Browse Items (273 total)
- Tags: Parents
Palliative care of children with brain tumors: a parental perspective
Tags: 2010, Activities of Daily Living, Adaptation, Adolescent, Adult, Archives Of Pediatrics & Adolescent Medicine, Attitude To Death, Attitudes, Backlog, Bannister SL, Brain Neoplasms, Cairney A, Cataudella D, Child, Elizabeth L, Female, Focus Groups, Health Knowledge, home care services, Humans, Infant, Journal Article, Male, Middle Aged, Palliative Care, Parents, PEDI Study, Practice, Preschool, Psychological, Qualitative Research, Spirituality, Young Adult, Zelcer S
How Parents And Physicians Experience End-of-life Decision-making For Children With Profound Intellectual And Multiple Disabilities.
End-of-life decisions (EoLD) often concern children with profound intellectual and multiple disabilities (PIMD). Yet, little is known about how parents and physicians discuss and make these decisions.
AIMS:
The objective of this research…
Tags: 2016, Adolescent, Adult, Attitude Of Health Personnel, Attitude To Health, Caregiver, Cerebral Palsy, Child, Child Preschool, de Vos MA, Decision Making, Disabled Children, Dissent And Disputes, End Of Life, Ewals FV, Female, Healthcare Professional, Humans, Infant, Infant Newborn, Intellectual Disability, Male, Middle Aged, Neurologists, Palliative Care, Parents, Pediatricians, Professional-family Relations, Qualitative Research, Research in Developmental Disabilities, Resuscitation Orders, Retrospective Studies, September 2016 List, Severity Of Illness Index, Shared Decision-making, Terminal Care, van Goudoever JB, Willems DL, Young Adult, Zaal-Schuller IH
End-of-life Decision-making For Children With Severe Developmental Disabilities: The Parental Perspective.
The objectives of this integrative review were to understand how parents of children with severe developmental disorders experience their involvement in end-of-life decision-making, how they prefer to be involved and what factors…
Tags: 2016, Critical Treatment Decision, de Vos MA, Decision Making, Decision-making, Developmental-disabilities, End Of Life, Ewals FV, Humans, Integrative Review, October 2016 List, Parents, Quality Of Life, Research in Developmental Disabilities, Severe Developmental Disorder, Severity Of Illness Index, Terminal Care, To Advocate, van Goudoever JB, Willems DL, Zaal-Schuller IH
Transition to adulthood as a parent-youth project: Governance transfer, career promotion, and relational processes.
Tags: 2008, Adolescent Transitions, ADULTHOOD, Backlog, Conversation, Developmental Stages, Domene JF, Dyads, Graham M, Journal Article, Journal Of Counseling Psychology, Lee CM, Life Changes, Logan C, Marshall SK, Mart Amy, Parent-child Relations, Parents, project, Transition, Young RA, Youth, Zaidman-Zait A
Videoconferencing to reduce stress among hospitalized children
Prolonged Grief, Autobiographical Memory, and Its Interaction With Value Orientations in China and Switzerland
Grieving Parents' Meaning-Making Narration in Relation to Value Orientations: A Cross-Cultural Study
Tags: 2023, Adult\, Autobiographical Memory\, Chinese Persons, Comparative Studies\, Complicated Grief, Cultural Values\, Descriptive Statistics\, Ethnological Research\, Evaluation\, February List 2024, Female\, Human\, Jia X, Killikelly C, Life Experiences\, Life Purpose\, Maercker A, Male\, Middle Age\, Narratives\, Parent-Child Relations\, Parents, Psychosocial Factors\, Reflection\, Scales\, Self Assessment\, Self Report\, Swiss Persons, Transcultural Psychiatry, Xiu D, Yang Y
Exploring perceptions of psychological services in a children's hospice in the United Kingdom
Tags: 2013, Adult, Andrews L, Backlog, Child, Child Health Services, Critical Illness, Crozier K, Disabled Children, Focus Groups, Great Britain, Hospice Care, Humans, Journal Article, Leeson J, Lindsay B, Palliative & Supportive Care, Palliative Care, Parents, Professional-family Relations, Psychological, Stress, Wray Jo, Young Adult
Symptoms and Suffering at the End of Life in Children with Cancer
Tags: 2000, Anorexia/etiology/therapy, Backlog, Boston, Child, Children's Hospital (Boston), Clodronate, Constipation/etiology/therapy, Dana-Farber Cancer Institute (Boston), Death and Euthanasia, Diarrhea/etiology/therapy, Dyspnea/etiology/therapy, Ellenbogen JM, Emanuel EJ, Empirical Approach, Fatigue/etiology/therapy, Grier Holcombe E, Health Care Surveys, home care services, Humans, Journal Article, Klar Neil, Levin SB, Logistic Models, Longitudinal Studies, Neoplasms/complications/therapy, New England Journal Of Medicine, Non-U.S. Gov't, Oncology at EOL, P.H.S., Pain/etiology/therapy, Palliative Care/standards/statistics & Numerical Data, Parents, Physicians, Professional Patient Relationship, Psychological, Quality Of Health Care, Quality Of Life, Questionnaires, Research Support, Salem-Schatz S, Stress, Terminal Care, U.S. Gov't, Weeks Jane C, Withholding Treatment, Wolfe J
Family experiences with palliative care for children at home: a systematic literature review
