Browse Items (90 total)
- Tags: Age Factors
Managing children's pain
Tags: 2006, Acute Disease, Adolescent, Adolescent Psychology, Age Factors, Analgesia/methods/nursing, Backlog, Bennett M, Child, Child Development, Child Psychology, Cognition, Cognitive Therapy, Communication Disorders/complications, Humans, Infant, Journal Article, Nurse's Role, Nursing Assessment, Nursing Times, Pain Measurement/methods/nursing, Pain/diagnosis/psychology/therapy, Parents/education/psychology, Patient Education, Pediatric Nursing/methods, PedPal Lit, Preschool, Primary Health Care, Savory J
Disease severity in children and adults with Pompe disease related to age and disease duration
Tags: 2005, 80 And Over, Activities of Daily Living, Adolescent, Adult, Age Factors, Age of Onset, Aged, Artificial/statistics & numerical data, Backlog, Child, Cross-sectional Studies, Disease Progression, Female, Glycogen Storage Disease Type II/diagnosis/epidemiology/physiopathology, Hagemans ML, Hop WC, Humans, Infant, Journal Article, Male, Middle Aged, Muscle, Neurology, Newborn, Preschool, Q3 Scoping Review Results, Questionnaires, Respiration, Respiratory Insufficiency/epidemiology/etiology/therapy, Reuser AJ, Severity Of Illness Index, Skeletal/physiopathology, Van der Ploeg AT, Van Doorn PA, Wheelchairs/statistics & numerical data, Winkel LP
One month after diagnosis: quality of life, coping and previous functioning in siblings of children with cancer
Tags: 2005, Adaptation, Adolescent, Age Factors, Backlog, Child, Child welfare, Child: Care, Health and Development, Cognition Disorders, Emotions, Female, Grootenhuis MA, Health Status, Hoekstra-Weebers JE, Houtzager BA, Humans, Journal Article, Last BF, Male, Neoplasms, Psychological, Quality Of Life, Sex Factors, sibling bereavement, Siblings
Understanding sleep-wake behavior and sleep disorders in children: the value of a model
Tags: 2006, Adolescent, Adolescent Behavior/physiology, Age Factors, Backlog, Behavior/physiology, Biological, Child, Child Behavior/physiology, Circadian Rhythm/physiopathology, Comprehension/physiology, Crying, Current Opinion In Psychiatry, Homeostasis, Humans, Infant, Infant Behavior/physiology, Jenni OG, Journal Article, LeBourgeois MK, Models, Predictive Value of Tests, Preschool, Sleep Disorders, Sleep Disorders/physiopathology, Sleep/physiology, Time Factors, Wakefulness/physiology
Parental presence during invasive procedures and resuscitation: attitudes of health care professionals in Turkey
Tags: 2006, Adult, Age Factors, Analgesia/nursing, Attitude Of Health Personnel, Backlog, Child, Conscious Sedation/nursing, Cosar H, Decision Making, Egemen A, Emergency Medicine/methods/statistics & numerical data, Emergency Nursing/methods/statistics & numerical data, Female, Health Care Surveys, Humans, ICU Decision Making, Ikizoglu T, Journal Article, Karapnar B, Karapnar D, Logistic Models, Male, Parents, Pediatric Emergency Care, Pediatrics/statistics & numerical data, Professional-family Relations, Resuscitation/nursing, Socioeconomic Factors, Turkey
Educate, communicate, anticipate-practical recommendations for transitioning adolescents with IBD to adult health care
Tags: 2006, Adolescent, Adolescent Health Services/organization & administration, Adolescent Transitions, Adult, Age Factors, Arnold JH, Backlog, Child, Continuity Of Patient Care, Fishman LN, Gastroenterology/organization & administration, Hait E, Humans, Inflammatory Bowel Diseases, Inflammatory Bowel Diseases/therapy, Journal Article, Patient Education, Pediatrics/organization & Administration, Physician-patient Relations, Practice Guidelines
Evidence for healing interventions with perinatal bereavement
