Prioritisation of future research topics in paediatric palliative care in Ireland: a Delphi study

Title

Prioritisation of future research topics in paediatric palliative care in Ireland: a Delphi study

Creator

Quinn C; McCarthy S; Devins M; O'Reilly M; Twomey M; Ling J

Publisher

International Journal Of Palliative Nursing

Date

2017

Subject

Palliative Care; Pediatrics; Research; Children; Databases Factual; Delphi Study; Delphi Technique; Health Services Needs And Demand; Hospice Care; Humans; Ireland; Life-limiting Conditions; Parents; Quality Of Life; Research Priorities; Siblings; Terminal Care

Description

This paper reports the findings from a Delphi Study undertaken to identify the research priorities in children's palliative care in Ireland. Palliative care for children is a small and highly specialised field of healthcare that focuses on improving the quality of life of children living with, or dying from, a life-limiting condition. Ideally, support for children requiring palliative care begins at the time of diagnosis, which for many children with life-limiting conditions can be from birth. There is a notable overlap between the needs of children requiring palliative care and those with disabilities and other complex care needs, resulting in care being provided by a range of voluntary and statutory agencies. As a new specialty, there is a need to develop an evidence-based approach to providing children's palliative care. In order to do this in a systematic way, identification of the research priorities in children's palliative care within Ireland is required.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

August 2017 List

PMID

PMID: 28245162

Citation

Quinn C; McCarthy S; Devins M; O'Reilly M; Twomey M; Ling J, “Prioritisation of future research topics in paediatric palliative care in Ireland: a Delphi study,” Pediatric Palliative Care Library, accessed January 25, 2022, https://pedpalascnetlibrary.omeka.net/items/show/10979.

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