Browse Items (2310 total)
- Tags: Humans
How Parents And Physicians Experience End-of-life Decision-making For Children With Profound Intellectual And Multiple Disabilities.
End-of-life decisions (EoLD) often concern children with profound intellectual and multiple disabilities (PIMD). Yet, little is known about how parents and physicians discuss and make these decisions.
AIMS:
The objective of this research…
Tags: 2016, Adolescent, Adult, Attitude Of Health Personnel, Attitude To Health, Caregiver, Cerebral Palsy, Child, Child Preschool, de Vos MA, Decision Making, Disabled Children, Dissent And Disputes, End Of Life, Ewals FV, Female, Healthcare Professional, Humans, Infant, Infant Newborn, Intellectual Disability, Male, Middle Aged, Neurologists, Palliative Care, Parents, Pediatricians, Professional-family Relations, Qualitative Research, Research in Developmental Disabilities, Resuscitation Orders, Retrospective Studies, September 2016 List, Severity Of Illness Index, Shared Decision-making, Terminal Care, van Goudoever JB, Willems DL, Young Adult, Zaal-Schuller IH
End-of-life Decision-making For Children With Severe Developmental Disabilities: The Parental Perspective.
The objectives of this integrative review were to understand how parents of children with severe developmental disorders experience their involvement in end-of-life decision-making, how they prefer to be involved and what factors…
Tags: 2016, Critical Treatment Decision, de Vos MA, Decision Making, Decision-making, Developmental-disabilities, End Of Life, Ewals FV, Humans, Integrative Review, October 2016 List, Parents, Quality Of Life, Research in Developmental Disabilities, Severe Developmental Disorder, Severity Of Illness Index, Terminal Care, To Advocate, van Goudoever JB, Willems DL, Zaal-Schuller IH
Association of Mortality With the Death of a Sibling in Childhood.
Tags: 2017, Adolescent, Age Factors, Bereavement, Cause Of Death, Child, Child, Preschool, Cnattingius S, December 2017 List, Denmark/epidemiology, Family Health/ Statistics & Numerical Data, Female, Follow-up Studies, Fu B, Humans, JAMA Pediatrics, Li J, Liew Z, Life Change Events, Male, Mortality, Olsen J, Parner ET, Qin G, Registries, Risk Factors, Sex Factors, Siblings, Sweden/epidemiology, Time Factors, Vestergaard M, Yu Y, Zhao N
Impact Of A Palliative Care Program On End-of- Life Care In A Neonatal Intensive Care Unit.
Evaluate changes in end-of-life care following initiation of a palliative care program in a neonatal intensive care unit.
STUDY DESIGN:
Retrospective study comparing infant deaths before and after implementation of a Palliative Care…
Tags: 2016, Benzodiazepines/therapeutic Use, Brandon D, Cause Of Death, Cotten CM, Female, Goldberg RN, Humans, Infant, Infant Death, Infant Newborn, Intensive Care Units Neonatal/organization & Administration, Journal of perinatology : official journal of the California Perinatal Association, Male, March 2016 List, Morphine/therapeutic Use, Palliative Care, Resuscitation Orders, Retrospective Studies, Simmons C, Smith PB, Terminal Care, Withholding Treatment/trends, Younge N
Using industrial processes to improve patient care
Tags: 2004, Backlog, Bmj (clinical Research Ed.), Brailsford S, Connell C, Davies R, Decision Making, Great Britain, Harper P, Humans, Industry/methods/standards, Journal Article, Klein JH, Occupational Health, Patient Care/standards, Quality Of Health Care, State Medicine/standards, Waiting Lists, Young T
Use of health care among adults with chronic and complex physical disabilities of childhood
Tags: 2005, Adolescent Transitions, Adult, Backlog, Brain Injury, Cerebral Palsy/rehabilitation, Chronic/rehabilitation, Disability And Rehabilitation, Disabled Persons/rehabilitation, Emergency Service, Fehlings D, Female, Health Services/utilization, Hospital/utilization, Humans, Journal Article, Jutai J, Male, Olmsted N, Ontario, Primary Health Care/utilization, Retrospective Studies, Spinal Dysraphism/rehabilitation, Steele C, Williams JI, Young NL
