Browse Items (734 total)
- Tags: Infant
Uncertainty and Perinatal Post?Traumatic Stress Disorder in the Neonatal Intensive Care Unit
Tags: 2022, After Care, April List 2023, Brown RL, Coefficient Alpha, Comparative Studies, Data Analysis Software, Descriptive Statistics, Female, Hospitalization, Human, Hypothesis, Infant, Infant Newborn, Intensive Care Units, Intensive Care Units Neonatal, Johnson TS, Lagatta J, Leuthner J, Male, Malin KJ, Malnory M, Mental Disorders, Palliative Care, Parent-Infant Relations, Parents, Patient Discharge, Perinatal Care, Prospective Studies, Psychologists, Psychosocial Factors, Questionnaires, reliability and validity, Research in Nursing and Health, Rholl E, scales, Stress Disorders Post-Traumatic, Summated Rating Scaling, Uncertainty, White?Traut R
Turning Water into Wine: A New Community Pharmacy Workforce Delivering Paediatric Palliative Care Services Across Scotland
Tags: 2018, 7732-18-5 (water), Child, community pharmacist, conference abstract, February 2019 List, Funding, Health Care Delivery, Heart, Hospice, Human, Infant, Journal of Pain and Symptom Management, Major Clinical Study, McCusker K, nursing theory, Palliative Therapy, pharmacy, Scotland, stakeholder engagement, summer, water, wine, workforce
Trisomy 18: A Survey Of Opinions, Attitudes, And Practices Of Neonatologists
Trisomy 18 in neonates: prenatal diagnosis, clinical features, therapeutic dilemmas and outcome
Tags: 2006, Abnormalities, Backlog, Bober K, Central Nervous System/abnormalities, Chromosomes, Congenital/diagnosis/genetics/therapy, Female, Goc B, Heart Defects, Human, Humans, Infant, Journal Article, Journal Of Applied Genetics, Krzystolik-Ladzinska J, Longitudinal Studies, Multiple/diagnosis/genetics/mortality/therapy, Newborn, Pair 18, Poland/epidemiology, Pregnancy, Prenatal Diagnosis, Prognosis, Retrospective Studies, Swietlinski J, Trisomy, Walencka Z, Wiecek-Wlodarska D, Wloch A, Wojciechowska E
Trends in incidence, prevalence, and mortality of neuromuscular disease in Ontario, Canada: a population-based retrospective cohort study (2003-2014)
Tags: 2019, Adolescent, Adult, Age, Aged, America, Amin R, amyotrophic lateral sclerosis, amyotrophic lateral sclerosis/ep [Epidemiology], Animals, APEC countries, Article, August 2019 List, Bai Y, Canada, Child, childhood disease/ep [Epidemiology], childhood diseases, Children, Chordata, Cohort Analysis, Cohort Studies, Commonwealth of Nations, Controlled Study, Data Base, death rate, Developed Countries, Disease Course, disease prevalence, Disease Progression, Eukaryotes, Female, Gershon A, Goldstein R, Health Care, health Insurance, Hominidae, Homo, Human, Human Diseases, Incidence, Infant, International Classification of Diseases, Katz S, Leasa D, Major Clinical Study, Male, Mammals, Man, McKim D, Middle Aged, Mortality, mortality rates, muscles, neuromuscular disease/ep [Epidemiology], Neuromuscular Diseases, Neuromuscular Disorders, Nonoyama M, North America, OECD Countries, Ontario, Palliative Care, Palliative Therapy, planning, PLoS One, Population Research, Preschool Child, Prevalence, Primates, Retrospective Studies, Retrospective Study, Rose L, School Child, sclerosis, spinal muscular atrophy/ep [Epidemiology], Spine, Survival, Tandon A, trend study, Trends, Vertebrates, Young Adult
Treatment of pain in pediatric oncology: a Swedish nationwide survey
Tags: 1996, Adolescence, Antineoplastic Agents/adverse effects, Backlog, Berg T, Child, Combined Modality Therapy, Continuing, Drug Administration Routes, Education, Female, Gordh T, Hospital Departments, Human, Infant, Journal Article, Kreuger A, Ljungman G, Male, Medical, Morphine/adverse effects, Neoplasms/complications, Newborn, Non-U.S. Gov't, Nursing, Pain, Pain Measurement, Pain/etiology/therapy, Physician's Practice Patterns, Preschool, Questionnaires, Radiotherapy/adverse effects, Rawal N, Sorensen S, Support, Sweden
