Browse Items (999 total)

Tags: 2707, Acheson E, Adolescent, Ansari M, Article, Brazzola P, Cancer Mortality, Cancer Palliative Therapy, central nervous system tumor/th [Therapy], Child, childhood cancer/th [Therapy], Clinical Decision Making, diagnosis related group, Elger B S, Female, Human, Kuhne T, leukemia/th [Therapy], Major Clinical Study, Male, Medical Record, Niggli F, Oncology 2019 List, Pacurari N, Priority Journal, Retrospective Study, Rost M, Supportive Care In Cancer, Switzerland, treatment duration, Wangmo T

Tags: 2019, Adolescent, Adult, Article, Bakitas M, Cancer, Cancer Patient, Cancer Therapy, Controlled Study, Currie E R, Female, Friedman S, Gilbertson-White S, Hospice, Hospital Patient, Human, Insurance, Lindley L C, lowest income group, Mack J W, Male, Medical Record, Multicenter Study, Oncology 2019 List, Palliative Therapy, Patient Referral, Poverty, Retrospective Study, Roeland E J, Saeidzadeh S, Statistical Significance, Terminal Care, Young Adult

Tags: 2019, Adolescent, Adolescents, Adult, Andre N, Article, Auquier P, Baumstarck K, Bernard C, Boyer L, Cancer, Cancer Chemotherapy, Cancer Diagnosis, Cancer Patient, Child, Children, Cohort Analysis, Controlled Study, Emergency Care, Emergency Ward, End Of Life, Female, Fond G, France, Gentet J C, Hematologic Malignancy, Hospitalization, Human, Intensive Care Unit, Major Clinical Study, Male, Michel G, Multicenter Study, Oncology 2019 List, Orleans V, outcome assessment, Palliative Care, Palliative Therapy, Pauly V, Retrospective Study, Revon-Riviere G, Seyler C, Terminal Care, time of death, Young Adult, Young Adults

Tags: 2019, Adolescent, Adult, Adverse Drug Reaction, anxiety, Article, Bar-Sela G, burn, Cancer Patient, Cancer Therapy, Child, Childhood Cancer, Clinical Article, Drug Safety, Drug Therapy, Female, Human, Male, medical cannabis, Medical Marijuana, microcapsule, Mood, Nausea And Vomiting, Ofir R, Oncology 2019 List, Pain, Palliative Therapy, Pediatric Hematology and Oncology., Pediatric Oncology, Postovsky S, prescription, Side Effect, Sleep, smoke, Smoking, Supportive Care, throat, vaporization, Weyl Ben-Arush M, Young Adult

Tags: 2019, Adolescent, Allen K, bone marrow, bone tumor, Brock K, Cancer Patient, Cancer Recurrence, Child, conference abstract, Controlled Study, Death, disease exacerbation, do not resuscitate order, Ebelhar J, Female, Hospice, Hospital Admission, Human, Intensive Care, Major Clinical Study, Male, Oncology 2019 List, Palliative Therapy, Pediatric Blood and Cancer, pediatric patient, phase 1 clinical trial, relapse, Retrospective Study, soft tissue tumor, solid malignant neoplasm, Statistics, Wasilewski-Masker K

Tags: 2019, acute respiratory failure, Adolescent, amputation, Article, Artificial Ventilation, bone marrow biopsy, Bone Marrow Transplantation, brain ventricle peritoneum shunt, Cancer Palliative Therapy, Central Nervous System Tumor, central venous catheter, Child, Childhood Cancer, Cohort Analysis, Corkum K S, craniotomy, debridement, Disease Burden, excision, fasciotomy, Female, Heart Arrest, heart surgery, Hebal F N, Hospital Admission, Human, intestine resection, invasive procedure, Journal Of Pediatric Surgery, laparoscopy, Lautz T B, Length Of Stay, Leukemia, lobectomy, Major Clinical Study, Male, myringotomy, Oncology 2019 List, Ostomy, Pain, Priority Journal, public health insurance, Retrospective Study, Rowell E E, segmentectomy, Sepsis, spine fusion, Stem Cell Transplantation, Terminal Care, thoracoscopy, Thoracotomy, vascular access, ventriculostomy

Tags: 2019, Adolescent, Adult, Article, Australia, Berger I, cancer center, challenges, enablers, Exploratory Research, Health Care Personnel, Health care professionals, Human, incurable disease, Joubert L, Journal of adolescent and young adult oncology., multidisciplinary, Oncology 2019 List, Semi Structured Interview, Thompson K, Young Adult

