-limiting conditions in the paediatric intensive care unit: A qualitative interview study
Tags: 2019, Advance Care Planning, Article, Bmj Open, Child, Clinical Article, Coad J, Dale J, Death, Decision Making, Female, genetic transcription, Hill E, Human, Human Tissue, Interview, July 2019 List, Male, Mitchell S, national health service, Nonverbal Communication, paediatric palliative care, Palliative Care, Palliative Therapy, Pediatric Intensive Care Unit, Pediatrics, Plunkett A, Spry J L, Thematic Analysis
Exploring spirituality, religion and life philosophy among parents of children receiving palliative care: a qualitative study
Tags: 2024, Adult, Aged, April List 2024, Article, BMC Palliative Care, Child, Ciccorossi M, Clemente I, Clinician, Coping, Decision Making, Female, Health Care Personnel, Human, Interview, Knowledge, Male, Miquel P, Palliative Care, Palliative Therapy, Parent, Pediatric Hospital, Personal Experience, Philosophy, Qualitative Research, Religion, religiosity, Southern European, Spain, terminal disease
Vulnerabilities experienced by family members/caregivers of children with chronic conditions
Tags: 2023, Article, Caregiver, Child, Child Health, Chronic Disease, Family, Gabatz RIB, Health Care Personnel, Health Service, Hense TD, Human, Interview, locomotion, Milbrath VM, November List 2033, Only Child, Palliative Therapy, Physis, Qualitative Research, Systematic Review, Thematic Analysis, Vaz JC, VULNERABILITY, Wellbeing
Children's understanding of dying and death: A multinational grounded theory study
Tags: 2023, 2023 SE5 - Low Resource Setting, Adolescent, Adult, Altruism, Article, Child, Clinical Article, Controlled Study, Deshommes T, Downing J, Female, Friebert S, Gassant PYH, genetic transcription, Grossoehme DH, Grounded Theory, Haiti, Human, Interview, Male, McPoland P, Multicenter Study, Only Child, Palliative And Supportive Care, Palliative Therapy, Qualitative Research, Religion, Sheehan DC, Sibling, Stephenson P, thinking, uganda, vocabulary
The assessment of values in laryngeal cancer: reliability of measurement methods
Tags: 1984, Adult, Aged, Attitude To Health, Backlog, Boyd NF, Ciampi A, Etezadi-Amoli J, Evaluation Studies, Female, Humans, Interview, Journal Article, Journal Of Chronic Diseases, Laryngeal Neoplasms/psychology/radiotherapy, Llewellyn-Thomas HA, Male, Middle Aged, Non-U.S. Gov't, Psychological, Research Support, Social Values, Sutherland HJ, Till JE, Time Factors, Voice, Voice Quality
Utilizing a collaborative learning activity to sensitize interprofessional students to palliative care scopes of practice with adolescent and young adults
Tags: 2019, Adult, Article, collaborative learning, Education, graduate student, Health Care Personnel, Human, Interprofessional Relations, Interview, Jones B, Journal Of Interprofessional Care, Linton B, Lippe M, Malignant Neoplasm, Oncology, Oncology 2019 List, Palliative Care, Palliative Therapy, Professional, Professional Role, public relations, responsibility, Scope Of Practice, vulnerable population, Young Adult
Social worker and chaplain activities with parents of critically ill children with cancer
Tags: 2018, Arenson M, audio recording, Cancer Patient, cancer stem cell, Child, Clergy, Clinical Article, Content Analysis, Critical Care Medicine, Critically Ill Patient, Female, Heap N, Human, human cell, Interview, Lentini N, Male, Martinez E, Michelson K, Mortality, Oncology 2018 List, Palliative Therapy, Pediatric Intensive Care Unit, Self Care, Social Worker, Statistics
Evaluating a novel hospital-based online health community to address palliative and psychosocial care factors for chronically ill adolescent and young adult patients
Tags: 2023, Adolescent, Adult, Article, Chronic Disease, Chronic Patient, Clinical Article, Collins S, Controlled Study, Data Analysis, Expectation, Female, Hart M, Human, Interview, Lebeau K, Male, Marchi E, May List 2023, Palliative And Supportive Care, Palliative Therapy, Personal Experience, Phenomenology, Pomeranz JL, psychosocial care, Qualitative Analysis, Questionnaire, solidarity, Walker D, Young Adult, Zori G