Browse Items (59 total)
- Tags: Developmental Medicine and Child Neurology
End Of Life Care In Paediatric Neurodegenerative Disease: A Regional Experience
Tags: 2016, Case Study, Child, Clinical Article, Controlled Study, Degenerative Disease, Developmental Medicine and Child Neurology, Donald A, England, Family, Hospital, Human, Kauffmann L, May 2017 List, Myoclonus, Neurodegenerative Diseases, Neurology, Only Child, Palliative Care, Palliative Therapy, Personal Experience, Ram D, Rare Disease, Seizure, Social Welfare, Symptom, Terminal Care, Vassallo G
Seizure Management In End Of Life Care For Children
Life expectancy among people with cerebral palsy in Western Australia
Tags: 2001, Adolescent, Adult, Backlog, Badawi N, Blair E, Cause Of Death, Cerebral Palsy/mortality/pathology, Child, Delivery of Health Care, Developmental Medicine and Child Neurology, Disabled Persons, Epidemiologic Studies, Female, Humans, Intelligence, Journal Article, Life Expectancy, Male, Middle Aged, Non-U.S. Gov't, Research Support, Stanley FJ, Survival Analysis, Watson L, Western Australia/epidemiology
Beliefs about pain among professionals working with children with significant neurologic impairment
Tags: 2001, Adult, Attitude Of Health Personnel, Backlog, Caregivers, Child, Child welfare, Developmental Medicine and Child Neurology, Female, Health Care Surveys, Humans, Journal Article, Male, Nervous System Diseases/complications, O'Donnell ME, Oberlander T, Pain, Physician-patient Relations, Quality Of Life
Caregivers' perceptions following gastrostomy in severely disabled children with feeding problems
Tags: 1997, Adolescent, Adult, Attitude To Health, Backlog, Caregivers/psychology, Child, Clarke M, Cost Of Illness, Developmental Disabilities/complications, Developmental Medicine and Child Neurology, Dickson A, Eating Disorders/etiology/therapy, Female, Fundoplication, Gastrostomy, Humans, Infant, Journal Article, Male, Nutritional Failure, Parents/psychology, Preschool, Psychological/psychology, Q3 Scoping Review Results, Quality Of Life, Questionnaires, Stress, Tawfik R, Thomas AG, Time Factors, Treatment Outcome
Sleep problems in children with Sanfilippo syndrome.
Tags: 1996, Backlog, Bax M, Child, Colville GA, Developmental Medicine and Child Neurology, Female, Humans, Journal Article, Longitudinal Studies, Male, Mucopolysaccharidosis III/classification, Mucopolysaccharidosis III/complications, Preschool, Questionnaires, Sleep Disorders/etiology, Sleep Disorders/therapy, Time Factors, Watters JP, Yule W
Nutrition-related growth failure of children with quadriplegic cerebral palsy
Tags: 1993, Adolescent, Anthropometry, Backlog, Cerebral Palsy/complications, Charney EB, Child, Comparative Study, Cronk CE, Davies JC, Developmental Medicine and Child Neurology, Female, Growth Disorders/diagnosis/etiology, Humans, Journal Article, Male, Non-U.S. Gov't, Nutrition Assessment, Nutrition Disorders/complications, Nutritional Status, P.H.S., Preschool, Quadriplegia/complications, Research Support, Sex Factors, Stallings VA, U.S. Gov't
Cornerstone care for families of children with life-threatening illness.