Tags: 2019, Adaptation, Adolescent, Anthropology, Beecham E, Bluebond-Langner M, Brain Neoplasms/*psychology, Cancer, Child, Children, Coping, Cultural, enduring, Experiences, Female, Hargrave D, Health, Humans, Illness and Disease, Infant, Langner R, lived experience, Male, meta-ethnogrpahy, Metasynthesis, Method: interpretive methods, Oncology 2019 List, Parents/*psychology, Preschool, Psychological, psychosocial aspects, Qualitative Health Research, Qualitative Research, qualitative. Geographic: Taiwan, Quality Of Life, Quality of Life/*psychology, Resilience, Resistance, Survivorship, Young Adult

Tags: 2018, Adolescent, Adult, Arakawa A, cancer center, Cancer Patient, Cancer Staging, Child, Clinical Article, conference abstract, Controlled Study, Female, Home Care, Human, Ishiki H, Ishimaru S, Kumamoto T, Male, Nakajima M, Ogawa C, Oncology 2019 List, Pediatric Blood and Cancer, Retrospective Study, Satomi E, Shimizu M, Shirakawa N, Social Worker, Sonoda T, time of death, Young Adult

Tags: 2019, Adolescent, Advance Care Planning, BMJ Supportive & Palliative Care, Cheng Y I, Chronic Illness, Dallas R H, Developing World 2019 List, end-of-life, Garcia A, Garvie P A, Lyon M E, Palliative Care, Wang J, Wilkins M L

Tags: 2019, Adolescence, Adolescent, Adult, Albrecht U V, Anthropometry, Article, Breathing, Child, chronic lung disease, Clinical Article, Controlled Study, Cystic Fibrosis, Disability, Dittrich A M, Dopfer C, February 2020 List, Female, Fuge J, Hansen G, Human, JMIR mHealth and uHealth, Junge S, Life Expectancy, life satisfaction, lung function, Male, mobile application, mobile phone, Nolte H, Pieper K, Quality Of Life, Questionnaire, responsibility, Ringshausen F C, Rudolf I, Sauer-Heilborn A, Self Care, Tummler B, von Jan U, Young Adult

Tags: 2019, Adolescent, Adolescent Behavior/px [Psychology], BMJ Supportive & Palliative Care, Critical Illness/px [psychology], February 2020 List, Female, Humans, Male, Peat G, Rodriguez A, Smith J, Social Media/sn [Statistics & Numerical Data], Young Adult

Tags: 2019, Adolescent, Adult, Baccalaureate, Carreno S P, Carrillo G M, Clinical Competence, Colombia, Diaz L C, Education, February 2020 List, Female, Gomez O J, Hospice and Palliative Care Nursing/ed [Education], Humans, International Journal of Palliative Nursing, Interviews As Topic, Male, Nursing, Students, Surveys And Questionnaires, Young Adult

Tags: 2019, Adolescence, Adolescent, Age Factors, Ambulatory Care -- In Adolescence, Ambulatory Care -- In Infancy and Childhood, Child, Chronic Disease, Confidence Intervals, Cross Sectional Studies, Data Analysis Software, Descriptive Statistics, Female, Health Services Insights, Hospitalized, Human, Infant, January 2020 List, Kum H C, Logistic Regression, Male, Models, Newborn, Nwaiwu O, Odds Ratio, Ohsfeldt R, Patient Discharge, Phillips C D, Post Hoc Analysis, Preschool, Probability, Race Factors, ROC Curve, Sex Factors, statistical, Texas, Truong C

Tags: 1982, Adolescent, Adult, amantadine, Amantadine/therapeutic use, Antiparkinson Agents/therapeutic use, Benserazide/therapeutic use, Clinical Neurology and Neurosurgery, Drug Combinations/therapeutic use, Humans, Levodopa/therapeutic use, Lipidoses/drug therapy, madopar, NCL3, orfenadrine, pharmacologic intervention, Psychoses Substance-Induced/etiology, Syndrome, tone and motor problems, van der Zee H J, van Nieuwenhuizen O, Zweije-Hofman I L