Tags: 2005, Adaptation, Adult, Age Factors, Attitude To Death, Backlog, Bereavement, Capitulo KL, Child, Child Psychology, Evidence-based Medicine, Female, Funeral Rites, Funeral Rites/psychology, Health Services Needs And Demand, Helping Behavior, Humans, Infant, Intervention, Interventions, Journal Article, Male, Maternal-Child Nursing, Maternal-Child Nursing/organization & administration, Newborn, Nurse's Role, Nurse's Role/psychology, Nursing Evaluation Research, Parents, Parents/education/psychology, Professional-family Relations, Psychological, Self-Help Groups, Sex Factors, sibling bereavement, Social Support, Spirituality, Symbolism, The American Journal Of Maternal Child Nursing
Links between abnormal brain structure and cognition in holoprosencephaly
Tags: 2006, Adolescent, Age Factors, Backlog, Benasich AA, Brain/abnormalities, Child, Cognition, Cognition Disorders/pathology, Corpus Striatum/abnormalities, Epilepsy/pathology, Female, Flax J, Hahn JS, Holoprosencephaly/pathology, Humans, Hypothalamus/abnormalities, Infant, Jing H, Journal Article, Kovar C, Male, Motor Skills Disorders/pathology, Neuropsychological Tests, Paterson SJ, Pediatric Neurology, Predictive Value of Tests, Preschool, Q3 Scoping Review Results, Roesler CP, Severity Of Illness Index, Sex Factors, Stashinko EE, Thalamic Nuclei/abnormalities
Symptoms of anxiety and depression in family members of intensive care unit patients before discharge or death. A prospective multicenter study
Tags: 2005, Adult, Age Factors, Aged, Anxiety/epidemiology/psychology, Azoulay E, Backlog, Bollaert PE, Cheval C, Coloigner M, Darmon M, Death, Depression/epidemiology/psychology, Family/psychology, Fassier T, French FAMIREA study group, Humans, ICU Decision Making, Intensive Care Units, Journal Article, Journal of Critical Care, Merouani A, Middle Aged, Moulront S, Patient Discharge, Pigne E, Pingat J, Pochard F, Prevalence, Prospective Studies, Risk Factors, Schlemmer B, Severity Of Illness Index, Zahar JR
ACCF/AHA/AAP recommendations for training in pediatric cardiology. Task force 6: training in transition of adolescent care and care of the adult with congenital heart disease
Tags: 2005, Adolescent, Adolescent Transitions, Adult, Age Factors, American College of Cardiology Foundation, American College of Physicians Task Force on Clinical Competence (ACC/AHA/AAP Writing Committee to Develop Training Recommendations for Pediatric Cardiology), American Heart Association, Backlog, Cardiology/education, Foster E, Heart Diseases/congenital/therapy, Humans, Journal Article, Journal of the American College of Cardiology, Murphy DJ, Pediatrics/education, United States
A literature review on off-label drug use in children
Tags: 2005, Adolescent, Adult, Age Factors, Backlog, Bonati M, Child, Clodronate, Community Health Services/statistics & numerical data, Drug Labeling/statistics & numerical data, Drug/statistics & numerical data, European Journal of Pediatrics, Hospitals, Humans, Infant, Journal Article, Legislation, Newborn, Pandolfini C, Pediatric/statistics & Numerical Data, Preschool, Prescriptions
Effective parenteral clodronate treatment of a child with severe juvenile idiopathic osteoporosis
Tags: 2005, Age Factors, Antimetabolites/administration & dosage/therapeutic use, Backlog, Bone Density/drug effects, Child, Clodronate, Clodronic Acid/administration & dosage/therapeutic use, European Journal of Pediatrics, Humans, Infusions, Journal Article, Male, Melchior R, Osteoporosis/drug therapy, Parenteral, Puberty, Recurrence, Schumacher R, Spranger J, Zabel B
A meta-analysis of interventions for bereaved children and adolescents
Tags: 2010, Adolescence, Adolescent Psychiatry, Age Factors, Backlog, Bereavement, Child, Child Psychiatry, Confidence Intervals, Death studies, Descriptive Statistics, Female, Hagl M, Human, Journal Article, Kruse J, Male, Meta-Analysis, Music Therapy, One-Way Analysis of Variance, P-Value, Preschool, Psychotherapy -- Evaluation, Regression, Rosner R, sibling bereavement, Systematic Review, Time Factors
Cystic fibrosis and transition to adult medical care