Treatment of obstructive sleep apnea in achondroplasia: evaluation of sleep, breathing, and somatosensory-evoked potentials
Tags: 1995, achondroplasia, Achondroplasia/co [Complications], adenotonsillectomy, Adolescent, Adult Child, American Journal Of Medical Genetics, breathing difficulties, Child, CPAP, Everett F, Evoked Potentials, Fagan E R, Female, Humans, Infant, losing weight, Male, Middle Aged, physical interventions, Preschool, Respiration, respiratory disturbance index, Sillence D O, Sleep Apnea Syndromes/et [Etiology], Sleep Apnea Syndromes/th [Therapy], Sullivan C E, surgical interventions, Tonsillectomy, Waters K A, Weight Loss
Treating a child with a life-threatening condition
Tags: 2011, B-Cell/therapy, Backlog, Bereavement, Child, Fatal Outcome, Hospice Care, Humans, Infant, Journal Article, Klein SM, Leukemia, Male, MELAS Syndrome/therapy, Palliative Care/ethics/legislation & jurisprudence/organization & administration, Patient Care Team, Pediatric Annals, Physician's Role, Preschool, Saroyan JM, Terminal Care
Treasure Weekend: supporting bereaved siblings
Transition to adulthood: the important role of the pediatrician
Transition to a Primary Palliative Care Model in the NICU (FR441B)
Tags: 2020, Baxter R, Brown H, Bruner A, Comfort, conference abstract, Controlled Study, Documentation, Education, Female, Hospice, Human, Human Experiment, Infant, Journal of Pain and Symptom Management, Male, March 2020 List, Needs Assessment, Neonatologist, Nurse, Palliative Therapy, Satisfaction
Tracking neonatal nosocomial infection: the continuous quality improvement cycle
Tags: 2011, Aydon L, Backlog, Biggs S, Cross Infection/epidemiology/prevention & control, Gill AW, Humans, Incidence, Infant, Infant Care/methods/organization & administration/standards, Infection Control/methods/organization & administration/standards, Jones C, Journal Article, Keil AD, Newborn, Quality Improvement/organization & administration/standards, The Journal Of Hospital Infection
Toxicity of local anesthetics in infants and children
Timing of Pediatric Palliative Care Consults in Hospitalized Patients with Heart Disease
Tags: 2023, Advance Care Planning, April List 2023, Article, Artificial Ventilation, Bennett E, Bodily S, Cardiomyopathy, Catheterization, Child, Congenital Heart Disease, Consultation, Cook L, Delgado-Corcoran C, Disease Course, extracorporeal oxygenation, Female, Green DJ, heart disease, Hospital Patient, Hospitalization, Hospitalized Child, Human, Infant, information technology, Intensive Care Unit, Journal of Pediatric Intensive Care, Length Of Stay, Life Sustaining Treatment, Major Clinical Study, Male, Mansfield KJ, Medical Decision Making, Moore D, Mortality, Myocarditis, myopericarditis, Newborn, Olson LM, Palliative Care, Palliative Therapy, Patient Referral, pediatric patient, Pediatrics, pericarditis, pulmonary hypertension, Retrospective Study, Terminal Care, Wawrzynski S, Wilkins V
Thinking outside the box: prenatal care and the call for a prenatal advance directive
Tags: 2005, Advance Directives/ethics/legislation & jurisprudence/psychology, Backlog, Catlin A, Decision Making/ethics Female Feminism Fetal Viability Humans Infant, Education, Ethics, Infant, Journal Article, Journal of Perinatal & Neonatal Nursing, legislation & jurisprudence, legislation & jurisprudence Intensive Care, legislation & jurisprudence Nurse's Role, legislation & jurisprudence Parents, Neonatal, Newborn, PedPal Lit, Premature Informed Consent, Prenatal Care/ethics/legislation & jurisprudence United States, psychology Mass Media Neonatal Nursing, psychology Parental Consent, psychology Practice Guidelines Pregnancy
The use of the Impact on Sibling scale with families of children with chronic illness and developmental disability
