Browse Items (45 total)

Tags: 2017, Accompagnement de fin de vie, Archives Pédiatrie, Aubry R, Desguerre I, End-of-life accompanying, Frache S, Hubert P, Intensive Care, March 2017 List, Neurologie, Neurology, Onco-hématologie, Onco-hematology, Orbach D, Pediatric Palliative Care, Pediatrics, Pédiatrie, Ravanello A, Réanimation, Soins palliatifs pédiatriques

Tags: 2005, Adams H, Adolescent, Adult, Backlog, Child, Children W/SNI, Clinical Trials/standards, de Blieck EA, DeYoung J, Disease Progression, Dure L, Female, Humans, Journal Article, Levy Erika, Longitudinal Studies, Male, Marshall FJ, McDonough T, Messing S, Mink JW, Neurologic Examination/methods/standards, Neurology, Neuronal Ceroid-Lipofuscinoses/diagnosis/physiopathology/psychology, Neuropsychological Tests/standards, others, Personality Tests/standards, Predictive Value of Tests, Preschool, Prognosis, Rothberg PG, Severity Of Illness Index, Treatment Outcome

Tags: 2011, Adolescent, adults, behavioral problems, behaviour, Chappaz I O, characteristics, Child, Cri-du-chat, cri-du-chat syndrome, development, Education & Educational Research, Emerich D R, Epidemiology, Gatto K R, Genetics & Heredity, INDIVIDUALS, Journal Of Intellectual Disability Research, Kim C A, maladaptive behaviors, Neurology, Neurosciences &, Orsati F T, Prevalence, Psychiatry, Rehabilitation, Rimerio R C, Teixeira Mctv, Trajectory

Tags: 2001, Aberg L E, levodopa, NCL3, NCL6, Neurology, pharmacologic intervention, Rajantie I, Rinne J O, Santavuori P, selegiline, tone and motor problems

Tags: 2023, American Journal of Bioethics, Brain Injury, End-Of-Life Issues, Great Britain, Law, Lewis A, March List 2023, Neurology, Pediatric, Religion

Tags: 2023, Aasen ERHV, acquired immune deficiency syndrome, Adolescent, Adult, Advance Care Planning, Caregiver, Child, Cystic Fibrosis, Emotion, Female, Human, Journal of Pain and Symptom Management, June 2022 List, Lee A, Male, Medline, Neurology, oSovik ML, outcome assessment, Palliative Therapy, Patient Participation, pediatric patient, Randomized Controlled Trial (topic), Review, Stordal K, Systematic Review, Young Adult

Tags: 2016, Bereavement Counseling, Central Nervous System Tumor, Child, Child Care, Chromosome Aberration, Controlled Study, Coordination, Diagnosis, Family Study, Germany, Human, Human Experiment, June 2017 List, Metabolic Disorder, Neurologic Disease, Neurology, Neuropediatrics, Nolte-Buchholtz S, Only Child, Pain, Palliative Care, Palliative Therapy, Quality Of Life, Spiritual Care, Terminal Care, Von Der Hagen M

Tags: 2015, Boop F, Brain Neoplasms/ep [epidemiology], brain Neoplasms/th [therapy], Chan MH, Childs Nervous System, Developing Countries, Humans, Medical Oncology, Neurology, Qaddoumi I

Tags: 2020, Abend NS, Bates S, Bonifacio SL, Chang T, Chu CJ, Cilio MR, December 2020 List, Epilepsy, Glass HC, Greenberg RG, Hospice, Lemmon ME, Massey SL, Neonate, Neurocritical care, Neurology, Palliative Care, Pediatric Neurology, preterm, Shellhaas RA, Soul JS, Wusthoff CJ

Tags: 2006, 80 And Over, Adolescent, Adult, Age of Onset, Aged, Backlog, Child, Disabled Persons, Disease Progression, Female, Follow-up Studies, Glycogen Storage Disease Type II/physiopathology, Hagemans ML, Hop WJ, Humans, Journal Article, Male, Middle Aged, Neurology, Preschool, Q3 Scoping Review Results, Questionnaires, Respiratory Function Tests, Reuser AJ, Time Factors, Van der Ploeg AT, Van Doorn PA

