Single-center Experience Providing Palliative Care To Pediatric Patients With End-stage Renal Disease

Title

Single-center Experience Providing Palliative Care To Pediatric Patients With End-stage Renal Disease

Creator

Keefer P; Lehmann K; Shanley M; Woloszyk T; Khang E; Luckritz K; Saul D

Identifier

10.1089/jpm.2016.0353

Publisher

Journal Of Palliative Medicine

Date

2017

Subject

End Stage Renal Disease; Palliative Therapy; Article; Child; Clinical Article; Consultation; Emotional Stress; Female; Human; Interdisciplinary Communication; Male; Medical Record Review; Parent; Social Support

Description

Background: End-stage renal disease (ESRD) affects nearly 1400 new children each year in the United States. Morbidity and mortality rates remain high for pediatric patients with ESRD, including those that have received a renal transplant. Objective: To better understand ESRD patients referred to palliative care, including their physical symptoms, topics discussed, and themes emerging during initial palliative care consultation. Design/Subjects: This study is a retrospective chart review of pediatric ESRD patients who received a palliative care consult. Physical symptoms, core topics, and themes were identified by the interprofessional study team. Results: The study team found 35 patients met inclusion criteria during the study period. The most common standard palliative care metric noted was "complex or time-intensive communication and interdisciplinary social support." Pain was the most common physical symptom addressed with goals of care and communication the most common topics discussed. Themes emerging described the emotional distress of patients and parents as well as prognostic discussions. Conclusions: This study demonstrates one institution's experience with pediatric ESRD patients undergoing consultation with the pediatric palliative care service. More research is necessary in this population to better describe the best focus for palliative care teams.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

October 2017 List

Notes

Using Smart Source Parsing
( (pp Date of Publication: August 2017

Citation

Keefer P; Lehmann K; Shanley M; Woloszyk T; Khang E; Luckritz K; Saul D, “Single-center Experience Providing Palliative Care To Pediatric Patients With End-stage Renal Disease,” Pediatric Palliative Care Library, accessed July 26, 2021, https://pedpalascnetlibrary.omeka.net/items/show/10796.

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