Browse Items (209 total)
- Tags: Questionnaires
The attitudes of neonatal professionals towards end-of-life decision-making for dying infants in Taiwan
Tags: 2013, Adult, Attitude Of Health Personnel, Attitude To Death, Backlog, Chang YC, Chen CH, Clinical, Continuing, Cross-sectional Studies, Decision Making, Education, Ethics Committees, Female, Hospital, Huang L-C, Humans, Infant, Intensive Care Units, Journal Article, Journal of Medical Ethics, Lee Ho-Yu, Liu Hsin-Li, Male, Medical, Medical Staff, Middle Aged, Neonatal, Neonatology, Newborn, Nursing Staff, Peng Niang-Huei, Questionnaires, Referral And Consultation, Resuscitation Orders, Self Report, Taiwan, Terminal Care, Wang Teh-Ming, Withholding Treatment
The attitude of young adults with chronic disease or handicaps towards enforced treatment and euthanasia
Tags: 1999, Adolescent, Adolescent Psychology, Attitude To Death, Attitude To Health, Backlog, Brook U, Case-Control Studies, Chronic Disease/psychology, Decision Making, Disabled Persons/psychology, Euthanasia/psychology, Family/psychology, Female, Humans, Informed Consent, Israel, Journal Article, Male, Medical Futility, Patient Education and Counseling, Physician's Role, Prognosis, Quality Of Life, Questionnaires, Terminal Care/psychology, Treatment Refusal/psychology
The Adolescent Adjustment Profile (AAP) in comparisons of patients with obesity, phenylketonuria or neurobehavioural disorders
Symptoms suffered by life-limited children that cause anxiety to UK children's hospice staff
Tags: 2006, Adaptation, Anxiety/etiology, Attitude Of Health Personnel, Attitude To Health, Backlog, Causality, Child, Child Behavior, Child Psychology, Crying, Fear, Great Britain, Hospice Care/psychology, Humans, International Journal of Palliative Nursing, Journal Article, McCluggage HL, Medical Staff/psychology, Nonverbal Communication, Nursing Methodology Research, Nursing Staff/psychology, Occupational Diseases/etiology, Pain Measurement, Pediatric Nursing, Psychological, Psychological/diagnosis/etiology/prevention & control, Questionnaires, Seizures/etiology/prevention & control, Spasm/etiology/prevention & control, Stress, Vomiting/etiology/prevention & control
Symptoms of anxiety and depression in family members of intensive care unit patients: ethical hypothesis regarding decision-making capacity
Tags: 2001, Anxiety/epidemiology/etiology, Azoulay E, Backlog, Canoui P, Chevret S, Critical Care Medicine, Critical Illness/therapy, Decision Making, Depressive Disorder/epidemiology/etiology, Dhainaut JF, Ethics, Euthanasia, Family/psychology, Female, France/epidemiology, Grassin M, Group French FAMIREA, Hubert P, Humans, Intensive Care Units, Journal Article, LeGall JR, Lemaire F, Life Support Care/utilization, Logistic Models, Male, Medical, Multivariate Analysis, Nonparametric, Passive, Pochard F, Prevalence, Prospective Studies, Questionnaires, Schlemmer B, Statistics, Zittoun R
Symptoms in the palliative phase of children with cancer
Tags: 2007, Adolescent, Age Factors, Anorexia, Attitude To Death, Backlog, Brain Neoplasms, Caregivers, Child, Emotions, Fatigue, Fear, Female, Gastrointestinal Diseases, Hoogerbrugge PM, Humans, Infant, Journal Article, Leukemia, Male, Mobility Limitation, Neoplasms, Pain, Pain Management, Palliative Care, Parent-child Relations, Parents, Pediatric Blood & Cancer, Physician-patient Relations, Preschool, Prins JB, Professional-family Relations, Psychological, Questionnaires, Retrospective Studies, Social Support, Stress, Terminal Care, Theunissen JMJ, Treatment Failure, van Achterberg T, van den Ende CHM, Vernooij-Dassen M
Symptoms in children/young people with progressive malignant disease: United Kingdom Children's Cancer Study Group/Paediatric Oncology Nurses Forum survey.
