Browse Items (665 total)
- Tags: Pediatrics
Estimating The Global Need For Palliative Care For Children: A Cross-sectional Analysis
The need for children's palliative care (CPC) globally is unknown. To understand the scope of the need and to advocate to meet it, more accurate estimates are needed.
OBJECTIVES:
The objective of this study was to create an accurate global…
Ethics, Emotions, And The Skills Of Talking About Progressing Disease With Terminally Ill Adolescents: A Review.
For clinicians caring for adolescent patients living with progressive, life-threatening illness, discussions regarding prognosis, goals of care, and treatment options can be extremely challenging. While clinicians should respect and help…
Tags: 2016, Adolescent, Advanced Cancer, Analysis, Bad-news, Child, Communication, Emotions, End, Ethics, Feudtner C, JAMA Pediatrics, Lyon M, October 2016 List, Of-life Care, Parents, Pediatric Palliative Care, Pediatrics, Prognostic Disclosure, Psychological Aspects, Rosenberg AR, Teenagers, Wiener L, Wolfe J, Young Adult, Youth
Is It Taking Longer To Die In Paediatric Intensive Care In England And Wales?
INTRODUCTION:
All-cause infant and childhood mortality has decreased in the UK over the last 30 years. Advances in paediatric critical care have increased survival in paediatric intensive care units (PICUs) but may have affected how and when…
Tags: 2016, Archives of Disease in Childhood, Child, Childrens Hospitals, Complex Chronic Conditions, Death, Diseases, Health Aspects, Intensive Care, Intensive Care Units, Management, Mortality, October 2016 List, Outcomes Research, Parslow R, Pediatrics, Plunkett A, Prevalence, Risk Factors, Trends, Units
Measuring And Communicating Meaningful Outcomes In Neonatology: A Family Perspective
Medium- and long-term outcomes have been collected and described among survivors of neonatal intensive care units for decades, for a number of purposes: (1) quality control within units, (2) comparisons of outcomes between NICUs, (3)…
Tags: 2016, Annie Janviera, Barbara Farlow, Birth, Child, Communication, Composite End-points, Congenital Anomalies, Disability, Down-syndrome, Empathy, End-of-life Decision Making, Extreme Prematurity, Extremely Preterm Infants, Family-centered Care, Gestational Age, Jason Baardsnesf, Keith J Barringtona, Life-sustaining Interventions, Neonatal Intensive Care Unit, Neurodevelopmental Outcomes, Obstetrics & Gynecology, October 2016 List, Of-life Decisions, Palliative Care, Parents, Pediatrics, Rebecca Pearceg, Screening, Seminars in Perinatology
How Many Children And Young People With Life-limiting Conditions Are Clinically Unstable? A National Data Linkage Study
Design National cohort of CYP with LLCs using linked routinely…
Tags: 2016, Age, Archives of Disease in Childhood, Audits, Australian Casemix Classification, Bryony Beresford, Care And Treatment, College Admissions, Consortia, Councils, Datasets, Diseases, End-of-life Care, England, Ethnicity, Health Service, Hospice Care, Hospitals, Intensive Care Units, Life-limiting Conditions, Lorna K Fraser, Management, Medical Research, Minority & Ethnic Groups, Palliative Care, Pat Carragher, Patient Admissions, Patient Outcomes, Patterns, Pediatrics, Picanet, Prevalence, Quality, Registration, Roger C Parslow, Routine data, Scotland, September 2016 List, Stuart Jarvis, Studies
Pop Up: A New Model Of Paediatric Palliative Care
Supporting The Grieving Child And Family
Use Of Adult-trained Medical Subspecialists By Children Seeking Medical Subspecialty Care.
