Browse Items (58 total)
- Tags: Quality Of Health Care
[Difficulties in communication with parents of pediatric cancer patients during the transition to palliative care]
Tags: 2017, Article, Attitude Of Health Personnel, Cancer Mortality, Cancer Palliative Therapy, Cancer Patient, Cancer Therapy, Child, Childhood Cancer, Communication Barrier, Communication Barriers, Critical Illness/nu [nursing], Critical Illness/px [psychology], Disease Management, Dying, Empathy, Female, Hauser P, Hegedus K, Human, Humans, Interpersonal Communication, Medical Expert, Nyiro J, Oncologist, Oncology 2017 List, Orvosi Hetilap, Palliative Care/mt [methods], Palliative Care/px [psychology], Parent-child Relations, Parental Attitude, Parents/px [psychology], Pediatrician, Physician-patient Relations, Psychologist, Quality Of Health Care, Self Defense, Structured Interview, Zorgo S
A pathway to advancing end-of-life education
A Systematic Review of Measures of End-of-Life Care and Its Outcomes
Tags: 2007, Backlog, Dy SM, Dying, End-of-life Care, Essential Data Set, Health Services Research, Hilton LK, Hughes RG, Journal Article, Lorenz KA, Lynn J, Maglione M, measures, Morton SC, Mularski RA, Outcome And Process Assessment (health Care), Quality Of Health Care, Rhodes SL, Rolon C, Shekelle PG, Shugarman LR, Sun VC, Wilkinson A
Care of the Bereaved Mother
Tags: 2018, Bereavement -- Evaluation, Care Of The Bereaved Mother, December 2018 List, Grief -- Evaluation, Human, Interviews, Mothers -- Psychosocial Factors, Neonatal Intensive Care Nursing -- Education, Nurse-patient Relations, nursing role, Parental Attitudes, Patient Centered Care, Perinatal Death -- Psychosocial Factors, Quality Of Health Care, Rocio GI, Support Psychosocial, Support Groups
Children's hospices: organizational and staff issues
Tags: 2002, Adolescent, Adult, Attitude Of Health Personnel, Backlog, Child, Child Health Services/organization & administration/trends, Great Britain, Hospices/organization & administration, Human, Journal Article, Organizational Culture, Palliative Care/organization & administration/trends, Palliative Medicine, Personal Satisfaction, Quality Of Health Care, Sheldon F, Speck P
Do hospital-based palliative teams improve care for patients or families at the end of life?
Tags: 2002, Backlog, Cook AM, Douglas HR, Edwards AG, Family, Finlay I, Goodwin DM, Higginson IJ, Hood K, Hospitals, Humans, Journal Article, Journal of Pain and Symptom Management, Norman CE, Outcome And Process Assessment (health Care), Palliative Care, Patient Care Team, Quality Of Health Care, Terminal Care
End-of-life care in the intensive care unit: a research agenda.
Tags: 2001, Attitude To Death, Backlog, Critical Care Medicine, Evidence-based Medicine, Female, Health Services Research/organization & administration, Humans, Intensive Care Units, Intensive Care/standards, Intensive Care/trends, Journal Article, Male, Outcome Assessment (health Care), Palliative Care/standards, Palliative Care/trends, Program Evaluation, Quality Of Health Care, Randall CJ, Rubenfeld GD, The End-of-Life Care in the ICU Working Group, United States
Enhancing paediatric palliative care: A rapid review to inform continued development of care for children with life-limiting conditions
Tags: 2021, Agar M, Bowers A, Bradford N, Cook R, Deleuil R, Delivery of Health Care, Ekberg K, Ekberg S, Elvidge N, February 2022 List, Fleming S, Health Policy, Health Services Accessibility, Heywood M, Howard C, Hynson J, Jolly A, Journal of Paediatrics and Child Health, Paediatrics, Palliative Care, Quality Of Health Care, Rice T, Roberts SJ, Rolfe M, Vickery A, Waring S
Fatal fetal anomaly: Experiences of women and their partners
Frequency and determinants of formal respite service use among caregivers of children with cerebral palsy in Ontario
Tags: 2004, Adult, Attitude To Health, Backlog, Caregivers, Cerebral Palsy/complications/rehabilitation, Child, Child: Care, Health and Development, Cross-sectional Studies, Damiani G, Female, Health Services Accessibility, Humans, Journal Article, Male, Non-U.S. Gov't, Patient Acceptance of Health Care, Quality Of Health Care, Research Support, Respite Care, Rosenbaum P, Russell D, Sex Factors, Social Support, Socioeconomic Factors, Swinton M
