Browse Items (1534 total)
- Tags: Male
How can advance care planning tools help young people's voices be heard?
I feel like my house was taken away from me': Parents' experiences of having home adaptations for their medically complex, technology-dependent child
Tags: 2022, Adolescent, Adult, Article, August 2022 List, biotechnology, Blake L, Bray L, Carter B, Child, Chronic Patient, Conceptual Framework, Controlled Study, Decision Making, Dickinson A, disabled person, England, Father, Female, Health And Social Care In The Community, Heat, Home Care, Human, Human Experiment, Interview, Male, Mitchell TK, Mother, Patient Care, Preschool Child, regeneration, Scotland, Thematic Analysis, thinking, Wales, Wellbeing
Polypharmacy in children and young people with life-limiting conditions from 2000-2015: a repeated cross-sectional study in England
Tags: 2022, Adult, Age, Article, August 2022 List, Child, Chronic Disease, Cohort Analysis, congenital disorder, Controlled Study, Cross-sectional Study, Doran T, England, Female, Fraser LK, Gibson-Smith D, Hills M, Human, Jarvis S, Journal of Pain and Symptom Management, Major Clinical Study, Male, Neefjes V, Nervous System, Observational Study, Papworth A, Pediatrics, Polypharmacy, Prevalence, Taylor J, Young Adult
Impact of Concurrent Hospice Care on Primary Care Visits Among Children in Rural Southern Appalachia
"I Didn't Want My Baby to Pass, But I Didn't Want Him Suffering Either": Comparing Bereaved Parents' Narratives With Nursing End-of-Life Assessments in the Pediatric Intensive Care Unit
Tags: 2022, Article, August 2022 List, Broden EG, Cancer Patient, Child, Chronic Disease, Comfort, Controlled Study, Curley MAQ, Distress Syndrome, Hinds PS, Human, Infant, Intensive Care, Interview, Journal of Hospice and Palliative Nursing, Major Clinical Study, Male, Malignant Neoplasm, Memory, Narrative, Nursing, Pain, Pediatric Intensive Care Unit, Perception, quantitative analysis, Sedation, Terminal Care, Werner-Lin AV
Paediatric advance care planning in life-limiting conditions: Scoping review of parent experiences
Tags: 2022, Advance Care Planning, August 2022 List, Bennett HE, BMJ Supportive and Palliative Care, care behavior, Child, Cinahl, Comparative Study, Conversation, Decision Making, Duke S, Female, Human, Male, Medline, participatory research, Pediatrics, Quality Of Life, Review, Richardson A, sense of coherence, Systematic Review
Assessment of an Instrument to Measure Interdisciplinary Staff Perceptions of Quality of Dying and Death in a Pediatric Cardiac Intensive Care Unit
Parents' attitudes towards a difficult situation resulting from the chronic disease of their child
Tags: 2020, 2022 Special Edition 2 - Parent Perspectives, Adaptation, Adolescent, Adult, Annals of Agricultural and Environmental Medicine, Attitude To Health, Bartoszuk-Popko M, Brodowicz-Król M, Child, Children, Chronic Disease, difficult situation, Female, Guz E, Humans, Kulbaka E, Lutomski P, Male, Middle Aged, paediatric patient, Parental Attitudes, Parents, Parents/psychology, Poland, Preschool, Psychological
Parent moral distress in serious pediatric illness: A dimensional analysis
Identifying as a Good Parent: Considering the Communication Theory of Identity for Parents of Children Receiving Palliative Care
Tags: 2021, 2022 Special Edition 2 - Parent Perspectives, Adolescence, Child, Communication, compassion, Conceptual Framework, Coping, Family Centered Care, Hecht ML, Hinds PS, Journal of Palliative Medicine, Kellas JK, Male, Palliative Care, Parental Attitudes, Parenting, Parents, Pediatric Care, Personality, Professional-family Relations, Social Identity, Stress, Support, Theoretical models, Weaver MS
