Browse Items (41 total)
- Tags: Therapy
The effect of L 5 hydroxytryptophan on self mutilation in Lesch Nyhan disease: a negative report
Tags: 1976, Anderson L T, automutilation, behavioral problems, carbidopa, Child, Clinical Study, Clinical Trial, Controlled Study, Dancis J, Drug Therapy, Herrmann L, Human, L-5-hydroxyl-tryptophan, Lesch Nyhan syndrome, Major Clinical Study, Neuropadiatrie, pharmacologic intervention, PLACEBO, self-mutilation, Therapy
PRECIOUS demonstrated satisfactory measurement properties for assessing the quality of care for children with serious illnesses
Tags: 2024, Adolescent, Adult, Amin Z, Ang FJL, April List 2024, Article, Bun Cheung Y, Caregiver Support, Child, convergent validity, correlation coefficient, Cristelle Chow CT, Cronbach alpha coefficient, exploratory factor analysis, Female, Finkelstein EA, Follow Up, Gandhi M, Hanim Buang SN, Heng Chong P, Hospitalization, Human, Internal Consistency, Journal Of Clinical Epidemiology, Major Clinical Study, Male, Malhotra C, Malhotra R, Ostbye T, Palliative Therapy, person centered care, psychometry, root mean squared error, Teresa Tan SZ, test retest reliability, Tewani K, Therapy
Research Review: attention bias modification (ABM): a novel treatment for anxiety disorders
Tags: 2010, Adolescents, Analysis, Anxieties, anxiety, Anxiety Disorders, Anxiety Disorders - diagnosis, Anxiety Disorders - psychology, Anxiety Disorders - therapy, Attention, Attentional bias, Backlog, Bar-Haim Y, Care And Treatment, Child Psychology, Children, Cognitive Restructuring, Cognitive Therapy, Cognitive Therapy/methods, COGNITIVE-BEHAVIORAL THERAPY, DEVELOPMENTAL, Drug Therapy, EMOTIONAL FACES, EXPERIMENTAL MANIPULATION, Health Aspects, Journal Article, Journal Of Child Psychology And Psychiatry, Medical Research, Medical treatment, Outcomes of Treatment, Psychiatry, Psychology, RANDOMIZED CLINICAL-TRIAL, SCHIZOPHRENIA, SOCIAL PHOBIA, Therapy, THREAT, VISUAL-ATTENTION
Describing Pediatric Palliative Care Concepts to Patients and Families #442
The use of rituals in grieving for a miscarriage or stillbirth
Tags: 2004, Backlog, Bereavement, Birth Complications, Brin DJ, Coping, Death, Grief, Journal Article, Miscarriage, Mothers, Rituals, Stillbirth, Therapy, Women & Therapy
Characterizing Pain in Pediatric Palliative Care Clinical Documentation
Tags: 2024, Aderibigbe T, Adolescent, Carney KB, Child, Childhood Cancer, Clinician, conference abstract, Consultation, Content Analysis, Drug Therapy, electronic health record, Ethnicity, Female, Hispanic, Human, interrater reliability, Journal of Pain and Symptom Management, June List 2024, Linder L, Longtin E, Major Clinical Study, Male, Moore D, Newborn, Pain, Palliative Therapy, Retrospective Study, School Child, social life, special situation for pharmacovigilance, Therapy, Wilkes J
Pediatric palliative care in Sweden
Training perinatal nurses in palliative communication by using scenario-based simulation: A quasi-experimental study
Tags: 2024, Article, Chen HW, Cheng SF, Chuang YH, Communication Skill, continuing education, Controlled Study, Delivery Room, experimental design, Female, Health Care Personnel, Hsiung Y, Human, Intensive Care Unit, Interpersonal Communication, Kuo CL, Learning, Liu TY, March List 2024, Newborn, Nurse, Nurse Education In Practice, Palliative Therapy, Purposive Sample, quasi experimental study, registered nurse, Simulation, structured questionnaire, Taiwan, Teaching, terminal disease, Therapy, Training
In every detail: spiritual care in pediatric palliative care perceived by healthcare providers
Tags: 2023, Article, Cai S, Cheng L, Child, China, Controlled Study, developing country, February List 2024, Health Care Personnel, Human, Interview, Journal of Pain and Symptom Management, Nurse, Palliative Therapy, Qualitative Research, Religion, Social Worker, Spiritual Care, Thematic Analysis, Therapy, Zhai X, Zhou X
Compassionate de-escalation of life-sustaining treatments in pediatric oncology: An opportunity for palliative care and intensive care collaboration