Tags: 2006, Adolescent, Adult, Backlog, Child, Childs M, Collins GS, Disease Progression, Female, Goldman A, Hain R, Hewitt M, Humans, Infant, Journal Article, Longitudinal Studies, Male, Neoplasms/complications/diagnosis, Pediatrics, Preschool, Prospective Studies, Questionnaires, United Kingdom Children's Cancer Study Group/Paediatric Oncology Nurses' Forum Palliative Care Working Group
Symptoms and Suffering at the End of Life in Children with Cancer
Tags: 2000, Anorexia/etiology/therapy, Backlog, Boston, Child, Children's Hospital (Boston), Clodronate, Constipation/etiology/therapy, Dana-Farber Cancer Institute (Boston), Death and Euthanasia, Diarrhea/etiology/therapy, Dyspnea/etiology/therapy, Ellenbogen JM, Emanuel EJ, Empirical Approach, Fatigue/etiology/therapy, Grier Holcombe E, Health Care Surveys, home care services, Humans, Journal Article, Klar Neil, Levin SB, Logistic Models, Longitudinal Studies, Neoplasms/complications/therapy, New England Journal Of Medicine, Non-U.S. Gov't, Oncology at EOL, P.H.S., Pain/etiology/therapy, Palliative Care/standards/statistics & Numerical Data, Parents, Physicians, Professional Patient Relationship, Psychological, Quality Of Health Care, Quality Of Life, Questionnaires, Research Support, Salem-Schatz S, Stress, Terminal Care, U.S. Gov't, Weeks Jane C, Withholding Treatment, Wolfe J
Survey of specialized tertiary care facilities for adults with congenital heart disease
Tags: 2004, Adolescent, Adolescent Transitions, Adult, Backlog, Cardiac Care Facilities/organization & administration/utilization, Congenital/diagnosis/mortality/surgery, Europe/epidemiology, Female, Gatzoulis MA, Health Care Surveys, Heart Defects, Hospitalization/statistics & numerical data, Humans, International Journal Of Cardiology, Journal Article, Liberthson R, Male, Middle Aged, Murphy D, Niwa K, North America/epidemiology, Patient Admission/statistics & numerical data, Patient Care Team, Perloff JK, Program Evaluation, Quality Of Health Care, Questionnaires, Reoperation/utilization, Resource Allocation, Survival Analysis, Treatment Outcome, Warnes CA, Webb GD
Survey of primary care pediatricians on the transition and transfer of adolescents to adult health care
Tags: 2008, Adolescent, Adolescent Health Services/organization & administration/statistics & numerical data, Adolescent Transitions, Adult, Backlog, Burke R, Cardosi AM, Clinical Pediatrics, Flanagan P, Health Care Surveys/methods/statistics & numerical data, Health Services Accessibility/statistics & numerical data, Health Services Needs and Demand/statistics & numerical data, Humans, Journal Article, Patient Transfer/statistics & numerical data, Pediatrics/organization & administration/statistics & numerical data, Price A, Primary Health Care/organization & administration/statistics & numerical data, Questionnaires, Rhode Island, Spoerri M, Transfer Agreement/organization & administration/statistics & numerical data
Supportive care needs of women with lung cancer
Supporting Pediatric Patients and Their Families at the End of Life: Perspectives From Bereaved Parents
Tags: 2020, 2022 Special Edition 1 - Parent Perspectives, Academic Medical Centers, American Journal of Hospice & Palliative Medicine, Anticipatory Guidance, Bereavement, Chi Square Test, Child, Childhood Neoplasms, Communication, Cousino MK, Data Analysis Software, Decision Making, Descriptive Statistics, Family, Funding Source, Health Resource Utilization, Hutchinson R, McCaffery H, Midwestern United States, Parental Attitudes – Evaluation, Patient Preference, Paul TK, Pituch K, Professional-family Relations, Professional-patient Relations, psychosocial, Quality Of Life, Questionnaires, Record Review, Retrospective Design, Sedig LK, Shared, Spruit JL, Support, Terminal Care – In Infancy and Childhood
Supporting Pediatric Patients and Their Families at the End of Life: Perspectives From Bereaved Parents