Tags: 2016, Adolescent, Adult, Ajmone P, American Journal of Medical Genetics Part C - Seminars in Medical Genetics, Article, body mass, Canevini M P, characteristics, Child, Clinical Article, Comorbidity, Controlled Study, De Lange syndrome, Epilepsy, Female, Fossati C, Furia F, Gastroesophageal Reflux, gene, gene mutation, Gervasini C, HDAC8 gene, histone deacetylase 8, Human, Intellectual Impairment, Kullman G, Male, Masciadri M, NIPBL gene, Priority Journal, problem behavior, RAD21 gene, Russo S, Selicorni A, sleep disorder, sleep disturbance/disorders, SMC1A gene, SMC3 gene, Taiana M, Trajectory, Turner K, Vignoli A, Zambrelli E

Tags: 2012, Adolescent, Adult, Age, Aggression, aggressive behavior, anxiety, Behavior, behavioral problems, characteristics, Child, Congenital Anomalies, Depression, Factors, Female, Humans, Infant, Kosaki K, Kosaki R, Kurosawa K, Male, Mizuno S, Okamoto N, Preschool, Rubinstein-Taybi Syndrome, Rubinstein-Taybi Syndrome/di [Diagnosis], Sato Y, Surveys And Questionnaires, Takahashi T, Trajectory, Yagihashi T, Young Adult

Tags: 1995, achondroplasia, Achondroplasia/co [Complications], adenotonsillectomy, Adolescent, Adult Child, American Journal Of Medical Genetics, breathing difficulties, Child, CPAP, Everett F, Evoked Potentials, Fagan E R, Female, Humans, Infant, losing weight, Male, Middle Aged, physical interventions, Preschool, Respiration, respiratory disturbance index, Sillence D O, Sleep Apnea Syndromes/et [Etiology], Sleep Apnea Syndromes/th [Therapy], Sullivan C E, surgical interventions, Tonsillectomy, Waters K A, Weight Loss

Tags: 2012, Adolescent, Adult, Aged, Archives Of Physical Medicine And Rehabilitation, Berard C, Child, Disability Evaluation, Ecochard R, Female, Fermanian J, Girardot F, Humans, Iwaz J, Male, MFM, Middle Aged, Mobility Limitation, motor function measure, Motor Skills, Muscular Dystrophy Duchenne/physiopathology/rehabilitation, Neuromuscular Diseases/physiopathology/rehabilitation, Payan C, Perception, Physical Therapy Modalities, Prospective Studies, Q3 conditions, scale development, SMA1, tone and motor problems, tool development, Vuillerot C, Young Adult

Tags: 2015, Adolescent, Boschin M, Child, Child Preschool, Combined Modality Therapy, Dilatation/methods, Endoscopy, epidermolysis bullosa, Epidermolysis Bullosa Dystrophica/complications, Esophageal Stenosis/etiology/therapy, feeding difficulties, Female, Follow-up Studies, Frosch M, Gastrostomy, Gottschalk A, growth improvement, Hahnenkamp K, Humans, Infant, Laukoetter M, Male, Mennigen R, Nutrition, orthograde balloon dilation, Recurrence, retrograde dilation, Senninger N, surgical intervention, Treatment Outcome, Tubergen D, Vowinkel T

Tags: 2001, Adolescent, Backes M, BJU International, characteristics, Child, Enuresis/etiology/physiopathology, Female, Humans, Laufersweiler-Plass C, Male, Muscular Atrophy Spinal/complications/physiopathology, Nerve Degeneration/complications/physiopathology, Rudnik-Schoneborn S, SMA1, Trajectory, urinary incontinence, Urinary Incontinence/etiology/physiopathology, von Gontard A, Zerres K

Tags: 2010, Adolescent, ataxia telangiectasia, ataxia telangiectasia/di [Diagnosis], Ataxia Telangiectasia/pp [Physiopathology], Berkun Y, breathing difficulties, Case-Control Studies, characteristics, Child, Efrati O, Feasibility Studies, Female, Humans, Jacobson J M, Levi Y, lung deterioration, Male, Pediatric Pulmonology, Preschool, Reproducibility of Results, Spirometry, Trajectory, Vilozni D, Weiss B, Young Adult

Tags: 2016, Adolescent, Article, assessment of humans, Bella G D, Bertini E, Castelli E, characteristics, Child, Clinical Article, Controlled Study, Female, Friedreich's ataxia, functional assessment, Gait, Gait Analysis and the Scale for the Assessment and Rating of Ataxia, Gazzellini S, Human, Lispi M L, longitudinal study, Male, Petrarca M, Pisano A, PLoS One, Preschool Child, Reliability, step length, stride length, tone and motor problems, Trajectory, Vasco G, Walking, walking velocity, Zazza M

