Browse Items (357 total)

Tags: 2016, aberrant behavior, American Journal of Medical Genetics Part C - Seminars in Medical Genetics, Autism spectrum disorder, Behavior, behavioral problems, Brain, characteristics, Checklist, Clemens J, Cornelia de Lange syndrome, De Lange syndrome, functional connectivity, Genetics & Heredity, Grados M A, hypoplasia, INDIVIDUALS, Kimball A, Kliewer M A, Kline A D, Lal T R R, Lopes T, mental-retardation, MRI, mutations, neuroanatomy, nipped-b, O'Connor J, Phenotype, Rebsamen S L, Trajectory

Tags: 2016, Abramson JM, Chen X, Diamant AL, Dimand R, Ferrell B, Gans D, Hadler MW, Journal of Pain and Symptom Management, Kominski GF, May 2016 List, Palliative Concurrent Care Cost Pediatric Policy, Wu SH

Tags: 2016, Alderfer MA, Backlog, Caes L, Couples, Goubert L, intimate relationships, Journal Article, Oncology, Parents, Pediatric Cancer, Psycho-Oncology, Systematic Review, Van Schoors M, Verhofstadt L

Tags: 2016, Biomedical Research, Cadell S, Charting the territory, Female, Humans, Male, Palliative Care, Palliative Medicine, Parents/psychology, Patient Selection, Research Design/standards, Siden H, Steele R

Tags: 2016, Communication, Consumer Health Information, Death, Decision Making, Decision-making, End-of-life Care, Female, Health Communication, Humans, Linguistics, Male, May 2016 List, Parents/psychology, Patient Education and Counseling, Pediatrics, Perinatal Death, Pregnancy, Professional-family Relations, Terminal Care/methods, Terminally Ill, Watkins A, Wilkinson D, Xafis V

Tags: 2016, Bousso R, Journal of Pain and Symptom Management, March 2016 List, Misko M, Santos MR

Tags: 2016, Adolescent, Adult, Aged, Aquino C C, Article, ataxia telangiectasia, ataxia telangiectasia/di [Diagnosis], ataxia telangiectasia/dt [Drug Therapy], atypical dopa responsive dystonia/di [Diagnosis], atypical dopa responsive dystonia/dt [Drug Therapy], Baclofen/dt [drug Therapy], Beaulieu-Boire I, benzodiazepine derivative/dt [Drug Therapy], Brain Depth Stimulation, Brain Stimulation, Burke Fahn Marsden Dystonia Rating Scale, cerebellar ataxia/di [Diagnosis], cerebellar ataxia/dt [Drug Therapy], Child, chorea/di [Diagnosis], chorea/dt [Drug Therapy], Clinical Article, clinical assessment, Clinical Effectiveness, clobazam/dt [Drug Therapy], clonazepam/dt [Drug Therapy], deep brain stimulation, diazepam/dt [Drug Therapy], disease duration, Disease Severity, Dystonia, dystonia/di [Diagnosis], dystonia/dt [Drug Therapy], Dystonic Disorder/su [surgery], dystonic disorder/th [Therapy], entacapone/cb [Drug Combination], entacapone/dt [Drug Therapy], escitalopram/dt [Drug Therapy], extrapyramidal syndrome/di [Diagnosis], extrapyramidal syndrome/dt [Drug Therapy], Fallis M, Fasano A, Follow Up, gabapentin/dt [Drug Therapy], haloperidol/dt [Drug Therapy], Hodaie M, Human, Inherited dystonia, Kalia S K, Lang A E, levodopa/dt [Drug Therapy], lorazepam/dt [Drug Therapy], Lozano A, MCM deficiency, methylmalonic aciduria/di [Diagnosis], methylmalonic aciduria/dt [Drug Therapy], Middle Aged, mirtazapine/dt [Drug Therapy], Moro E, motor dysfunction assessment, NCL, Nemaline myopathy, nemaline myopathy/di [Diagnosis], nemaline myopathy/dt [Drug Therapy], neuronal ceroid lipofuscinosis/di [Diagnosis], neuronal ceroid lipofuscinosis/dt [Drug Therapy], olanzapine/dt [Drug Therapy], outcome assessment, Phenotype, Poon Y Y, pramipexole/cb [Drug Combination], pramipexole/dt [Drug Therapy], Preoperative Care, Priority Journal, Rating Scale, risperidone/dt [Drug Therapy], School Child, selegiline/cb [Drug Combination], selegiline/dt [Drug Therapy], Surgery, surgical intervention, tetrabenazine/dt [Drug Therapy], therapy effect, time to treatment, tizanidine/dt [Drug Therapy], tone and motor problems, trazodone/dt [Drug Therapy], Treatment, trihexyphenidyl/cb [Drug Combination], trihexyphenidyl/dt [Drug Therapy], Trisomy/di [diagnosis], trisomy/dt [Drug Therapy], Wilson disease/di [Diagnosis], Wilson disease/dt [Drug Therapy], woodhouse sakati syndrome/di [Diagnosis], woodhouse sakati syndrome/dt [Drug Therapy], x trisomy/di [Diagnosis], x trisomy/dt [Drug Therapy]