To quantify the use of adult-trained medical subspecialists by children and to determine the association between geographic access to pediatric subspecialty care and the use of adult-trained subspecialists. Children with limited access to…
Acceptability Of Family-centered Advanced Care Planning For Adolescents With Hiv
Tags: 2016, Adolescent, Adolescent Health Services/sn [statistics & Numerical Data], Adolescent Palliative Care Consortium, Advance Care Planning, Cheng Y I, Dallas R H, Family Nursing, Family/px [psychology], Female, Garcia A, Hiv Infections/px [psychology], Hiv Infections/th [therapy], Humans, Kimmel A, Lyon M, Male, Patient Acceptance Of Health Care/sn [statistics & Numerical Data], Pediatrics, Prospective Studies, Rana S, September 2017 List, Surveys And Questionnaires, United States, Wang J, Wilkins M L, Young Adult
Exhaust All Measures: Ethical Issues In Pediatric End-of-life Care
Tags: 2016, Cimino AN, Decision Making, Family, Health Personnel/px [psychology], Humans, Interviews As Topic, Journal of Social Work in End-of-Life & Palliative Care, Parents/px [psychology], Pediatrics, Professional-family Relations, Rueda HA, September 2017 List, Social Workers/px [psychology], Terminal Care/es [ethics], Terminal Care/px [psychology], Terminal Care/st [standards], Thieleman KJ, Wallace C, Withholding Treatment/es [ethics]
Why Palliative Care For Children Is Preferable To Euthanasia
Tags: 2016, Beneficence, Carter Brian S, Child, Child Welfare/ethnology, End Of Life, Ethics, Europe, Euthanasia, Euthanasia/ethics, Humans, May 2017 List, Palliative Care, Palliative Care/ethics, Pediatrics, Pediatrics/standards, Terminal Care/ethics, The American Journal of Hospice & Palliative Care
Listening To Parents: The Role Of Symptom Perception In Pediatric Palliative Home Care
Tags: 2016, Adult, Borasio GD, Brandstatter M, Cross Sectional Study, Death, Duroux A, Dyspnea/di [diagnosis], Female, Führer M, Grasser M, Home Care, Human, January 2017 List, Male, Pain/di [diagnosis], Palliative & Supportive Care, Palliative Therapy, Parent, Pediatrics, Perception, Procedures, Psychology, Quality Of Life, Questionnaire, Retrospective Study, Standards, Symptom Assessment, Vollenbroich R
Physician Communication In Pediatric End-of-life Care: A Simulation Study
Tags: 2016, American Journal of Hospice and Palliative Medicine, Bateman LB, Clair Jeffrey Michael, Dure Leon S, End-of-life Communication, January 2017 List, Needham Belinda L, Palliative Care, Pediatric End-of-life Care, Pediatrics, Physician–parent Communication, Qualitative Methods, Simulation, Therapeutic Processes, Tofil Nancy M, White Marjorie Lee
Risk Stratification For Opioid Misuse In Children, Adolescents, And Young Adults: A Quality Improvement Project
Tags: 2016, Ashby M, February 2017 List, Meyer M, Pediatrics, Porter K, Tate M, Thienprayoon R
Aligning Guidelines And Medical Practice: Literature Review On Pediatric Palliative Care Guidelines
Tags: 2017, Cancer, Children & Youth, De Clercq E, Death & Dying, Elger BS, Families & Family Life, Hospice Care, Literature Reviews, Medical Prognosis, Pacurari N, Pain Management, Palliative & Supportive Care, Palliative Care, Pediatric Nursing, Pediatrics, Quality Of Care, Rost M, September 2017 List, Wangmo T
Providing Pediatric Palliative Care Education Using Problem-based Learning
Use Of Spiritual Coping Strategies By Gender, Race/ethnicity, And Religion At 1 And 3 Months After Infant's/child's Intensive Care Unit Death
Children's End-of-life Health Care Use And Cost
Aspects And Intensity Of Pediatric Palliative Case Management Provided By A Hospital-based Case Management Team