Tags: 1991, Adaptation, Backlog, Baum JD, Brain Diseases/psychology/therapy, Child, Continuity Of Patient Care, Developmental Medicine and Child Neurology, Family/psychology, Forrest GC, Grief, Home Nursing/psychology, Hospices, Humans, Journal Article, Longitudinal Studies, Neuromuscular Diseases/psychology/therapy, Patient Care Team, Professional-family Relations, Psychological, Public Assistance, Sick Role, Social Support, Stein A, Terminal Care/psychology, Woolley H
Prevalence and severity of feeding and nutritional problems in children with neurological impairment: Oxford Feeding Study
Tags: 2000, Adolescent, Backlog, Child, Cross-sectional Studies, Developmental Medicine and Child Neurology, Disabled Children, Feeding and Eating Disorders of Childhood/epidemiology/etiology, Female, Ford-Adams ME, Griffiths P, Humans, Johnson A, Journal Article, Lambert B, Male, Nervous System Diseases/complications, Non-U.S. Gov't, Nutrition Disorders/epidemiology/etiology, Parent-child Relations, Preschool, Prevalence, Research Support, Rose M, Severity Of Illness Index, Sullivan P
Permanent gastrostomy in severely brain-damaged children
Tags: 1969, Backlog, Brain Diseases/therapy, Brain Injuries/therapy, Cerebral Palsy/therapy, Chafiian J, Child, Child Nutrition, Deglutition Disorders/therapy, Developmental Medicine and Child Neurology, Diffuse Cerebral Sclerosis of Schilder/therapy, Encephalitis/therapy, Gastrostomy, Humans, Infant, Infant Nutrition, Journal Article, Lipoidosis/therapy, Postoperative Complications, Pourfar M, Preschool, Time Factors
Joubert syndrome: long-term follow-up
Tags: 2004, Achilles Tendon/pathology/physiopathology, Backlog, Cerebellar Ataxia/physiopathology/radiography, Cerebellum/abnormalities/radiography, Child, Chong K, Developmental Disabilities/physiopathology/radiography, Developmental Medicine and Child Neurology, Disease Specific, Evoked Potentials, Eye Movements, Female, Follow-up Studies, Harris CM, Hodgkins PR, Humans, Journal Article, Kriss A, Magnetic Resonance Imaging, Male, Pigment Epithelium of Eye/pathology/physiopathology, Prognosis, Russell-Eggitt I, Shawkat FS, Taylor DS, Thompson DA, Timms C, Tomography, Visual, X-Ray Computed
Effects of gastrostomy feeding in children with cerebral palsy: an AACPDM evidence report
Tags: 2003, AACPDM, Adolescent, Backlog, Butler C, Cerebral Palsy/complications, Child, Developmental Medicine and Child Neurology, Enteral Nutrition, Gastrostomy, Growth Disorders/etiology/prevention & control, Humans, Infant, Journal Article, Nutrition Disorders/etiology/prevention & control, Nutritional Failure, O'Donnell ME, Preschool, Samson-Fang L
Melatonin treatment for sleep disorders in children with neurodevelopmental disorders: an observational study
Tags: 2002, Adolescent, Backlog, Child, Davies P, Developmental Disabilities/complications, Developmental Medicine and Child Neurology, Dose-Response Relationship, Drug, Epilepsy/complications, Female, Humans, Infant, Journal Article, Male, Medical Records, Melatonin/therapeutic use, Nervous System Diseases/complications, Outpatients, Preschool, Q3 Scoping Review Results, Ross C, Sex Factors, Sleep Disorders/complications/drug therapy, Vision Disorders/complications, Whitehouse W
Infantile neuroaxonal dystrophy (Seitelberger's disease)