Tags: 2023, Article, Barry M, Child, Clinical Article, Communication Skill, Curriculum, Disability, Ethics, evaluation study, Feldman A, Human, Human Experiment, Journal of Child Neurology, Kaul P, Martin JA, Messer R, Neurology, October List 2045, Only Child, Palliative Therapy, Physician, Press CA, Quality Of Life, residency education, Resident, Sampey F, Silveira L, Training

Tags: 2005, 80 And Over, Activities of Daily Living, Adolescent, Adult, Age Factors, Age of Onset, Aged, Artificial/statistics & numerical data, Backlog, Child, Cross-sectional Studies, Disease Progression, Female, Glycogen Storage Disease Type II/diagnosis/epidemiology/physiopathology, Hagemans ML, Hop WC, Humans, Infant, Journal Article, Male, Middle Aged, Muscle, Neurology, Newborn, Preschool, Q3 Scoping Review Results, Questionnaires, Respiration, Respiratory Insufficiency/epidemiology/etiology/therapy, Reuser AJ, Severity Of Illness Index, Skeletal/physiopathology, Van der Ploeg AT, Van Doorn PA, Wheelchairs/statistics & numerical data, Winkel LP

Tags: 2008, Abdel-Ghaffar TY, Backlog, Bolz HJ, Child, Congenital/diagnosis/genetics, Ebermann I, Elsayed SM, Elsobky E, Female, Homozygote, Humans, Infant, Journal Article, Liver Diseases/genetics/physiopathology, Male, Mutation, Neurology, Nurnberg G, Nurnberg P, Pain Insensitivity, Pedigree, Sodium Channels/genetics, Syndrome

Tags: 2019, American Journal of Hospice and Palliative Medicine®, Emrick L, interdisciplinary research, Jarrell JA, Lyons-Warren AM, Neurology, Palliative Care, Patient Care, Pediatrics, Pilot Projects, September 2019 List, Stowe RC

Tags: 2008, 80 And Over, Adult, Aged, Anticonvulsants/administration & dosage/adverse effects, Backlog, Brain Injuries/complications/surgery, Brain/drug effects/physiopathology/surgery, Bromfield EB, Drug Tolerance/physiology, Drug Toxicity, Epilepsy/drug therapy/etiology/prevention & control, Female, Follow-up Studies, Humans, Hurwitz S, Journal Article, Male, Middle Aged, Milligan TA, Neurology, Neurosurgical Procedures/adverse effects, Phenytoin/administration & dosage/adverse effects, Piracetam/administration & dosage/adverse effects/analogs & derivatives, Postoperative Complications/drug therapy/prevention & control, Retrospective Studies, Supratentorial Neoplasms/complications/surgery, Treatment Outcome

Tags: 2016, Case Study, Child, Clinical Article, Controlled Study, Degenerative Disease, Developmental Medicine and Child Neurology, Donald A, England, Family, Hospital, Human, Kauffmann L, May 2017 List, Myoclonus, Neurodegenerative Diseases, Neurology, Only Child, Palliative Care, Palliative Therapy, Personal Experience, Ram D, Rare Disease, Seizure, Social Welfare, Symptom, Terminal Care, Vassallo G

Tags: 2013, adults, apnea syndrome, breathing difficulties, characteristics, Copland J, Corben L A, daytime sleepiness, Delatycki M B, Disease, Friedreich's ataxia, Ho M, Neurology, Neurosciences & Neurology, obstructive sleep apnea, Reliability, Scale, Tai G, Trajectory

