Browse Items (145 total)
- Tags: Clinical Article
What constitutes 'good quality care' from the perspectives of children and young people with life-limiting and life-threatening conditions?
Tags: 2023, Adolescent, Archives of Disease in Childhood, Braybrook D, Bristowe K, Child, Clinical Article, conference abstract, Conversation, Coombes L, developmental stage, Female, Fraser L, genetic transcription, Harding R, Haroardottir D, Hospital Patient, Human, Male, Malignant Neoplasm, Nervous System, October List 2029, Only Child, Outpatient, Preschool Child, Scott HM, Semi Structured Interview, Social Care
Use of time in people with a life-limiting illness: A longitudinal cohort feasibility pilot study
Tags: 2019, accelerometry, acceptability, Adult, Article, Australia, burden, Caregiver, Child, Clinical Article, Cohort Analysis, cohort study, Controlled Study, Currow D C, European Quality of Life 5 Dimensions Questionnaire, Feasibility, Feasibility Study, Female, Human, Jones T A, Karnofsky Performance Status, Male, multimedia, numeric rating scale, October 2019 List, Olds T S, Outpatient, Palliative Care, Palliative Medicine, Palliative Therapy, Pilot Study, Quality Of Life, Recall, time-use, Williams M T
Use Of Buccal Fentanyl As A Breakthrough Opioid For Symptom Management In Patients Receiving Palliative Care
Tags: 2023, absence of side effects, Adolescent, Archives of Disease in Childhood, Box D, buccal drug administration, Case Study, Child, Clinical Article, conference abstract, drug megadose, Drug Therapy, Dyspnea, Female, Fentanyl, Hain R, Hills M, Hospice, Human, Male, maximum permissible dose, mouth cavity, Neurologic Disease, October List 2032, Opiate, Pain, Palliative Care, Palliative Therapy, Retrospective Study, Taylor N, Woods S
Understanding pediatric palliative care within interdisciplinary palliative programs: a qualitative study
Tags: 2023, Adult, Article, August List 2046, BMC Palliative Care, Child, Chocarro-González L, Clinical Article, Controlled Study, Decision Making, Female, Gueita-Rodriguez J, Health Care System, Human, Male, Martino-Alba R, Multidisciplinary team, Organization, Palacios-Cena D, Palliative Care, Palliative Therapy, Patient Care Team, Pediatrics, Qualitative Research, Rico-Mena P, Sanz-Esteban I, Semi Structured Interview, Skill, Thematic Analysis
The utilization of palliative care units by children with cancer: A nationwide survey
The Use of Cannabinoids in Pediatric Palliative Care-A Retrospective Single-Center Analysis
Tags: 2024, add on therapy, Adolescent, Adverse Drug Reaction, anxiety, April List 2024, Article, Cannabinoid, Cannabinoids, Child, Children, Clinical Article, decreased appetite, Diagnosis, drug combination, drug dose increase, Drug Therapy, Epilepsy, Female, Gravou-Apostolatou C, Human, Human Tissue, Loss Of Appetite, Male, Nausea, Outpatient, Pain, Palliative Care, Palliative Therapy, paresis, pediatric patient, Quality Of Life, restlessness, Retrospective Study, School Child, Side Effect, Spasticity, special situation for pharmacovigilance, Tagsold D, Therapy, Toni I, Trollmann R, Woelfle J
The Psychological Experience of Grandparents: Proposal of a Qualitative Clinical Assessment Tool in Pediatric Palliative Care
Tags: 2024, Adolescent, April List 2024, Article, Caregiver, Child, Clinical Article, clinical assessment tool, Clinical Practice, Clinics and Practice, Coping, Coping Strategy Questionnaire, Family, Female, grandchild, grandparent, Human, Male, Nogueira AJ, Palliative Care, Palliative Therapy, Portugal, psychologic assessment, Ribeiro MT, Semi Structured Interview, Sibling, Social Support
The Nesting Dolls Design: A Methodology for the Recruitment of Bereaved Parents for Partnership Activities Related to Palliative Care and Bereavement Support in Paediatric Psycho-Oncology
