Browse Items (48 total)
- Tags: Review
Empathic Care of Neonates: A Critical Literature Review
A "good" death in a pediatric ICU: Is it possible?
How Do Children With Medical Complexity Die? A Scoping Review
Tags: 2024, April List 2024, biological marker, Bourassa MH, Chan Ng GM, Child, Child Death, Chronic Disease, Chronic Patient, Clinical Practice, Cohort Analysis, Health Care Utilization, Human, Journal of Palliative Medicine, knowledge gap, North America, Only Child, Patel H, Personal Experience, Place Of Death, Qualitative Research, Quality Of Life, Review, Systematic Review
Healthy siblings' perspectives about paediatric palliative care: A qualitative systematic review and meta-synthesis
Palliative care for infants with life-limiting conditions: Integrative review
Tags: 2023, Advance Care Planning, Aged, biological marker, BMJ Supportive and Palliative Care, Chronic Disease, Consultation, Content Analysis, English (language), February List 2024, Gill FJ, health practitioner, Human, Infant, Interpersonal Communication, Iten R, Medical Specialist, Nurse, O'Connor M, Palliative Therapy, Primary Health Care, quality improvement study, Review, Terminal Care, Therapy
A meta-ethnography of how children and young people with chronic non-cancer pain and their families experience and understand their condition, pain services, and treatments
Tags: 2023, abdominal pain, Adolescent, Analgesia, Analgesics Opioid, Anthropology Cultural, Caes L, Child, Child Parent Relation, Chronic Pain, Cochrane Database of Systematic Reviews, Complex Regional Pain Syndrome, cultural anthropology, Disease Severity, endometriosis, ethnography, Family, Family Life, February List 2024, Fibromyalgia, Forbat L, France E, Headache, Health Care Personnel, Health Service, Human, Humans, inflammatory bowel disease, Jordan A, juvenile rheumatoid arthritis, migraine, musculoskeletal pain, narcotic analgesic agent, Noyes J, outcome assessment, Pain Assessment, Pain Severity, patient-reported outcome, pediatric patient, Peer Group, Personal Experience, Prognosis, Quality Of Life, racism, Review, Sibling, Silveira Bianchim M, Social Care, Social Isolation, Social Support, Social Work, Systematic Review, Thomson K, Turley R, Uny I, Wellbeing
Accessibility and challenges of perinatal palliative care in Poland
Tags: 2023, Baranowska B, budget, Female, fetus malformation/di [Diagnosis], Health Care Access, Human, Kaptacz I, Law, midwife, obstetric procedure, October List 2035, Palliative Care, Palliative Medicine in Practice, Palliative Therapy, Perinatal Care, perinatal period, Poland, pregnant woman, Prenatal Diagnosis, primary medical care, Psychologist, Review, Sys D, Szlendak B, Tataj-Puzyna U, Węgrzynowska M
The spiritual dimension of parenting a child with a life-limiting or life-threatening condition: A mixed-methods systematic review
Tags: 2023, Attention, Brouwer MA, Child, Child Parent Relation, Cinahl, data source, Embase, Empiricism, Engel M, Female, Human, Jansen N, Kars MC, Leget C, Male, Medline, Only Child, Palliative Medicine, Palliative Therapy, Pediatrics, Psycinfo, Religion, Review, September List 2034, Systematic Review, Teunissen SCCM
Long-Term Ventilation in Children with Medical Complexity: A Challenging Issue
Tags: 2022, Artificial Ventilation, Attanasi M, Caldarelli V, Child, Children, Children With Medical Complexity, Continuous Positive Airway Pressure, Ethics, Fainardi V, Filippo PD, Gallucci M, Grutta SL, Human, invasive ventilation, Long Term Care, Mazza A, miscellaneous named groups, Only Child, Palliative Therapy, Porcaro F, Review, September List 2029, treatment indication, Ullmann N, Ventilators, Mechanical
Redirecting Care: Compassionate Management of the Sick or Preterm Neonate at the End of Life