Factors associated with admission of children to an intensive care unit and readmission to hospital within 28 days of discharge: A population-based study
Tags: 2022, Admission, Adolescent, Ampt A, Australia, Bond DM, Child, Festa M, Hospital Mortality, Hospitals Public, Humans, Intensive Care, Intensive Care Units, Journal of Paediatrics and Child Health, Length Of Stay, Male, May 2022 List, Nassar N, Paediatrics, Patient Discharge, patient readmission, Pediatric Intensive Care Units, Population Health, Readmission, Retrospective Studies, Risk Factors, Schell D, Teo A
Assessment of Bereaved Caregiver Experiences of Advance Care Planning for Children With Medical Complexity
Tags: 2020, 2022 Special Edition 1 - Parent Perspectives, Advance Care Planning, Amin R, Beatty M, Bereavement, Caregivers, Child, Cohen E, Hellmann J, Infant, Interviews As Topic, JAMA Network Open, Lord S, Male, Moore C, multimorbidity, Netten K, Orkin J, Parents, Preschool Child, Rapoport A, Terminal Care
Parent Perspectives During Hospital Readmissions for Children With Medical Complexity: A Qualitative Study
Tags: 2020, 2022 Special Edition 1 - Parent Perspectives, Academic Medical Centers, Adolescent, Attitude To Health, Child, Chronic Disease, Continuity Of Patient Care, Freund KM, Health Knowledge, Attitudes, Practice, Health Services Accessibility, Hospital Pediatrics, Infant, Interviews As Topic, Krcmar R, Leary JC, LeClair AM, Male, Newborn Infant, Parents, patient readmission, Preschool Child, Qualitative Research, Yoon GH
Experience of Perinatal Death From the Father's Perspective
Engaging Fathers in Pediatric Palliative Care Research
Tags: 2020, 2022 Special Edition 1 - Parent Perspectives, Barrera M, Beaune L, Belletrutti M, Blumberg J, Caregiver, Child, Child Health, Controlled Study, Father, Health Care Personnel, Ing S, Interview, Journal of social work in end of life & palliative care., Male, Nicholas D, Palliative Therapy, Pediatrics, Perception, Qualitative Research, Rapoport A, Wellbeing
The effect of multidrug-resistant organisms on social participation and quality of life in children with life-limiting conditions
Tags: 2021, Child, Child Preschool, Cross Infection/prevention & control, Cross-sectional Studies, Drug Resistance Multiple, Female, Hartenstein-Pinter A, Hasan C, Hospital Units, Humans, hygiene, Infant, Infection Control/organization & administration, Inservice Training, International Journal of Palliative Nursing, Interviews As Topic, Male, May 2021 List, Nursing Assessment, Paediatrics, Palliative Care, Parents, Patient Isolation, Patient Safety, Quality Of Life, Schmidt P, Social Participation, Stening K, Stereotyping, Surveys And Questionnaires, Terminally Ill, Wager J, Zernikow B
Caregiver-Child Discrepancies in Reports of Child Emotional Symptoms in Pediatric Chronic Pain
Tags: 2020, Allyn KE, anxiety, Anxiety/epidemiology, April 2021 List, Caregivers, Child, Children, chronic and recurrent pain, Chronic Pain, Depression, Emotions, Female, Humans, informant discrepancies, Journal of Pediatric Psychology, Male, Martin SR, Pain Measurement, Parents, Payne LA, Quality Of Life, Seidman LC, Zeltzer LK
Insights into the perception that research ethics committees are a barrier to research with seriously ill children: A study of committee minutes and correspondence with researchers studying seriously ill children
Tags: 2020, Adolescent, April 2021 List, Bluebond-Langner M, Butler AE, Child, Child Preschool, Content Analysis, Ethics Committees, Ethics Committees Research, Female, Human Experimentation/ethics, Humans, Infant, Infant Newborn, Male, Palliative Medicine, Research, Research Design, Terminally Ill, United Kingdom, Vincent K