Tags: 2020, Academic Medical Centers, American Journal of Hospice & Palliative Medicine, Anticipatory Guidance, Bereavement, Chi Square Test, Child, Childhood Neoplasms, Communication, Cousino M K, Data Analysis Software, Decision Making, Descriptive Statistics, Family, Female, Funding Source, Health Resource Utilization, Human, Hutchinson R, Male, McCaffery H, Midwestern United States, November 2020 List, Parental Attitudes – Evaluation, Patient Preference, Paul T K, Pituch K, Professional-family Relations, Professional-patient Relations, psychosocial, Quality Of Life, Questionnaires, Record Review, Retrospective Design, Sedig L K, Shared, Spruit J L, Support, Terminal Care – In Infancy and Childhood
Support as a crucial predictor of good compliance of adolescents with a chronic disease
Tags: 2001, Adolescent, Adolescent Behavior/psychology, Adolescent Psychology/statistics & numerical data, Adolescent Transitions, Arthritis, Asthma/prevention & control/psychology, Backlog, Chronic Disease/psychology/therapy, Diabetes Mellitus, Epilepsy/prevention & control/psychology, Family/psychology, Female, Finland, Humans, Interpersonal Relations, Journal Article, Journal of Clinical Nursing, Juvenile Rheumatoid/prevention & control/psychology, Kyngas H, Logistic Models, Male, Motivation, Nurse-patient Relations, Patient Compliance/psychology/statistics & numerical data, Physician-patient Relations, Predictive Value of Tests, Questionnaires, Rissanen M, Social Support, Type 1/prevention & control/psychology
Suicide ideation among parents bereaved by the violent deaths of their children.
Tags: 2003, Accidents/psychology, Adaptation, Adolescent, Adult, Backlog, Bereavement, Child, Depression/diagnosis/psychology, Family Health, Female, Homicide/psychology, Humans, Issues In Mental Health Nursing, Johnson LC, Journal Article, Lohan JA, Longitudinal Studies, Male, Middle Aged, Murphy SA, Parents/psychology, Post-Traumatic/diagnosis/psychology, Predictive Value of Tests, Psychiatric Status Rating Scales, Psychological, Psychological/diagnosis/psychology, Questionnaires, Self Efficacy, Social Support, Stress, Stress Disorders, Suicide/psychology, Tapper VJ, Violence/psychology
Structural equation and log-linear modeling: a comparison of methods in the analysis of a study on caregivers' health
Tags: 2006, Adaptation, Adult, Backlog, Bmc Medical Research Methodology, Caregivers/psychology/statistics & numerical data, Cerebral Palsy, Child, Cross-sectional Studies, Disabled Children, Family/psychology, Female, Health Status, Humans, Journal Article, Linear Models, Logistic Models, Male, Ontario, Psychological, Questionnaires, Raina P, Rosenbaum P, Russell DJ, Self Concept, Social Support, Socioeconomic Factors, Telemeres, Walter SD, Zhu B
Stress, social support, and sense of coherence
Tags: 1999, Adaptation, Adult, Age Factors, Attitude To Health, Backlog, Canada, Child, Female, Health Status, Health Surveys, Humans, Internal-External Control, Journal Article, Life Change Events, Male, Middle Aged, Models, Motivation, Predictive Value of Tests, Psychological, Psychological/prevention & control/psychology, Questionnaires, Ratner PA, Social Support, Socioeconomic Factors, Stress, Western Journal of Nursing Research, Wolff AC
Strategies for improving transition to adult cystic fibrosis care, based on patient and parent views
Tags: 2001, Adolescent, Adolescent Health Services/organization & administration, Adolescent Transitions, Adult, Backlog, Boyle MP, Continuity Of Patient Care, Cystic Fibrosis/therapy, Farukhi Z, Female, Health Care Surveys, Humans, Interviews As Topic, Journal Article, Male, Middle Aged, Nosky ML, Patient Satisfaction/statistics & Numerical Data, Pediatric Pulmonology, Questionnaires
Sleep quality moderates the association between family bereavement and heart rate variability
Tags: 2023, Almeida DM, Bereavement, Cardiovascular Diseases, Chai HW, Comparative Studies, Death, Descriptive Statistics, Family, Family Attitudes, Family Relations, Funding Source, Health Behavior, Heart Rate Variability, Human, insomnia, Jester DJ, Joo S, Journal Of Behavioral Medicine, Lee S, Psychological Distress, Psychological Well-being, Psychosocial Factors, Questionnaires, September List 2031, Sleep, Sleep Quality, surveys, Umberson DJ, United States, VULNERABILITY
Sleep problems in children with Sanfilippo syndrome.