Tags: 2018, 52315-07-8 (cypermethrin), 65731-84-2 (cypermethrin), 66841-24-5 (cypermethrin), 67375-30-8 (cypermethrin), Bereavement Support, Bourque C J, Cardinal G, Child, Clinical Article, Clinician, conference abstract, Confidentiality, Content Analysis, Controlled Study, cypermethrin, Death, Dumont E, evaluation research, Female, filter, Follow Up, Human, information center, Intensive Care, Interview, Journal of Pain and Symptom Management, Male, Neonatology, nesting, Oncology 2019 List, Palliative Therapy, Pediatrics, Psycho-Oncology, Questionnaire, research ethics, Sultan S, writing
The needs of parents during end-of-life care for terminally ill child
Tags: 2018, August 2018 List, Child, Clinical Article, conference abstract, Data Analysis, Death, Father, Female, Genetic Disorder, genetic transcription, Grounded Theory, Human, Human Tissue, Identity, immune deficiency, Interview, Leukemia, Loucka M, Male, Mother, Palliative Medicine, Palliative Therapy, Polakova K, Qualitative Research, risk factor, solid malignant neoplasm, Terminal Care, terminally Ill Patient
The experiences, attitudes and practices of nurses working in a paediatric intensive care unit caring for babies and children at the end of life: A qualitative study
Tags: 2018, Archives of Disease in Childhood, Brierley J, Child, Clinical Article, conference abstract, Documentation, Du Pre P, Female, genetic transcription, Hospice, Human, Human Experiment, Infant, June 2018 List, Koffman J, Male, Nurse, Pediatric Intensive Care Unit, Personal Experience, Qualitative Research, Sampling, Scientist, Semi Structured Interview, Terminal Care, Uncertainty
The experiences of bereaved family caregivers with advance care planning for children with medical complexity
Tags: 2019, Advance Care Planning, Amin R, Caregiver, Child, Clinical Article, Cohen E, conference abstract, Consultation, Content Analysis, Conversation, Death, Female, genetic transcription, Health Care Personnel, Hellman J, Human, Human Tissue, Informed Consent, Lord S, Male, Moore C, Netten K, October 2019 List, Orkin J, Paediatrics and Child Health (Canada), Perception, Personal Experience, Rappaport A, Semi Structured Interview
The cyberspace use by adolescents, in palliative care: An ethnographic approach
The codesign of an interdisciplinary team-based intervention regarding initiating palliative care in pediatric oncology
Tags: 2018, Article, Bone Marrow Transplantation, Casas JA, Child, Childhood Cancer, Clinical Article, DiDomenico C, Feasibility Study, Female, Feudtner C, frustration, Hill DL, Human, Male, Oncology 2018 List, Palliative Therapy, solid malignant neoplasm, Supportive Care In Cancer, Szymczak JE, Uncertainty, Walter JK
The care for oncologic patients undergoing pediatric palliative care and the griefs of a health team
Tags: 2023, 2023 SE3 - Oncology, Alves RSF, anxiety, Article, Cancer Diagnosis, Chronic Disease, Clinical Article, coronavirus disease 2019, Cross-sectional Study, de Sena JGM, de Vasconcelos AV, Female, Follow Up, Health Service, Human, Male, Melo CF, Palliative Care, Palliative Therapy, Pandemic, Psicooncologia, Psychology, Questionnaire, Ruiz EM, Semi Structured Interview, Teixeira LC
The 'good death' in pediatric oncology
Tags: 2019, Adult, Advanced Cancer, advanced practice provider, Aged, avoidance behavior, Barton K, Childhood Cancer, Clergy, Clinical Article, Cohort Analysis, conference abstract, Content Analysis, Controlled Study, Female, genetic transcription, Human, Male, Medical Staff, music, Oncology 2019 List, Pediatric Blood and Cancer, Pediatric Hospital, physiotherapist, Prospective Study, Rosenberg A, Semi Structured Interview, Software, sudden death, Taylor M, Terminal Care, Young Adult
Telemedicine: the Pediatric Palliative Perspective (FR476)
