Browse Items (179 total)
- Tags: Major Clinical Study
Development and delivery of a one-stop multidisciplinary clinic to provide comprehensive palliative and supportive care for children with cancer
Tags: 2018, Ambulatory Care, Anis H, antibiotic agent, Arora R, Bagai P, Cancer Patient, Caregiver, Child, Chuki T, conference abstract, Crack L, dietitian, doctor nurse relation, Drug Therapy, Education, Female, financial management, Holistic Care, Hospital Patient, Human, Major Clinical Study, Male, Malignant Neoplasm, Multidisciplinary team, nutritional counseling, Oncology 2018 List, Outpatient, Pain, Palliative Therapy, patient coding, Pediatric Blood and Cancer, physiotherapist, Physiotherapy, Psychologist, Social Support, Taluja A, Terminal Care, wound
Supporting parental caregivers of children living with life-threatening or life-limiting illnesses: A Delphi study
Tags: 2018, Article, Bally JMG, Basic Needs, Caregiver, Child, Consensus, Delphi Study, Diagnosis, Family Nursing, Feasibility Study, February 2019 List, Female, Hodgson-Viden H, Holtslander L, Human, Human Experiment, Journal for specialists in pediatric nursing : JSPN, Major Clinical Study, Male, Mpofu C, Nurse, Peacock S, Pediatrics, Physician, Self Care, Smith NR, Social Worker, Spurr S, theoretical study, Zimmer M
Evaluation of End-of-Life Care Programs at Emily's House Children's Hospice
Conflicting realities experienced by children with life-limiting and life-threatening conditions when transitioning to adult health services
Tags: 2018, Adult, Adult Child, Article, Bennett V, Child, Controlled Study, dilution, facilitation, February 2019 List, Female, Human, Interview, joint, Journal Of Advanced Nursing, Learning, Major Clinical Study, Male, Non Profit Organization, Noyes J, Palliative Therapy, Pritchard A, Pritchard S, Qualitative Analysis, Rees S, Secondary Analysis, Sibling, Skill, Social Isolation, social media, Social Support, Total Quality Management, Transition To Adult Care
Turning Water into Wine: A New Community Pharmacy Workforce Delivering Paediatric Palliative Care Services Across Scotland
Tags: 2018, 7732-18-5 (water), Child, community pharmacist, conference abstract, February 2019 List, Funding, Health Care Delivery, Heart, Hospice, Human, Infant, Journal of Pain and Symptom Management, Major Clinical Study, McCusker K, nursing theory, Palliative Therapy, pharmacy, Scotland, stakeholder engagement, summer, water, wine, workforce
Characteristics of a Perinatal Palliative Care Program Over 10 years
Tags: 2018, Child, Comfort, conference abstract, Controlled Study, Diagnosis, Doherty M, Dumond LG, February 2019 List, Female, Genetics, Hospice, Human, Infant, Journal of Pain and Symptom Management, Major Clinical Study, Male, Medical Record, Neonatal Intensive Care Unit, Neonatologist, obstetrician, Palliative Therapy, Patient Referral, positive end expiratory pressure, Resuscitation, Retrospective Study, Stoppels N, Williams R
Neonatal Palliative Care in the United States Deep South: Exploration of Patterns of Care and Health Disparities
Tags: 2018, Alabama, Bakitas M, Boss R, Chi Square Test, Child, conference abstract, Controlled Study, Currie E, Dionne-Odom JN, Ejem D, February 2019 List, Female, health disparity, Human, Infant, Journal of Pain and Symptom Management, Louisiana, Major Clinical Study, Male, Medical Record Review, Mississippi, Neonatal Intensive Care Unit, Newborn, Palliative Therapy, race, Resuscitation, Statistics, Terminal Care, Wolfe J
Challenges of palliative care in children with inborn metabolic diseases
