Browse Items (247 total)
- Tags: Infant, Newborn
Laboratory integration and utilization of tandem mass spectrometry in neonatal screening: a model for clinical mass spectrometry in the next millennium
Tags: 1999, Acta Paediatrica, Backlog, Biomarkers of Pain, Chace DH, Clinical Laboratory Techniques/instrumentation, DiPerna JC, Female, Forecasting, Humans, Inborn Errors/diagnosis, Infant, Journal Article, Male, Mass Spectrometry/trends/utilization, Metabolism, Naylor EW, Neonatal Screening/methods, Newborn, Sensitivity and Specificity, United States
Clinical spectrum of children receiving palliative care in Malaysian Hospitals
Tags: 2017, Abdul Manaf AM, Abdul Shukor INC, Acute Lymphoblastic Leukemia, Adolescent, Adult, Alias E, Bereavement, Caregiver, Cerebral Palsy, Chieng CH, Child, Child Care, Chong LA, Chromosome, Chromosome Aberration, Clinical Trial, Congenital Malformation, Controlled Clinical Trial, Controlled Study, Cross Sectional Study, Diagnosis, Duchenne Muscular Dystrophy, Education, Female, Follow Up, Hedra ZS, Hospital, Hospital Admission, Human, Icd-10, Infant, Khalid F, Khoo TB, Kuan GL, Major Clinical Study, malaysia, Male, Malignant Neoplasm, Medical Journal Of Malaysia, Multicenter Study, Needs Assessment, Newborn, Observational Study, Ong GB, Palliative Therapy, Patient Referral, Pediatrician, Prognosis, Razali H, Review, Spinal Muscular Atrophy, Teh SH, Wang JJ
Fetal alcohol spectrum disorder: Canadian guidelines for diagnosis
Tags: 2005, Abnormalities, Adult, Alcohol Drinking/prevention & control, Alcoholism/diagnosis/prevention & control, Backlog, Canada/epidemiology, Canadian Medical Association Journal, Child, Chudley AE, Conry J, Cook JL, Diagnosis, Differential, Ethanol, Female, Fetal Alcohol Syndrome/diagnosis/epidemiology/prevention & control, Humans, Infant, Journal Article, LeBlanc N, Loock C, Mass Screening/standards, Medical History Taking/standards, Multiple/diagnosis, Nervous System Diseases/diagnosis, Newborn, Non-U.S. Gov't, Physical Examination/standards, Pregnancy, Pregnancy Complications/diagnosis/prevention & control, Prenatal Exposure Delayed Effects, Public Health Agency of Canada's National Advisory Committee on Fetal Alcohol Spectrum Disorder, Referral and Consultation/standards, Research Support, Risk Factors, Rosales T
Perinatal mortality: assisting parental affirmation
Massive opioid resistance in an infant with a localized metastasis to the midbrain periaqueductal gray
Tags: 1995, Analgesics, Backlog, Berde CB, Brain Neoplasms/congenital/drug therapy/pathology/secondary, Case Report, Collins J J, Dose-Response Relationship, Drug, Drug Resistance, Grier HE, Human, Hypnotics and Sedatives/therapeutic use, Infant, Journal Article, Kinney HC, Male, Mesencephalon, Morphine/therapeutic Use, Nachmanoff DB, Newborn, Non-U.S. Gov't, Opioid/therapeutic use, Pain, Palliative Care, Periaqueductal Gray, Rhabdoid Tumor/congenital/drug therapy/pathology/secondary, Support
Assessment of the need for palliative care for children in South Africa
Tags: 2014, Adolescent, Backlog, Child, Connor S, Cross-sectional Studies, Downing J, Health Services Accessibility, Health Services Needs And Demand, Humans, Infant, International Journal of Palliative Nursing, Journal Article, King E, Lim Ah KP, Marston J, Newborn, Palliative Care, Preschool, Sisimayi C, South Africa, Yates R, Young Adult
Home management of the dying NICU patient
Tags: 2003, Attitude Of Health Personnel, Backlog, Caregivers/standards, Craig F, Female, Goldman A, Holistic Health, Home Nursing, Humans, Infant, Intensive Care, Journal Article, Male, Neonatal/standards, Newborn, Palliative Care/organization & Administration, Parents/psychology, Patient Care Team/standards, Professional-family Relations, Seminars In Neonatology
Neonatal Palliative Care in the United States Deep South: Exploration of Patterns of Care and Health Disparities
