Browse Items (209 total)
- Tags: Questionnaires
Scoring evaluation of the natural course of mucopolysaccharidosis type IIIA (Sanfilippo syndrome type A)
Tags: 2007, Adolescent, Adult, Backlog, Braulke T, Child, Cohort Studies, Disease Progression, Female, Gal A, Humans, Infant, Journal Article, Kossow K, Longitudinal Studies, Male, Meyer A, Mucopolysaccharidosis III/classification/diagnosis/pathology, Muhlhausen C, Muschol N, Newborn, Pediatrics, Preschool, Q3 Scoping Review Results, Questionnaires, Research Design, Ullrich K
Parental perspectives on end-of-life care in the pediatric intensive care unit
Tags: 2002, Adult, Backlog, Boston, Burns JP, Child, Critical Care Medicine, Death and Euthanasia, Decision Making, Empirical Approach, Female, Griffith JL, Humans, ICU Decision Making, Intensive Care Units, Journal Article, Male, Meyer EC, Pain, Parents/psychology, Pediatric, Prognosis, Quality Of Health Care, Quality Of Life, Questionnaires, Terminal Care, Truog RD, Withholding Treatment
Improving the quality of end-of-life care in the pediatric intensive care unit: parents' priorities and recommendations
Tags: 2006, Adolescent, Backlog, Burns JP, Child, Communication, Decision Making, Humans, Infant, Intensive Care Units, Journal Article, Meyer EC, Newborn, Non-U.S. Gov't, Palliative Care/psychology, Parent-child Relations, Parents/psychology, Pediatric, Pediatrics, PedPal Lit, Preschool, Professional-family Relations, Questionnaires, Research Support, Ritholz MD, Terminal Care/psychology, Truog RD
Understanding uncertainty and minimizing families' anxiety at the time of transfer from intensive care
Tags: 2003, anxiety, Backlog, Communication, Courtney M, Coyer F, Critical Illness/psychology, Emotions, Family/psychology, Humans, ICU Decision Making, Intensive Care Units, Intensive Care/psychology, Journal Article, Mitchell ML, Nursing & Health Sciences, Patient Transfer, Professional-family Relations, Questionnaires, Stress (Psychology), Uncertainty
Setting-up a Supportive and Palliative Care Service for Children with Life-threatening Illnesses in Maharashtra -- Children's Palliative Care Project in India
Tags: 2022, 2023 SE5 - Low Resource Setting, Academic Performance, Administration, Child, Child Advocacy, Cognition, Collaboration, Community Health Services, Critical Illness, Data Collection, Education, Female, Ghoshal A, Health and Welfare Planning, Health Facility Administrators, Health Services Accessibility, Hospitals Pediatric, Human, In Infancy and Childhood, India, Indian Journal Of Palliative Care, International Agencies, Licensure, Male, Marston JM, Muckaden MA, Needs Assessment, Only Child, Pain, Paleri AK, Palliative Care, Pediatric Care, Personnel Health Facility, Program Implementation, Psychosocial Functioning, Quality Of Life, Questionnaires, Symptoms, Talawadekar P, Teamwork
Suicide ideation among parents bereaved by the violent deaths of their children.
Tags: 2003, Accidents/psychology, Adaptation, Adolescent, Adult, Backlog, Bereavement, Child, Depression/diagnosis/psychology, Family Health, Female, Homicide/psychology, Humans, Issues In Mental Health Nursing, Johnson LC, Journal Article, Lohan JA, Longitudinal Studies, Male, Middle Aged, Murphy SA, Parents/psychology, Post-Traumatic/diagnosis/psychology, Predictive Value of Tests, Psychiatric Status Rating Scales, Psychological, Psychological/diagnosis/psychology, Questionnaires, Self Efficacy, Social Support, Stress, Stress Disorders, Suicide/psychology, Tapper VJ, Violence/psychology
Self-concept of siblings of children with cancer
Tags: 2001, Backlog, Child, Childhood Neoplasms -- Psychosocial Factors, Data Analysis Software, Descriptive Research, Exploratory Research, Female, Human, Issues In Comprehensive Pediatric Nursing, Journal Article, Male, Murray Js, psychosocial, Purposive Sample, Questionnaires, Self Concept -- Evaluation, Self Concept -- In Infancy and Childhood, sibling bereavement, Siblings -- Psychosocial Factors, Southwestern United States, Support, T-Tests
Initial development and validation of the Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHILD).
Tags: 2006, Activities of Daily Living, Adolescent, Backlog, Campbell K, Caregivers, Cerebral Palsy/classification/nursing/psychology, Child, Developmental Medicine and Child Neurology, Disabled Persons/psychology/rehabilitation, Fehlings D, Female, Health Status, Humans, Journal Article, Kiran S, Knights S, Longitudinal Studies, Male, Narayanan UG, Preschool, Quality Of Life, Questionnaires, Reproducibility of Results, Severity Of Illness Index, Weir S
Measured enthusiasm: does the method of reporting trial results alter perceptions of therapeutic effectiveness?