Grief Journey: Perception and Response Based on Cultural Beliefs in Thai Women Experiencing Perinatal Death
Tags: 2022, Adolescence, Adult, anxiety, April List 2023, Bih-Ching S, Content Analysis, cultural competence, cultural sensitivity, Culture, Descriptive Research, Emotions, Evaluation, Fear, Female, field notes, Forgiveness, Grief, Health Knowledge, Health Personnel, Hope, Hospitals Community, Human, Interviews, Medical Records, Nedruetai P, Pacific Rim International Journal of Nursing Research, Perinatal Death, Psychosocial Factors, Puangpaka K, Purposive Sample, Qualitative Studies, Quality Of Health Care, Reflection, Self Concept, Self-Talk, Social Norms, Thailand, Women
Helen House--a hospice for children: analysis of the first year
Tags: 1984, Adolescent, Backlog, Baum JD, British Medical Journal (clinical Research Ed.), Burne SR, Canuck Place 15 year chart review, Cerebellar Neoplasms/therapy, Child, Dominica F, England, Family Health, Female, Hospices/organization & administration, Humans, Journal Article, Male, Medulloblastoma/therapy, Neuronal Ceroid-Lipofuscinoses/therapy, Patient Admission, Quality Of Health Care, Terminal Care/standards
Hospital staff and family perspectives regarding quality of pediatric palliative care.
Tags: 2004, Attitude Of Health Personnel, Attitude To Health, Backlog, Bereavement, Child, Cohen HJ, Communication, Contro N, Data Collection, Family/psychology, Hospital/psychology, Humans, Journal Article, Larson J, Longitudinal Studies, Non-U.S. Gov't, Pain/therapy, Palliative Care/standards, Pediatrics, Pediatrics/education/standards, Personnel, Professional-family Relations, Quality Of Health Care, Research Support, Scofield S, Sourkes B
Improving health care for adult survivors of childhood cancer: recommendations from a delphi panel of health policy experts
Tags: 2004, Adult, Backlog, Cotter KL, Delphi Technique, Eshelman D, Foster BM, Health Policy, Health Policy (amsterdam, Netherlands), Health Services Research, Hudson MM, Humans, Journal Article, Loftis L, Mertens AC, Neoplasms, Non-U.S. Gov't, Oeffinger KC, Quality Of Health Care, Research Support, Sozio M, Survivors, United States, Zebrack BJ
Individualised advance care planning in children with life-limiting conditions
Tags: 2018, Advance Care Planning/og [Organization & Administration], Advance Care Planning/st [Standards], April 2019 List, Archives of Disease in Childhood, Attitude To Health, Child, Child Health Services/og [organization & Administration], Child Health Services/st [Standards], de Kruiff CC, Evidence-Based Medicine/mt [Methods], Female, Humans, Kremer L C M, Loeffen EAH, Male, Netherlands, Palliative Care/og [Organization & Administration], Palliative Care/px [psychology], Palliative Care/st [standards], Parents/px [psychology], Patient Satisfaction/sn [Statistics & Numerical Data], Pediatric Palliative Care-Individualized Care Plan Working Group, Pilot Projects, Practice Guidelines As Topic, Quality Of Health Care, Schuiling-Otten MA, Tissing WJE, Verhagen AA
Issues in end-of-life care: patient, caregiver, and clinician perceptions
Tags: 2003, 80 And Over, Adult, Aged, Attitude Of Health Personnel, Attitude To Death, Backlog, Caregivers/psychology, Cohort Studies, Cost Of Illness, Egnew TR, Family/psychology, Farber SJ, Female, Guldin GE, Herman-Bertsch JL, Humans, Interpersonal Relations, Interviews, Journal Article, Journal of Palliative Medicine, Male, Middle Aged, Non-U.S. Gov't, Palliative Care/psychology, Patients/psychology, Physicians, Qualitative Research, Quality Of Health Care, Research Support, Taylor TR, Terminal Care/psychology, Washington
Key Factors Affecting Dying Children And Their Families
Tags: 2005, Adolescent, Baker J, Bereavement, Child, Communication, Decision Making, Family/px [psychology], Hinds PS, Humans, Journal of Palliative Medicine, May 2017 List, Only Child, Palliative Care/st [standards], Professional-family Relations, Quality Of Health Care, Schum L, Stress Psychological/et [etiology], Terminal Care, Terminal Care/st [standards], Wolfe J
Key factors affecting dying children and their families