Tags: 2002, Auditory, Backlog, Brain Stem/physiology, Brain/pathology/physiopathology, Developmental Medicine and Child Neurology, Diagnosis, Differential, Disease Specific, Electroencephalography, Evoked Potentials, Gordon N, Humans, Journal Article, Magnetic Resonance Imaging, Neuroaxonal Dystrophies/complications/diagnosis, Pantothenate Kinase-Associated Neurodegeneration/diagnosis, Seizures/diagnosis/etiology, Visual/physiology
Evidence based medicine
Tags: 2004, Adaptation, Backlog, Baxter P, Capital Financing/economics, Cerebral Palsy/therapy, Child, Developmental Medicine and Child Neurology, Epilepsy/drug therapy, Evidence-based Medicine, Gastrostomy/utilization, Health Personnel, Home Care Services/organization & administration, Humans, Journal Article, Melatonin/physiology, Muscular Dystrophies, Psychological, Q3 Scoping Review Results
Clinical validation of the paediatric pain profile
Tags: 2004, Adolescent, Analgesia, Backlog, Brady M, Child, Communication Disorders, Crichton N, Developmental Medicine and Child Neurology, Disabled Children, Female, Goldman A, Humans, Hunt A, Infant, Journal Article, Male, Mastroyannopoulou K, Moffat V, Nervous System Diseases/complications, Non-U.S. Gov't, Operative, Oulton K, Pain Measurement/methods, Preschool, Q3 Scoping Review Results, Reproducibility of Results, Research Support, Seers K, Sensitivity and Specificity, Surgical Procedures
Assessing the impact of pediatric epilepsy and concomitant behavioral, cognitive, and physical/neurologic disability: Impact of Childhood Neurologic Disability Scale
Tags: 2003, Adolescent, Backlog, Breau L, Camfield C, Camfield P, Child, Child Behavior Disorders/diagnosis/etiology, Chronic Disease, Cognition Disorders/diagnosis/etiology, Developmental Medicine and Child Neurology, Diagnostic and Statistical Manual of Mental Disorders, Disability Evaluation, Epilepsy/complications/diagnosis, Female, Follow-up Studies, Humans, Journal Article, Longitudinal Studies, Male, Preschool, Questionnaires, Reproducibility of Results
Impact of feeding problems on nutritional intake and growth: Oxford Feeding Study II
Tags: 2002, Adolescent, Anthropometry, Backlog, Brain Damage, Child, Child Nutrition Disorders/diagnosis, Chronic/diagnosis, Developmental Disabilities/diagnosis, Developmental Medicine and Child Neurology, Disabled Children, Eating Disorders/diagnosis/etiology, Failure to Thrive/diagnosis/etiology, Female, Ford-Adams ME, Humans, Johnson A, Journal Article, Juszczak E, Lambert BR, Male, Nutrition Assessment, Nutritional Failure, Preschool, Rose M, Sullivan P
Gastrostomy tube feeding in children with cerebral palsy: a prospective, longitudinal study
Tags: 2005, Adolescent, Alder N, Anthropometry/methods, Bachlet AM, Backlog, Body Height/physiology, Cerebral Palsy/classification/nursing/surgery, Child, Child Development/physiology, Demography, Developmental Medicine and Child Neurology, Eltumi M, Enteral Nutrition/methods, Female, Gastrostomy/methods, Grant HW, Head/growth & development, Humans, Infant, Journal Article, Juszczak E, Lambert B, Longitudinal Studies, Male, McLean L, Newborn, Nutritional Status/physiology, Preschool, Retrospective Studies, Sullivan P, Thomas AG, Time Factors, Treatment Outcome, Vernon-Roberts A, Weight Gain/physiology
Initial development and validation of the Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHILD).