Youth and young adults with cerebral palsy: their use of physician and hospital services
Tags: 2007, Adolescent, Adolescent Transitions, Adult, Ambulatory Care/utilization, Archives Of Physical Medicine And Rehabilitation, Ayling-Campos A, Backlog, Boydell K, Cerebral Palsy/therapy, Chronic Disease, Fehlings DL, Female, Gilbert TK, Hospitalization/statistics & numerical data, Humans, Journal Article, Law M, Male, McCormick A, Medical/statistics & numerical data, Mukherjee S, Ontario/epidemiology, Specialties, Wedge JH, Williams JI, Young NL
Managing communication with young people who have a potentially life threatening chronic illness: qualitative study of patients and parents
Tags: 2003, Adolescent, Backlog, Bmj (clinical Research Ed.), Child, Chronic Disease, Communication, Critical Illness, Dixon-Woods M, Empirical Approach, Female, Heney D, Humans, Journal Article, Male, Neoplasms/psychology/therapy, Parent caregivers, Physician-patient Relations, Professional Patient Relationship, Professional-family Relations, Windridge KC, Young B
Evaluation of heart murmurs in children: cost-effectiveness and practical implications
Tags: 2002, Adolescent, Backlog, Cardiology/economics, Child, Child welfare, Comparative Study, Cost-Benefit Analysis/economics, Decision Support Techniques, Echocardiography/economics, Electrocardiography/economics, Heart Murmurs/diagnosis/economics/epidemiology, Humans, Infant, Infant Welfare, Journal Article, Kimball TR, Kotagal UR, Mrus JM, Newborn, Non-U.S. Gov't, Pediatrics/economics, Preschool, Prevalence, Radiography, Referral and Consultation/economics, Research Support, Sensitivity and Specificity, The Journal Of Pediatrics, Thoracic/economics, Tsevat J, Yi MS
Self-portraits of families with young adult cancer survivors: using photovoice
Tags: 2010, Adolescent, Backlog, Ethnic Groups/statistics & numerical data, Family/psychology, Female, Humans, Journal Article, Journal Of Psychosocial Oncology, Male, Narration, Neoplasms/ethnology/psychology, Photography, Psychology, Quality Of Life/psychology, Questionnaires, Self Concept, Semantics, Socioeconomic Factors, Survivors/psychology, Voice, Yi J, Young Adult, Zebrack B
Chronic illness and disability
Tags: 2005, Adolescent, Adolescent Transitions, Backlog, Bmj (clinical Research Ed.), Chronic Disease/psychology/therapy, Disabled Persons/psychology, Educational Status, Emotions, Family Health, Humans, Journal Article, Mental Health, Patient Compliance, Patient Transfer, Primary Health Care, Sawyer S, Yeo M
Adaptational process of parents of pediatric oncology patients
Tags: 2000, Adaptation, Adolescent, Adult, Aged, Backlog, Caregivers/psychology, Chen ML, Child, Data Collection, Family Health, Family Relations, Female, Humans, Infant, Journal Article, Lee TT, Li W, Male, Middle Aged, Neoplasms/psychology, Non-U.S. Gov't, Parents/psychology, Pediatric Hematology And Oncology, Preschool, Psychological, Religion, Research Support, Social Support, Stress, Taiwan/ethnology, Yeh CH
A longitudinal method of teaching pediatric palliative care to interns: preliminary findings regarding changes in interns' comfort level
Tags: 2010, Adult, Attitude Of Health Personnel, Attitude To Death, Backlog, Chung PJ, Curriculum/standards, Documentation/standards, Evan E, Female, Humans, Internship And Residency, Journal Article, Longitudinal Studies, Male, Palliative & Supportive Care, Palliative Care/methods, Pediatrics/education, Professional Competence, Professional-family Relations, Professional-patient Relations, Questionnaires, Roubinov D, Teaching/methods, Yazdani S, Young Adult, Zeltzer L
Doing our best and doing no harm: A focused ethnography of staff moral experiences of providing palliative care at a Médecins Sans Frontières pediatric hospital in Cox's Bazar, Bangladesh
Videoconferencing to reduce stress among hospitalized children
The Experiences Of Families Living With The Anticipatory Loss Of A School-age Child With Spinal Muscular Atrophy – The Parents’ Perspectives
To probe into parents’ anticipatory loss of school-age children with Type I or II spinal muscular atrophy.