Tags: 2005, Adolescent, Backlog, Baker JN, Bereavement, Child, Communication, Decision Making, Family/psychology, Hinds PS, Humans, Journal Article, Journal of Palliative Medicine, Palliative Care/standards, Professional-family Relations, Psychological/etiology, Quality Of Health Care, Schum L, Stress, Terminal Care/standards, Wolfe J
Learning that leads to action: impact and characteristics of a professional education approach to improve the care of critically ill children and their families
Tags: 2010, Archives Of Pediatrics & Adolescent Medicine, Backlog, Browning DM, Canada, Child, Continuing/methods, Curriculum, Dokken DL, Education, Educational, Humans, Interdisciplinary Communication, Journal Article, Merriman MP, Models, Palliative Care, Patient Advocacy, Pediatrics/education, Professional-family Relations, Program Evaluation, Quality Of Health Care, Rushton CH, Solomon MZ, United States
Learning to care for people with chronic illness facing the end of life
Tags: 2000, Backlog, Death and Euthanasia, Health Services Accessibility, Health Services Research, JAMA, Journal Article, Lynn J, Palliative Care/economics/standards/trends, Policy Making, Professional Patient Relationship, Quality Of Health Care, RDF Project, Terminal Care/economics/standards/trends, United States
Long-stay patients in the pediatric intensive care unit
Tags: 2001, Age Distribution, algorithms, Analysis of Variance, Backlog, Child, Comorbidity, Cost Savings, Critical Care Medicine, Decision Trees, Discriminant Analysis, Emergencies, Female, Health Services Research, Hospital Mortality, Humans, ICU Decision Making, Infant, Intensive Care Units, Intensive Care/economics/standards, Journal Article, Length Of Stay/statistics & Numerical Data, Logistic Models, Male, Marcin JP, Patient Admission/statistics & numerical data, Pediatric/utilization, Pollack MM, Predictive Value of Tests, Preschool, Quality Of Health Care, Risk Factors, Ruttimann UE, Sensitivity and Specificity, Severity Of Illness Index, Slonim AD, Treatment Outcome, United States/epidemiology
Mapping the journey of cancer patients through the health care system. Part 2: Methodological approaches and basic findings
Tags: 2004, Aged, Backlog, Blood P, Canadian Oncology Nursing Journal, Cancer Care Facilities, Clinch J, Data Collection/methods, Databases, Delivery of Health Care/organization & administration, El Sayed S, Factual/utilization, Female, Health Services Research/methods, Humans, Journal Article, Khoo K, Length Of Stay/statistics & Numerical Data, Male, Manitoba/epidemiology, Medical Oncology, Medical Record Linkage/methods, Middle Aged, Nemecek A, Neoplasms/diagnosis/mortality/therapy, Non-U.S. Gov't, Patient Admission/statistics & numerical data, Proportional Hazards Models, Quality Of Health Care, Registries, Research Support, Scott-Findlay S, Sloan JA, Survival Analysis, Trylinski C, Whittaker H
Measuring the quality of dying
Tags: 2001, Attitude Of Health Personnel, Attitude To Death, Attitude To Health, Backlog, Chronic/psychology, Family/psychology, Health Services Research/methods/standards, Human, Journal Article, Journal of Palliative Medicine, Kidney Failure, Moss AH, Quality Of Health Care, Quality Of Life, Research Design/standards, Terminal Care/psychology/standards
Parent and physician perspectives on quality of care at the end of life in children with cancer
Tags: 2005, Adolescent, Adult, Backlog, Child, Communication, Extramural, Female, Grier HE, Health Care Surveys, Hilden JM, Humans, Infant, Journal Article, Journal Of Clinical Oncology, Mack JW, Male, Moore C, N.I.H., Newborn, Non-U.S. Gov't, Odds Ratio, Pain, Parent-child Relations, Physician-patient Relations, Physicians/standards, Preschool, Quality Of Health Care, Quality Of Life, Research Support, Terminal Care/standards, Turner B, Watterson J, Weeks JC, Wolfe J
Parent Reported Outcomes Of Quality Care And Satisfaction In The Context Of A Life-limiting Fetal Diagnosis.
Methods: A cross-sectional design using a validated tool was administered using a Web-based platform. Parents (n = 405) who experienced a life-limiting fetal…
Parental Decision-making On
Utilisation Of Out-of- Home Respite In Children’s Palliative Care: Findings Of
Qualitative Case Study Research - A Proposed New Model.