Tags: 2016, Archives of Disease in Childhood. Fetal and Neonatal Edition, August 2016 List, Birth, Challenge, Comfort Care, Death, Decision Making, Delivery Room, Delivery Rooms, Dying, Epipage-2, Extreme Prematurity, Infant, Management, Palliative Care, Pediatrics, Perinatal Palliative Care, Perspectives, Weeks Gestation, X Durrmeyer

Tags: 2016, Archives of Disease in Childhood. Fetal and Neonatal Edition, Children's Rights, Delivery Rooms, Ethics, Europe/epidemiology, Gestational Age, Humans, Infant, Infant Extremely Premature, Infant Mortality, Intensive Care Neonatal, Janvier A, Lantos J, Neonatology, October 2016 List, Palliative Care, Prognosis, Resuscitation, Survival Rate

Tags: 2016, Adolescent, Adult, Ali H, Annals of Epidemiology, Bangladesh, Bangladesh/epidemiology, Christian P, Cohort Studies, Databases Factual, Depression/ epidemiology/etiology, Depressive symptoms, Developing Countries, Developing World 2018 List, Female, Humans, Incidence, Infant, Infant Newborn, Infant Mortality, Klemm R, Labrique A, Maternal Health, Mehra S, Mental Health, Mothers/ Psychology, Needs Assessment, Neonatal Death, Perinatal Mortality/trends, Postpartum Period, Pregnancy, Rashid M, Retrospective Studies, Risk Assessment, Rural Population, Sakyi K, Stillbirth, Stillbirth/ ethnology, Strobino DM, Surkan PJ, Ullah B, West KP, Wu L, Young Adult

Tags: 0 (Methyl-CpG-Binding Protein 2), 2016, Adolescent, Adult, American Journal of Medical Genetics Part A, Anderson B, Boban S, characteristics, Child, Child Preschool, Downs J, Epilepsy/di [diagnosis], Epilepsy/ge [Genetics], Epstein A, Genetic Association Studies, Genotype, Humans, Infant, Infant Newborn, Leonard H, Methyl-CpG-Binding Protein 2/ge [Genetics], Middle Aged, Murphy N, Mutation, Phenotype, Rett syndrome, Rett Syndrome/di [Diagnosis], Rett Syndrome/ge [Genetics], Rett Syndrome/pp [Physiopathology], Severity Of Illness Index, sleep disturbance/disorders, Sleep Wake Disorders/di [Diagnosis], Sleep Wake Disorders/ge [Genetics], Trajectory, Wong K, Young Adult

Tags: 2016, Altstein

LL, Attitude Of Health Personnel, Buxton D, Curriculum, Cystic Fibrosis, Cystic Fibrosis/psychology, Cystic Fibrosis/therapy, Disease Management, Education, End-of-life Care, Female, Friedman D, Georgiopoulos AM, Health Personnel/education, Health Personnel/psychology, Humans, Journal of Cystic Fibrosis, Linnemann RW, Male, March 2016 List, Middle Aged, Needs Assessment, O’Malley PJ, Palliative Care, Palliative Care/methods, Palliative Care/psychology, Quality Of Life, Surveys And Questionnaires, Terminal Care/methods, Terminal Care/psychology, United States