Tags: 2009, Adaptation, Adolescent, Backlog, Child, Child Development Disorders, Child: Care, Health and Development, Chronic Disease, Developmental Disabilities/psychology, Female, Humans, Infant, Journal Article, Kao B, Lobato D, Male, Parents/psychology, Pervasive/psychology, Plante W, Preschool, Psychological, Psychometrics, Sibling Relations, Siblings/psychology, Socioeconomic Factors
The use of haloperidol in the agitated, critically ill pediatric patient with burns
Tags: 1996, Adolescent, Antipsychotic Agents/administration & dosage/adverse effects/therapeutic use, Backlog, Brown RL, Burns/complications/drug therapy, Child, Critical Illness, Female, Greenhalgh DG, Haloperidol/administration & dosage/adverse effects/therapeutic use, Henke A, Humans, Infant, Journal Article, Male, Medical Records, Preschool, Psychomotor Agitation/drug therapy/etiology/physiopathology, Retrospective Studies, The Journal Of Burn Care & Rehabilitation, Treatment Outcome, Warden GD
The use of drugs with a life-shortening effect in end-of-life care in neonates and infants
Tags: 0 (analgesics Opioid), 0 (muscle Relaxants Central), 2006, 660yq98i10 (potassium Chloride), Analgesics Opioid, Belgium, Bilsen J, Cools F, December 2017 List, Decision Making, Deconinck P, Deliens L, Drug Utilization, Euthanasia, Humans, Infant, Infant Newborn, Intensive Care Medicine, Intention, Mortier F, Muscle Relaxants Central, Pain/dt [drug Therapy], Potassium Chloride, Practice Patterns Physicians', Provoost V, Ramet J, Terminal Care, Terminal Care/es [ethics], Van Herreweghe I, Vande Velde A, Vandenplas Y, Vander Stichele R
The United Kingdom Sets Limits on Experimental Treatments: The Case of Charlie Gard
Tags: 2017, December 2017 List, Evidence-based Medicine, Health Care Rationing/ec [economics], Health Care Rationing/es [ethics], Health Care Rationing/lj [legislation & Jurisprudence], Humans, Infant, JAMA, Male, Mitochondrial Encephalomyopathies/ec [economics], Mitochondrial Encephalomyopathies/th [therapy], Palliative Care, Patient Transfer/ec [economics], Patient Transfer/lj [legislation & Jurisprudence], State Medicine/ec [economics], State Medicine/es [ethics], State Medicine/lj [legislation & Jurisprudence], Therapies Investigational/ec [economics], Truog RD, United Kingdom
The unique grief of grandparents
Nurse consultant Michael Tatterton’s research revealed that when a child with a life-limiting condition dies, the grandparents’ ‘unique footprint of grief’ is…
The symptoms of dying children.
Tags: 2003, Adolescent, Affective Symptoms/epidemiology/psychology, Backlog, Child, Collins JJ, Drake R, Female, Frost J, Hospitalized/psychology/statistics & numerical data, Humans, Infant, Intensive Care/psychology/statistics & numerical data, Journal Article, Journal of Pain and Symptom Management, Longitudinal Studies, Male, Neoplasms/epidemiology/psychology, Pain/epidemiology/psychology, Palliative Care/psychology/statistics & numerical data, Preschool, Prevalence, Respiratory Insufficiency/epidemiology/psychology, Retrospective Studies
The role of the courts in disagreements over the care of seriously ill babies
The Relationship Between The Nursing Environment And Delivering Culturally Sensitive Perinatal Hospice Care
Tags: 2015, Delivery of Health Care, End-of-life Care, Female, Fetal Death, Fornehed Mary Lou, Hospice And Palliative Care Nursing, Hospice Organisation, Hospices/statistics & Numerical Data, Humans, Infant, International Journal of Palliative Nursing, Lindley L, May 2017 List, Mixer Sandra J, Nursing Administration, Nursing Leadership, Nursing Staff, Perinatal Care, Perinatal Death, Pregnancy, Retrospective Studies, Surveys And Questionnaires, Transcultural Nursing, United States, Wallace Heather, Wool Charlotte, Workplace
The relationship between grief adjustment and continuing bonds for parents who have lost a child