Tags: 2020, Adult, Aggression, Bower K A, California, Child, Clinical Article, clinical assessment, conference abstract, Current Procedural Terminology, Drug Safety, Female, Human, Journal of Pain and Symptom Management, Kuelker A, laptop, logging, Male, Marc-Aurele K L, March 2020 List, Medicaid, Nurse, Palliative Therapy, Patient Comfort, physical examination, Stevens V, Telemedicine, vital sign, Young Adult
Teetering On a Cliff Edge: Transitioning Between Paediatric and Adult Hospice Services
Tags: 2022, Adult, BMJ Supportive and Palliative Care, Child, Clinical Article, conference abstract, Controlled Study, Conversation, Female, Hospice, Hospice Care, Human, Human Experiment, Laidlaw S, Male, March List 2023, O'Connor J, Pediatric, Psychological Well-being, Rahman F, Scotland, Social Care, Trust, Wales, Wellbeing, Wylie F, Young Adult
Survival, short-term morbidity of extremely low gestational age infants and their predictors
Tags: 2019, April List 2024, Birth Weight, brain hemorrhage, Clinical Article, Cohort Analysis, conference abstract, Controlled Study, Corticosteroid, encephalomalacia, Feberova J, Female, Gender, Gestational Age, Human, Infant, Kis H, Lemyre B, Length Of Stay, lung dysplasia, Male, Morbidity, mortality risk, Necrotizing Enterocolitis, Neonatal Intensive Care Unit, Paediatrics And Child Health, Palliative Therapy, Perception, Pregnancy, Prevalence, Probability, Radonjic A, Regression Analysis, retrolental fibroplasia, Retrospective Study, Sepsis, Stillbirth, survival prediction, univariate analysis
Surgical Intervention In Trisomy 18-supporting Pallative Care
Tags: 2017, Archives of Disease in Childhood, Birth Weight, Clinical Article, Cragie R, Diagnosis, Edi-Osagie N, Female, Gastrointestinal Symptom, Heart, Hospital, Human, Infant, Intestine Obstruction, Male, Masood Y, Meningomyelocele, Palliative Therapy, Pathology, Pregnancy, Prognosis, September 2017 List, Spiers H, Surgery, Tracheoesophageal Fistula, Trisomy 18
Supportive care for cancer-related symptoms in pediatric oncology: a qualitative study among healthcare providers
Tags: 2023, 2023 SE3 - Oncology, acupressure, Acupuncture, Acute Lymphoblastic Leukemia, Adult, Aged, alternative medicine, anxiety, Arcury TA, Aromatherapy, Article, BMC Complementary Medicine and Therapies, Canada, Cancer Chemotherapy, Cancer Therapy, Childhood Cancer, Clinical Article, Constipation, Content Analysis, dietitian, Education, Fatigue, Female, Germany, Health Care Personnel, Human, insomnia, Integrative Medicine, Interview, Jong MC, Kristoffersen AE, Leukemia, Male, Massage, Mora DC, Music Therapy, Nausea, Netherlands, Norway, Nurse, Palliative Therapy, Philosophy, Play Therapy, Professional Practice, psychodrama, Qualitative Research, Quality Of Life, Quandt SA, Semi Structured Interview, Stub T, United States, vincristine, Vomiting
Supplementation with carnitine reduces the severity of constipation: A retrospective study of patients with severe motor and intellectual disabilities
Tags: 102767-28-2 (levetiracetam), 1069-66-5 (valproic acid), 1309-48-4 (magnesium oxide), 1317-74-4 (magnesium oxide), 14093-02-8 (iron), 14378-32-6 (zinc), 146-22-5 (nitrazepam), 1622-61-3 (clonazepam), 2017, 22316-47-8 (clobazam), 298-46-4 (carbamazepine), 461-06-3 (carnitine), 50-06-6 (phenobarbital), 53858-86-9 (iron), 541-15-1 (carnitine), 56-99-5 (carnitine), 57-30-7 (phenobarbital), 57-88-5 (cholesterol), 59-30-3 (folic acid), 6484-89-5 (folic acid), 68291-97-4 (zonisamide), 7439-89-6 (iron), 7440-66-6 (zinc), 7782-49-2 (selenium), 8028-68-0 (phenobarbital), 8047-84-5 (carbamazepine), 84057-84-1 (lamotrigine), 99-66-1 (valproic acid), acute brain disease, Adult, albumin, albumin blood level, anticonvulsant therapy, Aomatsu T, Article, bacterial meningitis, bed rest, body mass, brain infarction, carbamazepine/dt [Drug Therapy], carnitine, carnitine deficiency, carnitine deficiency/dt [Drug Therapy], carnitine/dt [Drug Therapy], Cerebral Palsy, Child, cholesterol blood