Tags: 2005, Age of Onset, Aged, Atrophy/enzymology/genetics/physiopathology, Backlog, Bodamer OA, Brain Diseases, Carnitine/therapeutic use, Cerebral Cortex/enzymology/pathology/physiopathology, Cognition Disorders/enzymology/genetics/physiopathology, Disease Progression, DNA Mutational Analysis, Food, Formulated, Glutaryl-CoA Dehydrogenase/deficiency, Gruber S, Harting I, Hoffmann GF, Humans, Inborn/enzymology/genetics/physiopathology, Journal Article, Kolker S, Kulkens S, Lateral Ventricles/pathology, Magnetic Resonance Imaging, Male, Metabolic, Movement Disorders/enzymology/genetics/physiopathology, Mutation/genetics, Myelinated/pathology, Nerve Fibers, Neurology, Q3 Scoping Review Results, Sauer S, Treatment Outcome, Zschocke J

Tags: 2005, Adolescent, Adult, Age of Onset, Arm/pp [Physiopathology], Ashizawa T, Brain Stem/pp [Physiopathology], Cooperative Ataxia Group, Disease Progression, Female, Fischbeck K, Friedreich Ataxia/di [Diagnosis], Friedreich Ataxia/pp [Physiopathology], Friedreich's ataxia, Friedrich's Ataxia Scale, Gait Disorders, Gomez C, Hallett M, Lynch D, May W, Neurologic/di [Diagnosis], Neurologic/et [Etiology], Neurology, scale development, Subramony S H, Taylor P, tone and motor problems, tool development, Wilson R

Tags: 2004, Adolescent, Age of Onset, AIM, Anticonvulsants/tu [Therapeutic Use], Apnea/et [Etiology], Apnea/th [Therapy], Applegarth D, Artificial, Backlog, Child, Corpus Callosum/ab [Abnormalities], Disease Progression, Female, Glycine/bl [Blood], Glycine/cf [Cerebrospinal Fluid], Hamosh A, Health Surveys, Hoover-Fong JE, Humans, Hydrocephalus/ep [Epidemiology], Hydrocephalus/et [Etiology], Hyperglycinemia, IM, Infant, Journal Article, Juvenile/dt [Drug Therapy], Juvenile/ep [Epidemiology], Juvenile/et [Etiology], Male, Myoclonic Epilepsy, Neurology, Newborn, Nonketotic/co [Complications], Nonketotic/ep [Epidemiology], Nonketotic/me [Metabolism], Nonketotic/mo [Mortality], Nystagmus, Pathologic/ep [Epidemiology], Pathologic/et [Etiology], Pregnancy, Pregnancy Complications/ep [Epidemiology], Preschool, Psychomotor Disorders/ep [Epidemiology], Psychomotor Disorders/et [Etiology], Questionnaires, Registries, Respiration, Retrospective Studies, Seizures/dt [Drug Therapy], Seizures/ep [Epidemiology], Seizures/et [Etiology], Sex Factors, Shah S, Survival Analysis, Toone J, Van Hove JL

Tags: 2006, Aron A, Backlog, Brodie SE, Child Development, Desnick RJ, Female, Humans, Infant, Infant Behavior, Journal Article, Language Development, Longevity, Male, McGovern MM, Motor Skills, Muscle Hypotonia/etiology/physiopathology, Neurodegenerative Diseases/complications/physiopathology/psychology, Neurology, Niemann-Pick Diseases/classification/complications/physiopathology/psychology, Q3 Scoping Review Results, Reflex, Respiratory Insufficiency/etiology/mortality, Stretch, Wasserstein MP

Tags: 2002, Adolescent, Adult, Backlog, Barkovich AJ, Brain/pathology, Chi-Square Distribution, Child, Clegg NJ, Delgado MR, Face/pathology, Female, Forecasting, Hahn JS, Holoprosencephaly/pathology/physiopathology, Humans, Infant, Journal Article, Kinsman SL, Levey EB, Linear Models, Magnetic Resonance Imaging, Male, Miller VS, Neurology, Nonparametric, Plawner LL, Preschool, Prospective Studies, Q3 Scoping Review Results, Seizures/pathology/physiopathology, Simon EM, Stashinko EE, Statistics, Sweet VT, Tomography, X-Ray Computed

