Aligning Guidelines And Medical Practice: Literature Review On Pediatric Palliative Care Guidelines

Title

Aligning Guidelines And Medical Practice: Literature Review On Pediatric Palliative Care Guidelines

Creator

De Clercq Eva; Rost Michael; Pacurari Nadia; Elger Bernice S; Wangmo Tenzin

Identifier

10.1017/S1478951516000882

Publisher

Palliative & Supportive Care

Date

2017

Subject

Cancer; Children & Youth; Death & Dying; Families & Family Life; Hospice Care; Literature Reviews; Medical Prognosis; Pain Management; Palliative Care; Pediatric Nursing; Pediatrics; Quality Of Care

Description

Objective: Palliative care for children is becoming an important subspecialty of healthcare. Although concurrent administration of curative and palliative care is recommended, timely referral to pediatric palliative care (PPC) services remains problematic. This literature review aims to identify barriers and recommendations for proper implementation of palliative care for children through the looking glass of PPC guidelines. Method: To identify studies on PPC guidelines, five databases were searched systematically between 1960 and 2015: Scopus, PubMed, PsycINFO, the Web of Science, and CINAHL. No restrictions were placed on the type of methodology employed in the studies. Results: Concerning barriers, most of the papers focused on gaps within medical practice and the lack of evidence-based research. Common recommendations therefore included: training and education of healthcare staff, formation of a multidisciplinary PPC team, research on the benefits of PPC, and raising awareness about PPC. A small number of publications reported on the absence of clear guidance in PPC documents regarding bereavement care, as well as on the difficulties and challenges involved in multidisciplinary care teams. Significance of results: Our results indicate that a critical assessment of both the research guidelines and medical practice is required in order to promote timely implementation of PPC for pediatric patients.;OBJECTIVEPalliative care for children is becoming an important subspecialty of healthcare. Although concurrent administration of curative and palliative care is recommended, timely referral to pediatric palliative care (PPC) services remains problematic. This literature review aims to identify barriers and recommendations for proper implementation of palliative care for children through the looking glass of PPC guidelines.METHODTo identify studies on PPC guidelines, five databases were searched systematically between 1960 and 2015: Scopus, PubMed, PsycINFO, the Web of Science, and CINAHL. No restrictions were placed on the type of methodology employed in the studies.RESULTSConcerning barriers, most of the papers focused on gaps within medical practice and the lack of evidence-based research. Common recommendations therefore included: training and education of healthcare staff, formation of a multidisciplinary PPC team, research on the benefits of PPC, and raising awareness about PPC. A small number of publications reported on the absence of clear guidance in PPC documents regarding bereavement care, as well as on the difficulties and challenges involved in multidisciplinary care teams.SIGNIFICANCE OF RESULTSOur results indicate that a critical assessment of both the research guidelines and medical practice is required in order to promote timely implementation of PPC for pediatric patients.;

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

September 2017 List

Notes

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Citation

De Clercq Eva; Rost Michael; Pacurari Nadia; Elger Bernice S; Wangmo Tenzin, “Aligning Guidelines And Medical Practice: Literature Review On Pediatric Palliative Care Guidelines,” Pediatric Palliative Care Library, accessed July 24, 2021, https://pedpalascnetlibrary.omeka.net/items/show/10767.

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