level, cholesterol/ec [Endogenous Compound], Clinical Article, Clinical Trial, clobazam/dt [Drug Therapy], clonazepam/dt [Drug Therapy], Constipation, constipation/dt [Drug Therapy], constipation/pc [Prevention], Controlled Study, copper blood level, cupric ion/ec [Endogenous Compound], diet supplementation, Disease Severity, Endogenous Compound, enema/dt [Drug Therapy], enteric feeding, epilepsy/dt [Drug Therapy], Female, folic acid, folic acid blood level, folic acid/ec [Endogenous Compound], Gene Expression, groups by age, Hospital, Human, Human Tissue, infantile spasm, Inoue K, Intellectual Impairment, iron blood level, iron/ec [Endogenous Compound], Journal of Clinical Biochemistry and Nutrition, lamotrigine/dt [Drug Therapy], levetiracetam/dt [Drug Therapy], magnesium oxide/dt [Drug Therapy], Male, Medical Record Review, Middle Aged, motor dysfunction, Murata S, NCL3, neuronal ceroid lipofuscinosis, nitrazepam/dt [Drug Therapy], Pelizaeus Merzbacher disease, Pelizaeus- Merzbacher disease, periventricular leukomalacia, pharmacologic intervention, phenobarbital/dt [Drug Therapy], prealbumin, prealbumin/ec [Endogenous Compound], Preschool Child, Retrospective Study, School Child, selenium blood level, selenium/ec [Endogenous Compound], sex difference, Tamai H, trace element, Tuberous Sclerosis, valproic acid, valproic acid/dt [Drug Therapy], West syndrome, Yoden A, Young Adult, zinc/ec [Endogenous Compound], zonisamide/dt [Drug Therapy]
Spirituality among parents of children with cancer at AUBMC
Tags: 2016, cancer center, Cancer Nursing, Caregiver, Child, Childhood Cancer, Clinical Article, conference abstract, Developing World 2018 List, Doumit MA, Fear, Female, genetic transcription, Health Care Personnel, Human, Lebanon, Majdalani M, Male, Palliative Therapy, Powerlessness, Rahi A, Religion, Saab R, Semi Structured Interview, social needs, Spiritual Care
Specialist palliative care service for children with life-threatening conditions in Japan: A nationwide survey of resources and utilization
Social worker and chaplain activities with parents of critically ill children with cancer
Tags: 2018, Arenson M, audio recording, Cancer Patient, cancer stem cell, Child, Clergy, Clinical Article, Content Analysis, Critical Care Medicine, Critically Ill Patient, Female, Heap N, Human, human cell, Interview, Lentini N, Male, Martinez E, Michelson K, Mortality, Oncology 2018 List, Palliative Therapy, Pediatric Intensive Care Unit, Self Care, Social Worker, Statistics
Sleep-disordered breathing and its management in children with achondroplasia
Tags: 2017, achondroplasia, adenotonsillectomy, Amaddeo A, American Journal of Medical Genetics Part A, apnea hypopnea index, apnea monitoring, Baujat G, BiPAP, bone dysplasia, breathing difficulties, cervical decompression, Child, Clinical Article, Cormier-Daire V, Couloigner V, CPAP, De Sanctis L, ENT surgery, Fauroux B, Human, James S, Khirani S, Michot C, Neurosurgery, obstructive sleep apnea, physical interventions, Polysomnography, Preschool Child, Prevalence, Retrospective Study, School Child, Sleep disordered breathing, Surgery, surgical interventions, Tenconi R, upper respiratory tract, Zerah M
Sleep disorders in Cornelia de Lange syndrome
Tags: 2016, Adolescent, Adult, Ajmone P, American Journal of Medical Genetics Part C - Seminars in Medical Genetics, Article, body mass, Canevini M P, characteristics, Child, Clinical Article, Comorbidity, Controlled Study, De Lange syndrome, Epilepsy, Female, Fossati C, Furia F, Gastroesophageal Reflux, gene, gene mutation, Gervasini C, HDAC8 gene, histone deacetylase 8, Human, Intellectual Impairment, Kullman G, Male, Masciadri M, NIPBL gene, Priority Journal, problem behavior, RAD21 gene, Russo S, Selicorni A, sleep disorder, sleep disturbance/disorders, SMC1A gene, SMC3 gene, Taiana M, Trajectory, Turner K, Vignoli A, Zambrelli E