Couples at risk following the death of their child: predictors of grief versus depression
Tags: 2005, Adult, Aged, Attitude To Death, Backlog, Bereavement, Couples, Death, Depression, Depression/psychology, Dijkstra I, Family Characteristics, Humans, Journal Article, Journal Of Consulting And Clinical Psychology, Middle Aged, Parents, Risk Factors, Schut H, Stroebe M, Stroebe W, Time Factors, van den Bout J, van der Heijden P, Wijngaards-de ML
Chemotherapy-related fatigue in childhood cancer: correlates, consequences, and coping strategies
Tags: 2008, Adaptation, Antineoplastic Agents/adverse effects, Backlog, Child, Davies B, Fatigue/chemically induced, Friedman D, Gudmundsdottir M, Humans, Journal Article, Journal Of Pediatric Oncology Nursing, McCarthy P, Neoplasms/drug therapy/psychology, Parents, Psychological, Questionnaires, Whitsett SF
Transition from paediatric to adult care for persons with cystic fibrosis: patient and parent perspectives
Tags: 1999, Adolescent, Adolescent Transitions, Adult, Backlog, Child, Child Health Services/organization & administration, Cross-sectional Studies, Cystic Fibrosis/rehabilitation, Female, Health Promotion, Health Transition, Henley L, Humans, Journal Article, Journal of Paediatrics and Child Health, Male, Parents, Patient Satisfaction, Preschool, Questionnaires, Westwood A, Willcox P
Supporting the family after the death of a child.
Tags: 2012, Adolescent, AIM, Backlog, Child, Chronic Disease, Counseling, Death, Disabled Children, Grief, Guidelines As Topic, Guilt, HEALTH COMMITTEE ON PSYCHOSOCIAL ASPECTS OF CHILD AND FAMILY, Humans, IM, Infant, Journal Article, Mortality, Parenting, Parents, Pediatrics, Physician's Role, Premature, Preschool, Professional-family Relations, sibling bereavement, Siblings, Social Support, Substance-Related Disorders, Sudden, Sudden Infant Death, Suicide, Wender E
The experience of parents living with a child with cancer at the end of life
Relational autonomy: moving beyond the limits of isolated individualism
Tags: 2014, Adolescent, Adolescent Psychology, Backlog, Child, Child Psychology, Communication, Female, Humans, Journal Article, Male, Models, Palliative Care, Parents, Pediatrics, Personal Autonomy, Physician-patient Relations, Professional-family Relations, Psychological, Ross LF, Walter JK, Withholding Treatment
Pain in children with cerebral palsy: common triggers and expressive behaviors.
Tags: 2002, Activities of Daily Living, Adolescent, Adult, Backlog, Cerebral Palsy/co [Complications], Cerebral Palsy/px [Psychology], Child, Child Behavior, Communication, Female, Humans, Infant, Journal Article, Male, Pain, Pain Measurement, Pain/di [diagnosis], Pain/px [Psychology], Parents, Perception, Preschool, Questionnaires, von Baeyer CL
Research on the effect of parental bereavement: implications for social work intervention
Parental experiences and coping strategies when caring for a child receiving paediatric palliative care: a qualitative study
Tags: 2019, anxiety, Article, Bosman D K, Caregiving, Child, Child Care, Child Parent Relation, Clinical Article, Colenbrander D A, Controlled Study, Coping, Coping Behavior, Decision Making, European Journal of Pediatrics., Experiences, Female, Grief, Grootenhuis M A, Human, Interview, July 2019 List, Kars M C, Male, Paediatrics, Palliative Care, Palliative Therapy, Parents, Pediatrics, Perception, Qualitative Research, Schouten-van Meeteren A Y N, tension, Thematic Analysis, Uncertainty, van Delden J J M, van den Bergh E M M, Verberne L M
Couple functioning after pediatric cancer diagnosis: a systematic review
The BOOST paediatric advance care planning intervention for adolescents with cancer and their parents: development, acceptability and feasibility
Tags: 2022, 2022 Special Edition 3 - Oncology List, Adolescent, Advance Care Planning, Beernaert K, Bmc Pediatrics, Child, Cohen J, Communication, De Vleminck A, Deliens L, Fahner J, Feasibility Studies, Gilissen J, Humans, Intervention development, Kars M, Neoplasms/therapy, Paediatric oncology, paediatric palliative care, Parent-adolescent communication, Parents, van der Werff TBJ, van Driessche A, Young Adult
Advance Care Planning For Adolescents with Cancer and Their Parents: Study Protocol of the Boost Pacp Multi-Centre Randomised Controlled Trial and Process Evaluation
Tags: 2021, 2021 Special Edition - Oncology, Adolescent, Advance Care Planning, Beernaert K, Bmc Pediatrics, Child, Cohen J, Communication, De Vleminck A, Deliens L, Gilissen J, Humans, Kars MC, Multi-Centre randomised controlled trial, Multicenter Studies as Topic, Neoplasms/therapy, Paediatric oncology, paediatric palliative care, Parent-adolescent communication, Parents, Randomized Controlled Trials as Topic, Surveys And Questionnaires, Terminal Care, van der Werff TBJ, van Driessche A
End-of-life Care Patterns Associated With Pediatric Palliative Care Among Children Who Underwent Hematopoietic Stem Cell Transplant.