Tags: 2006, Activities of Daily Living, Adolescent, Backlog, Campbell K, Caregivers, Cerebral Palsy/classification/nursing/psychology, Child, Developmental Medicine and Child Neurology, Disabled Persons/psychology/rehabilitation, Fehlings D, Female, Health Status, Humans, Journal Article, Kiran S, Knights S, Longitudinal Studies, Male, Narayanan UG, Preschool, Quality Of Life, Questionnaires, Reproducibility of Results, Severity Of Illness Index, Weir S
Coping with Dravet syndrome: parental experiences with a catastrophic epilepsy
Tags: 2006, Adaptation, Adolescent, Adult, Backlog, Camfield CS, Camfield PR, Caregivers/psychology, Child, Chronic Disease, Developmental Medicine and Child Neurology, Epilepsy/nursing/psychology, Family Health, Female, Humans, Journal Article, Male, Middle Aged, Nolan KJ, Parent-child Relations, Parents/psychology, Preschool, Psychological, Psychological/psychology, Q3 Scoping Review Results, Seizures/nursing/psychology, Severity Of Illness Index, Social Isolation, Social Support, Stress, Syndrome
Pyruvate dehydrogenase E3 binding protein (protein X) deficiency
Tags: 2006, Backlog, Brown GK, Brown RM, Child, Developmental Medicine and Child Neurology, DNA Mutational Analysis, Female, Head RA, Humans, Infant, Journal Article, Male, Morris AA, Preschool, Protein Subunits/deficiency/genetics, Pyruvate Dehydrogenase Complex Deficiency Disease/diagnosis/genetics/metabolism, Pyruvate Dehydrogenase Complex/genetics/metabolism, Q3 Scoping Review Results, Raiman JA, Severity Of Illness Index, Walter JH, Whitehouse WP
Medical, surgical, and health outcomes of gastrostomy feeding
Tags: 2006, Adolescent, Anthropometry, Backlog, Carr LJ, Cass H, Child, Cognition Disorders/epidemiology, Craig GM, Developmental Medicine and Child Neurology, Diet Records, Disabled Children, Female, Gastrostomy/statistics & numerical data, Hastings RP, Health Status, Humans, Infant, Journal Article, Lawson M, Male, Motor Skills Disorders/epidemiology, Nutritional Failure, Nutritional Status, Postoperative Complications/epidemiology, Preschool, Prospective Studies, Psychology, Reilly S, Ryan M, Spitz L, Townsend J
Central hypothermia as a cause of acute pancreatitis in children with neurodevelopmental impairment
Tags: 2008, Adolescent, Backlog, Body Temperature Regulation, Child, Cohort Studies, Developmental Disabilities/complications/physiopathology, Developmental Medicine and Child Neurology, Female, Hauer JM, Humans, Hypothermia/complications/prevention & control/psychology, Journal Article, Male, Pancreatitis/diagnosis/etiology/therapy, Preschool, Q3 Scoping Review Results, Recurrence, Retrospective Studies, Risk Factors
Neurodegenerative conditions: Exploring the role of music to enhance speech and cognitive functioning in children with batten disease
Prevalence and management of dystonia in a paediatric palliative care cohort
Tags: 2017, 302-17-0 (chloral hydrate), 4205-90-7 (clonidine), 4205-91-8 (clonidine), 57066-25-8 (clonidine), benzodiazepine derivative, Child, chloral hydrate, Clinical Article, clonidine, Cohort Analysis, Cross-sectional Study, Developmental Medicine and Child Neurology, Diagnosis, Documentation, Dystonia, England, Female, Hughes G, Human, joint, Laddie J, Lumsden DE, Male, March 2018 List, Neurology, Palliative Therapy, precancer, Preschool Child, Prevalence, Seizure, Slater T
Sleep disturbances in children, adolescents, and young adults with severe psychomotor impairment: impact on parental quality of life and sleep
Tags: 2014, Adolescent, Adult, Backlog, Blankenburg M, Caregivers, Child, Developmental Medicine and Child Neurology, Female, Health Status, Humans, Infant, Journal Article, Male, Michel E, Newborn, Parents, Preschool, Psychomotor Disorders, Quality Of Life, Questionnaires, Retrospective Studies, Sleep Disorders, Tietze AL, Young Adult, Zernikow B
Recent trends in cerebral palsy survival. Part II: individual survival prognosis