Sleep abnormalities in untreated patients with mucopolysaccharidosis type VI
Tags: 2011, American Journal of Medical Genetics Part A, anamnesis, apnea, Article, Azevedo A C, Barrios P, breathing difficulties, characteristics, Child, Clinical Article, Clinical Feature, Controlled Study, Cross-sectional Study, Dalcin P, disease association, Disease Severity, Doppler echocardiography, Fagondes S, Female, Giugliani R, Glycosaminoglycans, Human, John A, Lysosomal storage diseases, lysosome storage disease, macroglossia, Male, Maroteaux Lamy syndrome, Menna-Barreto S, Morquio syndrome, MPSVI, Mucopolysaccharidosis, oxygen saturation, oxygen/ec [Endogenous Compound], physical examination, pigeon thorax, Polysomnography, Preschool Child, Prevalence, Priority Journal, Prospective Study, pulmonary hypertension, Schwartz I, Sleep apnea, sleep apnea syndrome/di [Diagnosis], sleep disorder, snoring, Trajectory, witnessed apnea
Single-center Experience Providing Palliative Care To Pediatric Patients With End-stage Renal Disease
Tags: 2017, Article, Child, Clinical Article, Consultation, Emotional Stress, End Stage Renal Disease, Female, Human, Interdisciplinary Communication, Journal of Palliative Medicine, Keefer P, Khang E, Lehmann K, Luckritz K, Male, Medical Record Review, October 2017 List, Palliative Therapy, Parent, Saul D, Shanley M, Social Support, Woloszyk T
Simulation and skills training for pediatric fellows: Improving confidence in high-stakes care at end of life
Siblings and End-Of-Life Decision Making in the NICU
Tags: 2023, care behavior, Child, Clinical Article, conference abstract, Content Analysis, Critically Ill Patient, Decision Making, electronic medical record, Female, Gillam L, Human, Infant, Journal of Paediatrics and Child Health, July List 2023, Male, Neonatal Intensive Care Unit, Perception, Power J, Prentice TM, Semi Structured Interview, Sibling, Wellbeing
Sharing care at the End of life for adolescent patients with neuro-disability: A case series
Tags: 2023, Adolescent, Adult, ADULTHOOD, Aspey H, August List 2031, Bereavement Support, BMJ Supportive and Palliative Care, Bond E, Case Study, Child, Clinical Article, Community Health Nursing, conference abstract, Deterioration, Elverson J, family support, Female, groups by age, health hazard, Hoskins R, Hospital Admission, hospital discharge, Human, Learning, Mackerness C, Male, Neurodisability, Palliative Therapy, Patient Care, Shiell A, Terminal Care, Young Adult
Shared decision-making in pediatric palliative care in the Netherlands
Tags: 2024, Aae V, Advance Care Planning, Article, Child, Clinical Article, Current Problems in Pediatric and Adolescent Health Care, Cy J, Decision Making, Diagnosis, Em M, evidence based practice, Health Care Personnel, Human, Jl A, March List 2024, Mc K, Netherlands, Palliative Care, Palliative Therapy, shared decision making
Regional perspectives on the coordination and delivery of paediatric end-of-life care in the UK: a qualitative study
Tags: 2023, Article, Awareness, Bedendo A, Beresford B, BMC Palliative Care, Child, Child Health Care, Clinical Article, Education, Feltbower RG, Female, Fraser LK, Funding, Hackett J, Hain R, Haynes A, Hinde S, Human, Human Experiment, Male, Murtagh F, Noyes J, October List 2040, Oddie S, Organization, Palliative Therapy, Papworth A, Phillips B, Qualitative Research, Semi Structured Interview, Specialization, Subramanian G, Terminal Care, Thematic Analysis, Vasudevan C, Walker G, Weatherly H
Rapid whole-genome sequencing decreases infant morbidity and cost of hospitalization