Tags: 2018, Alabama, Bakitas M, Boss R, Chi Square Test, Child, conference abstract, Controlled Study, Currie E, Dionne-Odom JN, Ejem D, February 2019 List, Female, health disparity, Human, Infant, Journal of Pain and Symptom Management, Louisiana, Major Clinical Study, Male, Medical Record Review, Mississippi, Neonatal Intensive Care Unit, Newborn, Palliative Therapy, race, Resuscitation, Statistics, Terminal Care, Wolfe J
Recruiting bereaved parents for research after infant death in the neonatal intensive care unit
Tags: 2016, Adult, Applied Nursing Research, Bakitas M, Bereaved Parents, Bereavement, Christian BJ, Currie ER, Humans, Infant, Infant Death, Intensive Care Units, March 2018 List, Meneses K, Neonatal, Neonatal Intensive Care Unit, Newborn, Parents/ Psychology, Qualitative Research, Recruitment, Roche C, Sensitive topic
Medical assistance in dying: A paediatric perspective
Establishing need for palliative care services for children/young people
Tags: 2003, Adolescent, Adult, Backlog, British Journal Of Nursing, Cause Of Death, Child, Child Health Services/organization & administration, Davies R, Epidemiologic Methods, Female, Humans, Incidence, Infant, Infant Mortality, Journal Article, Male, Mortality, Newborn, Palliative Care, Preschool, Wales/epidemiology
Children's outcomes at 2-year follow-up after 4 years of structured multi-professional medical-ethical decision-making in a neonatal intensive care unit
Tags: 2017, Child, Clinical Decision-Making/ethics, Critical Illness/mortality/therapy, de Boer JC, Female, Follow-up Studies, Gennissen L, Humans, Infant, Intensive Care Units, Journal Of Perinatology, July 2018 List, Male, Naghib S, Neonatal, Netherlands, Newborn, Palliative Care, Parents/psychology, Preschool, Prospective Studies, Reiss I, Sol J, Survival Analysis, Tibboel D, van Dijk M, Williams M, Withholding Treatment/ethics/standards
Brazilian Neonatal Nurses' Palliative Care Experiences
Tags: 2018, Article, Borges Silva AR, Brazil, Carmona EV, Cleveland LM, Clinical Article, Controlled Study, Convenience Sample, Darilek U, de Castro de Oliveira F, Developing World 2018 List, Education, Exploratory Research, Female, genetic transcription, Grief, Human, Human Experiment, Infant, Interview, Male, Neonatal Intensive Care Unit, Neonatal Nurse, Newborn, Palliative Therapy, Quality Of Life, quality of nursing care, registered nurse, teaching hospital, The Journal Of Perinatal & Neonatal Nursing, Thematic Analysis, vulnerable population
Talking with parents about end-of-life decisions for their children
Tags: 2015, Adolescent, Advance Directives, Backlog, Bos AP, Child, Communication, de Graaff Bert M, de Vos MA, Decision Making, DNAR, Female, Humans, Infant, Intensive Care Units, Journal Article, Life Support Care, Male, Netherlands, Newborn, Palliative Care, Pediatric, Pediatrics, Plötz FB, Preschool, Professional-family Relations, Prospective Studies, Qualitative Research, Tates K, Truog RD, van Heerde M, Willems DL, Withholding Treatment
Long-term outcome and clinical spectrum of 73 pediatric patients with mitochondrial diseases
Tags: 2007, AIM, Backlog, Cause Of Death, Chevalier I, Child, Cohort Studies, Debray FG, Decarie JC, DNA, DNA Fragmentation, Female, Follow-up Studies, HEREDITARY, Humans, IM, Infant, Journal Article, Lambert M, Leber/di [Diagnosis], Leber/ge [Genetics], Leber/mo [Mortality], Longitudinal Studies, Male, MELAS Syndrome/di [Diagnosis], MELAS Syndrome/mo [Mortality], MELAS Syndrome/th [Therapy], Mitchell GA, Mitochondrial Diseases/di [Diagnosis], Mitochondrial Diseases/ge [Genetics], Mitochondrial Diseases/mo [Mortality], Mitochondrial Encephalomyopathies/di [Diagnosis], Mitochondrial Encephalomyopathies/mo [Mortality], Mitochondrial Encephalomyopathies/th [therapy], Mitochondrial Myopathies/di [Diagnosis], Mitochondrial Myopathies/ge [Genetics], Mitochondrial Myopathies/mo [Mortality], Mitochondrial/ge [Genetics], Newborn, Optic Atrophy, Pediatrics, Preschool, Probability, Proportional Hazards Models, Q3 Scoping Review Results, Retrospective Studies, Robinson BH, Robitaille Y, Severity Of Illness Index, Shoubridge EA, Survival Analysis, Time Factors