Posttraumatic growth in former Vietnam prisoners of war
Tags: 2008, Age Factors, Aged, Alonso A, Ameli R, Backlog, Buchholz KR, Charney DS, Feder A, Goetz RR, Hain R, Humans, Journal Article, Male, Moore J, Post-traumatic, Prisoners, Psychiatric Status Rating Scales, Psychiatry, Psychological Tests, Regression Analysis, Smith BW, Social Adjustment, Social Support, Southwick SM, Stress Disorders, Vietnam Conflict, Vythilingam M, Waldeck T, Wang Y
Moving on from paediatric to adult health care: an initial evaluation of a transition program for young people with cystic fibrosis
Tags: 2007, Adolescent, Adolescent Health Services, Adolescent Transitions, Adult, Age Factors, Backlog, Bibby H, Chronic Disease, Continuity Of Patient Care/organization & Administration, Craig SL, Cross-sectional Studies, Cystic Fibrosis/psychology/therapy, Female, Humans, International Journal Of Adolescent Medicine And Health, Journal Article, Male, Middle Aged, Patient Satisfaction, Program Development, Program Evaluation, Quality Of Life, Questionnaires, Sickness Impact Profile, Time Factors, Towns S
Transition care for young people with chronic illness
Tags: 2007, Adolescent, Adolescent Health Services, Adolescent Transitions, Age Factors, Australia, Backlog, Brodie L, Child, Continuity Of Patient Care/organization & Administration, Cooperative Behavior, Delivery of Health Care/organization & administration, Health Services Accessibility, Health Services Needs And Demand, Humans, International Journal Of Adolescent Medicine And Health, Journal Article, Patient Participation, Steinbeck KS, Towns SJ
Physician-assisted deaths under the euthanasia law in Belgium: a population-based survey
Tags: 2010, 80 And Over, Active, Age Factors, Aged, Assisted/legislation & jurisprudence/statistics & numerical data, Backlog, Belgium/epidemiology, Bilsen J, Canadian Medical Association Journal, Cause Of Death, Chambaere K, Cohen J, Deliens L, Euthanasia, Euthanasia/legislation & jurisprudence/statistics & numerical data, Female, Home Care Services/statistics & Numerical Data, Humans, Journal Article, Male, Middle Aged, Mortier F, Neoplasms/therapy, Onwuteaka-Philipsen BD, Prevalence, Questionnaires, Sex Factors, Suicide, Terminal Care/statistics & Numerical Data, Time Factors, Voluntary/statistics & numerical data
Impaired health-related quality of life in children and adolescents with chronic conditions: a comparative analysis of 10 disease clusters and 33 disease categories/severities utilizing the PedsQL 4.0 Generic Core Scales
Tags: 2007, Adolescent, Age Factors, Backlog, Burwinkle TM, Case-Control Studies, Child, Chronic Disease/classification/epidemiology/psychology, Cluster Analysis, Disabled Children/psychology, Female, Health And Quality Of Life Outcomes, Humans, Journal Article, Limbers CA, Longitudinal Studies, Male, Pediatrics/instrumentation, Preschool, Proxy, Psychometrics/instrumentation, Quality Of Life/psychology, Self Disclosure, Severity Of Illness Index, Sickness Impact Profile, Varni JW, World Health
Pain in children with cerebral palsy: a cross-sectional multicentre European study.
Tags: 2010, Acta Paediatrica, Age Factors, Backlog, Cerebral Palsy/co [Complications], Child, Colver A, Cross-sectional Studies, Dickinson HO, Europe/epidemiology, Gibson L, Humans, Journal Article, Pain/ep [Epidemiology], Pain/et [Etiology], Parent-child Relations, Prevalence, Questionnaires, Regression Analysis, Severity Of Illness Index
Young people with chronic illness: the approach to transition
Tags: 2007, Adolescent, Adolescent Transitions, Adult, Age Factors, Australia, Backlog, Chronic Disease, Continuity Of Patient Care/organization & Administration, Delivery of Health Care/organization & administration, Douglass JA, Humans, Internal Medicine Journal, Journal Article, Kennedy A, Pediatrics, Sawyer SM, Self Care, Sloman F
Transition from pediatric to adult services: are we getting it right?