Tags: 2017, Adolescent, Adult, Child, Chromosome Aberration, Controlled Study, Female, Führer M, Home Care, Hospice, Human, Icd-10, Infant, Journal Of The Neurological Sciences, Major Clinical Study, Male, March 2018 List, Metabolic Disorder, Mortality, Neoplasm, nervous system malformation, Neurology, Palliative Therapy, Preschool Child, Retrospective Study, Statistics

Tags: 2008, Backlog, Campbell JN, Cruccu G, Dostrovsky JO, Griffin JW, Hansson P, Hughes R, Jensen TS, Journal Article, Neurology, Nurmikko T, Serra J, Treede R-D

Tags:  Critical Care,  Palliative Care, 2022, Basilicata S, Bernasconi S, Caffarelli C, Cipullo M, Communicable Diseases, Corsello G, Delle Cave V, Endocrinology, Genetics, Hematology, Immunology, Internal Medicine, Italian Journal of Pediatrics, January List 2023, Medical Allergy, Neonatology, Neurology, Nutrition, Pediatrics Specialties, Piro E, Respiratory Tract Diseases, Santamaria F, Telemedicine

Tags: 103-90-2 (paracetamol), 2018, Adolescent, Aebi C, Ansari M, Article, Baer R, Bergstraesser E, Bernet V, Bmc Pediatrics, Brazzola P, Bucher HU, Buder R, Cagnazzo S, Cardiology, Cause Of Death, Child, Child Care, Child Death, Cignacco E, Cohort Analysis, community care, Dinten B, Dorsaz A, Drug Use, Elmer F, Engberg S, Enriquez R, Eskola K, Fahrni-Nater P, Female, Finkbeiner G, Frey B, Frey U, Greiner J, Hassink RI, Health Care Utilization, Home Care, Hospital Admission, Human, Infant, Intensive Care Unit, invasive procedure, Keller S, Kretschmar O, Kroell J, Laubscher B, Leibundgut K, Length Of Stay, Life Sustaining Treatment, Major Clinical Study, Malaer R, Male, Medical Record Review, Meyer A, narcotic analgesic agent, Nelle M, Neonatology, Neuhaus T, Neurology, Newborn, Niggli F, October 2018 List, Oncology, Paracetamol, Perrenoud G, Pfammatter JP, Plecko B, Popovic MB, Ramelet AS, Resuscitation, Retrospective Study, Rupf D, Sennhauser F, September 2018 List, Stade C, Steinlin M, Stoffel L, Stuessi C, Switzerland, Terminal Care, Thomas K, Treatment Withdrawal, Von der Weid N, von Vigier R, Vonarburg C, Wagner B, Wernz B, Wieland J, Zimmermann K

Tags: 2017, Adolescent, Adult, Alveno RA, Cardiology, Carneiro-Sampaio M, Carvalho WB, Child, Chronic Patient, Controlled Study, Cross Sectional Study, Death, December 2017 List, Emergency Health Service, Emergency Ward, Endocrinology, Farhat SCL, Female, Hematology, Hojo ES, Hospital Admission, Hospitalization, Human, Intensive Care Unit, Jornal De Pediatria., Kidney Transplantation, Major Clinical Study, Male, Miranda CV, Nephrology, Neurology, Odone-Filho V, Oncology, Outpatient, Pain, Passone CG, Physician, Psychiatry, Rheumatology, Silva CA, Tannuri U, University Hospital, Waetge AR

Tags: 2002, Adolescent, Ashwal S, Backlog, Child, Dahl G, Dorbad D, Electroencephalography, Female, Headache/diagnosis/etiology, Hirtz D, Humans, Jarjour I, Journal Article, Lewis DW, Magnetic Resonance Imaging, Male, Migraine Disorders/diagnosis, Neurologic Examination/standards, Neurology, Practice Committee of the Child Neurology Society, Predictive Value of Tests, Prensky A, Preschool, Quality Standards Subcommittee of the American Academy of Neurology, Recurrence, Risk Factors, Spinal Puncture, Tomography, X-Ray Computed