Tags: 2022, August List 2052, Children, compassionate care, Distress Syndrome, doctor patient relationship, emotionality, family relation, family support, Hain R, Health Care Personnel, Human, Infant, Newborn, intersectoral collaboration, Newborn Care, Newborn Death, Pain, Palliative Therapy, parent counseling, parental behavior, Patient Care, Personal Experience, Philosophy, Psychological care, Review, Terminal Care, Wyatt J
Parental Ethical Decision Making and Implications for Advance Care Planning: A Systematic Review and Secondary Analysis of Qualitative Literature from England and Wales, Germany, and the Netherlands
Tags: 2023, Advance Care Planning, August List 2040, care behavior, Child, Decision Making, England, Ethical Decision Making, Ethics, Female, Germany, Human, Journal of Palliative Medicine, law suit, Male, Neefjes V, Netherlands, Qualitative Research, Review, Secondary Analysis, Systematic Review, Thematic Analysis, theoretical study, Wales
Role of palliative care in fetal neurological consultations: Guiding through uncertainty and hope
Tags: 2023, August List 2029, Brain, Consultation, Cortezzo DE, Counseling, Decision Making, Diagnosis, encephalocele, Fetus, Frontiers in Pediatrics, Grief, Human, Infant, Medical Care, Neurology, Palliative Care, Palliative Therapy, Patient Care, Pregnancy, prenatal period, Prognosis, Referral And Consultation, Review, shared decision making, Shoaib A, social belief, Uncertainty, Vawter-Lee M, Venkatesan C, vignette
Are we on the same page? Exploring pediatric patients' involvement with advance care planning
Tags: 2023, Aasen ERHV, acquired immune deficiency syndrome, Adolescent, Adult, Advance Care Planning, Caregiver, Child, Cystic Fibrosis, Emotion, Female, Human, Journal of Pain and Symptom Management, June 2022 List, Lee A, Male, Medline, Neurology, oSovik ML, outcome assessment, Palliative Therapy, Patient Participation, pediatric patient, Randomized Controlled Trial (topic), Review, Stordal K, Systematic Review, Young Adult
Ethics at the end of life in the newborn intensive care unit: Conversations and decisions
Tags: 2023, active euthanasia, Artificial Ventilation, Bioethics, Controlled Study, Conversation, Critically Ill Patient, Decision Making, Ethics, Gillam L, Human, Hydration, hypoxic ischemic encephalopathy, Infant, Infant Newborn, Intensive Care Units, Intensive Care Units Neonatal, July List 2023, Mercurio MR, Neonatal Intensive Care Unit, Neonatologist, Newborn, Nutrition, Resuscitation, Review, Seminars in Fetal and Neonatal Medicine, Treatment Withdrawal
Religious and cultural challenges in paediatrics palliative care: A review of literature
Tags: 2019, Abd Ghani NA, Autopsy, Caregiver, Coping Behavior, cultural anthropology, Data Base, Decision Making, Human, Interpersonal Communication, Journal Of Pediatric Hematology/oncology, July List 2023, Khalid K, Ku Md Saad S, Life, Mohamed Abdul Kadher AN, organ donor, Palliative Care, Palliative Therapy, Pediatrics, Religion, Review, Software, Systematic Review, Terminal Care, terminally Ill Patient
Maternal-fetal surgery as part of pediatric palliative care
Paediatric palliative care in the NICU: A new era of integration
Designing the physical environment for inpatient palliative care: A narrative review
Tags: Child, Hospice Care, Hospital Care, Human, Thematic Analysis, 2021, Adult, BMJ Supportive and Palliative Care, Built Environment, Cinahl, Collins A, Comfort, Conception, data extraction, Data Synthesis, Emergency Ward, Family Interaction, Family Management, Female, Furniture, Hospice Care, Hospital care, Hospital Patient, Human Dignity, January List 2023, Male, McLaughlan R, Medline, Narrative, nursing home, Nursing Home Care, Palliative Therapy, Philip J, Privacy, Psycinfo, Review, Systematic Review, Wong K
Parent-Reported Experience Measures of Care for Children with Serious Illnesses: A Scoping Review