Tags: 2008, Adolescent, Adolescent Medicine/organization & administration, Adolescent Transitions, Age Factors, Australia, Backlog, Chronic Disease, Continuity Of Patient Care/organization & Administration, Current Opinion In Pediatrics, Delivery of Health Care/organization & administration, Humans, Journal Article, Kennedy A, Models, Organizational, Patient Care Planning/organization & administration, Pediatrics, Sawyer S
Age limits and transition of health care in pediatric emergency medicine
Tags: 2007, Adolescent, Adolescent Transitions, Adult, Age Factors, Backlog, Bryce L, Child, Cystic Fibrosis, Data Collection, Dobson JV, Emergency Medicine, Emergency Service, Female, General/statistics & numerical data, Glaeser PW, Hospital/statistics & numerical data, Hospitals, Humans, Journal Article, Losek JD, Male, Organizational Policy, Pediatric Emergency Care, Pediatric/statistics & Numerical Data, Pediatrics, Pregnancy, Pregnancy in Adolescence, United States
Family function in families of children with Duchenne muscular dystrophy
Tags: 2007, Adaptation, Adult, Age Factors, Backlog, Caregivers/psychology, Chen JY, Child, Clark MJ, Cost Of Illness, Cross-sectional Studies, Disabled Children, Duchenne/economics/physiopathology, Family & Community Health, Family Health, Family Relations, Female, Humans, Journal Article, Male, Middle Aged, Muscular Dystrophy, Parents/psychology, Preschool, Psychological, Questionnaires, Sickness Impact Profile, Social Support, Socioeconomic Factors, Stress, Taiwan
Adolescents with renal disease in an adult world: meeting the challenge of transition of care
Tags: 2007, Adolescent, Adolescent Health Services, Adolescent Medicine, Adolescent Transitions, Age Factors, Backlog, Bell L, Continuity Of Patient Care, Delivery of Health Care, Humans, Journal Article, Kidney Diseases/psychology/therapy, Nephrology, Nephrology, Dialysis, Transplantation, Parent-child Relations, Patient Compliance, Pediatrics
Sibling death and death fear in relation to depressive symptomatology in older adults
Tags: 2009, 80 And Over, Adjustment Disorders, Age Factors, Aged, Attitude To Death, Backlog, Bereavement, Cicirelli VG, Family Characteristics, Fear, Female, Humans, Journal Article, Male, Models, Object Attachment, Personality Inventory, Psychological, Psychometrics, sibling bereavement, Sibling Relations, Socioeconomic Factors, Survivors, The Journals Of Gerontology. Series B, Psychological Sciences And Social Sciences
Miglustat for treatment of Niemann-Pick C disease: a randomised controlled study
Tags: 1-Deoxynojirimycin/analogs & derivatives/therapeutic use, 2007, Abel L, Adolescent, Adult, Age Factors, Analysis of Variance, Backlog, Child, Cohort Studies, Deglutition/drug effects, Double-Blind Method, Drug Administration Schedule, Enzyme Inhibitors/therapeutic use, Female, Humans, Journal Article, Lancet Neurology, Male, Niemann-Pick Disease, Patterson MC, Prady H, Preschool, Q3 Scoping Review Results, Retrospective Studies, Saccades/drug effects, Severity Of Illness Index, Type C/drug therapy/physiopathology, Vecchio D, Wraith JE
Changing mortality in congenital heart disease
Tags: 2010, Abrahamowicz M, Adolescent, Adolescent Transitions, Age Factors, Aged, Backlog, Cardiac Surgical Procedures/methods/mortality, Cause Of Death, Child, Cohort Studies, Congenital/diagnosis/mortality/surgery, Female, Heart Defects, Humans, Infant, Ionescu-Ittu R, Journal Article, Journal of the American College of Cardiology, Khairy P, Mackie AS, Male, Marelli AJ, Middle Aged, Newborn, Pilote L, Preschool, Prognosis, Quebec, Retrospective Studies, Sex Factors, Survival Analysis, Young Adult
Toward youth friendly services: a survey of young people in primary care
Tags: 2007, Adolescent, Adolescent Health Services/utilization, Adolescent Transitions, Adult, Age Factors, Backlog, Cross-sectional Studies, Female, Haller DM, Health Care Surveys, Health Services Needs and Demand/classification/statistics & numerical data, Humans, Journal Article, Journal Of General Internal Medicine, Male, Needs Assessment, Patient Acceptance Of Health Care/statistics & Numerical Data, Patient Satisfaction, Patton GC, Physician-patient Relations, Primary Health Care/utilization, Sanci LA, Sawyer SM