Tags: 2004, Adolescent, American Academy of Neurology Quality Standards Subcommittee, Analgesics/classification/therapeutic use, Anti-Inflammatory Agents, Anticonvulsants/therapeutic use, Antidepressive Agents/therapeutic use, Antihypertensive Agents/therapeutic use, Ashwal S, Backlog, Calcium Channel Blockers/therapeutic use, Child, Cross-Over Studies, Double-Blind Method, Evidence-based Medicine, Female, Forecasting, Hershey A, Hirtz D, Humans, Journal Article, Lewis D, Male, Migraine Disorders/drug therapy/prevention & control, Neurology, Non-Steroidal/therapeutic use, Practice Committee of the Child Neurology Society, Preschool, Randomized Controlled Trials, Retrospective Studies, Serotonin Agonists/therapeutic use, Silberstein S, Yonker M

Tags: 2000, Accardo PJ, Ashwal S, Asperger Syndrome/diagnosis, Autistic Disorder/diagnosis/genetics, Backlog, Baranek GT, Child, Childhood/diagnosis, Cook EH, Dawson G, Developmental Disabilities/diagnosis, Diagnosis, Differential, Disease Management, Electrophysiology, Filipek PA, Gordon B, Gravel JS, Humans, Infant, Johnson CP, Journal Article, Kallen RJ, Lead Poisoning, Levy SE, Mass Screening/methods/standards, Minshew NJ, Nervous System, Neurology, Neuropsychological Tests, Non-U.S. Gov't, Ozonoff S, P.H.S., Predictive Value of Tests, Preschool, Prizant BM, Rapin I, Research Support, Risk Assessment, Rogers SJ, Stone WL, Teplin SW, Tuchman RF, U.S. Gov't, Volkmar FR

Tags: 2017, 302-17-0 (chloral hydrate), 4205-90-7 (clonidine), 4205-91-8 (clonidine), 57066-25-8 (clonidine), benzodiazepine derivative, Child, chloral hydrate, Clinical Article, clonidine, Cohort Analysis, Cross-sectional Study, Developmental Medicine and Child Neurology, Diagnosis, Documentation, Dystonia, England, Female, Hughes G, Human, joint, Laddie J, Lumsden DE, Male, March 2018 List, Neurology, Palliative Therapy, precancer, Preschool Child, Prevalence, Seizure, Slater T

Tags: 2011, Adams H, Adolescent, Adult, Analysis of Variance, Augustine E F, Beck C A, Child, Child Preschool, Cialone J, Cross-sectional Studies, Deblieck E A, Disabled Persons, Disease Progression, Dure L S, Genotype, Homozygote, Humans, Kwon J M, Levy E, Marshall F J, Membrane Glycoproteins, Mink J W, Molecular Chaperones, Mutation, NCL3, Neurology, Neuronal Ceroid-Lipofuscinoses, Neuropsychological Tests, Newhouse N J, Prospective Studies, Ramirez-Montealegre D, Regression Analysis, Reproducibility of Results, Rose K R, Rothberg P G, scale development, tone and motor problems, tool development, UBDRS, Vierhile A, Young Adult

Tags: 2023, August List 2029, Brain, Consultation, Cortezzo DE, Counseling, Decision Making, Diagnosis, encephalocele, Fetus, Frontiers in Pediatrics, Grief, Human, Infant, Medical Care, Neurology, Palliative Care, Palliative Therapy, Patient Care, Pregnancy, prenatal period, Prognosis, Referral And Consultation, Review, shared decision making, Shoaib A, social belief, Uncertainty, Vawter-Lee M, Venkatesan C, vignette

Tags: 1992, Analysis of Variance, Backlog, Blake JN, Child, Epilepsy/etiology/physiopathology, Follow-up Studies, Humans, Hydrocephalus/complications/physiopathology, Infant, Journal Article, Neurology, Noetzel MJ, Preschool, Prognosis, Q3 Scoping Review Results, Recurrence, Regression Analysis