Neonatal Hospital Course and Outcomes of Live-born Infants with Trisomy 18 at Two Tertiary Care Centers in the United States
Tags: 2017, American Journal of Perinatology, Artificial, Birth Weight, Cardiotonic Agents/therapeutic use, Congenital/etiology, Dereddy NR, Dhanireddy R, Female, Gestational Age, Heart Defects, Humans, Infant, Infant Death, Intensive Care Units, Length Of Stay, Live Birth, Male, March 2018 List, Neonatal, Newborn, Patient Discharge, Perinatal Death, Pivnick EK, Respiration, Sex Factors, Survival Rate, Talati AJ, Tertiary Care Centers, Trisomy 18 Syndrome/complications/ therapy, United States, Upadhyay K
The natural history of medium-chain acyl CoA dehydrogenase deficiency in the Netherlands: clinical presentation and outcome
Tags: 2006, Acyl-CoA Dehydrogenase/deficiency/genetics, Adolescent, Adult, Backlog, Child, Cohort Studies, Derks TG, Disease Progression, Gerver WJ, Humans, Inborn Errors/complications/diagnosis/genetics, Infant, Journal Article, Longitudinal Studies, Metabolism, Middle Aged, Mutation/genetics, Netherlands, Newborn, Preschool, Prognosis, Reijngoud DJ, Retrospective Studies, Sauer PJ, Severity Of Illness Index, Smit GP, The Journal Of Pediatrics, van den Berg MP, Waterham HR
Forgoing life-sustaining treatments in children: a comparison between Northern and Southern European pediatric intensive care units
Tags: 2004, Adolescent, Adult, Backlog, Child, Death and Euthanasia, Decision Making, Devictor DJ, Empirical Approach, Europe, Euthanasia, Female, Hospital Mortality, Humans, ICU Decision Making, Infant, Intensive Care Units, Journal Article, Male, Newborn, Nguyen DT, Organizational, Parents/psychology, Passive/psychology, Patient Participation, Pediatric, Pediatric Critical Care Medicine, Preschool, Prospective Studies
Forgoing life-sustaining treatments: how the decision is made in French pediatric intensive care units
Tags: 2001, Adolescent, Backlog, Child, Critical Care Medicine, Cross-sectional Studies, Death and Euthanasia, Decision Making, Devictor DJ, Empirical Approach, Female, France, Groupe Francophone de Reanimationet d'Urgences Pediatriques, Humans, ICU Decision Making, Infant, Intensive Care Units, Journal Article, Life Support Care, Male, Newborn, Nguyen DT, Patient Care Team, Pediatric, Practice Guidelines, Preschool, Professional Patient Relationship, Professional-family Relations, Prospective Studies
Clinical report--Forgoing medically provided nutrition and hydration in children
Tags: 2009, Adolescent, Adult, American Academy of Pediatrics, Backlog, Botkin JR, Child, Committee on Bioethics, Diekema DS, Disabled Children/legislation & jurisprudence, Ethics, Feeding Methods/ethics, Fluid Therapy/ethics, Humans, Infant, Journal Article, Legal Guardians/legislation & jurisprudence, Medical, Medical Futility/ethics/legislation & jurisprudence, Newborn, Pediatrics, Preschool, Risk Assessment/legislation & jurisprudence, Terminal Care/ethics/legislation & jurisprudence, Treatment Refusal/ethics/legislation & jurisprudence, United States, Withholding Treatment/ethics/legislation & jurisprudence
Beta-endorphin levels of children in acute stress
Tags: 1990, Acute Disease, Backlog, beta-Endorphin/blood, Biomarkers of Pain, Biomarkers Reference List, Blood Glucose/analysis, Child, Diabetes Research And Clinical Practice, Dindar A, Follow-up Studies, Gunoz H, Humans, Hyperglycemia/blood/epidemiology/pathology, Infant, Insulin/blood, Journal Article, Newborn, Neyzi O, Preschool, Prognosis, Stress/blood/epidemiology
Avoiding admission for afebrile pediatric sickle cell pain: pain management methods
Tags: 2006, Adolescent, Adult, Analgesics/therapeutic use, Anemia, Antisickling Agents/therapeutic use, Backlog, Child, Dumaplin CA, Humans, Hydroxyurea/therapeutic use, Infant, Journal Article, Journal Of Pediatric Health Care, Newborn, Pain Measurement, Pain/epidemiology/nursing/psychology/therapy, Patient Education, PedPal Lit, Preschool, Relaxation Techniques, Sickle Cell/mortality/nursing/psychology/therapy, United States/epidemiology
Bereaved parents' experience of research participation.