Symptoms in the palliative phase of children with cancer
Tags: 2007, Adolescent, Age Factors, Anorexia, Attitude To Death, Backlog, Brain Neoplasms, Caregivers, Child, Emotions, Fatigue, Fear, Female, Gastrointestinal Diseases, Hoogerbrugge PM, Humans, Infant, Journal Article, Leukemia, Male, Mobility Limitation, Neoplasms, Pain, Pain Management, Palliative Care, Parent-child Relations, Parents, Pediatric Blood & Cancer, Physician-patient Relations, Preschool, Prins JB, Professional-family Relations, Psychological, Questionnaires, Retrospective Studies, Social Support, Stress, Terminal Care, Theunissen JMJ, Treatment Failure, van Achterberg T, van den Ende CHM, Vernooij-Dassen M
The natural history of Unverricht-Lundborg disease: a report of eight genetically proven cases
Tags: 2008, Adolescent, Adult, Age Factors, Atrophy/complications/pathology, Auditory, Backlog, Bhatia KP, Brain Stem/physiology, Brain/pathology/physiopathology, Cerebellar Ataxia/complications/diagnosis, Cerebellum/pathology/physiopathology, Chew NK, Child, Chromosomes, Cordivari C, Dementia/complications/diagnosis, Diagnosis, Differential, Disease Progression, Dystonia/complications/diagnosis, Edwards MJ, Electroencephalography, Electromyography, Evoked Potentials, Evoked Potentials/physiology, Female, Human, Humans, Journal Article, Kim HT, Magnetic Resonance Imaging, Male, Martino D, Mir P, Movement Disorders: Official Journal Of The Movement Disorder Society, Myoclonus/complications/diagnosis, Neuropsychological Tests, Pair 21/genetics, Q3 Scoping Review Results, Quinn NP, Schneider SA, Seizures/complications/diagnosis, Severity Of Illness Index, Unverricht-Lundborg Syndrome/diagnosis/genetics/physiopathology
Mental Health Services for Parents Who Lost a Child to Cancer: If We Build Them, Will They Come?
Tags: 2015, Adaptation, Adolescent, Adult, Age Factors, Backlog, Baser RE, Breitbart W, Cause Of Death, Child, Corner GW, Cross-sectional Studies, Female, Grief, Health Services Accessibility, Humans, Infant, Journal Article, Journal Of Clinical Oncology, Kissane DW, Li Y, Lichtenthal WG, Male, Mental Health Services, Middle Aged, Minority Groups, Neoplasms, Parents, Patient Acceptance of Health Care, Preschool, Prigerson HG, Psychological, Psychotherapy, Psychotropic Drugs, Roberts KE, Self Report, Self-Help Groups, Sweeney CR, Time Factors, United States, Wiener L, Young Adult
Differences in characteristics of dying children who receive and do not receive palliative care
Tags: 2013, Adolescent, Age Factors, Backlog, Bratton SL, Cause Of Death, Child, Cohort Studies, Complex Chronic Conditions, Female, Hospital Mortality, Hospitals, Humans, Infant, Intensive Care Units, Journal Article, Keele L, Keenan HT, Length Of Stay, Location Of Death, Male, Neonatal, Newborn, Palliative Care, Pediatric, Pediatric Palliative Care, Pediatrics, Preschool, Retrospective Studies, Sheetz J, Terminal Care, United States, Utilization Review
AIMP1 deficiency presents as a cortical neurodegenerative disease with infantile onset
Tags: 2014, Age Factors, Armstrong L, Backlog, Biancheri R, Brain, Cytokines, Female, Humans, Infant, Journal Article, Mutation, Neoplasm Proteins, Neurodegenerative Diseases, Neurogenetics, Newborn, RNA-Binding Proteins, Ross CJ, Rossi A, Shyr C, Sinclair G, Tarailo-Graovac M, van Karnebeek CD, Wasserman WW, White Matter
Provider Tools for Advance Care Planning and Goals of Care Discussions: A Systematic Review
Tags: 2018, Advance Care Planning, Advance Care Planning/standards, Age Factors, American Journal of Hospice and Palliatice Care, Communication, Cosby R, Decision-making, Geriatrics, goals of care discussions, Gzik D, Harle I, Harrold D, Humans, Incardona N, January 2019 List, Myers J, Palliative Care, Patient Care Planning/standards, Pediatrics, Physician-patient Relations, point-of-care clinical tools, Practice Guidelines As Topic, Serious Illness, Systematic Review, Walton T
Early mortality in children with acute lymphoblastic leukemia in a developing country: the role of malnutrition at diagnosis. A multicenter cohort MIGICCL study