Tags: 2009, Adaptation, Adolescent, Adult, Attitude To Death, Backlog, Davies B, Female, Field NP, Grief, Humans, Infant, Interpersonal Relations, Journal Article, Kramer R, Life Change Events, Long JK, Male, Newborn, Object Attachment, Omega, Packman W, Parent-child Relations, Parents/psychology, Psychological, Quality Of Life, Questionnaires, Ronen R
The Outcome of Critically Ill Pediatric Cancer Patients Admitted to the Pediatric Intensive Care Unit in a Tertiary University Oncology Center in a Developing Country: A 5-Year Experience
Tags: 2016, Academic Medical Centers, Adolescent, Ali AM, Cancer Care Facilities, Child, Critical Illness, Developing Countries, Female, Hematologic Neoplasms/complications/ Mortality/therapy, Humans, Infant, Intensive Care Units, Journal Of Pediatric Hematology/oncology, Male, Mohammed MM, Multiple Organ Failure/etiology, Oncology 2017 List, Pediatric, Preschool, Prognosis, Respiratory Insufficiency/etiology, Retrospective Studies, Sayed HA, Sepsis/etiology, Tertiary Care Centers, Treatment Outcome
The ocular features of the mucopolysaccharidoses
Tags: 2006, Adolescent, Adult, Ashworth JL, Backlog, Biswas S, Child, Corneal Opacity/etiology, Eye (london, England), Eye Diseases/etiology, Female, Follow-up Studies, Humans, Infant, Journal Article, Lloyd IC, Male, Mucopolysaccharidoses/complications, Mucopolysaccharidosis I/complications, Mucopolysaccharidosis VI/complications, Ocular Hypertension/etiology, Optic Atrophy/etiology, Papilledema/etiology, Preschool, Q3 Scoping Review Results, Retrospective Studies, Vision Disorders/etiology, Visual Acuity, Wraith E
The Needs of Children Receiving End of Life Care and the Impact of a Paediatric Palliative Care Team: A Retrospective Cohort Study
Tags: 2023, Adolescent, April List 2023, Cancelinha C, Child, Child Preschool, Chronic Disease, Cohort Studies, Complex Chronic Conditions, Correia D, End Of Life, European Journal of Pediatrics, Female, Gomes B, Health Resources, Humans, Infant, Length Of Stay, Loureiro M, Male, Nogueira A, paediatric palliative care, Palliative Care, Palliative Care/methods, Retrospective Studies, Terminal Care, Terminal Care/methods, Tertiary Care Centers
The Need for a Shared Understanding: Domains of Care and Composition of Team in Pediatric Palliative Care Guidelines
Tags: 2017, Adolescence, Child, CINAHL Database, De Clercq E, Elger BS, February 2018 List, Health, Human, In Infancy and Childhood, Infant, Journal Of Hospice & Palliative Nursing, Nomenclature, Palliative Care, Practice Guidelines, Preschool, Psycinfo, PubMed, Reference Databases, Rost M, Search Engines, Spiritual Care, Systematic Review, Wangmo Tenzin
The natural history of Niemann-Pick disease type C in the UK
Tags: 2007, Adolescent, Adult, Backlog, Besley GT, Child, Dasgupta S, Female, Fensom AH, Genetic, Great Britain, Harris C, Heptinstall L, Humans, Imrie J, Infant, Jacklin E, Journal Article, Journal Of Inherited Metabolic Disease, Knight S, Lipid Metabolism Disorders/diagnosis/metabolism, Lipids/chemistry, Male, Middle Aged, Models, Newborn, Niemann-Pick Disease, Preschool, Q3 Scoping Review Results, Type C/diagnosis/epidemiology, Vanier MT, Ward C, Whitehouse C, Wraith JE
The natural history of medium-chain acyl CoA dehydrogenase deficiency in the Netherlands: clinical presentation and outcome
Tags: 2006, Acyl-CoA Dehydrogenase/deficiency/genetics, Adolescent, Adult, Backlog, Child, Cohort Studies, Derks TG, Disease Progression, Gerver WJ, Humans, Inborn Errors/complications/diagnosis/genetics, Infant, Journal Article, Longitudinal Studies, Metabolism, Middle Aged, Mutation/genetics, Netherlands, Newborn, Preschool, Prognosis, Reijngoud DJ, Retrospective Studies, Sauer PJ, Severity Of Illness Index, Smit GP, The Journal Of Pediatrics, van den Berg MP, Waterham HR
The natural history of juvenile or subacute GM2 gangliosidosis: 21 new cases and literature review of 134 previously reported.