Tags: 2004, Accidents/psychology, Adolescent, Adult, Attitude, Backlog, Bereavement, Biomedical and Behavioral Research, Child, Dyregrov K, Empirical Approach, Ethics, Female, Follow-up Studies, Humans, Infant, Interview, Journal Article, Longitudinal Studies, Male, Medical/methods, Middle Aged, Multi-site Ethics, Newborn, Norway, Parents/psychology, Preschool, Psychological, Registries, Regression Analysis, Research, Research Subjects/psychology, Social science & medicine, Sociology, Sudden Infant Death, Suicide/psychology
Healthcare users' experiences of communicating with healthcare professionals about children who have life-limiting conditions: a qualitative systematic review protocol
Tags: 2015, Adolescent, Adult, Bradford N, Child, Communication, Critical Illness/px [psychology], Danby S, Ekberg S, Female, Health Personnel/px [psychology], Herbert A, Humans, Infant, Jbi Database Of Systematic Reviews And Implementation Reports, Male, March 2018 List, Newborn, Palliative Care/px [psychology], Parents/px [psychology], Preschool, Professional-family Relations, Qualitative Research, Yates P, Young Adult
Canadian cancer statistics at a glance: cancer in children
Tags: 2009, Adolescent, Backlog, Canada/epidemiology, Canadian Cancer Society's Steering Committee for Canadian Cancer Statistics, Canadian Medical Association Journal, Child, De P, Ellison LF, Grundy PE, Humans, Incidence, Infant, Journal Article, Mery LS, Neoplasms/diagnosis/epidemiology/mortality, Newborn, Population Surveillance, Preschool, Survival Rate
Addressing the continuum of maternal and newborn care in Ghana: implications for policy and practice
Tags: 2016, Aborigo R, Adongo PL, Community Health Services/organization & Administration, Continuity Of Patient Care/organization & Administration, Delivery, Developing Countries, Engmann CM, Female, Ghana, Health Policy And Planning, Hodgson A, Humans, Infant, Infant Health, Maternal Mortality, Maternal-child Health Services/organization & Administration, Moyer CA, Newborn, Obstetric/methods, Perinatal Mortality, Pregnancy
Primary care supports for children with chronic health conditions: identifying and predicting unmet family needs
Tags: 2004, Adolescent, Attitude To Health, Backlog, Child, Chronic Disease, Clark MJ, Family, Farmer JE, Health Services Needs And Demand, Health Services/standards, Humans, Infant, Journal Article, Journal of Pediatric Psychology, Marien WE, Newborn, Non-U.S. Gov't, Primary Health Care, Professional-family Relations, Questionnaires, Research Support, Selva TJ, Sherman A, Social Support
Hospital care for children and young adults in the last year of life: a population-based study
Tags: 2003, Adolescent, Adult, Age Factors, Backlog, Bmc Medicine, Child, Chronic Disease/classification/mortality/therapy, DiGiuseppe DL, Female, Feudtner C, Hospital Mortality, Hospitalization/statistics & numerical data, Humans, ICU Decision Making, Infant, Journal Article, Length Of Stay, Male, Neff JM, Newborn, P.H.S., Palliative Care/organization & Administration, Preschool, Research Support, Terminal Care/utilization, Terminally Ill/statistics & numerical data, U.S. Gov't, Washington/epidemiology
Shifting place of death among children with complex chronic conditions in the United States, 1989-2003
Tags: 2007, Adolescent, Attitude To Death, Backlog, Child, Chronic Disease/mortality, Feinstein JA, Female, Feudtner C, Hospitals/statistics & numerical data, Humans, Infant, Journal Article, Journal Of The American Medical Association, Kang T, Male, Newborn, Palliative Care/statistics & Numerical Data, Preschool, Residence Characteristics/statistics & numerical data, Retrospective Studies, Satchell M, Terminally Ill/statistics & numerical data, United States/epidemiology, Zhao H
Pediatric Palliative Care and Hospice Care Commitments, Guidelines, and Recommendations
Prediction of pediatric death in the year after hospitalization: a population-level retrospective cohort study