Tags: 2017, Adolescent, Age Factors, Alvarez-Rodriguez FJ, Amador-Sanchez R, Body Weights and Measures, Bolea-Murga V, Cardenas-Cardos R, Child, Child Preschool, Children, Comorbidity, de Diego Flores-Chapa J, Developing Countries, Developing World 2018 List, Dorantes-Acosta EM, Duarte-Rodriguez DA, Espinosa-Elizondo RM, Fajardo-Gutierrez A, Female, Flores-Lujano J, Flores-Villegas LV, Gil-Hernandez AE, Gonzalez-Bonilla CR, Humans, Infant, Infant Newborn, Jimenez-Hernandez E, Leukemia, Leukemia & Lymphoma, Male, malnutrition, Malnutrition/diagnosis/epidemiology, Martin-Trejo JA, Martinez-Avalos A, Medina-Sanson A, Mejia-Arangure JM, Mexico/epidemiology, Mortality, Nunez-Enriquez JC, Nunez-Villegas NN, Paredes-Aguilera R, Penaloza-Gonzalez JG, Perez-Saldivar ML, Population Surveillance, Precursor Cell Lymphoblastic Leukemia-Lymphoma/epidemiology/ mortality/therapy, Prevalence, Prognosis, Proportional Hazards Models, Rangel-Lopez A, Remission Induction, Reyes-Zepeda NC, Rivera-Luna R, Rodriguez-Zepeda MD, Socioeconomic Factors, Torres-Nava JR, Velazquez-Avina MM
Children Enrolled in Hospice Care Under Commercial Insurance: A Comparison of Different Age Groups
Tags: 2019, Academic Medical Centers -- Pennsylvania, Adolescence, Age Factors, American Journal of Hospice & Palliative Medicine, Analysis of Variance, Chi Square Test, Child, Child Preschool, Chronic Disease -- Classification -- In Infancy and Childhood, Cohrs A C, Comparative Studies, Cross Sectional Studies, Data Analysis Software, Descriptive Statistics, Female, Funding Source, Geographic Factors, Health Care Costs, Health Resource Utilization, Hospice Care -- Economics -- In Infancy and Childhood, Hospice Patients -- Psychosocial Factors, Human, Infant, Insurance Health, Keim-Malpass J, Length Of Stay, Leslie D L, Lindley Lisa C, Male, March 2019 List, Pearson's Correlation Coefficient, Pediatric Care, Pennsylvania, Prospective Studies, Retrospective Design, Sex Factors
Respiratory events and obstructive sleep apnea in children with achondroplasia: investigation and treatment outcomes
Tags: 2011, achondroplasia, Achondroplasia/di [Diagnosis], Achondroplasia/ep [Epidemiology], Achondroplasia/th [Therapy], Adolescent, Afsharpaiman S, Age Factors, Airway Obstruction/di [Diagnosis], Airway Obstruction/ep [Epidemiology], Airway Obstruction/th [Therapy], Ault J E, Body Mass Index, breathing difficulties, characteristics, Child, Child Preschool, Cohort Studies, Comorbidity, Cross-sectional Studies, Female, Humans, Infant, Male, obstructive sleep apnea, Polysomnography, Sheikhvatan M, Sillence D O, Sleep and Breathing, Sleep Apnea Central/di [Diagnosis], Sleep Apnea Central/ep [Epidemiology], Sleep Apnea Central/th [Therapy], Sleep Apnea Obstructive/di [Diagnosis], Sleep Apnea Obstructive/ep [Epidemiology], Sleep Apnea Obstructive/th [Therapy], Trajectory, Treatment Outcome, Waters K
Level of purposeful hand function as a marker of clinical severity in Rett syndrome
Tags: 2010, Adolescent, Adult, Age Factors, Bebbington A, characteristics, Child, Child Preschool, Cross-sectional Studies, Databases as Topic, Developmental Medicine and Child Neurology, Downs J, Female, Genotype, Ghosh S, Hand, Humans, Jacoby P, Kaufmann W E, Leonard H, Methyl-CpG-Binding Protein 2, Motor Activity, Mutation, Phenotype, Registries, Rett syndrome, Severity Of Illness Index, tone and motor problems, Trajectory, Video Recording, Walking, Williams A, Young Adult
Change in gross motor abilities of girls and women with rett syndrome over a 3- to 4-year period
Tags: 2011, Adolescent, Adult, Age Factors, Arginine/genetics, Australia, Bebbington A, characteristics, Disease Progression, Downs J, Female, Foley K R, Girdler S, Humans, Jacoby P, Journal of Child Neurology, Kaufmann W E, Leonard H, Linear Models, Longitudinal Studies, Methyl-CpG-Binding Protein 2/genetics, Motor Skills/physiology, Movement Disorders/etiology/genetics, Mutation/genetics, Retrospective Studies, Rett syndrome, Rett Syndrome/complications/genetics, tone and motor problems, Trajectory, Young Adult