Tags: 2018, acutely ill patient, Article, Bainbridge MN, Benson W, Cakici JA, Childhood Mortality, Chowdhury S, Clark MM, Clinical Article, Cohort Analysis, Controlled Study, Cost Control, diagnostic test accuracy study, Diagnostic Value, Dimmock D, Ding Y, Farnaes L, February 2019 List, Female, Friedman J, genetic screening, Gold JJ, Hildreth A, hospitalization cost, Human, Infant, infant disease/di [Diagnosis], infant disease/dm [Disease Management], Kaplan RH, Kingsmore SF, Kronick R, Male, mortality risk, Nahas S, NLJ Genomic Medicine, Palliative Therapy, Priority Journal, rapid whole genome sequencing, Retrospective Study, risk reduction, Sensitivity and Specificity, Sweeney NM, Veeraraghavan N, whole genome sequencing
Rapid response physiotherapy service in patients with life limiting conditions
Tags: 2019, Archives of Disease in Childhood, August 2019 List, Child, Clinical Article, conference abstract, Controlled Study, Female, Griffin H, Hospital Admission, hospital bed, Hospitalization, Human, lower respiratory tract infection, Male, Michael A, Milner S, physiotherapist, Physiotherapy, Quality Of Life, Risk Assessment, Sample Size
Qualitative Study of Nurses' Experiences as They Learned to Provide Neonatal Palliative Care
Tags: 2023, Adult, Article, Benzies K, Canadian, Clinical Article, Curriculum, Female, Human, immersion, Infant Newborn, Interview, Journal of obstetric, gynecologic, and neonatal nursing, Male, March List 2024, meaning-making, Neonatal Intensive Care Unit, Neonatal Nurse, Newborn, Newborn Intensive Care, Nurse, nursing education, Palliative Care, Palliative Therapy, Qualitative Research, Raffin-Bouchal S, Sinclair S, St Louis J, Thematic Analysis, Therapy
Problematic Symptoms In Children Attending For Short Breaks At A Children's Hospice; Are We Missing An Opportunity For Symptom Assessment And Management?
Tags: 2017, Archives of Disease in Childhood, Balfe J M, Booth A, Child, Clinical Article, Clinical Nurse Specialist, Diagnosis, Family Study, Female, Health Care Delivery, Hospice, Human, Information Processing, Irritability, Male, Nursing, Pain Assessment, Pediatrician, Ritchie B, School Child, Seizure, September 2017 List, Sleep, Symptom Assessment
Prevalence and management of dystonia in a paediatric palliative care cohort
Tags: 2017, 302-17-0 (chloral hydrate), 4205-90-7 (clonidine), 4205-91-8 (clonidine), 57066-25-8 (clonidine), benzodiazepine derivative, Child, chloral hydrate, Clinical Article, clonidine, Cohort Analysis, Cross-sectional Study, Developmental Medicine and Child Neurology, Diagnosis, Documentation, Dystonia, England, Female, Hughes G, Human, joint, Laddie J, Lumsden DE, Male, March 2018 List, Neurology, Palliative Therapy, precancer, Preschool Child, Prevalence, Seizure, Slater T
Preliminary Study of Neurodevelopmental Outcomes and Parenting Stress in Pediatric Mitochondrial Disease
Tags: 2017, Aggression, anxiety disorder/dm [Disease Management], Article, attention disturbance/dm [Disease Management], behavioral problems, brain atrophy/dm [Disease Management], characteristics, Child, Child Behavior, childhood disease/dm [Disease Management], Clinical Article, Comorbidity, daily life activity, delinquency, depression/dm [Disease Management], Disease Severity, drug resistant epilepsy/dm [Disease Management], drug resistant epilepsy/dr [Drug Resistance], Emotion, Eom S, Female, Human, intellectual impairment/dm [Disease Management], Intelligence, Intelligence Quotient, lactic acidosis/dm [Disease Management], Lee Y M, Leigh disease/dm [Disease Management], Leigh syndrome, Male, MELAS syndrome, MELAS syndrome/dm [Disease Management], mitochondrial disorders, muscle disease/dm [Disease Management], nervous system development, neuroimaging, nuclear magnetic resonance imaging, Parental Stress, Pediatric Neurology, postnatal depression/dm [Disease Management], Preschool Child, Priority Journal, problem behavior/dm [Disease Management], Prognosis, psychomotor development, Quality Of Life, sleep disorder/dm [Disease Management], social problem, somatization/dm [Disease Management], thinking impairment/dm [Disease Management], Trajectory