Tags: 2009, Adolescent, Backlog, Child, Cohort Studies, Feinstein JA, Female, Feudtner C, Hexem KR, Hospital Mortality, Humans, Infant, Journal Article, Journal of Palliative Medicine, Logistic Models, Male, Models, Mortality, Newborn, Patient Discharge, Pediatrics, Pennsylvania/epidemiology, Preschool, Prognosis, Retrospective Studies, Shabbout M, Silber JH, Sochalski J, Theoretical, Young Adult
Pediatric palliative care patients: a prospective multicenter cohort study
Tags: 2011, Adolescent, Backlog, Child, Chronic Disease, Chronic Disease/epidemiology/therapy, Dussel V, Eligibility Determination, Eligibility Determination/methods, Female, Feudtner C, Follow-up Studies, Friebert SE, Friedrichsdorf SJ, Hays Ross M, Hexem KR, Hospitalization, Hospitalization/trends, Humans, Infant, Journal Article, Kang T, Male, Medical Audit, Medical Audit/organization & administration, Newborn, Osenga K, Palliative Care, Palliative Care/organization & Administration, PEDI Study, Pediatrics, Preschool, Prevalence, Prospective Studies, Siden H, United States, United States/epidemiology, Wolfe J, Young Adult
Where do children with complex chronic conditions die? Patterns in Washington State, 1980-1998
Tags: 2002, Adolescent, Backlog, Cause Of Death, Child, Christakis DA, Chronic Disease/mortality, Female, Feudtner C, Humans, ICU Decision Making, Infant, Journal Article, Location Of Death, Male, Newborn, P.H.S., Pediatrics, Preschool, Research Support, Retrospective Studies, Silveira MJ, Survival Analysis, U.S. Gov't, Washington/epidemiology
Distance from home when death occurs: a population-based study of Washington State, 1989-2002
Tags: 2006, Adolescent, Adult, Aged, Backlog, Child, Death, Emergency Service, Feudtner C, Health Services Accessibility, Hoskins RE, Hospital, Hospital Mortality, Hospitals, Humans, Infant, Journal Article, Location Of Death, Middle Aged, Newborn, Nursing Homes, Palliative Care, Pediatrics, Preschool, Residence Characteristics, Shabbout M, Silveira MJ, Terminal Care, Washington
Good-parent beliefs of parents of seriously ill children
Tags: 2015, Acute Disease, Adaptation, Adolescent, Attitudes, Backlog, Carroll KW, Child, Child welfare, Chronic Disease, Cross-sectional Studies, Faerber JA, Female, Feudtner C, Health Knowledge, Hill DL, Hinds PS, Humans, Infant, JAMA Pediatrics, Journal Article, Kang T, Male, Miller VA, Mollen CJ, Morrison WE, Munson DA, Newborn, Parent-child Relations, Parents, Philadelphia, Practice, Preschool, Psychological, Questionnaires, Stress, Walter JK
Your child is dead
Tags: 1991, Attitude Of Health Personnel, Attitude To Death, Backlog, Bereavement, Bmj (clinical Research Ed.), Cause Of Death, Child, Communication, Dallimore D, Female, Finlay I, France, Great Britain, Humans, Infant, Interviews As Topic, Journal Article, Male, Newborn, Nurses, Parents/psychology, Physicians, Police, Preschool, Professional-family Relations, Questionnaires, Tissue and Organ Procurement, Tissue Donors
Infant deaths from congenital anomalies: novel use of Child Death Overview Panel data
Tags: 2018, Archives of Disease in Childhood, Cause Of Death, Congenital Abnormalities/mortality, congenital anomaly, Consanguinity, Death Certificates, Disabled Children, England/epidemiology, Ethnic Groups/statistics & numerical data, Ethnicity, Female, Firth C, Humans, Infant, Infant Death, Infant Mortality, Infant Mortality/ethnology, Male, Maternal Age, Newborn, Oddie SJ, Petherick E, Retrospective Studies, September 2019 List
Withdrawal of artificial nutrition and hydration in neonatal intensive care: parents' and healthcare practitioners' views
Tags: 2017, Belghiti E, Brunet L, Decision Making/es [Ethics], Fournier V, France, Health Personnel/es [Ethics], Health Personnel/px [psychology], Humans, Infant, Intensive Care Units, Interviews As Topic, Medicine, Health Care & Philosophy, Morals, Neonatal/es [Ethics], Newborn, October 2018 List, Parents/px [psychology], September 2018 List, Spranzi M, Withholding Treatment/es [ethics]