Associations between Music Therapy, Pain and Heart Rate for Children Receiving Palliative Care
Tags: 2023, Bernard A, Bradford N, Child, Child Preschool, Confidence Intervals, Convenience Sample, Delaney AM, Descriptive Statistics, Female, Heart Rate, Herbert AR, Human, In Infancy and Childhood, Infant, Infant Newborn, July List 2023, Male, Multimethod Studies, Music Therapy, Music Therapy Perspectives, Only Child, Pain, Palliative Care, Pediatric Care, Pretest-Posttest Design, Prevention and Control, Psychosocial Factors, Purposive Sample, Quality Of Life, scales, Summated Rating Scaling, Thematic Analysis, Therapy
Withholding life support for children with severe neurological impairment: Prevalence and predictive factors prior to admission in the PICU
Tags: 2023, Alexandre M, Archives de Pediatrie, Article, assisted ventilation, Brossier D, Child, Controlled Study, Disability, Duval C, February List 2024, Female, Functional Status, Human, Intensive Care, Intensive Care Unit, Major Clinical Study, Male, Palliative Therapy, Pediatric Intensive Care Unit, Pediatrician, Porcheret F, Prevalence, Retrospective Study, Roulland C, special situation for pharmacovigilance, Therapy, Toulouse J, Viallard ML
The NeoPACE study: study protocol for the development of a core outcome set for neonatal palliative care
Tags: 2023, Adult, Article, Bluebond-Langner M, BMC Palliative Care, Chant K, Child, Controlled Study, Delphi Study, February List 2024, Gallagher K, Health Care Personnel, Human, Interview, Male, Mancini A, Marlow N, Newborn, Newborn Death, Newborn Intensive Care, Palliative Therapy, Perinatal Death, Systematic Review, Terminal Care, Therapy, Total Quality Management
Robotic and clinical evaluation of upper limb motor performance in patients with Friedreich's Ataxia: an observational study
Tags: 2015, accuracy, and Rating of Ataxia, Bertini E, Cappa P, Carniel S, Castelli E, cerebellar-ataxia, Children, Coordination, Engineering, Friedreich's ataxia, Germanotta M, InMotion Arm Robot, Journal of Neuroengineering and Rehabilitation, Kinematics, Movement, multiple-sclerosis, Neurosciences & Neurology, Petrarca M, quantitative-evaluation, rating-scale, Reaching task, Rehabilitation, Robot-mediated evaluation, Rossi S, scale development, Scale for the Assessment, smoothness, stroke recovery, Submovements, Therapy, tone and motor problems, tool development, Upper limb, Vasco G
Factors that Contribute to Bereaved Parents' Perceptions of Neonatal Palliative Care: A Systematic Literature Review
Tags: 2022, Analysis, and, Article, Beltran SJ, CARE, Experience, Family, Female, for, guideline, Hamel M N, Human, Infant, intensive, Items, Male, meta, Meta-analyses, Neonatal, Newborn, October 2022 List, Palliative, Parent, Perception, Practice, Preferred, Psychological, Quality, Reporting, Review, Reviews, Satisfaction, systematic, The American Journal of Hospice & Palliative Care, Therapy, Unit, Units
The Power and Potential of Photography as a Therapeutic Modality for Children with Life-Impacting Illnesses
Improving family grief outcomes: A scoping review of family-based interventions before and after the death of a child
Tags: 2024, Article, Bereavement, Bidstrup PE, Child, Child Death, Family, Family Therapy, Grief, Guldin MB, Hoeg BL, Hogh J, Human, Larsen HB, May List 2024, Only Child, Palliative Medicine, Palliative Therapy, Practice Guideline, Preferred Reporting Items for Systematic Reviews and Meta-Analyses, School Child, Scoping review, Sibling, Systematic Review, Therapy, Volkmann JE, Wolfe J
Palliative care for infants with life-limiting conditions: Integrative review
Tags: 2023, Advance Care Planning, Aged, biological marker, BMJ Supportive and Palliative Care, Chronic Disease, Consultation, Content Analysis, English (language), February List 2024, Gill FJ, health practitioner, Human, Infant, Interpersonal Communication, Iten R, Medical Specialist, Nurse, O'Connor M, Palliative Therapy, Primary Health Care, quality improvement study, Review, Terminal Care, Therapy
Development of Specialty-Based Pediatric Palliative Care Clinics