Background
Spinal muscular atrophy is a rare disorder that causes death. Children die early due to either gradual atrophy…
Tags: 2016, Adult, Anticipatory Loss, Child, Female, Grief, Humans, Interviews As Topic, Journal of Clinical Nursing, July 2016 List, Male, Middle Aged, Muscular Atrophy Spinal/nursing, Muscular Atrophy Spinal/psychology, Nurse's Role, Parents/psychology, School-age Children, Spinal Muscular Atrophy, Taiwan, Yang
Age-dependent change in behavioral feature in Rubinstein-Taybi syndrome
Tags: 2012, Adolescent, Adult, Age, Aggression, aggressive behavior, anxiety, Behavior, behavioral problems, characteristics, Child, Congenital Anomalies, Depression, Factors, Female, Humans, Infant, Kosaki K, Kosaki R, Kurosawa K, Male, Mizuno S, Okamoto N, Preschool, Rubinstein-Taybi Syndrome, Rubinstein-Taybi Syndrome/di [Diagnosis], Sato Y, Surveys And Questionnaires, Takahashi T, Trajectory, Yagihashi T, Young Adult
What Information Do Parents Need When Facing End-of-life Decisions For Their Child? A Meta-synthesis Of Parental Feedback
Tags: 2015, BMC Palliative Care, Communication, Decision Making, Health Knowledge Attitudes Practice, Hope, Humans, Intensive Care Units Pediatric/organization & Administration, July 2017 List, Needs Assessment, Parents/education, Parents/psychology, Sullivan J, Terminal Care/methods, Terminal Care/psychology, Time Factors, Wilkinson D, Xafis V
Death Talk: Basic Linguistic Rules And Communication In Perinatal And Paediatric End-of-life Discussions.
This paper considers clinician/parent communication difficulties noted by parents involved in end-of-life decision-making in the light of linguistic theory.
METHODS:
Grice's Cooperative Principle and associated maxims, which enable…
Tags: 2016, Communication, Consumer Health Information, Death, Decision Making, Decision-making, End-of-life Care, Female, Health Communication, Humans, Linguistics, Male, May 2016 List, Parents/psychology, Patient Education and Counseling, Pediatrics, Perinatal Death, Pregnancy, Professional-family Relations, Terminal Care/methods, Terminally Ill, Watkins A, Wilkinson D, Xafis V
Caring Decisions: The Development Of A Written Resource For Parents Facing End-of-life Decisions
Tags: 2015, Adult, Advance Care Planning/ethics, Advance Care Planning/standards, Attitude Of Health Personnel, Australia, Child, Consumer Health Information/methods, Cossich M, Decision Making/ethics, Gillam L, Humans, Hynson J, Internet, Journal of Palliative Medicine, July 2017 List, Parents/education, Parents/psychology, Pilot Projects, Professional-family Relations, Publications, Sullivan J, Terminal Care/methods, Terminal Care/standards, Wilkinson D, Xafis V
Natural history of trisomy 13
Tags: 1994, Adult, Archives of Disease in Childhood, Backlog, Burn J, Chromosomes, Congenital/diagnosis/genetics/mortality, England/epidemiology, Female, Fetal Diseases/diagnosis, Heart Defects, Human, Humans, Hunter S, Incidence, Infant, Journal Article, Longitudinal Studies, Male, Neural Tube Defects/diagnosis/genetics/mortality, Newborn, Pair 13, Pregnancy, Prenatal Diagnosis, Syndrome, Trisomy, Wright MJ, Wyllie JP
