Browse Items (174 total)
- Tags: conference abstract
Providing cost-effective and coordinated care for children with medical complexity
Tags: 2019, administrative personnel, Adolescent, Archives of Disease in Childhood, Artificial Ventilation, Caregiver, Cerebral Palsy, Child, Chow C, conference abstract, Congenital Heart Disease, Controlled Study, Diagnosis, Fatigue, Female, Gastrostomy, Home Care, Human, limited mobility, machine, Major Clinical Study, Male, Medical Technology, Multicenter Study, Multidisciplinary team, Neuromuscular Disease, Nurse, October 2019 List, Outpatient, Pediatrician, salary, Shahdadpuri R, Stress, Tracheostomy, ventilator, working time
Who should discuss goals of care during acute deteriorations in patients with life threatening illnesses? A survey of clinicians from diverse pediatric specialties
Tags: 2019, Advanced Cancer, brain disease, Cancer Patient, cancer resistance, Child, Clinician, conference abstract, Controlled Study, Cote A J, Data Analysis Software, Decision Making, Deterioration, disease exacerbation, E-mail, Emergency Ward, Female, Gaucher N, Human, Human Tissue, Hypoplastic Left Heart Syndrome, Leukemia, Likert scale, Major Clinical Study, Male, nonparametric test, October 2019 List, Paediatrics and Child Health (Canada), Palliative Therapy, Payot A, Pediatrician, Perception, respiratory distress, Spinal Muscular Atrophy, vignette
The agony of the child with complexity: Exploring the psychological impact on parents caring for children with complex healthcare needs
Tags: 2019, Archives of Disease in Childhood, Bradbury M, Caregiver, Child, conference abstract, Crothers E, Depression, disease exacerbation, Female, health care need, Human, Ireland, Lewis S, Male, medical leave, Medline, Mental Stress, meta analysis, Murphy A M, North America, O'Gorman C, October 2019 List, Parental Stress, Prevention, Psychological Well-being, publication, Qualitative Research, Sample Size, Social Isolation, Social Support, Systematic Review
The experiences of bereaved family caregivers with advance care planning for children with medical complexity
Tags: 2019, Advance Care Planning, Amin R, Caregiver, Child, Clinical Article, Cohen E, conference abstract, Consultation, Content Analysis, Conversation, Death, Female, genetic transcription, Health Care Personnel, Hellman J, Human, Human Tissue, Informed Consent, Lord S, Male, Moore C, Netten K, October 2019 List, Orkin J, Paediatrics and Child Health (Canada), Perception, Personal Experience, Rappaport A, Semi Structured Interview
Palliative care integration in pediatric cardiac intensive care units: A novel champion-based model
Tags: 2019, Bailey V, Child, Comorbidity, Conceptual Framework, conceptual model, conference abstract, Consensus, coronary care unit, Critical Care Medicine, December 2019 List, Feasibility Study, heart development, heart disease, Hospitalization, Human, Kaye E, Morbidity, Moynihan K, outcome assessment, Palliative Therapy, Prognosis, Rotation, Simulation, Snaman J, Thiagarajan R, Total Quality Management, Wolfe J
Palliative care allocation among critically ill children is highly variable in the United States
Tags: 2019, Artificial Ventilation, Bennett K, Child, Cohort Analysis, conference abstract, Controlled Study, Critical Care Medicine, Critically Ill Patient, Czaja A, December 2019 List, Female, Hospitalization, household income, Human, Infant, Insurance, Length Of Stay, Maddux A, Major Clinical Study, Male, Morbidity, Mortality, Multicenter Study, Neonatal Intensive Care Unit, Newborn, O'Keefe S, Palliative Therapy, race, Resource Allocation, Retrospective Study, suburban area, United States, Youngwerth J
Pediatric palliative care-child life beyond the hospital
Tags: 2018, Bereavement, Case C, ceremony, Child, Child Parent Relation, childhood, conference abstract, Controlled Study, Coping Behavior, Education, Emergency Care, February 2020 List, Fisher J M, health care need, Home Visit, Human, Memory, Palliative Therapy, Pediatrics, psychosocial care, Respite Care, Sibling, Skill, Voice