Tags: 2016, Adolescent, Adult, Attitudes, Brain Death/ diagnosis, brain-dead organ donation, Bresnahan M, communicating with family about brain death, Communication, Cross-sectional Studies, Decision Making, End-of-life Decision Making, Factor Analysis, Family, Female, first-person organ donation consent laws, Health Knowledge, Humans, Journal Of Health Psychology, Male, March 2018 List, Middle Aged, misconceptions about brain death, Practice, Reproducibility of Results, statistical, Tissue and Organ Procurement, Young Adult, Zhuang J

Tags: 2016, 24/7, April 2016 List, Children's Palliative Care, End Of Life, Funding Palliative Care, International Journal of Palliative Nursing, Logic Model, Lynn D, Maynard L, Out Of Hours, Palliative Care/organization & Administration, Research, Symptom Management

Tags: 2016, Adolescent, ataxia telangiectasia, ataxia telangiectasia/di [Diagnosis], Ataxia Telangiectasia/ep [Epidemiology], Ben-Zeev B, Borgohain R, Brief Ataxia Rating Scale, Child, Child Preschool, D'Agnano D, European Journal of Paediatric Neurology, Female, Hegde A U, Humans, ICARS, Leuzzi V, Male, Micheli R, Molinaro A, Mridula K R, Nissenkorn A, Pediatrics/mt [methods], SARA, scale development, Severity Of Illness Index, tone and motor problems, tool development, Yareeda S

Tags: 2016, 7 dehydrocholesterol/ec [Endogenous Compound], 8 dehydrocholesterol/ec [Endogenous Compound], adaptive behavior, Adolescent, Adult, Aggression, Albert P, Article, Autism, automutilation, Behavior, Bianconi S, Bukelis I, Case Study, cerebrospinal fluid level, characteristics, Child, Child Rearing, childhood, cholesterol/ec [Endogenous Compound], Clinical Article, Cognition, delayed development, development, Developmental delay, Farmer C, Female, Human, Intelligence Quotient, Interpersonal Communication, Joseph L, Journal of Neurodevelopmental Disorders, Lanham D, Male, Observational Study, Parent, Porter F D, Preschool Child, Priority Journal, problem behavior, Sarphare G, Smith Lemli Opitz syndrome, Smith-Lemli-Opitz syndrome, Socialization, Stanford-Binet Intelligence Scale, Sterols, Swedo S, Thurm A, Tierney E, tone and motor problems, Trajectory, Unclassified Drug, Walking, Wassif C A, Wheeler C, Young Adult

Tags: 2016, adenotonsillectomy, advice to interrupt tongue protrusion, antireflux medication, bilateral submandibular gland excision, Blommaert D, Erasmus C E, feeding advice, feeding difficulties, Hoogen F J A van den, Journal of Child Neurology, MEGDEL syndrome, parotid duct ligation, pharmacological intervention, surgical intervention, van Hulst K, Wortmann S B

Tags: *Adaptation, Psychological, *Fathers/px [Psychology], *Intensive Care Units, Neonatal, *Intensive Care, Neonatal/px [Psychology], *Mothers/px [Psychology], *Parent-Child Relations, *Professional-Family Relations, 2016, 2023 SE4 - Parent Perspectives, Adult, Bmc Pediatrics, Female, Hagen, I H, Humans, Infant, Newborn, Intensive Care Units, Neonatal/og [Organization & Administration], Intensive Care, Neonatal/mt [Methods], Intensive Care, Neonatal/og [Organization & Administration], Iversen, V C, Male, Middle Aged, Object Attachment, Qualitative Research, Social Support, Svindseth, M F

Tags: 2016, Borowitz D, Dellon E, Journal of Pain and Symptom Management, March 2016 List, Prieur M, Saunders J, Walter M