Parent engagement in perinatal mortality reviews: an online survey of clinicians from six high-income countries
Tags: 2021, April 2021 List, Bakhbakhi D, Bereavement Care, Bjog, Boyle FM, Burden C, Cross-sectional Studies, Developed Countries, Female, Flenady V, Health Care Surveys, Horey D, Humans, Infant Newborn, Male, Medical Audit/methods, parent engagement, Parents, Patient Participation, Patient Safety, Perinatal Mortality, perinatal mortality review, Siassakos D, Silver RM, Stillbirth
Experiences at the End of Life From the Perspective of Bereaved Parents: Results of a Qualitative Focus Group Study
Tags: 2020, Adult, American journal of hospice & palliative care, Bereavement, Cancer, Child, Communication, Continuity Of Patient Care/organization & Administration, Cousino MK, End Of Life, Female, Focus Groups, Hospice Care/organization & administration/psychology, Humans, Hutchinson R, Male, March 2021 List, Middle Aged, Palliative Care, Palliative Care/organization & administration/psychology, Parents/psychology, Paul TK, Pituch K, Professional-family Relations, Quality Of Life, Sedig LK, Spruit JL, Terminal Care/organization & administration/psychology, Time Factors
Healthcare utilization and costs of pediatric home mechanical ventilation in Canada
Tags: 2020, Adult, Ambulatory Care/economics, Amin R, Canada, Caregivers/economics, Child, Child Preschool, Coyte PC, Female, Guerriere D, Health Care Costs, Health Expenditures, healthcare costs, healthcare utilization, Home Care Services/economics, home mechanical ventilation, Humans, Katz SL, long-term mechanical ventilation, Longitudinal Studies, Male, March 2021 List, McKim DA, Middle Aged, Nonoyama ML, Patient Acceptance of Health Care, Pediatric Pulmonology, Pediatrics, Prospective Studies, Quality Of Life, Respiration Artificial/economics, Rose L, Tracheostomy, ventilator assisted individual, Wasilewski M, Zagorski B
Use of standardized body composition measurements and malnutrition screening tools to detect malnutrition risk and predict clinical outcomes in children with chronic conditions
Tags: 2020, Adolescent, American Journal of Clinical Nutrition, Anthropometry, Body Composition, Child, Child Preschool, Child Development, Child Nutrition Disorders/diagnosis, Chronic Disease, Clinical outcomes, Fawbert K, Female, Fewtrell M, Hill S, Humans, Kennedy K, Lara-Pompa NE, Macdonald S, Male, malnutrition, March 2021 List, nutritional risk, pediatric patients, Risk Factors, Screening, Shaw V, Valente J, Wells JC, Williams J
Parent-Reported Symptoms and Medications Used Among Children With Severe Neurological Impairment
Tags: 2020, Adolescence, Blackmer AB, Central Nervous System Agents -- Therapeutic Use, Child, Child Preschool, Comorbidity, Confidence Intervals, Cross Sectional Studies, Data Analysis Software, Descriptive Statistics, Fairclough DL, Feinstein JA, Female, Feudtner C, Funding Source, Gregoire LA, Health Resource Utilization, Holstein J, Human, Infant, JAMA Network Open, Kempe A, Male, March 2021 List, Nervous System Diseases -- Epidemiology -- In Adolescence, Nervous System Diseases -- Epidemiology -- In Infancy and Childhood, Nervous System Diseases -- Symptoms, Peripheral Nervous System Agents -- Therapeutic Use, Polypharmacy, Record Review, Samay S, scales, Severity of Illness, Valuck RJ
Genome Sequencing as a Diagnostic Test in Children With Unexplained Medical Complexity