PICU and palliative care partnership to standardize family meetings and decrease ICU readmission rates
Tags: 2018, Child, conference abstract, Controlled Study, Documentation, February 2020 List, Frizzola M, Hayman J, Health Care System, hospital readmission, Human, Intensive Care, invasive procedure, Length Of Stay, Levy C, Miller E, Nurse Practitioner, Palliative Therapy, Pediatrics, protocol compliance, Satisfaction, Total Quality Management
Communicating death and dying through simulation: A project with pediatric residents
Tags: 2018, Acute Disease, Child, Clergy, Comfort, Communication Skill, conference abstract, Conversation, Curriculum, Emergency Treatment, February 2020 List, Greening H G, Havalad V, Human, Kobler K, Likert scale, Pain, Palliative Therapy, Pediatrics, residency education, Resident, Simulation, Teaching, Terminal Care
Increasing accurate palliative care consultation in the NICU
Tags: 2018, Caregiver, Child, conference abstract, Controlled Study, February 2020 List, Human, Humphrey L, International Classification of Diseases, Length Of Stay, mortality risk, Newborn, Nurse Practitioner, outcome assessment, Palliative Therapy, Patient Referral, Pediatrics, Satisfaction, Schlegel A, staff training, Total Quality Management
Perceptible end-of-life signs in PICU, a prospective study
Tags: 2019, Annals of Intensive Care, Artificial Ventilation, bradycardia, Brain Death, Caregiver, Cause Of Death, Child, Chronic Disease, Clinical Article, conference abstract, cyanosis, Drug Withdrawal, edema, February 2020 List, Human, Hypotension, Le Bourgeois F, Male, Naudin J, Neurologic Disease, pallor, Pediatric Intensive Care Unit, petechia, Pierron C, Poncelet G, Prospective Study, respiratory failure, skin color, Sommet J, time of death
Evaluation of residents' level of comfort with palliative care concepts before and after
Use of electronic media in a pediatric palliative aquatics program: Legacy, teaching, research and caveats
Tags: 2018, Awareness, Brother, California, Child, conference abstract, Documentation, Face, February 2020 List, Female, Fisher J M, Grief, hearing, Heat, hot water, Human, literature, Male, Memory, motion, Palliative Therapy, Pediatrics, Photography, Physician, Pyatt S, Sound, Teacher, Teaching, touch, videorecording, Voice
Peer-designed parents' bereavement panel: Exposing first-year medical students to pediatric end-of-life care
Tags: 2018, Bereavement, care behavior, Child, Clinical Article, Comfort, conference abstract, Controlled Study, Curriculum, February 2020 List, Female, Human, Human Experiment, Jones A, Learning, Likert scale, Male, Medical School, medical student, pediatric oncologist, Pediatrics, preclinical study, Rolfes M, Starr S, Sunde K, Terminal Care
Parental knowledge and opinions on palliative care for children
Tags: 2018, Ambulatory Care, Analysis of Variance, Awareness, Black C, Caucasian, Child, conference abstract, Controlled Study, Convenience Sample, Data Analysis Software, Ethnic Group, February 2020 List, Female, Granowetter L, high school, Human, Illinois, Institutional Review, legal guardian, Likert scale, Major Clinical Study, Male, New York, Palliative Therapy, Pediatrics, Physician, Randomized Controlled Trial, Spruill T M, Terminal Care, Zawistowski C A
Situational analysis and needs assessment regarding the availability and extent of pediatric palliative care services in the philippines
Tags: 2019, Awareness, behavior change, Cajucom L A N, care behavior, Caregiver, Child, Childhood Cancer, conference abstract, Controlled Study, Counseling, Developing World 2019 List, financial management, Fuentes R K T, Garcia P G, Health Care Delivery, Health Care Personnel, health care planning, Human, Interview, JNCCN Journal of the National Comprehensive Cancer Network, long term survival, Manago R K B, Needs Assessment, Nutrition, Oruga M D P, Palliative Therapy, Philippines, psychosocial care, Ramos R C, Ridulme Q R, travel, Vinas M J G
Frequency and Clinical Characteristics Associated With Pediatric Deaths In a Tertiary Hospital in a Developing Country - Opportunities for Pediatric Palliative Care