Tags: 2016, Children, complications, dilatation, Dysphagia, Endoscopic, epidermolysis bullosa, Esophageal stenosis, esophageal stricture dilatation, Esophagus, feeding difficulties, Gastroenterology & Hepatology, gastrointestinal manifestations, Karaman M, Management, Markos P, Murat-Susic S, Omerza L, Pulanic R, Rustemovic N, surgical intervention

Tags: 2016, Behavior, breathing difficulties, characteristics, Cianfaglione R, Clarke A, Felce D, hand stereotypies, Hastings R P, Journal of Developmental and Physical Disabilities, Kerr M, Meek A, Rett syndrome, self-injury, stereotypy, tone and motor problems, Trajectory

Tags: 2016, A Morris, Archives of Disease in Childhood, J Dale, K Bennett, S Mitchell, September 2016 List

Tags: 2016, Attitude Of Health Personnel, Decision Making, Female, Fetal Congenital Malformation, Fetus/abnormalities, Fleming V, Gaps, Genetic Counseling/psychology, Humans, Iljuschin I, Interviews As Topic, Male, March 2016 List, Maurer F, Midwifery, Parents/psychology, Parpan F, Pehlke-Milde J, Pregnancy, Prenatal-diagnosis, Surveys And Questionnaires, Switzerland, Temporality, Thematic Analysis

Tags: 2016, Archives of Disease in Childhood, Child, Children & Youth, Chronic Illnesses, Death, Decision Making, Demographics, Epidemiology, Ethics, Intensive Care, J Weitz, July 2016 List, Life, Mortality, Pain, Pediatrics, Wilkinson D

Tags: 2016, Advance Care Planning, Child: Care, Health and Development, Children & Youth, Decision Making, Decision-making, Derrington SF, End Of Life, End Of Life Care, Hospice Care, Liberman DB, March 2016 List, Palliative Care, Patient Care Planning, Pham PK, Physicians, Primary Care, Radbill LM, Song E, Special-needs Children, Special‐needs Children

Tags: 2016, Adhd, Biomedical Research, Brain/embryology/ physiopathology, Cerebral Palsy, Developmental Disabilities/etiology/ physiopathology, Diseases/ physiopathology, Extremely Premature/growth & development/physiology/psychology, Fetal Organ Maturity, Hintz SR, Humans, Infant, Intellectual Impairment, intraventricular hemorrhage, March 2018 List, Neonatology, Nervous System Diseases/etiology/ physiopathology, neurodevelopment, Neurodevelopmental Outcomes, Newborn, Premature, preterm birth, Risk Factors, Rogers EE, Seminars in Perinatology, sensory impairment, Survival Rate/trends, Very Low Birth Weight/growth & development/physiology/psychology, white matter injury

Tags: 2016, Balzer S, Borkhardt A, chromosome 18q deletion, dronabinol, European Journal of Paediatric Neurology, Gagnon G, Hoell J I, Janßen G, Kuhlen M, Lissencephaly Type 1, Metachromatic Leukodystrophy, NCL3, Oommen P T, pharmacologic intervention, Spasticity, tone and motor problems

Tags: 2016, Chang YC, Clinical Education, Confidence, December 2016 List, DeSwarte-Wallace J, Huang LC, Lee CH, Lee MC, Nurses, Pediatric Palliative Care, Pediatricians, Peng NH, Western Journal of Nursing Research

Tags: 2016, Anencephaly/diagnosis, Anencephaly/therapy, Attitude Of Health Personnel, Brierley J, Ethical Analysis, Ethics, Female, Humans, International Journal of Paediatrics, Jivraj A, London, Major Congenital Anomaly, Male, May 2016 List, Neonates, Organ Donation, Palliative Care/ethics, Palliative Care/methods, Perinatal Care/ethics, Perinatal Care/methods, Pregnancy, Prenatal-diagnosis, Respiration Artificial/ethics, Scales A, Tissue And Organ Procurement/ethics