Tags: 2010, Adolescent, Adult, bilateral pallidal stimulation, Brain, Brain Diseases/physiopathology/therapy, Brain/physiopathology, Child, Child Preschool, Deep Brain Stimulation/adverse effects/methods, Dystonia, Dystonia/physiopathology/therapy, Female, Functional Laterality, Gill S S, Globus Pallidus/physiopathology, Haenggeli C A, Hayflick S J, Hogarth P, Humans, IND, Infant, Iron/metabolism, Jech R, Kurlemann G, Leenders K L, Limousin P, Malanga C J, Male, Moro E, Neurodegenerative Diseases/physiopathology/therapy, Ostrem J L, Pauls K A, Peker S, Retrospective Studies, Revilla F J, Santens P, Schnitzler A, Sharma N, surgical intervention, Timmermann L, Tisch S, tone and motor problems, Treatment Outcome, Valldeoriola F, Vesper J, Volkmann J, Wieland K, Woitalla D, Young Adult

Tags: 2016, 7 dehydrocholesterol/ec [Endogenous Compound], 8 dehydrocholesterol/ec [Endogenous Compound], adaptive behavior, Adolescent, Adult, Aggression, Albert P, Article, Autism, automutilation, Behavior, Bianconi S, Bukelis I, Case Study, cerebrospinal fluid level, characteristics, Child, Child Rearing, childhood, cholesterol/ec [Endogenous Compound], Clinical Article, Cognition, delayed development, development, Developmental delay, Farmer C, Female, Human, Intelligence Quotient, Interpersonal Communication, Joseph L, Journal of Neurodevelopmental Disorders, Lanham D, Male, Observational Study, Parent, Porter F D, Preschool Child, Priority Journal, problem behavior, Sarphare G, Smith Lemli Opitz syndrome, Smith-Lemli-Opitz syndrome, Socialization, Stanford-Binet Intelligence Scale, Sterols, Swedo S, Thurm A, Tierney E, tone and motor problems, Trajectory, Unclassified Drug, Walking, Wassif C A, Wheeler C, Young Adult

Tags: 2011, Adolescent, adults, behavioral problems, behaviour, Chappaz I O, characteristics, Child, Cri-du-chat, cri-du-chat syndrome, development, Education & Educational Research, Emerich D R, Epidemiology, Gatto K R, Genetics & Heredity, INDIVIDUALS, Journal Of Intellectual Disability Research, Kim C A, maladaptive behaviors, Neurology, Neurosciences &, Orsati F T, Prevalence, Psychiatry, Rehabilitation, Rimerio R C, Teixeira Mctv, Trajectory

Tags: 2005, Adolescent, Adult, Age of Onset, Arm/pp [Physiopathology], Ashizawa T, Brain Stem/pp [Physiopathology], Cooperative Ataxia Group, Disease Progression, Female, Fischbeck K, Friedreich Ataxia/di [Diagnosis], Friedreich Ataxia/pp [Physiopathology], Friedreich's ataxia, Friedrich's Ataxia Scale, Gait Disorders, Gomez C, Hallett M, Lynch D, May W, Neurologic/di [Diagnosis], Neurologic/et [Etiology], Neurology, scale development, Subramony S H, Taylor P, tone and motor problems, tool development, Wilson R

Tags: 2013, adaptive behavior, Adolescent, Article, Assistive technology, Caffo A O, Case Report, Child Behavior, Female, hand washing, Happiness, Human, Indices of happiness, locomotion, Locomotor behavior, Microswitches, optic sensors, physical intervention, Priority Journal, Research In Autism Spectrum Disorders, Rett syndrome, School Child, Stasolla F, stereotyped movements, stereotypy, tone and motor problems, Wobble microswitch