Tags: 2009, Arron K, behavioral problems, behavioural phenotype, brachmann-delange syndrome, characteristics, compulsive behaviors, compulsive behaviour, Cornelia de Lange syndrome, De Lange syndrome, Education & Educational Research, Genetics & Heredity, Hall S, hyperactivity, INDIVIDUALS, Intellectual disabilities, Journal Of Intellectual Disability Research, maladaptive behavior, mental-retardation, mutilative behavior, Neurology, Neurosciences &, Oliver C, People, Phenotype, prader-willi-syndrome, Psychiatry, rating-scale, Rehabilitation, repetitive behaviour, self-injurious behaviour, Sloneem J, stereotyped behaviour, stereotyped disorders, Trajectory

Tags: 2009, Arron K, behavioral problems, behavioural phenotype, brachmann-delange syndrome, Children, Cornelia de Lange syndrome, De Lange syndrome, demand denial no contact, descriptive analysis, Education & Educational Research, Environment, environmental conditions, functional-analysis, Genetics & Heredity, Hall S, INDIVIDUALS, Intervention, Journal Of Intellectual Disability Research, Neurology, Neurosciences &, Oliver C, Phenomenology, Phenotype, prader-willi syndrome, Prevalence, Psychiatry, psychological intervention, Rehabilitation, self-injurious behaviour, self-injury, Sloneem J, social reinforcement, Symptoms

Tags: 2002, Adolescents, adults, Behavior, breathing difficulties, challenging behavior, characteristics, Children, community-based sample, daytime problem behaviour, de Vries M, Didden R, difficulties, Disorders, disturbance, Education & Educational Research, Genetics & Heredity, handicapped-children, Intellectual Disability, Journal Of Intellectual Disability Research, Korzilius H, Neurology, Neurosciences &, Psychiatry, Rehabilitation, Rett syndrome, severe learning-disabilities, sleep disturbance, sleep problem, Trajectory, Tuberous Sclerosis, urinary incontinence, van Aperlo B, van Overloop C

Tags: 2001, Adolescent, Adult, Backlog, Child, Diaphragm/physiopathology, et al, Glycogen Storage Disease Type II/complications, Humans, Journal Article, Mellies U, Middle Aged, Neurology, Polysomnography, Predictive Value of Tests, Preschool, Q3 Scoping Review Results, Ragette R, REM, Respiratory Insufficiency/diagnosis/etiology/physiopathology, Schwake C, Sensitivity and Specificity, Sleep, Sleep Apnea Syndromes/diagnosis/etiology/physiopathology, Vital Capacity

Tags: 2007, Barbosa C, Barbot C, behaviors, Borges L, Cabral A, Cabral P, Calado E, Carrilho I, characteristics, Dias A, Dias K, Eusebio F, Fonseca M, Gomes R, hair pulling, hand movements, Levy A, Maciel P, Mira G, Monteiro J, Moreira A, Neurology, Neurosciences & Neurology, normal human infants, Oliveira G, Oliveira P, Regression, Rett syndrome, Santos M, Sequeiros J, stage, stereotypy, Temudo T, tone and motor problems, Trajectory, Vieira J

Tags: 2012, autism spectrum disorders, Behavior Problems Inventory, behavioral problems, Checklist, Children, Developmental-disabilities, diagnostic-assessment, Didden R, Disabilities, Dumont E L M, Education & Educational Research, factor structure, fit indexes, Genetics & Heredity, handicapped dash, Hastings R, intellectual, Journal Of Intellectual Disability Research, Kroes D B H, Matson J L, Neurology, Neurosciences &, profound mental-retardation, Psychiatry, rating form, Rehabilitation, Reliability, Rojahn J, Rowe E W, scale development, severely, Sharber A C, tool development, unspecified ID, VALIDATION, Validity