Tags: Child, Child Care, Chronic Disease, Systematic Review, Terminal Care, 2022, Ang FJL, Caregiver Support, Childhood Disease, Emergency Care, empowerment, Finkelstein EA, Gandhi M, Health Care Delivery, Health Care Quality, Hospice Care, Hospital care, Hospitalized Child, Human, Long Term Care, Neonatal Intensive Care Unit, November 2022 List, Palliative Therapy, Parental Attitude, patient-reported outcome, Pediatric Critical Care Medicine, Personal Experience, Review, shared decision making
Measuring Quality of Dying, Death and End-Of-Life Care for Children and Young People: A Scoping Review of Available Tools
Tags: Adolescent, Child, Palliative Care, Quality of Life, Terminal Care, 2022, Cooper M, Cox V, Flemming K, Fraser LK, Gilman C, Hospice Care, Humans, Mayland CR, November 2022 List, Palliative Medicine, Powell PA, Quality Of Death, quality of dying, Reproducibility of Results, Review, Sunderland KA, Taylor P, tools, Turner N, Zeigler L
Factors that Contribute to Bereaved Parents' Perceptions of Neonatal Palliative Care: A Systematic Literature Review
Tags: 2022, Analysis, and, Article, Beltran SJ, CARE, Experience, Family, Female, for, guideline, Hamel M N, Human, Infant, intensive, Items, Male, meta, Meta-analyses, Neonatal, Newborn, October 2022 List, Palliative, Parent, Perception, Practice, Preferred, Psychological, Quality, Reporting, Review, Reviews, Satisfaction, systematic, The American Journal of Hospice & Palliative Care, Therapy, Unit, Units
How Can We Measure Quality of Dying, Death, and Quality of Care at the End-of-Life for Children and Young Adults? A Scoping Literature Review
Tags: 2022, abstract, Adult, advanced, Cancer, CARE, Caregiver, Child, Conference, controlled, Cooper M, Cox V, Disease, Female, Flemming K, Fraser L, Gillman C, Heart, Human, intensive, Life, Male, Mayland CR, Mother, Pain, Palliative, Palliative Medicine, Patient, Pediatric, Powell P, Quality, Questionnaire, Review, September 2022 List, Sibling, spiritual, study, Sunderland K, systematic, Taylor P, terminal, Therapy, Turner N, Unit, young, Zeigler L
How can advance care planning tools help young people's voices be heard?
Ethical challenges for a new generation of early-phase pediatric gene therapy trials
Tags: 2021, August 2022 List, Averion GM, Bharucha-Goebel D, Bonnemann CG, Clinical Trial (topic), Ethics, Foley AR, Gene Therapy, Genetics in Medicine, giant axonal neuropathy, Grady C, Gray S, Hendriks S, Human, Iyer AA, Paredes E, patient engagement, Patient Selection, Pediatrics, Review, Rid A, Risk Benefit Analysis, Saade D
Paediatric advance care planning in life-limiting conditions: Scoping review of parent experiences
Tags: 2022, Advance Care Planning, August 2022 List, Bennett HE, BMJ Supportive and Palliative Care, care behavior, Child, Cinahl, Comparative Study, Conversation, Decision Making, Duke S, Female, Human, Male, Medline, participatory research, Pediatrics, Quality Of Life, Review, Richardson A, sense of coherence, Systematic Review
The Child With Severe Chronic Illness in the ICU: A Concise Review
Hyperoxemia Is Associated With Mortality in Critically Ill Children
Advances in pediatric psychooncology
Tags: 2020, Adult, Attention, Bereavement, cancer center, Cancer Patient, Child, Childhood Cancer, chimeric antigen receptor T-cell immunotherapy, Current Opinion In Pediatrics, Devine K A, Distress Syndrome, evidence based practice center, hereditary tumor syndrome, Human, Infant, Oncology 2020 List, outcome assessment, Palliative Therapy, patient reported outcome, Psycho-Oncology, psychosocial care, Review, Sibling, Survivorship, Thompson A L, toddler, Wiener L, Young Adult
Pediatric Palliative Care in Oncology
Oral and dental considerations in pediatric cancers