Tags: 2024, Adolescent, Adult, Brooks JV, Child, Clinician, conference abstract, Congenital Heart Disease, Diagnosis, Ellis KL, Gunya EK, Human, Jersak T, Journal of Pain and Symptom Management, June List 2024, Kansas, Medical Specialist, Needs Assessment, Neuromuscular Disease, Palliative Therapy, Patient Referral, Pediatric Hospital, pharmaceutics, Sinclair C, Steinfeldt L, Telehealth, Therapy, Velasquez AL, Young Adult
How to move forward in shared decision-making in pediatric palliative care
Tags: 2024, Adolescent, April List 2024, Aris-Meijer JL, Article, Child, Clinical Article, Current Problems in Pediatric and Adolescent Health Care, Decision Making, Human, Infant, Joren CY, Lantos J, Palliative Care, Palliative Therapy, shared decision making, special situation for pharmacovigilance, Therapy, Verhagen AAE
Comparison of actigraphy with a sleep protocol maintained by professional caregivers and questionnaire-based parental judgment in children and adolescents with life-limiting conditions
Tags: 2024, actigraph, actimetry, Adolescent, April List 2024, Article, BMC Palliative Care, Caregiver, Child, Chronic Disease, Claus B, Clinical Article, Controlled Study, Decision Making, diagnostic procedure, Drug Therapy, Female, Human, Human Experiment, Kubek LA, Male, Palliative Therapy, Prospective Study, protocol, Questionnaire, Questionnaires, School Child, Sleep, sleep efficiency, sleep time, special situation for pharmacovigilance, stage 1 sleep, Therapy, Wager J, wake after sleep onset, Wakefulness, Zernikow B
Effect of Family Centered Pediatric Advance Care Planning for Children with Rare Diseases on Meaning/Peace
Tags: 2024, Adult, Advance Care Planning, Aged, anxiety, Beck Anxiety Inventory, care behavior, Caregiver, Caregiver Burden, Child, conference abstract, Controlled Study, Conversation, Decision Making, Diagnosis, Disability, Distress Syndrome, emergency department visit, Family, Female, Follow Up, Health Care Utilization, Hospitalization, household income, Human, intention to treat analysis, Journal of Pain and Symptom Management, June List 2024, Lyon ME, Male, Metabolic Disorder, Needs Assessment, Palliative Therapy, Patient Care, pediatric patient, Poverty, poverty level, Quality Of Life, Randomized Controlled Trial, Rare Disease, Religion, shared decision making, social determinants of health, spiritual well-being, Surgery, Therapy
How Can We Measure Quality of Dying, Death, and Quality of Care at the End-of-Life for Children and Young Adults? A Scoping Literature Review
Tags: 2022, abstract, Adult, advanced, Cancer, CARE, Caregiver, Child, Conference, controlled, Cooper M, Cox V, Disease, Female, Flemming K, Fraser L, Gillman C, Heart, Human, intensive, Life, Male, Mayland CR, Mother, Pain, Palliative, Palliative Medicine, Patient, Pediatric, Powell P, Quality, Questionnaire, Review, September 2022 List, Sibling, spiritual, study, Sunderland K, systematic, Taylor P, terminal, Therapy, Turner N, Unit, young, Zeigler L
National Survey of Sibling Support Services in Children's Hospitals
Tags: 2022, Akard TF, Article, Burley SR, CARE, Child, Comfort, Distress, Education, Franklin QM, Human, Life, Mooney-Doyle K, October 2022 List, Palliative, Palliative Care, Pediatric, Progress in Palliative Care., psychosocial, psychosocial support, Quality Of Life, Root MC, Serious Illness, Sibling, Siblings, Syndrome, Teaching, Therapy, United States
Actigraphic investigation of circadian rhythm functioning and activity levels in children with mucopolysaccharidosis type III (Sanfilippo syndrome)
Tags: 2015, Actigraphy, autistic spectrum disorders, Bigger B, Canal M, characteristics, circadian rhythms, CONTROLLED-TRIAL, disturbance, Hare D J, Intellectual Disability, Jones S, Journal of Neurodevelopmental Disorders, Light, Mahon L V, melatonin, MPSIIIA, MPSIIIB, Mucopolysaccharidosis type III, Multiple disabilities, Mumford R A, Neurosciences & Neurology, Rare Disease, Sanfilippo, Sleep, sleep disturbance/disorders, sleep problems, smith-magenis-syndrome, Therapy, Trajectory
A psychological experience assessment protocol of parent caregivers in paediatric palliative care