Tags: 2014, Adolescent, Adult, Backlog, Brooks JC, California, Cerebral Palsy, Child, Developmental Medicine and Child Neurology, Disabled Persons, Female, Humans, Infant, Journal Article, Kaplan-Meier Estimate, Life Expectancy, Male, Mortality, Preschool, Prognosis, Rosenbloom L, Shavelle RM, Strauss DJ, Tran Linh M, Wu YW, Young Adult
A systematic review of activities of daily living measures for children and adolescents with cerebral palsy
Changing landscape of paediatric palliative care
Tags: 2018, Adult, August 2018 List, catering service, Child, conference abstract, Developmental Medicine and Child Neurology, Diagnosis, Epilepsy, Female, Hills M, Hospice, Human, landscape, life event, Major Clinical Study, Male, Medical Care, Morbidity, Mortality, muscle spasm, Nallapeta N, Palliative Therapy, Retrospective Study, Young Adult
Supportive care in children with spinal muscular atrophy type 1: Results from a french multicentric study
Tags: 2019, August 2019 List, Barnerias C, Cances C, Caregiver, Chabrol B, Child, Clinical Research, conference abstract, Controlled Study, Cuisset J M, Death, Desguerre I, Developmental Medicine and Child Neurology, Drug Therapy, Female, France, Gastrostomy, History, Hully M, Human, Intensive Care Unit, Isapoff A, Major Clinical Study, Male, new drug, Noninvasive Ventilation, nusinersen, nutrition supplement, Palliative Therapy, Physician, Prospective Study, Rivier F, Ropars J, Sabouraud P, Sedation, Sedative Agent, standardization, Vuillerot C, Werdnig Hoffmann disease
Core outcome set for children with neurological impairment and tube feeding
Reliability and predictive validity of the Standardized Infant NeuroDevelopmental Assessment neurological scale
Tags: 2019, Developmental Medicine and Child Neurology, Diagnostic Techniques, Female, Hadders-Algra M, Humans, Infant, Longitudinal Studies, Male, Neurodevelopmental Disorders/diagnosis, Neurological/standards, November 2019 List, Philippi H, Pietz J, Reproducibility of Results, Rupp A, Severity Of Illness Index, Tacke U
Standardized assessment of behavior and adaptive living skills in juvenile neuronal ceroid lipofuscinosis
Tags: 2006, Adams H, batten-disease, behavioral problems, characteristics, childhood, Children, De Blieck E A, Developmental Medicine and Child Neurology, Dure L, Epilepsy, impairments, Kwon J, Marshall F J, Mink J W, NCL3, NCL6, Neurosciences & Neurology, Pearce D A, Pediatrics, psychiatric problems, Ramirez-Montealegre D, Rothberg P G, Scale, Symptoms, Trajectory, Validity
Findings from a multidisciplinary clinical case series of females with Rett syndrome
Sleep problems in children with Sanfilippo syndrome.
Tags: 1996, Bax M, Child, Child Preschool, Colville G A, Developmental Medicine and Child Neurology, Female, Humans, Longitudinal Studies, Male, MPS III, Mucopolysaccharidosis III/classification, Mucopolysaccharidosis III/complications, psychological intervention, Questionnaires, Sleep Disorders/etiology, Sleep Disorders/therapy, sleep disturbance/disorders, Time Factors, Watters J P, Yule W
Quantification of walking-based physical activity and sedentary time in individuals with Rett syndrome
Tags: 2017, Adolescent, Adult, characteristics, Controlled Study, Cross-sectional Study, Data Base, Developmental Medicine and Child Neurology, Downs J, Female, Hill K, Human, Leonard H, linear regression analysis, Major Clinical Study, Model, Newton N, Quantitative Study, Rett syndrome, scoliosis, Seizure, tone and motor problems, Trajectory, Wakefulness, Walking, Wong K
Level of purposeful hand function as a marker of clinical severity in Rett syndrome
Tags: 2010, Adolescent, Adult, Age Factors, Bebbington A, characteristics, Child, Child Preschool, Cross-sectional Studies, Databases as Topic, Developmental Medicine and Child Neurology, Downs J, Female, Genotype, Ghosh S, Hand, Humans, Jacoby P, Kaufmann W E, Leonard H, Methyl-CpG-Binding Protein 2, Motor Activity, Mutation, Phenotype, Registries, Rett syndrome, Severity Of Illness Index, tone and motor problems, Trajectory, Video Recording, Walking, Williams A, Young Adult