Tags: 2014, Aberrant Behavior Checklist, adaptive behavior, Adolescent, Adult, Age, American Journal of Medical Genetics Part A, Article, Autism, behavior disorder, Behavioral phenotype, behavioral problems, characteristics, Checklist, Child, Childhood Autism Rating Scale, Clark B, Clinical Article, Communication, communication disorder, compulsion, Cornelia de Lange syndrome, daily life activity, De Lange syndrome, Diagnosis, Disease Severity, Emotion, Female, Grados M A, Human, hyperactivity, Intellectual Impairment, Interpersonal Communication, Irritability, Kline A D, Landy-Schmitt C, Language, lethargy, limb, maladjustment, Male, Phenotype, Priority Journal, psychological rating scale, Rating Scale, Repetitive behaviors, rigidity, Skill, social cognition, Socialization, Specht M, Srivastava S, stereotypy, Trajectory, Verbal Communication, Vineland Adaptive Behaviors Scales

Tags: 1993, Adolescent, Adult, American Journal Of Medical Genetics, characteristics, Child, De Lange syndrome, De Lange Syndrome/co [Complications], De Lange Syndrome/complications, Esophagitis/co [Complications], Esophagitis/complications/prevention & control, Esophagitis/pc [Prevention & Control], feeding difficulties, Gastroesophageal Reflux, Gastroesophageal Reflux/co [Complications], Gastroesophageal Reflux/complications, GERD, Humans, Infant, NET Files, Posture, Sandifer complex, Sommer A, Spasm/co [Complications], Spasm/complications, Torticollis/co [Complications], Torticollis/complications, Trajectory

Tags: 2013, abnormal involuntary movements, accelerometry, Adolescent, Adult, Age Factors, ataxia telangiectasia, Ataxia Telangiectasia/pp [Physiopathology], Biomechanical Phenomena, characteristics, Child, Child Preschool, Crawford T O, Cross-sectional Studies, Female, Humans, kinetic tremor, Lederman H M, Male, Mandir A S, Motor Activity, Motor Activity/ph [Physiology], Movement, Movement Disorders/pp [Physiopathology], Movement/ph [Physiology], Periodicity, PLoS One, postural tremor, Posture/ph [Physiology], resting tremor, Severity Of Illness Index, Shaikh A G, tone and motor problems, Trajectory, Tremor/pp [Physiopathology], Upper Extremity, Upper Extremity/pp [Physiopathology], Young Adult, Zee D S

Tags: 2016, Adolescent, Aksoy S, Akyol U, Article, aspiration scale, auditory response, Balance disorders, body equilibrium, characteristics, Child, Clinical Article, Controlled Study, Demir N, Dysphagia, Endoscopy, feeding difficulties, Female, Flexible endoscopy, hearing, hearing impairment, Hearing problems, Human, International Journal of Pediatric Otorhinolaryngology, Kuscu O, Male, Niemann Pick disease/di [Diagnosis], Niemann-Pick Disease, NPC, Otorhinolaryngology, penetration, postural imbalance, Preschool Child, Priority Journal, Prospective Study, pure tone audiometry, School Child, Senirli R T, stabilography, Swallowing, Swallowing disorders, tone and motor problems, Topcu M, Trajectory, vestibular system, Yigit O

Tags: 1988, adenoidectomy, Adolescent, Adult, Airway Obstruction/et [Etiology], Anesthesia General/ae [Adverse Effects], beta adrenergic blockers, breathing difficulties, calcium antagonists, Cardiovascular Diseases/et [Etiology], Child, Child Preschool, digoxin, diuretics, Female, Humans, Infant, Intubation Intratracheal/ae [Adverse Effects], Lung Diseases/et [Etiology], Lung Diseases/pp [Physiopathology], Male, Medicine, MLII, MLIII, MPSI, MPSII, MPSVI, Mucopolysaccharidoses/co [Complications], Mucopolysaccharidoses/mo [Mortality], Mucopolysaccharidoses/pp [Physiopathology], pharmacologic interventions, Pyeritz R E, respiratory problems, Respiratory Tract Diseases/et [Etiology], Respiratory Tract Diseases/pp [Physiopathology], Respiratory Tract Diseases/ra [Radiography], Retrospective Studies, Semenza G L, Sleep Apnea Syndromes/et [Etiology], Spinal Diseases/et [Etiology], Spinal Diseases/ra [Radiography], surgical interventions, theophylline, Tonsillectomy, Tracheostomy

Tags: 2002, Adolescent, Adult, Child, Child Preschool, Cuisset J, Devos P, Enteral Nutrition, feeding difficulties, Female, Follow-up Studies, Gastroesophageal Reflux, Gastroesophageal Reflux/complications, Gastrostomy, GERD, Gottrand F, Guimber D, Humans, Infant, Infant Newborn, Journal Of Parenteral And Enteral Nutrition, Male, Michaud L, Neuromuscular Diseases/complications/therapy, Nutritional Status, Percutaneous Endoscopic Gastrostomy, Seguy D, SMA type I, surgical intervention, Treatment Outcome, Turck D, Weight Gain