Tags: 2020, Adolescent, Cancer metastasis reviews, cancer prevention, cancer screening, Cancer Survival, cancer survivor, Cancer Therapy, Child, Childhood Cancer, Chrisentery-Singleton T E, Complication, Counseling, dental procedure, English (language), Female, Human, immunosuppressive treatment, Male, Medline, mouth infection, mucosa inflammation, occupation, Oncology 2020 List, Pain, Palliative Therapy, pediatric dentist, Practice Guideline, Prevention, Review, Ritwik P, Survival Rate, Systematic Review, tooth malformation, vulnerable population
Bereavement care interventions for children under the age of 18 following the death of a sibling: a systematic review
Tags: 2020, Bereavement, Child, Death, Frache S, October 2020 List, Paediatrics, Palliative Medicine, Review, Ridley A, Siblings
Impact of Specialized Pediatric Palliative Care: A Systematic Review
Tags: 2019, Bilodeau M, Child, Ciapponi A, clinical assessment, Cochrane Library, Cohort Analysis, Comandé D, Consensus, Controlled Study, data extraction, Dussel V, Embase, End Of Life, Female, Global Health, Human, Journal of Pain and Symptom Management, Male, Marcus K L, Medline, October 2019 List, outcome assessment, Palliative Care, Palliative Therapy, patient reported outcome, Patient-reported Outcomes, Pediatrics, Psycinfo, Quality Of Life, Randomized Controlled Trial (topic), Review, Risk Assessment, Santos G, Selection Bias, synthesis, Systematic Review, Web of Science, Wolfe J
Gabapentin for the treatment of pain manifestations in children with severe neurological impairment: A single-centre retrospective review
Tags: 2019, alopecia/si [Side Effect], BMJ Paediatrics Open, Bourke B, Broderick A, Child, Clinical Article, Collins A, Devins M, Disease Severity, Drug Efficacy, Drug Substitution, Drug Withdrawal, gabapentin/ae [Adverse Drug Reaction], gabapentin/dt [Drug Therapy], gabapentin/pv [Special Situation for Pharmacovigilance], Gastroenterology, General Paediatrics, Human, Hussey S, hypertransaminasemia/si [Side Effect], Irritability, lethargy/si [Side Effect], Mannion R, muscle twitch, Neurodisability, Neurologic Disease, October 2019 List, Pain, Pain/dt [drug Therapy], Palliative Care, pregabalin/dt [Drug Therapy], pregabalin/pv [Special Situation for Pharmacovigilance], Priority Journal, Retrospective Study, Review, treatment duration, treatment response, vomiting/dt [Drug Therapy], vomiting/si [Side Effect]
Influence of health interventions on quality of life in seriously ill children at the end of life: A systematic review protocol
Tags: 2019, anxiety, Beernaert K, Checklist, Child, Cinahl, Cohen J, data extraction, Deliens L, Embase, Female, Human, Male, Medline, meta analysis, Narrative, Pain, Pauwels N, Pediatrics, Piette VE, publication, quality control, Quality Of Life, random sample, Research Priority, Review, September 2019 List, synthesis, Systematic Review, Systematic reviews, Van Der Werff Ten Bosch J, Web of Science
Children's unmet palliative care needs: a scoping review of parents' perspectives
The relationship between providing neonatal palliative care and nurses' moral distress: an integrative review
A review of supportive care interventions to manage distress in young children with cancer and parents
Was there a plan? End-of-life care for children with life-limiting conditions: a review of multi-service healthcare records
Tags: 2014, Adolescent, Advance Directives, advance planning, Backlog, Beringer AJ, Child, child and family wishes, Child: Care, Health and Development, Communication, Decision Making, DNAR, Documentation, End Of Life, Female, Heckford EJ, Humans, Infant, Journal Article, Male, Medical Records, Neoplasms, Neoplasms/mo [mortality], Parents, Parents/px [psychology], Patient Care Planning/og [Organization & Administration], Patient Care Planning/st [Standards], Pediatrics, Physician-patient Relations, Practice Guidelines As Topic, Preschool, Quality Of Life, Resuscitation Orders, Retrospective Studies, Review, Terminal Care, Terminal Care/og [organization & Administration], Terminal Care/px [psychology], Time Factors