Tags: 2018, antibiotic therapy, Artificial Ventilation, Brain Death, Cause Of Death, Child, Clinical Feature, Comfort, conference abstract, Controlled Study, Cuervo Suarez M I, Demography, developing country, Developing World 2019 List, Diagnosis, Drug Withdrawal, Female, Garcia X, Health Care Quality, Hospital Patient, Human, Human Tissue, inotropism, Journal of Pain and Symptom Management, Life Sustaining Treatment, Major Clinical Study, Male, Medical Record, Munoz M, Neonatal Intensive Care Unit, Newborn, Palliative Therapy, pediatric patient, Resuscitation, Retrospective Study, Sedation, statistical analysis, Terminal Care, tertiary care center
Development of paediatric palliative care in Uganda
The integration of palliative care in Dr Congo "a Model of Sustainability": A field study
Tags: 2018, Analgesia, capacity building, Caregiver, Child, conference abstract, Congo, Congolese (Kinshasa), Developing World 2019 List, doctor nurse relation, Female, field study, Home Care, Human, Journal of Global Oncology, Leadership, Major Clinical Study, Male, Mubeneshayi Kananga A, Organization, Palliative Therapy, Practice Guideline, Primary Health Care, sensitization, Training, uganda, Volunteer
Multidiciplinary approach of transition into home care for peadiatric and AYA end-of life cancer patients: A single center experience
Tags: 2018, Adolescent, Adult, Arakawa A, cancer center, Cancer Patient, Cancer Staging, Child, Clinical Article, conference abstract, Controlled Study, Female, Home Care, Human, Ishiki H, Ishimaru S, Kumamoto T, Male, Nakajima M, Ogawa C, Oncology 2019 List, Pediatric Blood and Cancer, Retrospective Study, Satomi E, Shimizu M, Shirakawa N, Social Worker, Sonoda T, time of death, Young Adult
The Quality of Life of Children with Advanced Cancer: The Perspective of Children and Parents
Tags: 2018, Advanced Cancer, Avoine-Blondin J, Child, conference abstract, Daoust L, Duval M, Fasse L, Human, Humbert N, Interdisciplinary Communication, Journal of Pain and Symptom Management, Lopez C, Oncology, Oncology 2019 List, Palliative Therapy, physical well-being, pleasure, Qualitative Research, quality of life assessment, Semi Structured Interview, Sultan S, Thematic Analysis
The Nesting Dolls Design: A Methodology for the Recruitment of Bereaved Parents for Partnership Activities Related to Palliative Care and Bereavement Support in Paediatric Psycho-Oncology
Tags: 2018, 52315-07-8 (cypermethrin), 65731-84-2 (cypermethrin), 66841-24-5 (cypermethrin), 67375-30-8 (cypermethrin), Bereavement Support, Bourque C J, Cardinal G, Child, Clinical Article, Clinician, conference abstract, Confidentiality, Content Analysis, Controlled Study, cypermethrin, Death, Dumont E, evaluation research, Female, filter, Follow Up, Human, information center, Intensive Care, Interview, Journal of Pain and Symptom Management, Male, Neonatology, nesting, Oncology 2019 List, Palliative Therapy, Pediatrics, Psycho-Oncology, Questionnaire, research ethics, Sultan S, writing
Defining palliative opportunities in pediatric patients with bone and soft tissue tumors
Tags: 2019, Adolescent, Allen K, bone marrow, bone tumor, Brock K, Cancer Patient, Cancer Recurrence, Child, conference abstract, Controlled Study, Death, disease exacerbation, do not resuscitate order, Ebelhar J, Female, Hospice, Hospital Admission, Human, Intensive Care, Major Clinical Study, Male, Oncology 2019 List, Palliative Therapy, Pediatric Blood and Cancer, pediatric patient, phase 1 clinical trial, relapse, Retrospective Study, soft tissue tumor, solid malignant neoplasm, Statistics, Wasilewski-Masker K
Perceptions on good death among parents of pediatric patients with hematology-oncology disease in advance
Tags: 2019, Cancer Patient, Child, conference abstract, Controlled Study, Female, Health Status, Hematology, Human, interdisciplinary education, Journal Of Clinical Oncology, Kim J Y, Leukemia, living will, Lymphoma, middle school, Oncology 2019 List, outpatient department, Park B K, pediatric patient, Perception, Quality Of Life, Questionnaire, Stress, Terminal Care