Tags: 2023, Adult, Annals Of Medicine, Article, Caregiver, Child, Clinical Article, Coping Behavior, Coping Strategy Questionnaire, February List 2024, Human, Nogueira AJ, Palliative Therapy, Parent, Portugal, psychologic assessment, Questionnaire, Ribeiro MT, Semi Structured Interview, Social Support, Therapy, United Kingdom, VULNERABILITY
Fatigue and depression in children with demyelinating disorders
Tags: 2013, acquired demyelinating syndromes, acute disseminated encephalomyelitis, Adolescent, alertness, Article, Benedict R H B, Canada, characteristics, Child, Child Behavior, Childhood Disease, Clinical Article, Cohort Analysis, Comorbidity, Controlled Study, Cross-sectional Study, demyelinating disease, demyelinating disorders, Depression, disease duration, Epidemiology, Fatigue, Female, Health Survey, Human, Journal of Child Neurology, Male, Mood, Multiple Sclerosis, Parrish J B, Priority Journal, psychological aspect, School Child, Self Report, Sleep, Smerbeck A, Therapy, Trajectory, Weinstock-Guttman B, Yeh E A
Role of Pediatric Palliative Care in German-Speaking Centers for Heart Transplantation
Tags: 2024, cardiac patient, Child, Chronic Disease, conference abstract, Consultation, Controlled Study, Ethical dilemma, Fischer M, Haas N, heart disease, Heart Failure, Heart transplantation, Hermann M, Human, May List 2024, Medical Specialist, Nurse, Palliative Care, Palliative Therapy, Quality Of Life, Questionnaire, Rabenhorst D, Speech, Terminal Care, Therapy, Thoracic and Cardiovascular Surgeon, ventricular assist device
Healthy siblings' perspectives about paediatric palliative care: A qualitative systematic review and meta-synthesis
Provider Perceptions for Withdrawing Life Sustaining Therapies at a Large Pediatric Hospital
Tags: 2022, Analysis, Article, CARE, Carpenter AT, Casas JA, Child, Clinical, Coleman RD, coronary, Crawford CA, data, Drug, erratum, experiment, Female, guideline, Health, Hospital, Human, intensive, Journal of Pain and Symptom Management., Life, Major, Male, Neonatal, Palliative, Pediatric, Perception, Practice, Qualitative, Quality, quantitative, Sawyer K E, September 2022 List, Software, study, sustaining, Therapy, Treatment, Tume SC, Unit, Withdrawal
What are the anticipated benefits, risks, barriers and facilitators to implementing person-centred outcome measures into routine care for children and young people with life-limiting and life-threatening conditions? A qualitative interview study with key stakeholders
Tags: 2024, Adult, Article, Bluebond-Langner M, Braybrook D, Bristowe K, Caregiver, Child, Clinical Article, Communication Barrier, Controlled Study, Coombes L, Cross-sectional Study, Downing J, Ellis-Smith C, Farsides B, Female, Fraser LK, Hardardottir D, Harding R, Human, Implementation Science, Interpersonal Communication, Interview, May List 2024, Murtagh FEM, Outcomes Research, Palliative Medicine, Palliative Therapy, patient-reported outcome, Privacy, Roach A, Scott HM, Semi Structured Interview, Sibling, Therapy, workload
Inequalities in Access to Bereavement Support Before and During COVID-19: Findings from Voluntary and Community Sector Bereavement Services in the UK
Tags: 2022, abstract, and, Attention, Bereavement, Byrne A, Child, Clinical, Conference, controlled, coronavirus, disadvantaged, Disease, ethnic, Female, Gender, Goss S, group, Harrop E, Hospice, Human, Longo M, Major, Male, Medeiros Mirra R, media, minority, Nelson A, Organization, Palliative, Palliative Medicine, Pandemic, Penny A, Population, Seddon K, Selman L, September 2022 List, Social, study, Support, Sutton E, Therapy, Wakefield D, welfare
The Neonatal Palliative Care Attitude Scale: Psychometric properties for Portuguese neonatal nurses
Tags: 2022, alpha, Analysis, Article, Attitude, Barbosa J, CARE, Clinical, coefficient, confirmatory, consistency, controlled, convergent, Cronbach, degree, discriminant, Education, end-of-life, error, experiment, Face, factor, Female, Figueira AR, Fradique E, Freedom, Human, intensive, internal, Major, Male, mean, Neonatal, Newborn, Nurse, Nursing, October 2022 List, Of, Palliative, Palliative & Supportive Care, quantitative, Rebotim AM, Reliability, Roldao MG, root, Santos Curado MA, Scale, Software, Sousa F P, squared, study, supportive, terminal, Therapy, Unit, VALIDATION, Validity