Tags: 2018, Adult, Advance Care Planning, Article, Attention, Borkhardt A, Child, Cohort Analysis, Controlled Study, Decision Making, Distelmaier F, February 2019 List, Female, Gastrointestinal Symptom, gastrointestinal tract, Hoell JI, Home Visit, Human, Janßen G, Kuhlen M, Major Clinical Study, Male, Metabolic Disorder, Neurologic Disease, Orphanet Journal Of Rare Diseases, Palliative Therapy, Patient Referral, Preschool Child, Resuscitation, Retrospective Study, Warfsmann J, Young Adult
Impact of Pediatric palliative care initiative at tertiary cancer care hospital of nepal
Tags: 2018, Analgesia, Brain Tumor, cancer center, Case Study, Child, conference abstract, Developing World 2018 List, Diagnosis, Dyspnea, Female, Gastrointestinal Symptom, Hematologic Malignancy, Hospice, Human, Major Clinical Study, Male, Nepal, Palliative Therapy, Panthee S, Pediatric Blood and Cancer, Practice Guideline, Quality Of Life, Sarcoma, Sharma KS, Terminal Care, wound
Wishing well, a home-based Pediatric palliative care service for childhood cancer in thailand
Tags: 2018, 52-26-6 (morphine), 57-27-2 (morphine), Bereavement, Brain Tumor, cancer center, Cancer Recurrence, Cancer Survival, Cancer Therapy, Chamnanprai S, Child, Childhood Cancer, Cohort Analysis, conference abstract, Controlled Study, Counseling, Death, Developing World 2018 List, Female, Follow Up, Home Visit, Human, Leukemia, Lymphoma, Major Clinical Study, Male, median survival time, Morphine, Nuchprayoon I, Pain, Palliative Therapy, Pediatric Blood and Cancer, Quality Of Life, Raksrithong T, solid malignant neoplasm, Thailand
Ethical dilemmas encountered by a palliative care team at a Pediatric cancer center in guatemala
Tags: 2018, Adolescent, Adult, Bioethics, Blood Transfusion, Brain Death, Bustamante Tuchez LM, cancer center, Cancer Patient, cancer surgery, Cancer Therapy, Case Study, Child, Childhood Cancer, Close P, conference abstract, Developing World 2018 List, Drug Withdrawal, Female, Guatemala, Human, Intensive Care, Justice, Major Clinical Study, Medical Record Review, Multidisciplinary team, Palliative Therapy, Patient Autonomy, Patient Care, Paz G, Pediatric Blood and Cancer, Physician, Poverty, Pregnancy, Religion, Retrospective Study, Rivas S, Sound, substance abuse, Surgery, Treatment Refusal, Treatment Withdrawal, Valverde P, Zaidi A
Epidemiology of death in paediatric intensive care units (PICUS) in a developing country
Tags: 2018, Artificial Ventilation, Brain Death, Cause Of Death, Child, Chuah S L, conference abstract, Controlled Study, Decision Making, developing country, Developing World 2018 List, Drug Withdrawal, Female, Gan CS, Ho AMM, Human, inotropic agent, Isa MR, Jalil R, Length Of Stay, Life Sustaining Treatment, liver failure, Lum LC, Major Clinical Study, Male, Mortality Rate, organ donor, Palliative Therapy, Pediatric Critical Care Medicine, Pediatric Intensive Care Unit, Prospective Study, Resuscitation, Secondary Analysis, Tang SF, Teh K H, Total Quality Management, Zainal Abidin AS
Pediatric intensivist end-of-life practices and attitudes in Vietnam
Tags: 2018, Child, Chronic Disease, Chronic Patient, Critical Care Medicine, Cultural Factor, Developing World 2018 List, doctor nurse relation, Education, Fadadu P, Female, Human, Intensivist, Kumbamu A, Life Sustaining Treatment, Liu J, Major Clinical Study, Male, Medical Technology, Ouellette Y, Palliative Therapy, Pediatric Hospital, Perception, Phan P, Qualitative Analysis, quantitative analysis, Resuscitation, Schiltz B, Semi Structured Interview, Terminal Care, tertiary health care, Tran X, Viet Nam, Vietnamese