A simple system for symptom assessment in pediatric palliative care patients with cancer: A preliminary report
Tags: 2018, Anorexia, Bruera E, Caregiver, Charone M, Child, conference abstract, Controlled Study, Dibaj S, Fatigue, Female, Health Care Quality, Human, insomnia, Irritability, Journal of Clinical Oncology. Conference, Liu D, Loss Of Appetite, Madden K, Major Clinical Study, Male, Malignant Neoplasm, Mills S, nervousness, Oncology 2019 List, Pain, Palliative Therapy, Symptom Assessment, Williams J L
Improving pediatric palliative care in a community-based setting through an ongoing education series
Tags: 2019, administrative personnel, Checklist, Child, Clergy, Comfort, community hospital, conference abstract, Conversation, do not resuscitate order, Dying, Education, Female, Hospice Care, Human, Likert scale, Major Clinical Study, Male, Moonat H, Needs Assessment, Nguyen L, Nurse, Oncology 2019 List, Palliative Therapy, Pediatric Blood and Cancer, pharmacist, Simulation, Social Worker, Texas
Medication utilization for symptom management by pediatric inpatients with cancer at end-of-life
Tags: 2019, Adult, anxiety, Benzodiazepine, Black person, Cancer Patient, Child, Childhood Cancer, conference abstract, Controlled Study, Davidoff A, Death, Decision Making, do not resuscitate order, Drug Therapy, Ethnicity, Female, Gender, Hospital Patient, Hospitalization, Human, Length Of Stay, Major Clinical Study, Male, manager, Massaro S, Medicaid, Multicenter Study, Nausea, Oncology 2019 List, Opiate, Pain, patient history of bone marrow transplantation, Pediatric Blood and Cancer, pediatric patient, Prozora S, Recipient, Retrospective Study, Shabanova V, solid malignant neoplasm, tumor diagnosis, University Hospital, Young Adult
The 'good death' in pediatric oncology
Tags: 2019, Adult, Advanced Cancer, advanced practice provider, Aged, avoidance behavior, Barton K, Childhood Cancer, Clergy, Clinical Article, Cohort Analysis, conference abstract, Content Analysis, Controlled Study, Female, genetic transcription, Human, Male, Medical Staff, music, Oncology 2019 List, Pediatric Blood and Cancer, Pediatric Hospital, physiotherapist, Prospective Study, Rosenberg A, Semi Structured Interview, Software, sudden death, Taylor M, Terminal Care, Young Adult
Vulnerable Populations Receiving Palliative Radiation in a Children's Hospital: Reporting on the Underreported
Tags: 2019, Adult, Anesthesia, Asia, cancer radiotherapy, Central Nervous System Tumor, Child, conference abstract, Controlled Study, Death, electronic medical record, employer, Female, Follow Up, fraud, housing, Human, Hwang L, immigration, International Journal Of Radiation Oncology Biology Physics, Lee H J, Liu K X, lowest income group, Major Clinical Study, Male, Medical Record Review, Mental Stress, Neuroblastoma, Olch A J, Oncology 2019 List, Organization, Pain, Poverty, race, radiation oncologist, Radiotherapy, Retrospective Study, Rhabdomyosarcoma, School Child, South and Central America, Terminal Care, vulnerable population, Wong K, Young Adult
Trends in the aggressiveness of pediatric cancer near the end-of-life
Tags: 2018, Adult, aggressiveness, Artificial Ventilation, Cancer Patient, Child, Childhood Cancer, conference abstract, Controlled Study, Death, Diagnosis, Female, Fushimi K, Hematologic Malignancy, Human, Intubation, Japan, Major Clinical Study, Male, Matsumoto K, Oncology 2019 List, Pediatric Blood and Cancer, Resuscitation, School Child, Shinjo D, Terminal Care, Yotani N, Young Adult
Transition to a Primary Palliative Care Model in the NICU (FR441B)
Tags: 2020, Baxter R, Brown H, Bruner A, Comfort, conference abstract, Controlled Study, Documentation, Education, Female, Hospice, Human, Human Experiment, Infant, Journal of Pain and Symptom Management, Male, March 2020 List, Needs Assessment, Neonatologist, Nurse, Palliative Therapy, Satisfaction
National Institute of Nursing Research and MedlinePlus Team Up to Offer a Palliative Care Text Campaign (QI632)