Tags: 1996, Bax M, Child, Child Preschool, Colville G A, Developmental Medicine and Child Neurology, Female, Humans, Longitudinal Studies, Male, MPS III, Mucopolysaccharidosis III/classification, Mucopolysaccharidosis III/complications, psychological intervention, Questionnaires, Sleep Disorders/etiology, Sleep Disorders/therapy, sleep disturbance/disorders, Time Factors, Watters J P, Yule W
Sleep problems in children with Sanfilippo syndrome.
Tags: 1996, Backlog, Bax M, Child, Colville GA, Developmental Medicine and Child Neurology, Female, Humans, Journal Article, Longitudinal Studies, Male, Mucopolysaccharidosis III/classification, Mucopolysaccharidosis III/complications, Preschool, Questionnaires, Sleep Disorders/etiology, Sleep Disorders/therapy, Time Factors, Watters JP, Yule W
Sleep disturbances in children, adolescents, and young adults with severe psychomotor impairment: impact on parental quality of life and sleep
Tags: 2014, Adolescent, Adult, Backlog, Blankenburg M, Caregivers, Child, Developmental Medicine and Child Neurology, Female, Health Status, Humans, Infant, Journal Article, Male, Michel E, Newborn, Parents, Preschool, Psychomotor Disorders, Quality Of Life, Questionnaires, Retrospective Studies, Sleep Disorders, Tietze AL, Young Adult, Zernikow B
Sleep disturbances in aspartylglucosaminuria (AGU): a questionnaire study.
Tags: 2006, Acetylglucosamine, Acetylglucosamine/analogs & derivatives/urine, Adolescent, Adult, Aspartylglucosaminuria, characteristics, Child, Child Preschool, Children W/SNI, Female, Heiskala H, Humans, Journal Of Inherited Metabolic Disease, Kaski M, Kivinen S, Laakso M L, Lindblom N, Longitudinal Studies, Male, Metabolism Inborn Errors, Metabolism Inborn Errors/complications/pathology, Middle Aged, Prevalence, Questionnaires, Sleep Disorders/complications/diagnosis, sleep disturbance/disorders, Sleep Wake Disorders, Surveys And Questionnaires, Trajectory
Sleep disturbances in aspartylglucosaminuria (AGU): a questionnaire study.