Tags: 2016, Adult, Advance Care Planning, Article, assisted circulation, Child, Clinical Article, Decision Making, Fahlberg BB, Family, February 2018 List, Heart Failure, Heart-Assist Devices, Hospice Care, Human, Journal of Pain and Symptom Management, Kirkpatrick JN, Medicaid, Medical Specialist, Medicare, O'Connor NR, Palliative Care, Palliative Therapy, Patient Referral, Perception, Pisani BA, Qualitative Research, Sagin A, Self-Help Devices, Semi Structured Interview, Sundlof AL, telephone interview, ventricular assist device

Tags: 2016, Avery W, Baker JN, Bereavement, Clark L, Cochran B, Grief, Hospice Care, Journal of Pain and Symptom Management, Kaye EC, Levine DR, March 2016 List, Noyes N, Palliative Care, Pediatrics, Snaman JM, Sparrow CK, Wilcox R

Tags: 2016, Adolescent, Advance Care Planning, British Medical Journal, Child, December 2016 List, Dworzynski K, Harrop E, Humans, Infant, MS, Murphy, Patient Care Team, Patient Participation, Practice Guidelines As Topic, State Medicine, Terminal Care, United Kingdom, Vickers D, Villanueva G

Tags: 2016, Case Study, Child, Clinical Article, Controlled Study, Degenerative Disease, Developmental Medicine and Child Neurology, Donald A, England, Family, Hospital, Human, Kauffmann L, May 2017 List, Myoclonus, Neurodegenerative Diseases, Neurology, Only Child, Palliative Care, Palliative Therapy, Personal Experience, Ram D, Rare Disease, Seizure, Social Welfare, Symptom, Terminal Care, Vassallo G

Tags: 2016, April 2016 List, Archives of Disease in Childhood, Cause Of Death, Chan LC, Cheung HM, Decision Making, Ethics, Female, Hong Kong, Humans, Infant, Infant Mortality/trends, Infant Newborn, Lam HS, Ma TP, Male, Ng PC, Palliative Care, Poon TC, Retrospective Studies, Terminal Care/trends, Withholding Treatment/trends

Tags: 2016, Critical Care Medicine, DeCourcey D, February 2017 List, Oladunjoye A, Silverman M, Wolfe J

Tags: 2016, Adolescent, California, Cardiovascular Diseases/mo [Mortality], Child, Congenital Abnormalities/mo [Mortality], Delivery of Health Care, Emergency Service, Female, Health Services Accessibility, Hispanic Americans, Hispanic Health Care International, Hospice Care/ut [Utilization], Hospices/ut [Utilization], Hospital/ut [Utilization], Hospitalization, Humans, Infant, Lindley LC, Male, Medicaid, Neoplasms/mo [mortality], October 2018 List, Palliative Care/ut [Utilization], Policy, Preschool, September 2018 List, Terminal Care/mt [methods], Trujillo LV, United States, Young Adult

Tags: 2016, Advanced Cancer, Biology of Blood and Marrow Transplantation, Bone-marrow-transplantation Hematology, Chemotherapy, End Of Life, End Of Life Care, Guo D, Immunology, Index Medicus, Integration, June 2016 List, Koch R, Lehmann L, London WB, Multicenter, Oncology Care, Outcomes, Palliative Care, Parents, Pediatrics, Perspectives, Psychological Distress, Sridharan M, Stem Cell Transplant, Transplantation, Ullrich C, Wolfe J

Tags: 2016, Critical Treatment Decision, de Vos MA, Decision Making, Decision-making, Developmental-disabilities, End Of Life, Ewals FV, Humans, Integrative Review, October 2016 List, Parents, Quality Of Life, Research in Developmental Disabilities, Severe Developmental Disorder, Severity Of Illness Index, Terminal Care, To Advocate, van Goudoever JB, Willems DL, Zaal-Schuller IH

Tags: 2016, Archives of Disease in Childhood. Fetal and Neonatal Edition, Barrington K, Ethics, Farlow B, February 2017 List, Janvier A, Mortality, Neonatology, Palliative Care, Patient Perspective, Verhagen E

Tags: 2016, Children, Connor SR, Downing J, Hospice, Journal of Pain and Symptom Management, Marston J, Need For Service, Needs Assessment, October 2016 List, Pediatric Palliative Care, Pediatrics