Youth With Chronic Conditions and Risky Behaviors: An Indirect Path
Tags: 2018, Adolescent, Akre C, Article, Barrense-Dias Y, Berchtold A, Chronic Disease, Controlled Study, daily life activity, December 2018 List, Eating, Education, Female, gambling, Gubelmann A, Health Status, high risk behavior, Human, internet addiction, Journal of Adolescent Health., juvenile, Major Clinical Study, Male, Newman CJ, psychological adjustment, statistical analysis, structural equation modeling, Student, substance use, Suris J C, vision, Wellbeing
Primary palliative care skills in CF: Perspectives of adults with CF, caregivers, and CF care team members
Tags: 2018, Adult, Advance Care Planning, Awareness, Basile M, Caregiver, Chen E, Child, clinical assessment, conference abstract, Controlled Study, December 2018 List, Dellon EP, depression assessment, Education, Faro A, Female, Georgiopoulos A, Goggin JL, Goss CH, Hempstead SE, Hobler M R, Hospice, Human, Kavalieratos D, Kruskal Wallis test, lung, Major Clinical Study, Male, Pain Assessment, Palliative Therapy, Pediatric Pulmonology, Perception, Prognosis, Skill
Are pediatric patients just short adults? most commonly prescribed drugs for pediatric hospice patients
Tags: 2018, acid, Adult, Cancer Patient, central nervous system cancer, Chi Square Test, Child, conference abstract, Constipation, Controlled Study, Corticosteroid, Death, Diagnosis, diazepam, diphenhydramine, drug formulation, Drug Therapy, Dyspnea, Female, Genetic Disorder, Haloperidol, Hospice Care, hospice patient, Human, hyoscyamine, Institutional Review, laxative, Length Of Stay, levetiracetam, Lorazepam, macrogol, Major Clinical Study, McPherson ML, metoclopramide, Morgan J, Morphine, Nausea, November 2018 List, ondansetron, Opiate, Pain, Paracetamol, patient information, pediatric patient, Postgraduate Medicine, Practice Guideline, Preschool Child, prochlorperazine, Retrospective Study, salbutamol, Seizure, Sera L, Unclassified Drug, vitamin
Paediatric palliative care: Are we doing enough? a retrospective review of deaths over 5 years in an academic tertiary hospital paediatric intensive care unit
Tags: 2018, Adolescent, Adult, Advanced Cancer, Analgesia, Artificial Ventilation, Cancer Patient, Cause Of Death, Child, conference abstract, Controlled Study, Demography, Drug Withdrawal, Female, Human, inotropism, Koh PL, Life Sustaining Treatment, Major Clinical Study, Male, Malignant Neoplasm, Medical History, Medical Record, Neurologic Disease, Ng MCG, November 2018 List, Palliative Therapy, Pediatric Critical Care Medicine, Pediatric Intensive Care Unit, pediatric patient, Resuscitation, Retrospective Study, tertiary care center
Attitudes of the four groups of population toward end-of-life care of their child: A nationwide survey
Tags: 2018, Adult, Cancer Patient, Caregiver, Child, Choi YH, conference abstract, Controlled Study, Female, Health Care System, Hospice, Human, Kim YS, Lee B, Life Sustaining Treatment, Lifespan, Major Clinical Study, Male, Multicenter Study, November 2018 List, Palliative Therapy, Park JD, Pediatric Critical Care Medicine, pediatric patient, Physician, population group, Questionnaire, Terminal Care, Yun YH
Exploring the vagueness of Religion & Spirituality in complex pediatric decision-making: A qualitative study