Tags: 2006, Acetylglucosamine/analogs & derivatives/urine, Adolescent, Adult, Backlog, Child, Children W/SNI, Female, Heiskala H, Humans, Inborn Errors/complications/pathology, Journal Article, Journal Of Inherited Metabolic Disease, Kaski M, Kivinen S, Laakso ML, Lindblom N, Longitudinal Studies, Male, Metabolism, Middle Aged, Preschool, Prevalence, Questionnaires, Sleep Disorders/complications/diagnosis
Sleep disturbance in Sanfilippo syndrome: a parental questionnaire study
Tags: 2005, Adolescent, Adult, Age of Onset, Archives of Disease in Childhood, Behavior Therapy, Benzodiazepines, characteristics, Child, Child Preschool, Delatycki M B, Fraser J, Gason A A, Humans, Incidence, Infant, Infant Newborn, melatonin, Melatonin/therapeutic use, MPS III, Mucopolysaccharidosis III/psychology, Preschool, Q3 Scoping Review Results, Questionnaires, Sleep Disorders/epidemiology/etiology/therapy, sleep disturbance/disorders, Trajectory, Treatment Outcome, Wraith J E
Sleep disturbance in Sanfilippo syndrome: a parental questionnaire study
Tags: 2005, Adolescent, Adult, Age of Onset, Archives of Disease in Childhood, Backlog, Behavior Therapy, Child, Delatycki MB, Fraser J, Gason AA, Humans, Incidence, Infant, Journal Article, Melatonin/therapeutic use, Mucopolysaccharidosis III/psychology, Newborn, Preschool, Q3 Scoping Review Results, Questionnaires, Sleep Disorders/epidemiology/etiology/therapy, Treatment Outcome, Wraith JE
Sharing the care: the key-working experiences of professionals and the parents of life-limited children
Tags: 2014, Adolescent, Adult, Backlog, Caregivers, Child, Child Health Services, Female, Focus Groups, Great Britain, Health Personnel, Health Services Needs And Demand, Humans, International Journal of Palliative Nursing, Journal Article, King N, Male, Middle Aged, Parents, Patient Care Planning, Professional-family Relations, Psychological, Questionnaires, Rodriguez A, Stress, Terminal Care
Sex, drugs and chronic illness: health behaviours among chronically ill youth
Tags: 2005, Adolescent, Adolescent Behavior, Adolescent Transitions, Adult, Backlog, Chronic Disease/psychology, Cross-sectional Studies, European Journal Of Public Health, Female, Humans, Journal Article, Male, Parera N, Questionnaires, Risk-Taking, Sexual Behavior/statistics & numerical data, Spain/epidemiology, Substance-Related Disorders/epidemiology, Suris JC
Setting-up a Supportive and Palliative Care Service for Children with Life-threatening Illnesses in Maharashtra -- Children's Palliative Care Project in India
Tags: 2022, 2023 SE5 - Low Resource Setting, Academic Performance, Administration, Child, Child Advocacy, Cognition, Collaboration, Community Health Services, Critical Illness, Data Collection, Education, Female, Ghoshal A, Health and Welfare Planning, Health Facility Administrators, Health Services Accessibility, Hospitals Pediatric, Human, In Infancy and Childhood, India, Indian Journal Of Palliative Care, International Agencies, Licensure, Male, Marston JM, Muckaden MA, Needs Assessment, Only Child, Pain, Paleri AK, Palliative Care, Pediatric Care, Personnel Health Facility, Program Implementation, Psychosocial Functioning, Quality Of Life, Questionnaires, Symptoms, Talawadekar P, Teamwork
Sense of coherence: a relevant resource in the coping process of mothers of deaf and hard-of-hearing children?
Self-reconstruction and biographical revisioning: survival following cancer in childhood or adolescence.
Tags: 2003, Adolescence, Adolescent Transitions, Adult, Australia, Backlog, Cancer Patients -- Psychosocial Factors, Cancer Survivors -- Psychosocial Factors, Child, Childhood Neoplasms -- Psychosocial Factors, Drew S, Health: An Interdisciplinary Journal For The Social Study Of Health, Illness & Medicine, Human, Interviews, Journal Article, Narratives, Phenomenological Research, Psychological Theory, Psychosocial Aspects of Illness, Qualitative Studies, Questionnaires
Self-portraits of families with young adult cancer survivors: using photovoice