Tags: 2020, Adult, Burroughs A, Child, conference abstract, Coppess S, E-mail, Human, Journal of Pain and Symptom Management, Lemon A, March 2020 List, Mental Health, Miller J, national health organization, Nursing Research, Palliative Therapy, pediatric patient, transcription initiation, videorecording, Wellbeing
Pediatric Resident's Knowledge and Attitudes Towards Spiritual Assessment and Care: An Educational Intervention. (FR408C)
Tags: 2020, Attitude, Caucasian, Child, Clinical Article, Comfort, conference abstract, Controlled Study, Delaney C, Female, Human, Journal of Pain and Symptom Management, Likert scale, March 2020 List, Maurer S, Moehling K, Palliative Therapy, pediatric patient, Resident, Role Playing, Wilcoxon signed ranks test
Pediatric Palliative Telehealth Care from Hospital to Hospital: A Pilot Project (QI653)
Tags: 2020, Child, Clinical Article, Comfort, community hospital, conference abstract, Consensus, Education, Evan E, Feasibility Study, Female, Follow Up, Human, Human Experiment, Journal of Pain and Symptom Management, Likert scale, Male, March 2020 List, Mock K O, Palliative Therapy, Primary Health Care, program feasibility, Questionnaire, Sandesara A, Satisfaction, Telehealth, tertiary care center, Total Quality Management
Grief and Bereavement Support for Families and Healthcare Professionals as Part of Integrated Care in Pediatric/Neonatal Intensive Care Units around the World (TH340A)
Tags: 2020, Bereavement Support, Bustamante G, Child, conference abstract, Controlled Study, Convenience Sample, Demography, Female, financial management, Gender, Grunauer M, Health Care Personnel, high income country, Human, Journal of Pain and Symptom Management, Male, March 2020 List, Neonatal Intensive Care Unit, Newborn, Newborn Death, Palliative Therapy, patient coding, Pediatric Intensive Care Unit, Perception, Prospective Study, Questionnaire, Statistical Significance, World Bank, Zambrano K
Simulation and skills training for pediatric fellows: Improving confidence in high-stakes care at end of life
Development of an innovative program to improve provision of palliative and hospice care to children and families in the community: The story of QoLA Kids
Tags: 2019, Baker J N, Blazin L J, Cancer Patient, Cancer Prognosis, catchment, Child, Childhood Cancer, conference abstract, Controlled Study, Counselor, Distress Syndrome, Female, Hospice Care, hospital personnel, Human, Kaye E C, Kiefer A C, magnet, Major Clinical Study, Male, March 2020 List, Nurse Practitioner, Outpatient, Palliative Therapy, Patient Referral, Pediatric Hospital, pediatric patient, Pediatrics, Prognosis, program impact, Quality Of Life, registered nurse, Social Worker
Getting a Seat at the Table: An Iterative Development Process to Improve Available Benchmark Data for Pediatric Palliative Care Programs (S778)
Tags: 2020, administrative personnel, Child, conference abstract, Controlled Study, District of Columbia, Friebert S, Hospital Patient, Human, Humphrey L, Journal of Pain and Symptom Management, Klick J, March 2020 List, Palliative Therapy, Perception, phase 1 clinical trial, Program Development, Rogers M, Williams C, workflow
Sign Me Up! Understanding Referral and Enrollment to Community-Based Pediatric Hospice and Palliative Care (FR420D)
Tags: 2020, Caliboso M, Child, Cohort Analysis, conference abstract, Controlled Study, Demography, Female, Hospice, Human, Insurance, Journal of Pain and Symptom Management, Lindley L, Lotstein D, Major Clinical Study, Male, March 2020 List, Neonatal Intensive Care Unit, Nervous System, Palliative Therapy, Patient Referral, Pediatric Hospital, Preschool Child, Retrospective Study, Speech, Total Quality Management, Wolfe J
Telemedicine: the Pediatric Palliative Perspective (FR476)
Tags: 2020, Adult, Aggression, Bower K A, California, Child, Clinical Article, clinical assessment, conference abstract, Current Procedural Terminology, Drug Safety, Female, Human, Journal of Pain and Symptom Management, Kuelker A, laptop, logging, Male, Marc-Aurele K L, March 2020 List, Medicaid, Nurse, Palliative Therapy, Patient Comfort, physical examination, Stevens V, Telemedicine, vital sign, Young Adult