Tags: 2005, Adolescent, Adult, Aggression, alertness, anxiety, behavioral problems, characteristics, Child, Depression, Developmental Medicine and Child Neurology, distractibility, Female, Harris J C, Humans, Jinnah H A, Lesch-Nyhan syndrome, Lesch-Nyhan Syndrome/px [Psychology], Male, Meyer S M, Nyhan W L, Puig J G, Schretlen D J, Self-Injurious behavior, self-injury, Severity Of Illness Index, Trajectory, Ward J, Yun J

Tags: 1995, Adolescent, Aguigah G, Aksu F, apnea, breathing difficulties, Buschatz D, Case Report, characteristics, Conference Paper, Disorder of respiratory control, Female, Human, hyperventilation, hypocapnia, Journal of Sleep Research, Polygraphic recording, Polysomnography, Priority Journal, Respiratory Tract Disease, Rett syndrome, Rett Syndrome/di [Diagnosis], Schluter B, School Child, Trajectory, Trowitzsch E

Tags: 2 hydroxypropyl beta cyclodextrin, 2018, 94035-02-6 (2 hydroxypropyl beta cyclodextrin), Adolescent, Adult, Alter K, Article, balance impairment, body equilibrium, case control study, characteristics, Child, Clinical Article, clinical evaluation, Comparative Study, coordination disorder, disease severity assessment, Farhat N, Female, gait disorder, Human, Human Development, intervention study, Journal of Child Neurology, Keener L A, Male, molecular stability, motion analysis system, Neurologic Examination, Niemann Pick disease, NIH NPC Neurologic Severity Scale, NPC, outcome assessment, performance, Porter F, Preschool Child, Priority Journal, Research, Retrospective Study, Sansare A, School Child, scoring system, spatiotemporal analysis, stabilography, Stanley C, tone and motor problems, Trajectory, Upper limb, vts 270, Young Adult, Zampieri C

Tags: 2002, Adolescent, Child, Child Preschool, Davies P, Developmental Disabilities, Developmental Disabilities/complications, Developmental Medicine and Child Neurology, Dose-Response Relationship Drug, Epilepsy, Epilepsy/complications, Female, Humans, Infant, Lennox-Gastaut syndrome, Leukodystrophy, Male, Medical Records, melatonin, Melatonin/therapeutic use, MPSII, MPSIII, Nervous System Diseases, Nervous System Diseases/complications, Outpatients, pharmacologic intervention, Q3 Scoping Review Results, Ross C, Sex Factors, Sleep Disorders/complications/drug therapy, sleep disturbance/disorders, Sleep Wake Disorders, Vision Disorders, Vision Disorders/complications, Whitehouse W

Tags: 2012, Adolescent, Adult, Aged, Aged 80 and over, Aggression/psychology, Attention Deficit and Disruptive Behavior, behavioral problems, Child, Child Preschool, Didden R, Disorders/diagnosis/epidemiology/psychology, Dumont E L, Female, Hastings R, Humans, Intellectual Disability/diagnosis/epidemiology/psychology, Journal Of Intellectual Disability Research, Kroes D B, Male, Matson J L, Middle Aged, Multivariate Analysis, Personality Inventory/standards/statistics & numerical data, Prevalence, Reference Values, Rojahn J, Rowe E W, scale development, Self-Injurious Behavior/diagnosis/epidemiology/psychology, Sensitivity and Specificity, Sharber A C, Stereotypic Movement Disorder/diagnosis/epidemiology/psychology, tool development, unspecified ID, Young Adult

Tags: 2003, Adolescent, Adult, Anticonvulsants/therapeutic use, Barabas G, behavioral problems, Carbamazepine/therapeutic use, characteristics, Child, Child Preschool, Chromosomes Human X/genetics, Developmental Medicine and Child Neurology, Diazepam/therapeutic use, Eddey G E, Female, Giacomini K D, Humans, Infant, Lesch-Nyhan syndrome, Lesch-Nyhan Syndrome/genetics, Male, Reck J F, Robey K L, Self-Injurious Behavior/diagnosis/drug therapy, self-injury, Surveys And Questionnaires, Trajectory