Tags: 2017, American Journal of Hospice and Palliative Medicine, Bosman DK, Case Management, Child, Colenbrander DA, End-of-life Care, Grootenhuis MA, Jagt Van Kampen CT, Kars MC, May 2017 List, Only Child, Palliative Care, Palliative Care Team, Pediatrics, Retrospective Studies, Schouten-Van Meeteren AYN
[end-of-life In Specialized Medical Pediatrics Department: A French National Survey]
Tags: 2017, Accompagnement de fin de vie, Archives Pédiatrie, Aubry R, Desguerre I, End-of-life accompanying, Frache S, Hubert P, Intensive Care, March 2017 List, Neurologie, Neurology, Onco-hématologie, Onco-hematology, Orbach D, Pediatric Palliative Care, Pediatrics, Pédiatrie, Ravanello A, Réanimation, Soins palliatifs pédiatriques
Historical Developments In Children's Deep Brain Stimulation
Tags: 2017, Adult, Basal Ganglion, Brain Depth Stimulation, Central Nervous System, Child, Cif L, Clinical Feature, Clinical Outcome, Clinical Study, Coubes P, Degenerative Disease, Dystonia, Dystonia/su [surgery], Dystonic Disorder/su [surgery], European Journal of Paediatric Neurology, Globus Pallidus, Human, March 2017 List, Medical History, Myoclonus, Myoclonus Dystonia/su [surgery], Nerve Cell Network, Nerve Conduction, Neuromodulation, Palliative Therapy, Pediatrics, Priority Journal, Review, Side Effect, Subthalamic Nucleus, Surgery, Symptom, Thalamus, Thalamus Nucleus
Liminality In Pediatric Palliative Care
The Experiences Of Pediatric Social Workers Providing End-of-life Care
Training Pediatric Fellows In Palliative Care: A Pilot Comparison Of Simulation Training And Didactic Education
Volunteer Activity In Specialist Paediatric Palliative Care: A National Survey
Tags: 2015, Adolescent, Adult, BMJ Supportive & Palliative Care, Bravery R, Burbeck R, Candy B, Cross-sectional Study, England, Female, Health Care Survey, Home Care, Hospice, Hospice Care, Hospital Volunteer, Human, Internet, Low J, Male, Organization And Management, Palliative Therapy, Pediatrics, Procedures, Questionnaire, Sampson E L, Scott R, September 2017 List, Specialization, Statistics And Numerical Data, Young Adult
Hospital Use In The Last Year Of Life For Children With Life-threatening Complex Chronic Conditions
Tags: 2015, Ananth P, Berry JG, Feudtner C, July 2017 List, Melvin P, Pediatrics, Wolfe J
The Emergence Of Personal Growth Amongst Healthcare Professionals Who Care For Dying Children
Siblings' Voices: A Prospective Investigation Of Experiences With A Dying Child
Use Of Telehealth In Pediatric Palliative Care
A Mind-Body Approach to Pediatric Pain Management
Prioritisation of future research topics in paediatric palliative care in Ireland: a Delphi study
Tags: 2017, August 2017 List, Children, Databases Factual, Delphi Study, Delphi Technique, Devins M, Health Services Needs And Demand, Hospice Care, Humans, International Journal of Palliative Nursing, Ireland, Life-limiting Conditions, Ling J, McCarthy S, O'Reilly M, Palliative Care, Parents, Pediatrics, Quality Of Life, Quinn C, Research, Research Priorities, Siblings, Terminal Care, Twomey M
The AAP Resilience in the Face of Grief and Loss Curriculum
Tags: 2016, Adaptation Psychological, Adult, Attitude Of Health Personnel, Attitude To Death, August 2017 List, Baldwin CD, Bostwick S, Burke AE, Burnout Professional/prevention & Control, Church A, Clinical Competence, Curriculum, Education Medical Graduate/methods, Female, Gogo A, Grief, Hofkosh D, Humans, Internship And Residency/metho, King M, Linebarger J, McCabe ME, Moon M, Osta A, Pediatrics, Rana DT, Rivera F, Sahler OJ, Serwint JR, Smith K