Tags: 2018, Article, Barfield RC, BMC Palliative Care, Brandon DH, Child, Decision Making, Docherty SL, Father, genetic transcription, Health Care Personnel, Human, Human Tissue, Intensive Care, Interview, Life Sustaining Treatment, Major Clinical Study, Male, Medical Record, Mother, Narrative, Neonatology, November 2018 List, Palliative Therapy, Prognosis, Qualitative Research, Religion, Superdock AK, Thematic Analysis, Treatment Withdrawal
Patterns of paediatric end-of-life care: A chart review across different care settings in Switzerland
Tags: 103-90-2 (paracetamol), 2018, Adolescent, Aebi C, Ansari M, Article, Baer R, Bergstraesser E, Bernet V, Bmc Pediatrics, Brazzola P, Bucher HU, Buder R, Cagnazzo S, Cardiology, Cause Of Death, Child, Child Care, Child Death, Cignacco E, Cohort Analysis, community care, Dinten B, Dorsaz A, Drug Use, Elmer F, Engberg S, Enriquez R, Eskola K, Fahrni-Nater P, Female, Finkbeiner G, Frey B, Frey U, Greiner J, Hassink RI, Health Care Utilization, Home Care, Hospital Admission, Human, Infant, Intensive Care Unit, invasive procedure, Keller S, Kretschmar O, Kroell J, Laubscher B, Leibundgut K, Length Of Stay, Life Sustaining Treatment, Major Clinical Study, Malaer R, Male, Medical Record Review, Meyer A, narcotic analgesic agent, Nelle M, Neonatology, Neuhaus T, Neurology, Newborn, Niggli F, October 2018 List, Oncology, Paracetamol, Perrenoud G, Pfammatter JP, Plecko B, Popovic MB, Ramelet AS, Resuscitation, Retrospective Study, Rupf D, Sennhauser F, September 2018 List, Stade C, Steinlin M, Stoffel L, Stuessi C, Switzerland, Terminal Care, Thomas K, Treatment Withdrawal, Von der Weid N, von Vigier R, Vonarburg C, Wagner B, Wernz B, Wieland J, Zimmermann K
Little lights: Hospital bereavement photography program
Tags: 2018, August 2018 List, Bereavement, Bishop C, Bryan D, burn, Child, Child Death, conference abstract, Controlled Study, E-mail, Emergency Ward, Female, Gestational Age, hospital personnel, Human, Infant, Journal of Palliative Medicine, Light, Major Clinical Study, mourning, Nurse Practitioner, Photography, respiratory therapist, Terminal Care, Vandergrift PS, Volunteer, Work engagement
Qualitative evaluation of the impact of a paediatric palliative care family support volunteering project
Tags: 2018, August 2018 List, Chambers L, Child, conference abstract, Controlled Study, Female, gardening, housekeeping, Human, Human Experiment, Leadership, Major Clinical Study, Male, McNamara K, Palliative Medicine, Palliative Therapy, Qualitative Analysis, Quality Of Life, Questionnaire, Scott R, Semi Structured Interview, shopping, Sibling, Skill, Staff, Volunteer
The qualitative study on the experience and perception of healthcare professionals in pediatric palliative care
Tags: 2018, August 2018 List, Awareness, Child, conference abstract, constant comparative method, Death, Diagnosis, Grounded Theory, Home Care, Hospice, Human, Interview, Ireland, Major Clinical Study, Male, Palliative Medicine, Palliative Therapy, pediatric nurse, Pediatric Nursing, Perception, Qualitative Research, Quality Of Life, Salvaggio E
Barriers to research with children and young people with life-limiting conditions and their families: A survey of chief investigators' views, experiences and proposed solutions
Tags: 2018, August 2018 List, Beecham E, Bluebond-Langner M, Child, Clinical Research, conference abstract, embedding, Female, Funding, Hudson B, Human, intervention study, Jones L, Lakhanpaul M, Major Clinical Study, Male, Oostendorp L, Palliative Medicine, Patient Referral, Peake J, publication, Scientist, Stone P, thinking, visibility
Changing landscape of paediatric palliative care