Tags: 2010, Adolescent, Backlog, Ethnic Groups/statistics & numerical data, Family/psychology, Female, Humans, Journal Article, Journal Of Psychosocial Oncology, Male, Narration, Neoplasms/ethnology/psychology, Photography, Psychology, Quality Of Life/psychology, Questionnaires, Self Concept, Semantics, Socioeconomic Factors, Survivors/psychology, Voice, Yi J, Young Adult, Zebrack B
Self-concept of siblings of children with cancer
Tags: 2001, Backlog, Child, Childhood Neoplasms -- Psychosocial Factors, Data Analysis Software, Descriptive Research, Exploratory Research, Female, Human, Issues In Comprehensive Pediatric Nursing, Journal Article, Male, Murray Js, psychosocial, Purposive Sample, Questionnaires, Self Concept -- Evaluation, Self Concept -- In Infancy and Childhood, sibling bereavement, Siblings -- Psychosocial Factors, Southwestern United States, Support, T-Tests
Scoring evaluation of the natural course of mucopolysaccharidosis type IIIA (Sanfilippo syndrome type A)
Tags: 2007, Adolescent, Adult, Backlog, Braulke T, Child, Cohort Studies, Disease Progression, Female, Gal A, Humans, Infant, Journal Article, Kossow K, Longitudinal Studies, Male, Meyer A, Mucopolysaccharidosis III/classification/diagnosis/pathology, Muhlhausen C, Muschol N, Newborn, Pediatrics, Preschool, Q3 Scoping Review Results, Questionnaires, Research Design, Ullrich K
Satisfaction with information provided to Danish cancer patients: validation and survey results
Tags: 2013, 80 And Over, Adolescent, Adult, Aged, Backlog, Cross-sectional Studies, Denmark, Female, Groenvold M, Humans, Interviews As Topic, Johnsen AT, Journal Article, Lundstrøm LH, Male, Middle Aged, Neoplasms, Patient Education and Counseling, Patient Education as Topic, Patient Satisfaction, Petersen MA, Questionnaires, Ross L
Safety of polyethylene glycol 3350 for the treatment of chronic constipation in children
Tags: 2003, Adolescent, Alanine Transaminase/blood, Archives Of Pediatrics & Adolescent Medicine, Backlog, Bishop WP, Cathartics/therapeutic use, Child, Chronic Disease, Constipation/drug therapy, Encopresis/drug therapy, Female, Humans, Journal Article, Loening-Baucke V, Male, Non-U.S. Gov't, Pashankar DS, Patient Compliance, Polyethylene Glycols/therapeutic use, Preschool, Prospective Studies, Questionnaires, Research Support
Retaining young people in a longitudinal sexual health survey: a trial of strategies to maintain participation
Research priorities in pediatric palliative care: a delphi study
Tags: 2007, Attitude Of Health Personnel, Attitude To Health, Benchmarking, Bereavement, Bosma H, Cadell S, Canada, Child, Consensus, Davies B, Delphi Technique, Evidence-based Practice, Family/psychology, Fleming C, Fletcher JM, Humans, Journal Of Palliative Care, Needs Assessment/organization & administration, Pain/prevention & control, Palliative Care/organization & Administration, Pediatrics/organization & Administration, Practice Guidelines As Topic, Psychological/prevention & control, Questionnaires, Research Design, Research/organization & administration, Siden H, Steele R, Straatman L, Stress
Relationship between three palliative care outcome scales
Tags: 2004, 80 And Over, Adaptation, Adult, Aged, Backlog, Caregivers/psychology, Donaldson N, England, Family/psychology, Female, Health And Quality Of Life Outcomes, Higginson IJ, home care services, Hospitalization, Humans, Journal Article, Male, Middle Aged, Neoplasms/physiopathology/psychology/therapy, Outcome Assessment (Health Care)/methods, Palliative Care/psychology, Psychological, Psychometrics, Quality Of Life/psychology, Questionnaires, Sickness Impact Profile, Socioeconomic Factors
Reasons for dissatisfaction: A survey of relatives of intensive care patients who died
Tags: 1998, Adult, Age Distribution, Aged, Backlog, Badia F, Bettelini CM, Cause Of Death, Communication, Consumer Satisfaction/statistics & numerical data, Critical Care Medicine, Cross-sectional Studies, Death, Degrate A, Family/psychology, Female, Hospital, Humans, Intensive Care Units/standards, Journal Article, Malacrida R, Male, Martinez M, Medical Staff, Middle Aged, Non-U.S. Gov't, Piazza J, Professional-family Relations, Questionnaires, Rapin CH, Research Support, Switzerland, Terminal Care/psychology/standards, Vizzardi N, Wullschleger R