Siblings' Voices: A Prospective Investigation Of Experiences With A Dying Child

Title

Siblings' Voices: A Prospective Investigation Of Experiences With A Dying Child

Creator

Russell CE; Widger K; Beaune L; Neville A; Cadell S; Steele R; Rapoport A; Rugg M; Barrera M

Publisher

Death Studies

Date

2017

Subject

Children; End-of-life; Palliative Care; Pediatrics; Sibling

Description

Sibling relationships reflect a unique childhood bond, thus the impact on a sibling when a child is seriously ill or dying is profound. We conducted a prospective, longitudinal qualitative study over two years using interpretive descriptive methodology to understand siblings' perspectives when a brother or sister was dying at home or in hospital. The insights from the 10 siblings revealed complex experiences, both personal and with the ill child, their families, and peers. These experiences were paradoxically sources of strain and of support, revealing the importance of validation and normalization in assisting siblings to successfully navigate the experience.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

July 2017 List

Notes

1091-7683
Russell, Ceilidh Eaton
Widger, Kimberley
Beaune, Laura
Neville, Alexandra
Cadell, Susan
Steele, Rose
Rapoport, Adam
Rugg, Maria
Barrera, Maru
Journal Article
United States
Death Stud. 2017 May 25. doi: 10.1080/07481187.2017.1334009.

Citation

Russell CE; Widger K; Beaune L; Neville A; Cadell S; Steele R; Rapoport A; Rugg M; Barrera M, “Siblings' Voices: A Prospective Investigation Of Experiences With A Dying Child,” Pediatric Palliative Care Library, accessed September 20, 2018, https://pedpalascnetlibrary.omeka.net/items/show/10959.

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