Tags: 2020, Arje D, Buera J, Canada, Child, Child Preschool, Chitayat D, Cohen E, Cohn RD, Costain G, Curtis M, Female, Genetic Testing/statistics & numerical data, Hayeems RZ, Humans, JAMA Network Open, Luca S, Male, Marano M, March 2021 List, Marshall CR, Mendoza-Londono R, Meyn MS, Orkin J, Predictive Value of Tests, Prospective Studies, Reproducibility of Results, Reuter MS, Scherer SW, Snell M, Somatoform Disorders/diagnosis, Stavropoulos DJ, Sung WWL, Thiruvahindrapuram B, Trost B, Veenma D, Walker S, Whole Genome Sequencing/statistics & numerical data, Yuen RKC
Medical complications in a telemedicine home care programme for paediatric ventilated patients
Tags: 2020, Brines J, Cantavella T, Child, Child Preschool, chronic respiratory failure, Domínguez A, February 2021 List, Female, Flor-Macián EM, Home Care Services/organization & administration/statistics & numerical data, Hospitalization/statistics & numerical data, Humans, Intensive Care Units Pediatric/organization & administration/statistics &, invasive mechanical ventilation, Journal Of Telemedicine And Telecare, López-Prats JL, life-threatening event, Male, Monitoring Physiologic, Muñoz-Bonet JI, numerical data, paediatric home care, Prospective Studies, Quality Of Life, Respiration Artificial/adverse effects/methods, Telemedicine, Telemedicine/organization & administration/statistics & numerical data, Tracheotomy/rehabilitation, ventilator-dependent children, Vidal Y
Parent moral distress in serious pediatric illness: A dimensional analysis
Tags: 2020, Child, Child Health/standards, Critical Illness/psychology/therapy, Ethics of care/care ethics, February 2021 List, Female, Humans, Male, Mooney-Doyle K, Moral Distress, Neonatal Care, Nursing Ethics, Palliative Care, Parents/psychology, pediatric practice, Pediatrics/methods/standards, Stress Psychological/etiology/psychology, theory/philosophical perspectives, Ulrich CM
Defining Legacy: The Perceptions of Pediatric Health Care Providers
Tags: 2020, Adaptation Psychological, Attitude To Death, Boles J, Child, Child Hospitalized/psychology, Clinical Pediatrics, Cook J, Dunbar J, February 2021 List, Female, Health Care, Humans, Jones M, legacy, Male, Parents/psychology, Pediatrics, Pediatrics/standards, perceptions, Physician's Role, Providers, Social Support, Terminal Care/psychology, Terminally Ill/psychology
Helping parents prepare for their child's end of life: A retrospective survey of cancer-bereaved parents
Tags: 2020, Adolescent, Adult, Aged, Article, Battles H, Bedoya S Z, Bereavement, Caregiver, Child, childhood cancer/dm [Disease Management], Content Analysis, Emotion, Female, Gerhardt C A, health care need, Human, Infant, Interpersonal Communication, Mack J, Major Clinical Study, Male, Newborn, Nurse, Oncology 2020 List, open ended questionnaire, Parent, Pediatric Blood and Cancer, pediatric oncologist, pediatric patient, Priority Journal, Psycho-Oncology, Psychologist, Quality Of Life, quantitative analysis, Retrospective Study, social media, Social Support, Social Worker, support group, Tager J, Terminal Care, Thematic Analysis, time of death, Wiener L, worker
Oral and dental considerations in pediatric cancers
Tags: 2020, Adolescent, Cancer metastasis reviews, cancer prevention, cancer screening, Cancer Survival, cancer survivor, Cancer Therapy, Child, Childhood Cancer, Chrisentery-Singleton T E, Complication, Counseling, dental procedure, English (language), Female, Human, immunosuppressive treatment, Male, Medline, mouth infection, mucosa inflammation, occupation, Oncology 2020 List, Pain, Palliative Therapy, pediatric dentist, Practice Guideline, Prevention, Review, Ritwik P, Survival Rate, Systematic Review, tooth malformation, vulnerable population