Qualitative Study of Nurses' Experiences as They Learned to Provide Neonatal Palliative Care
Tags: 2023, Adult, Article, Benzies K, Canadian, Clinical Article, Curriculum, Female, Human, immersion, Infant Newborn, Interview, Journal of obstetric, gynecologic, and neonatal nursing, Male, March List 2024, meaning-making, Neonatal Intensive Care Unit, Neonatal Nurse, Newborn, Newborn Intensive Care, Nurse, nursing education, Palliative Care, Palliative Therapy, Qualitative Research, Raffin-Bouchal S, Sinclair S, St Louis J, Thematic Analysis, Therapy
Inequities in Pediatric Palliative Care: Where Are the Consults?*
Tags: 2022, access, barrier, Bias, Black, CARE, Caucasian of Hispanic, Cell, Communication, Competence, Consultation, Cultural, difference, disparity, doctor, Editorial, English, Equity, ethnic, exclusion, Health, Human, implicit, intensive, limited, Medicine, multilingualism, October 2022 List, Palliative, Patient, Pediatric Critical Care Medicine, Pediatrics, person, Personnel, proficiency, Quality, race, racial, racism, Relationship, social life, stem, Suttle ML, Therapy, Transplant, utilization
Surviving childhood cancer: parents' perceptions of their child's health
Tags: 2005, Adaptation, Backlog, Child welfare, Health Status Humans Long-Term Care Longitudinal Studies Male Middle Aged Neoplasms/diagnosis/psychology/, Journal Article, Journal Of Pediatric Oncology Nursing, Non-U.S. Gov't Risk Assessment Survivors Time Factors, Parent-Child Relations Probability Questionnaires Regression Analysis Research Support, PedPal Lit, Preschool Female Follow-Up Studies, Psychological Adolescent Adult Caregivers/psychology Child, Svavarsdottir EK, Therapy
The Use of Cannabinoids in Pediatric Palliative Care-A Retrospective Single-Center Analysis
Tags: 2024, add on therapy, Adolescent, Adverse Drug Reaction, anxiety, April List 2024, Article, Cannabinoid, Cannabinoids, Child, Children, Clinical Article, decreased appetite, Diagnosis, drug combination, drug dose increase, Drug Therapy, Epilepsy, Female, Gravou-Apostolatou C, Human, Human Tissue, Loss Of Appetite, Male, Nausea, Outpatient, Pain, Palliative Care, Palliative Therapy, paresis, pediatric patient, Quality Of Life, restlessness, Retrospective Study, School Child, Side Effect, Spasticity, special situation for pharmacovigilance, Tagsold D, Therapy, Toni I, Trollmann R, Woelfle J
Psychologists as Pivotal Members of the Pediatric Palliative Care Team
Tags: 2024, Adolescent, April List 2024, Article, Child, Consensus, Diagnosis, Drug Therapy, evidence based practice, Human, interdisciplinary research, Journal of Pain and Symptom Management, Kentor RA, McCarthy SR, Palliative Care, Palliative Therapy, Psychologist, Psychology, Quality Of Life, Schaefer MR, Therapy, Thompson AL
Palliative care for children: methodology for the development of a national clinical practice guideline
Tags: 2023, Advance Care Planning, Article, Bereavement, BMC Palliative Care, Borggreve BCM, Child, Drug Administration, evidence based medicine, February List 2024, Human, Kremer LCM, Methodology, Michiels EMC, Mulder RL, Palliative Therapy, Practice Guideline, psychosocial care, Qualitative Research, Randomized Controlled Trial, Rippen H, shared decision making, special situation for pharmacovigilance, Systematic Review, Therapy, van Teunenbroek KC, Verhagen AAE, Verheijden JMA
Importance of parental involvement in paediatric palliative care in Hong Kong: Qualitative case study
Tags: 2023, Archives of Disease in Childhood, Article, Caregiver, Case Study, Chan SCW, Child, Child Health, Chiu ATG, Diagnosis, February List 2024, Female, Fung CW, Health Care Personnel, Ho ACH, Ho EKY, Ho JMC, Hong Kong, Human, Internet, Interview, Lai TC, Lam KKW, Lee LPY, Lee SWY, Li CH, Li CK, Male, Medical Information, Nurse, Palliative Therapy, Physician, Semi Structured Interview, Social Support, Therapy, Tsui KW, Wong FKY