Tags: 2018, Adult, August 2018 List, catering service, Child, conference abstract, Developmental Medicine and Child Neurology, Diagnosis, Epilepsy, Female, Hills M, Hospice, Human, landscape, life event, Major Clinical Study, Male, Medical Care, Morbidity, Mortality, muscle spasm, Nallapeta N, Palliative Therapy, Retrospective Study, Young Adult
Beyond mortality: Assessing pediatric palliative needs
Tags: 2018, August 2018 List, Bone Marrow Transplantation, Child, conference abstract, Controlled Study, Diagnosis, Female, General Practitioner, Gielissen K, Hematology, heme, Hospital Patient, Human, Journal of Palliative Medicine, Major Clinical Study, Male, Marquez A, Massaro S, Morbidity, Mortality, Murtha TD, Nausea, Needs Assessment, Neonatal Intensive Care Unit, Oncology, Pain, Palliative Therapy, Patient Referral, Pediatric Intensive Care Unit, Prozora S, Questionnaire, Resident, Surgery, tertiary health care
Parents' perspectives on losing a child due to life-limiting diagnoses: A population-based study
Tags: 2018, Adult, August 2018 List, Cause Of Death, Child, conference abstract, Denmark, Diagnosis, directory, Distress Syndrome, Ekholm O, Female, Human, Lykke C, Major Clinical Study, Male, Malignant Neoplasm, Olsen M, Palliative Medicine, Palliative Therapy, Quality Of Life, Questionnaire, Schmiegelow K, Sjogren P, Wales, Young Adult
Challenges in assessing the need for beds in palliative care-The example of inpatient hospice care for children, adolescents and young adults
Tags: 2018, Adult, Artificial Ventilation, August 2018 List, calculation, Child, conference abstract, Death, Diagnosis, disabled person, Female, Funding, Germany, Home Care, Hospice Care, Hospital Patient, Human, Jansky M, Jaspers B, Length Of Stay, Likert scale, Long Term Care, Major Clinical Study, Male, Mortality, Nauck F, occupation, Palliative Medicine, Palliative Therapy, Politics, Prevalence, psychosocial care, quantitative analysis, Resident, Semi Structured Interview, Statistics, Young Adult
End-of-life decisions and practices for very preterm infants in the Wallonia-Brussels Federation of Belgium
Tags: 2018, Article, Aujoulat I, Bmc Pediatrics, Broux I, Brussels Capital Region, Cavatorta E, Charon A, Clinical Practice, Debauche C, Dussart A, Female, Flausch M, Gestational Age, Haumont D, Henrard S, Henrion E, Human, Infant, Johansson AB, Kalenga M, Langhendries JP, Lecart C, Major Clinical Study, Male, Marechal Y, Maton P, Mostaert A, Muller MF, Neonatologist, Neonatology, Newborn, Palliative Therapy, perinatal period, Prematurity, Qualitative Research, Questionnaire, September 2018 List, Sepulchre B, Terminal Care, Uncertainty, Van Herreweghe I, Van Overmeire B, Vanden ES, Verellen G, Vermeylen D, Vlieghe V, Wallonia
Identifying the Types of Support Needed by Interprofessional Teams Providing Pediatric End-of-Life Care: A Thematic Analysis
Tags: 2018, Article, Child, Death, Education, Female, Firn J I, Human, Human Relation, institutional care, Journal of Palliative Medicine, June 2018 List, Keefer P M, Kukora S K, Major Clinical Study, Male, Riotte CO, Staff, Statistics, Terminal Care, Thematic Analysis, United States, work environment
Advance care planning and outcome in pediatric palliative home care
Tags: 2018, Advance Care Planning, Article, Balzer S, Borkhardt A, Child, Controlled Study, Danneberg M, Death, Female, Gagnon G, Hoell JI, Home Care, Hospice, Human, Janßen G, June 2018 List, Kuhlen M, Life Sustaining Treatment, Major Clinical Study, Male, medical order, Oncotarget, Palliative Therapy, Resuscitation, Retrospective Study, Trocan L, Weber HL