Factors During a Child's Illness Are Associated With Levels of Prolonged Grief Symptoms in Bereaved Mothers and Fathers
Tags: 2020, Adolescent, Adult, Attitude To Death, Child, Fathers/psychology, Female, Grief, Humans, Journal Of Clinical Oncology, Kreicbergs U, Male, Middle Aged, Mothers/psychology, Neoplasms/*psychology, Oncology 2020 List, Parent-child Relations, Parents/*psychology, Pohlkamp L, Sex Factors, Surveys And Questionnaires, Sveen J
Customized pediatric palliative care: Integrating oncological and palliative care priorities
Tags: 2020, Acta Paediatrica, Ambroset S, Armiraglio M, Article, Cancer Patient, Cancer Prognosis, Cancer Staging, Cancer Therapy, Casiraghi G, Central Nervous System Tumor, Child, Childhood Cancer, Clerici C, Clinical Article, Cohort Analysis, Controlled Study, Female, Grossi A, Hospice, Human, Human Tissue, Intensive Care Unit, Lonati G, Male, Massimino M, Oncology 2020 List, Palliative Therapy, Phase 1 Clinical Trial (topic), Podda M, Prognosis, Rizzi B, Sarcoma, Schiavello E, Visconti G
Unrealistic parental expectations for cure in poor-prognosis childhood cancer
Tags: 2020, Article, Bagatell R, Baker J N, Cancer, Cancer Palliative Therapy, Cancer Prognosis, Cancer Recurrence, cancer risk, Child, Childhood Cancer, Clinical Decision Making, Cohn S L, Cohort Analysis, confidence interval, Controlled Study, Cronin A M, Diller L R, Expectation, Female, Glade Bender J, Granger M M, High Risk Population, Human, Interpersonal Communication, Levine A, Mack J W, Major Clinical Study, Male, Marachelian A, Medical Record, Neuroblastoma, Odds Ratio, Oncology 2020 List, parental behavior, Park J, Patient Care, pediatric patient, Priority Journal, Prospective Study, Quality Of Life, Questionnaire, Rosenberg A, Shusterman S, Taddei S, theoretical model, Twist C J, Uno H
Examining key sociodemographic characteristics of adolescents and young adults with cancer: A post hoc analysis of the Promoting Resilience in Stress Management randomized clinical trial
Tags: 2020, Adolescent, Article, Bona K, Bradford M C, cancer center, cancer specific quality of life, Child, Connor-Davidson Resilience Scale, Controlled Study, Coping Behavior, environmental resilience, Female, Hope Scale, Human, Lau N, Major Clinical Study, Male, McCauley E, Oncology 2020 List, outcome assessment, Palliative Medicine, Palliative Therapy, patient-reported outcome, Pediatric Quality of Life Inventory, Post Hoc Analysis, Psychological Distress Scale, psychosocial development, Quality Of Life, Randomized Controlled Trial, Rosenberg A R, School Child, Scott S, Socioeconomics, Steineck A, stress management, Total Quality Management, Treatment Outcome, Yi-Frazier J P, Young Adult
Massage therapy for symptom reduction and improved quality of life in children with cancer in palliative care: A pilot study
Tags: 2020, Adolescent, Article, Carcinoma, Child, Clinical Article, Complementary Therapies in Medicine, Controlled Study, Expectation, Female, Follow Up, Genik L M, Human, Leukemia, Lymphoma, Male, Marshall S, Massage, McMurtry C M, Oncology 2020 List, Pain, Pain Measurement, Palliative Therapy, patient worry, Pilot Study, Quality Of Life, Quantitative Study, Rapoport A, Sarcoma, Stinson J
Defining the Boundaries of Palliative Care in Pediatric Oncology
Tags: 2020, Article, Boss R D, Cancer Patient, Child, Childhood Cancer, Comfort, Content Analysis, Controlled Study, Cuviello A, Donohue P K, Female, genetic transcription, Human, Interview, Journal of Pain and Symptom Management, Major Clinical Study, Male, Mental Health, Nurse Practitioner, Oncology 2020 List, Palliative Therapy, pediatric oncologist, Quality Of Life, Raisanen J C, Skill, standardization, Terminal Care, Wiener L