Management of common neurologic symptoms in pediatric palliative care: seizures, agitation, and spasticity
Tags: 2007, Backlog, Brain/physiopathology, Child, Drug Therapy/methods, Humans, Journal Article, Licht DJ, Muscle Spasticity/drug therapy/physiopathology/therapy, Palliative Care, Pediatric Clinics of North America, Psychomotor Agitation/drug therapy/physiopathology/therapy, Seizures/drug therapy/physiopathology/therapy, Shellhaas RA, Wusthoff CJ
The impact of a palliative care team on residents' experiences and comfort levels with pediatric palliative care
Tags: 2014, Adult, Attitude Of Health Personnel, Attitudes, Backlog, Child, Female, Friderici J, Goff Sarah L, Health Knowledge, Humans, Internship And Residency, Journal Article, Journal of Palliative Medicine, Male, Palliative Care, Patient Care Team, Pediatrics, Practice, Questionnaires, United States, Wu KL
End of living: maintaining a lifeworld during terminal illness
Tags: 2009, Acquired Immunodeficiency Syndrome/psychology, Acree M, Adult, Aged, Attitude To Death, Backlog, Female, Folkman S, Goodman S, Humans, Interviews As Topic, Journal Article, Male, Middle Aged, Neoplasms/psychology, New York City, Psychology & Health, Questionnaires, San Francisco, Terminally Ill/psychology, Wrubel J
Exploring perceptions of psychological services in a children's hospice in the United Kingdom
Tags: 2013, Adult, Andrews L, Backlog, Child, Child Health Services, Critical Illness, Crozier K, Disabled Children, Focus Groups, Great Britain, Hospice Care, Humans, Journal Article, Leeson J, Lindsay B, Palliative & Supportive Care, Palliative Care, Parents, Professional-family Relations, Psychological, Stress, Wray Jo, Young Adult
Pediatric organ donation and transplantation
Comparing parent loss with sibling loss
Morphine is not the only analgesic in palliative care: Literature review
Tags: 2004, Analgesics, Analgesics/therapeutic use, Backlog, Fentanyl/therapeutic use, Humans, Journal Article, Journal Of Advanced Nursing, Ketamine/therapeutic use, Methadone/therapeutic use, Morphine/therapeutic Use, Neoplasms/complications, Opioid/therapeutic use, Pain/drug Therapy, Palliative Care/methods, Wootton M
Cornerstone care for families of children with life-threatening illness.
Tags: 1991, Adaptation, Backlog, Baum JD, Brain Diseases/psychology/therapy, Child, Continuity Of Patient Care, Developmental Medicine and Child Neurology, Family/psychology, Forrest GC, Grief, Home Nursing/psychology, Hospices, Humans, Journal Article, Longitudinal Studies, Neuromuscular Diseases/psychology/therapy, Patient Care Team, Professional-family Relations, Psychological, Public Assistance, Sick Role, Social Support, Stein A, Terminal Care/psychology, Woolley H
Neuropathic pain: aetiology, symptoms, mechanisms, and management
Provision Of Services In Perinatal Palliative Care: A Multicenter Survey In The United States.