Influencing the national debate on medical assistance in dying (MAID): Leveraging the canadian paediatric surveillance system (CPSP) to inform the position of the canadian paediatric society (CPS)
Tags: 2018, Adult, Archives of Disease in Childhood, Canada, Canadian, Child, Complication, conference abstract, Conversation, Death, Disability, Female, Human, joint, June 2018 List, Law, Major Clinical Study, Male, Medical Care, Moore-Hepburn C, Morbidity, Palliative Therapy, Pediatrician, public figure, Public Health, Rare Disease, Young Adult
International Children's Palliative Care Network: A Global Action Network for Children With Life-Limiting Conditions
Barriers and facilitators to the implementation of a paediatric palliative care team
Tags: 2018, April 2018 List, Article, Awareness, BMC Palliative Care, Child, concrete, Expectation, Female, Grootenhuis MA, Health Care Personnel, Human, Human Experiment, Kars MC, Major Clinical Study, Male, Only Child, Palliative Care, Palliative Therapy, Patient Satisfaction, Pediatrics, Pilot Projects, Pilot Study, Schepers SA, Schouten-Van Meeteren AYN, tertiary health care, van Delden JJM, Verberne LM
Proxy-Reported Quality of Life and Family Impact for Children Followed Longitudinally by a Pediatric Palliative Care Team
Tags: 2018, Analysis of Variance, April 2018 List, Article, Attention, Bace S, Child, daily life activity, Darnall C, Diagnosis, Female, Human, Journal of Palliative Medicine, Longitudinal Studies, longitudinal study, Macfadyen A, Major Clinical Study, Male, Metronidazole, minimal clinically important difference, Only Child, Palliative Care, Palliative Therapy, physical model, Prospective Study, Quality Of Life, Statistical Significance, Vail C, Weaver M, Wichman C
Facebook Advertisements Recruit Parents of Children With Cancer for an Online Survey of Web-Based Research Preferences
Tags: 2014, Adolescent, advertizing, Akard TF, Article, Backlog, Cancer Nursing, Cancer Palliative Therapy, Cancer Patient, Cancer Recurrence, Cancer Research, Caregiver, Child, Childhood Cancer, click, computer, Diseases, Facebook, Female, Gilmer Mary Jo, Health Survey, Human, Income, Information Processing, Internet, Interpersonal Communication, Journal Article, legal guardian, Major Clinical Study, Male, mobile phone, Neoplasm, Nurse, Oncology, Only Child, Palliative Therapy, Parent, Parental Attitude, participant recruitment, Patient, Population, Priority Journal, Sample Size, School Child, social media, social network, Video Recording, Wray S
Neurological palliative care in children
Tags: 2017, Adolescent, Adult, Child, Chromosome Aberration, Controlled Study, Female, Führer M, Home Care, Hospice, Human, Icd-10, Infant, Journal Of The Neurological Sciences, Major Clinical Study, Male, March 2018 List, Metabolic Disorder, Mortality, Neoplasm, nervous system malformation, Neurology, Palliative Therapy, Preschool Child, Retrospective Study, Statistics
The Effect of Pediatric Palliative Care Policy on Hospice Utilization Among California Medicaid Beneficiaries
Perinatal palliative care after a stillbirth - Midwives experiences of using Cubitus baby
Tags: 2017, Bmc Pregnancy And Childbirth, Cold, Cold Temperature, Content Analysis, cooling, February 2018 List, Female, Human, Human Dignity, Infant, Listermar KH, Major Clinical Study, Male, midwife, Midwifery, Palliative Care, Palliative Therapy, Parents, Questionnaire, Rådestad I, Refrigeration, Stillbirth, Sweden