"It's more difficult...": Clinicians' experience providing palliative care to adolescents and young adults diagnosed with advanced cancer
Tags: 2020, Adolescent, Adult, Advanced Cancer, Advanced Practice Nurse, Aged, al-Awamer A, Article, Avery J, Canada, Cancer Palliative Therapy, care behavior, clinician parent communication difficulty, counter transference, D'Agostino N M, Experience, Family, Female, Geist A, Gupta A, Health Personnel Attitude, Human, Journal of Oncology Practice, Kassam A, Kawaguchi S K, Mahtani R, Male, Mazzotta P, medical oncologist, Mosher P J, Oncology 2020 List, Perception, Physician, psychiatrist, Qualitative Research, radiation oncologist, Samadi M, Semi Structured Interview, Srikanthan A, Tam S, tertiary care center, Thematic Analysis, theoretical study, Young Adult, Zimmermann C
Transforming a Face-to-Face Legacy Intervention to a Web-Based Legacy Intervention for Children With Advanced Cancer
Tags: 2020, Adolescent, Advanced Cancer, Akard T F, Article, Cancer Recurrence, cancer resistance, Caregiver, Child, Dietrich M S, Female, Friedman D L, Gerhardt C A, Gilmer M J, Given B, Hendricks-Ferguson V, Hinds P S, Human, Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association, Major Clinical Study, Male, Oncology 2020 List, Palliative Therapy, Satisfaction, Wray S
Basic neonatal resuscitation skills of midwives and nurses in Eastern Ethiopia are not well retained: An observational study
Tags: 2020, Adolescent, Adult, Asphyxia Neonatorum/*therapy, Checklist, Clinical Competence, Cross-sectional Studies, Desalew A, Developing World 2020 List, Education, Ethiopia, Female, Geda B, Humans, Infant, Male, Mezmur H, Middle Aged, Midwifery/*education, Mulatu T, Neonatal Nursing/*education, Newborn, Nursing/statistics & numerical data, PLoS One, Pregnancy, Resuscitation/*methods, Shiferaw K, Sintayehu Y, Tiruye G, Young Adult
Safety and pharmacokinetics of medical cannabis preparation in a monocentric series of young patients with drug resistant epilepsy
Tags: 2020, Adolescent, Adult, Astuni P, Barco S, Calevo MG, Cangemi G, Cannabidiol (CBD), Child, Child Preschool, childhood, Complementary Therapies in Medicine, De Grandis E, Delta-9-tetrahydrocannabinol (THC), Dose-Response Relationship Drug, Drug Resistant Epilepsy/drug therapy, Drug-resistant epilepsy, Female, Fucile C, Gherzi M, Humans, January 2021 List, Male, Mancardi MM, Manfredini L, Marini V, Mattioli F, Medical cannabis galenic preparation, Medical Marijuana/administration & dosage/adverse effects/pharmacokinetics, Milano G, Nobili L, Prospective Studies, Young Adult
Undernutrition at PICU Admission Is Predictor of 60-Day Mortality and PICU Length of Stay in Critically Ill Children
Tags: 2020, Adolescent, Anthropometry, Barbosa E, Body Mass Index, Brazil/epidemiology, Bresolin N L, Child, Child Nutrition Disorders/*mortality, Critical Illness/*mortality, Female, Hauschild D B, Humans, Infant, Intensive Care Units, Journal of the Academy of Nutrition and Dietetics, Kawai K, Length Of Stay, Length of Stay/*statistics & numerical data, Male, malnutrition, Mehta N M, Moreno Y M F, Mortality, November 2020 List, Nutritional Status, Patient Admission/*statistics & numerical data, Patient Discharge/statistics & Numerical Data, Pediatric Intensive Care Unit, Pediatric/*statistics & numerical data, Predictive Value of Tests, Preschool, Proportional Hazards Models, Prospective Studies, Regression Analysis, Time Factors, Ventura J C