Congenital anomalies account for 20% of neonatal and infant deaths in the United States. Perinatal palliative care is a recent addition to palliative care and is meant to meet the needs of families who choose to continue a pregnancy…
Tags: 2016, Bereavement, Côté-Arsenault D, Critical Care/organization & Administration, Cross-sectional Studies, Denney-Koelsch E, Female, Fetal Mortality, Humans, Infant Newborn, Journal of Palliative Medicine, Kavanaugh K, Kim S, March 2016 List, Palliative Care/organization & Administration, Parents/psychology, Perinatal Care/organization & Administration, Perry Black B, Pregnancy, Professional-family Relations, Surveys And Questionnaires, United States, Wool C
Positive change processes and post-traumatic growth in people who have experienced childhood abuse: understanding vehicles of change
Tags: 2003, Adult, Affect, Aged, Attitude, Backlog, Child, Child Abuse/psychology, Female, Humans, Interpersonal Relations, Joseph S, Journal Article, Male, Middle Aged, Narration, Post-Traumatic/diagnosis/etiology/psychology, Psychology And Psychotherapy, Social Behavior, Stress Disorders, Woodward CA
The 2002 Schering Lecture. Children's cancer symptom experiences: keeping the spirit alive in children and their families
Tags: 2003, Attitude, Backlog, Canadian Oncology Nursing Journal, Child, Child welfare, Emotions, Family Health, Humans, Journal Article, Motivation, Neoplasms/complications/nursing/psychology, Non-U.S. Gov't, Nurse's Role, Palliative Care, PedPal Lit, Religion, Research Support, Social Support, Woodgate RL
Disease trajectories and ACT/RCPCH categories in paediatric palliative care
Tags: 2010, Attitude To Health, Backlog, Barnes E, Caregivers, Caregivers/psychology, Child, Disease Progression, Family, Family/psychology, Female, Focus Groups, Hain R, Humans, Interviews As Topic, Journal Article, Male, Palliative Care, Palliative Care/psychology, Palliative Medicine, PEDI Study, Professional-family Relations, Qualitative Research, Simpson S, Wales, Wood F
Evaluation of a Continuous Quality Improvement Initiative for End-Of-Life Care for Older Noncancer Patients
Bisphosphonates for the relief of pain secondary to bone metastases
Tags: 2002, Analgesics, Antineoplastic Agents/therapeutic use, Backlog, Bone Neoplasms/complications/drug therapy/secondary, Clodronate, Clodronic Acid/therapeutic use, Cochrane Database of Systematic Reviews, Diphosphonates/therapeutic use, Etidronic Acid/therapeutic use, Humans, Journal Article, Non-Narcotic/therapeutic use, Pain/drug Therapy, Randomized Controlled Trials, Wiffen PJ, Wong R
The experiences of Chinese family members of terminally ill patients - a qualitative study
Tags: 2007, 80 And Over, Adaptation, Adolescent, Adult, Aged, Anger, Attitude To Death/ethnology, Attitude to Health/ethnology, Attitudes, Backlog, Chan SW, Family/ethnology, Female, Grief, Health Education, Health Knowledge, Health Services Needs And Demand, Hong Kong, Hospital/psychology, Humans, Journal Article, Journal of Clinical Nursing, Male, Middle Aged, Nurse's Role/psychology, Nursing Methodology Research, Nursing Staff, Palliative Care/organization & administration/psychology, Practice, Professional-family Relations, Psychological, Qualitative Research, Questionnaires, Social Support, Wong MS
Frequent school-based clinic utilization: a comparative profile of problems and service needs
Tags: 1993, Adolescent, Ambulatory Care Facilities/utilization, Backlog, Continental Population Groups, Educational Status, Female, Health Services Needs And Demand, Health Services Research, Humans, Journal Article, Kaplan DW, Male, Mental Health, Risk-Taking, School Health Services/utilization, Sex Factors, Socioeconomic Factors, Students/statistics & numerical data, The Journal Of Adolescent Health : Official Publication Of The Society For Adolescent Medicine, Wolk LI
Challenges and coping styles of fathers as primary medical caretakers: a multicultural qualitative study.
Tags: *Adaptation, Psychological, *Caregivers/px [Psychology], *Father-Child Relations/eh [Ethnology], *Fathers/px [Psychology], 2010, 2023 SE4 - Parent Perspectives, Adult, Anemia, Sickle Cell, Ethnicity/px [Psychology], Family Conflict, Humans, Journal Of Psychosocial Oncology, Katz, Ernest, Male, Meeske, Kathleen, Middle Aged, Neoplasms, Pak, Jenny, Qualitative Research, Social Support, Socioeconomic Factors, United States, Wolff, Joshua, Worden, J William
Stress, social support, and sense of coherence
Tags: 1999, Adaptation, Adult, Age Factors, Attitude To Health, Backlog, Canada, Child, Female, Health Status, Health Surveys, Humans, Internal-External Control, Journal Article, Life Change Events, Male, Middle Aged, Models, Motivation, Predictive Value of Tests, Psychological, Psychological/prevention & control/psychology, Questionnaires, Ratner PA, Social Support, Socioeconomic Factors, Stress, Western Journal of Nursing Research, Wolff AC