Respite in children's palliative care aims to provide a break for family's from the routine of caring. Parental decision-making regarding the utilisation of out-of-home respite is dependent on many interlinking factors including the…
Tags: 2016, Adolescent, Adult, Child, Child Preschool, Child: Care, Health and Development, Children, Connaire K, Decision Making, Female, Humans, Ireland/epidemiology, Ling J, Longitudinal Studies, Male, May 2016 List, McCarron M, Palliative Care, Palliative Care/psychology, Parents, Parents/psychology, Payne S, Pediatrics, Qualitative Research, Quality Of Health Care, Respite, Respite Care, Social Support, Terminally Ill/psychology
Parental perspectives on end-of-life care in the pediatric intensive care unit
Tags: 2002, Adult, Backlog, Boston, Burns JP, Child, Critical Care Medicine, Death and Euthanasia, Decision Making, Empirical Approach, Female, Griffith JL, Humans, ICU Decision Making, Intensive Care Units, Journal Article, Male, Meyer EC, Pain, Parents/psychology, Pediatric, Prognosis, Quality Of Health Care, Quality Of Life, Questionnaires, Terminal Care, Truog RD, Withholding Treatment
Parents' perspectives on the deaths of their children in two Brazilian paediatric intensive care units
Tags: 2013, Abib El Halal Gilda MC, Adult, Attitude Of Health Personnel, Attitude To Death, Backlog, Brazil, Cabral FC, Child, Communication, Decision Making, El Halal MGS, Female, Garcia Pedro CR, Humans, Infant, Intensive Care Units, International Journal of Palliative Nursing, Journal Article, Lago PM, Male, Nilson C, Parents, Pediatric, Piva JP, Preschool, Professional-family Relations, Quality Of Health Care, Terminal Care
Patterns Of Palliative Care Service Consultation In A Sample Of Critically Ill Icu Patients At High Risk Of Dying
Pediatric Palliative Care in Iran: Applying Regionalization of Health Care Systems
Tags: 2018, Akbari Sari A, Asian Pacific Journal Of Cancer Prevention, Cancer Care Facilities/og [Organization & Administration], Cancer Care Facilities/ut [Utilization], Child, Delivery of Health Care/og [Organization & Administration], Developing World 2018 List, Eshghi P, Follow-up Studies, Health Services Accessibility/og [Organization & Administration], Heravi Karimooi M, Humans, Khanali ML, Neoplasms/th [therapy], Palliative Care/og [Organization & Administration], Prognosis, Qualitative Research, Quality Of Health Care, Rassouli M, Shirin Abadi Farahani A, Tahmasebi M, Zendedel K
Prioritization of Pediatric Palliative Care Field-Advancement Activities in the United States: Results of a National Survey
Publication guidelines for quality improvement studies in health care: evolution of the SQUIRE project
Tags: 2009, Backlog, Batalden PB, Bmj (clinical Research Ed.), Consensus, Davidoff F, Editorial Policies, Forecasting, Interprofessional Relations, Journal Article, Mooney SE, Ogrinc G, Practice Guidelines As Topic, Publishing/standards, Quality Of Health Care, RDF Project, SQUIRE development group, Stevens D
Quality of life for children with life-limiting and life-threatening illnesses: description and evaluation of a regional, collaborative model for pediatric palliative care
Tags: 2011, Adolescent, Backlog, Biomedical Research, Carpenter P, Child, Continuity Of Patient Care, District of Columbia, Farley J, Female, Gomez CF, Health Personnel, Holson D, Humans, Infant, Inservice Training, Journal Article, Male, Markowitz M, Newborn, Nigra Peter, Palliative Care, PEDI Study, Pediatrics, Preschool, Program Evaluation, Quality Of Health Care, Quality Of Life, Referral And Consultation, Rogers SK, Rood B, Smith K, Terminal Care, The American Journal of Hospice & Palliative Care
Referring a patient and family to high-quality palliative care at the close of life: "We met a new personality... with this level of compassion and empathy"
Tags: 2009, Backlog, Connor SR, Empathy, Family Relations, Hospices, Humans, Journal Article, Journal Of The American Medical Association, Male, Middle Aged, Neoplasms, Palliative Care/standards, Patient Care Team, Primary Health Care, Quality Of Health Care, Referral And Consultation, Social Support, Teno JM