Disparities in Pediatric Palliative Care: An Opportunity to Strive for Equity
Tags: 2017, Bona K, November 2017 List, Pediatrics, Wolfe J
Pain Assessment and Treatment in Children With Significant Impairment of the Central Nervous System
Tags: 2017, Analgesics/ Therapeutic Use, Autistic Disorder/ Complications, Benzodiazepines/therapeutic Use, Cerebral Palsy/ Complications, Child, Conflicts Of Interest To Disclose., Drug Therapy Combination, Hauer J, Houtrow AJ, Humans, Intellectual Disability/ Complications, November 2017 List, Pain Management/ Methods, Pain Measurement/ Methods, Pain/complications/diagnosis/ Drug Therapy, Pediatrics
Pediatric Cardiomyopathies
Navigating Decisional Discord: The Pediatrician's Role When Child and Parents Disagree
Guidance on forgoing life-sustaining medical treatment
Tags: 2017, Apparent Life Threatening Event/th [therapy], Article, Awareness, Boss RD, Caregiver, Carter BS, Child Abuse, Child Care, Christian CW, Clinical Decision Making, Comatose Patient, Consensus, Consultation, Critical Illness/th [therapy], Davies D, Death, Death By Neurologic Criteria, Dell ML, Developmental Disorder/th [therapy], Diekema DS, Disease Burden, Disease Course, Elster N, Ethical Decision Making, Extremely Low Gestational Age, Family Decision Making, Family Stress, Feudtner C, Flaherty EG, Fortson BL, Foster Care, Gavril AR, Gestational Age, Goal Attainment, Guinn-Jones M, Hauer JM, Health Belief, High Risk Population, Human, Humphrey LM, Hurley TP, Hydration, Idzerda SM, Imaizumi S, Imminent Death, Informed Consent, Intensive Care, Interpersonal Communication, Katz AL, Klick J, Klipstein S, Laskey A, Laventhal N, Legal Aspect, Legano LA, Leventhal JM, Life-sustaining Medical Treatment, Linebarger JS, Lord B, MacAuley RC, MacMillan H, Medical Ethics, Medical Expert, Medical Information, Medical Procedures, Medical Specialist, Medically Administered Nutrition And Hydration, Moon MR, Neglect, Neurologic Disease/di [diagnosis], November 2017 List, Nutrition, Okun AL, Opel DJ, Oxygenation, Pain/th [therapy], Palliative Therapy, Parker S, Patient Care Planning, Pediatrician, Pediatrics, Practice Guideline, Priority Journal, Prognosis, Quality Of Life, Resuscitation, Rivera F, shared decision making, Social Support, Spiritual Care, Statter MB, Stedt E, Survival, Teamwork, Terminal Care, Tissue Perfusion, Uncertain Prognosis, Weise KL
Pediatric Ethics and Communication Excellence (PEACE) Rounds: Decreasing Moral Distress and Patient Length of Stay in the PICU
Tags: 2017, Ackerman V, Adult, Benneyworth B, Clinical Ethics, Communication, Ethics Intervention, Female, HEC Forum, Humans, Icu Length Of Stay, Intensive Care Units Pediatric/ Ethics, Interprofessional Relations, Leland B, Length Of Stay, Life Support Care/ethics, Male, Middle Aged, Moral Distress, Nitu M, November 2017 List, Patel V, Pediatrics, Psychometrics/instrumentation/methods, Severity Of Illness Index, Stress Psychological/ Psychology, Teaching Rounds/manpower/methods, Tong Y, Unnecessary Procedures/ Ethics, Wocial L
When Technology Fails: Community-Based Pediatric Hospice
Tags: 2016, Biomedical Technology, Butler S, Child, Child Health Services/og [organization & Administration], Child Preschool, Female, Haas K, Health Care Reform, Hospice And Palliative Care Nursing/og [organization & Administration], Hospice Care/og [organization & Administration], Hospices/og [organization & Administration], Humans, Journal of Pediatric Nursing, Kramer N, Male, November 2017 List, Pediatrics, Quality Assurance Health Care, Residence Characteristics, Risk Assessment, Ryan JG, United States, Vizzachero N, Waechtler E