Tags: 2016, Advanced Cancer, Biology of Blood and Marrow Transplantation, Bone-marrow-transplantation Hematology, Chemotherapy, End Of Life, End Of Life Care, Guo D, Immunology, Index Medicus, Integration, June 2016 List, Koch R, Lehmann L, London WB, Multicenter, Oncology Care, Outcomes, Palliative Care, Parents, Pediatrics, Perspectives, Psychological Distress, Sridharan M, Stem Cell Transplant, Transplantation, Ullrich C, Wolfe J
Concerns of Parents with Children Receiving Home-Based Pediatric Palliative Care
Grief reactions of couples to perinatal loss: a one-year prospective follow-up
Parent reports of quality of life for pediatric patients with cancer with no realistic chance of cure
Impact of parental socioeconomic factors on childhood cancer mortality: a population-based registry study
Tags: 2018, Acta Oncologica, Adolescent, Child, Female, Finland/epidemiology, Humans, Income, Infant, Madanat-Harjuoja L, Male, Malila N, Mortality, Neoplasms/*mortality/therapy, Oncology 2019 List, Parents, Pitkaniemi J, Preschool, Rantanen M, Registries, Socioeconomic Factors, Taskinen M, Tolkkinen A, Young Adult
Improving estimates of caregiver time cost and family impact associated with birth defects
Sleep disturbances in children, adolescents, and young adults with severe psychomotor impairment: impact on parental quality of life and sleep
Tags: 2014, Adolescent, Adult, Backlog, Blankenburg M, Caregivers, Child, Developmental Medicine and Child Neurology, Female, Health Status, Humans, Infant, Journal Article, Male, Michel E, Newborn, Parents, Preschool, Psychomotor Disorders, Quality Of Life, Questionnaires, Retrospective Studies, Sleep Disorders, Tietze AL, Young Adult, Zernikow B
Scoping Review of Memory Making in Bereavement Care for Parents After the Death of a Newborn
Symptoms in the palliative phase of children with cancer
Tags: 2007, Adolescent, Age Factors, Anorexia, Attitude To Death, Backlog, Brain Neoplasms, Caregivers, Child, Emotions, Fatigue, Fear, Female, Gastrointestinal Diseases, Hoogerbrugge PM, Humans, Infant, Journal Article, Leukemia, Male, Mobility Limitation, Neoplasms, Pain, Pain Management, Palliative Care, Parent-child Relations, Parents, Pediatric Blood & Cancer, Physician-patient Relations, Preschool, Prins JB, Professional-family Relations, Psychological, Questionnaires, Retrospective Studies, Social Support, Stress, Terminal Care, Theunissen JMJ, Treatment Failure, van Achterberg T, van den Ende CHM, Vernooij-Dassen M
Experiences and Needs of Parents of Palliative Paediatric Oncology Patients: A Meta-Synthesis
Parental perception of cold extremities and other accompanying symptoms in children with cerebral palsy
Tags: 2008, Adolescent, Adult, Backlog, Body Temperature/physiology, Cerebral Palsy/complications/physiopathology, Child, Constipation/etiology, Data Collection, Englund E, European Journal of Paediatric Neurology, Extremities/blood supply/physiology, Female, Health Status, Humans, Journal Article, Male, Malker H, Muscle Tonus/physiology, Pain/etiology, Parents, Preschool, Q3 Scoping Review Results, Questionnaires, Sleep Disorders/etiology, Stener-Victorin E, Svedberg LE
Shared decision-making in pediatric palliative care
Life threatening illness and hospice care.
Tags: 1989, Adolescent, Archives of Disease in Childhood, Attitude To Health, Backlog, Baum JD, Bereavement, Child, Consumer Satisfaction, Employment, Family Health, Forrest GC, Hospices, Humans, Journal Article, Longitudinal Studies, Marriage, Mental Disorders/psychology, Non-U.S. Gov't, Parents, Preschool, Professional-family Relations, Research Support, Respite Care, Retrospective Studies, Social Support, Stein A, Terminal Care/psychology, Woolley H
The positive impact of children with an intellectual disability on the family.
Children's reactions to parental and sibling death
Social support and prolonged grief disorder symptoms in parents who lost their only child from urban and rural China
Tags: 2023, 2023 SE5 - Low Resource Setting, China, Fu Z, Grief, International Classification of Diseases, Li W, Li X, Ma J, Only Children, Parents, parents who lost their only child (shiduers), prolonged grief disorder (PGD), Psychological Trauma: Theory, Research, Practice, and Policy, Rural Environments, Social Support, Song C, Symptoms, urban/rural area, Wang J, Yu Y