Tags: 2006, Acute Disease, Adolescent, Adult, Backlog, Banwell B, Blaser S, Child, Clarke JT, Female, Gangliosidoses, Giugliani R, GM2/diagnosis, Humans, Infant, Journal Article, Kok F, Longitudinal Studies, Maegawa GH, Mahuran D, Male, Pediatrics, Preschool, Prospective Studies, Q3 Scoping Review Results, Retrospective Studies, Stockley T, Tropak M
The natural course of infantile Pompe's disease: 20 original cases compared with 133 cases from the literature
Tags: 2003, AIM, alpha-Glucosidases/ge [Genetics], alpha-Glucosidases/me [Metabolism], Backlog, Bakker HD, Blood Chemical Analysis, Brain/pa [Pathology], Cardiomegaly/di [Diagnosis], Cardiomegaly/et [Etiology], Child Development, de Klerk JB, Disease Progression, Glycogen Storage Disease Type II/co [Complications], Glycogen Storage Disease Type II/mo [Mortality], Glycogen Storage Disease Type II/pp [Physiopathology], Hop W, Humans, IM, Infant, Journal Article, Loonen MC, Mutation, Netherlands/ep [Epidemiology], Newborn/gd [Growth & Development], Pediatrics, Poll-The BT, Premature, Reuser AJ, Smeitink JA, Smit GP, Survival Analysis, van den Hout HM, Van der Ploeg AT, van Diggelen OP
The moral experience of parents regarding life-support decisions for their critically-ill children: a preliminary study in France
Tags: 2006, Adaptation, Attitude to Health/ethnology, Backlog, Canoui P, Carnevale FA, Child, Clinical Competence, Communication, Decision Making, Doussau A, Farrell C, Grief, Guilt, Health Services Needs And Demand, Hospitalized/psychology, Hospitals, Hubert P, Humans, ICU Decision Making, Infant, Intensive Care Units, Intensive Care/psychology, Journal Article, Journal Of Child Health Care, Lacroix J, Leclerc F, Life Support Care/psychology, Morals, Nursing Methodology Research, Parental Consent/psychology, Parents/education/psychology, Paris, Pediatric, Physician's Role/psychology, Professional-family Relations, Psychological, Qualitative Research, Questionnaires, Seguin MJ, Social Support
The Marital Implications of Bereavement: Child Death and Intimate Partner Violence in West and Central Africa
Tags: 2020, 2021 Special Edition 1 - Low Resource Settings, Adolescent, Adult, Africa Central, Africa Western, Bereavement, Child, Child Mortality, Child Preschool, Demography, Female, Humans, Infant, Infant Newborn, Intimate partner violence, Intimate Partner Violence/statistics & numerical data, Male, Marriage/statistics & numerical data, Middle Aged, Parents/psychology, Risk Factors, Smith-Greenaway E, Weitzman A, West and Central Africa, Young Adult
The impact on health-related quality of life from non-steroidal anti-inflammatory drugs, methotrexate, or steroids in treatment for juvenile idiopathic arthritis
Tags: 2006, Adolescent, Anti-Inflammatory Agents, Antirheumatic Agents/adverse effects/therapeutic use, Arthritis, Backlog, Browne RH, Child, Comparative Study, Female, Follow-up Studies, Gatchel RJ, Glucocorticoids/adverse effects/therapeutic use, Health Status, Humans, Infant, Journal Article, Journal of Pediatric Psychology, Juvenile Rheumatoid/drug therapy, Male, Methotrexate/adverse effects/therapeutic use, Methylprednisolone/adverse effects/therapeutic use, Morton AA, Multivariate Analysis, Non-Steroidal/adverse effects/therapeutic use, PedPal Lit, Preschool, Punaro MG, Quality Of Life, Riddle R, Ryser CN, Sampson JD
The impact of parental status on the risk of completed suicide.
Tags: 2003, Adolescent, Adult, Aged, Archives Of General Psychiatry, Backlog, Bereavement, Cause Of Death, Child, Denmark/epidemiology, Family Characteristics, Female, Grief, Humans, Infant, Journal Article, Longitudinal Studies, Male, Middle Aged, Mortensen PB, Parents/psychology, Preschool, Qin P, Registries, Risk Factors, Socioeconomic Factors, Suicide/prevention & control/psychology/statistics & numerical data
The Groningen protocol--euthanasia in severely ill newborns
Tags: 2005, Backlog, Death and Euthanasia, Euthanasia/ethics/legislation & jurisprudence, Humans, Infant, Intensive Care/ethics/legislation & jurisprudence, Journal Article, Netherlands, Newborn, Practice Guidelines, Prognosis, Sauer PJ, The New England Journal Of Medicine, Third-Party Consent/legislation & jurisprudence, Verhagen E
The grief ritual of extracting and donating human milk after perinatal loss
The Functional Independence Measure for Children (WeeFIM). Conceptual basis and pilot use in children with developmental disabilities.
Tags: 1994, Adaptation, Adolescent, Backlog, Campbell J, Catanzaro NL, Child, Clinical Pediatrics, Developmental Disabilities/diagnosis, DiGaudio K, Disability Evaluation, Duffy LC, Female, Humans, Infant, Journal Article, LaForest S, Longitudinal Studies, Male, Msall ME, Neuropsychological Tests, Pilot Projects, Preschool, Psychological, Rogers BT, Wilczenski F
The experiences, attitudes and practices of nurses working in a paediatric intensive care unit caring for babies and children at the end of life: A qualitative study
Tags: 2018, Archives of Disease in Childhood, Brierley J, Child, Clinical Article, conference abstract, Documentation, Du Pre P, Female, genetic transcription, Hospice, Human, Human Experiment, Infant, June 2018 List, Koffman J, Male, Nurse, Pediatric Intensive Care Unit, Personal Experience, Qualitative Research, Sampling, Scientist, Semi Structured Interview, Terminal Care, Uncertainty