Tags: 1992, Adult, Annals Of Internal Medicine, Attitude Of Health Personnel, Backlog, Chen E, Clinical Trials, Data Interpretation, Gemfibrozil/therapeutic use, Hospitals, Humans, Hyperlipidemia/complications/drug therapy/mortality, Journal Article, Male, Middle Aged, Myocardial Infarction/etiology/mortality/prevention & control, Naylor CD, Non-U.S. Gov't, Ontario, Outcome Assessment (health Care), Questionnaires, Research Support, Risk, statistical, Strauss B, Teaching, Treatment Outcome
Survey of specialized tertiary care facilities for adults with congenital heart disease
Tags: 2004, Adolescent, Adolescent Transitions, Adult, Backlog, Cardiac Care Facilities/organization & administration/utilization, Congenital/diagnosis/mortality/surgery, Europe/epidemiology, Female, Gatzoulis MA, Health Care Surveys, Heart Defects, Hospitalization/statistics & numerical data, Humans, International Journal Of Cardiology, Journal Article, Liberthson R, Male, Middle Aged, Murphy D, Niwa K, North America/epidemiology, Patient Admission/statistics & numerical data, Patient Care Team, Perloff JK, Program Evaluation, Quality Of Health Care, Questionnaires, Reoperation/utilization, Resource Allocation, Survival Analysis, Treatment Outcome, Warnes CA, Webb GD
Mitochondrial disease: needs and problems of children, their parents and family. A systematic review and pilot study into the need for information of parents during the diagnostic phase.
Tags: 2007, Adult, Backlog, Child, Goverde W, Hermans-Peters M, Humans, Interviews As Topic, Journal Article, Journal Of Inherited Metabolic Disease, Kemps H, Longitudinal Studies, Mitochondrial Diseases/diagnosis/psychology, Noorda G, Parent-child Relations, Parents/education, Patient Selection, Pilot Projects, Questionnaires, Reproducibility of Results, Research Design, Schoonhoven L, Smeitink JA, van Achterberg T
Advice seeking and appropriate use of a pediatric emergency department
Tags: 1993, Adolescent, Age Factors, algorithms, American Journal Of Diseases Of Children, Backlog, Birth Order, Child, Counseling/statistics & numerical data, Cross-sectional Studies, Dougherty GE, Emergency Service, Female, Health Services Misuse/statistics & numerical data, Health Services Research, Hospital/utilization, Hospitals, Humans, Infant, Journal Article, Male, Newborn, Oberlander T, Parents/education/psychology, Patient Acceptance Of Health Care/statistics & Numerical Data, Pediatric/utilization, Pless IB, Preschool, Quebec, Questionnaires, Severity Of Illness Index, Sex Factors, Teaching/utilization
Characteristics of family conferences at the bedside versus the conference room in pediatric critical care
Tags: 2013, Attitude Of Health Personnel, Backlog, Child, Cohort Studies, Decision Making, Female, Health Care Surveys, Hinds PS, Humans, Intensive Care, Intensive Care Units, Journal Article, Male, October TW, Parents, Patient Care Team, Patient Participation, Pediatric, Pediatric Critical Care Medicine, Physicians, Professional-family Relations, Prospective Studies, Questionnaires, Watson Anne C
The development of an interdisciplinary outpatient clinic in specialist palliative care
Tags: 2004, Backlog, England, Hospital/organization & administration, Humans, International Journal of Palliative Nursing, Journal Article, Models, Needs Assessment/organization & administration, Nursing, Nursing Assessment, Nursing Audit, Nursing Evaluation Research, Oliver D, Outpatient Clinics, Palliative Care/organization & Administration, Patient Care Team/organization & administration, Patient Satisfaction, Practice Guidelines as Topic/standards, Program Development/methods, Program Evaluation, Questionnaires
The Adolescent Adjustment Profile (AAP) in comparisons of patients with obesity, phenylketonuria or neurobehavioural disorders
Palliative care education in an Australian undergraduate pharmacy curriculum: an exploratory descriptive study
Tags: 2023, Adolescence, Adult, Ash K, Australia, clinical reasoning, Communication, Confidence, Curriculum, Descriptive Research, Descriptive Statistics, Education, Education Pharmacy, Empathy, Exploratory Research, Female, Human, International Journal of Pharmacy Practice, June 2022 List, Kumar S, Male, Mann-Whitney U Test, Ong JA, Palliative Care, Prospective Studies, Qualitative Studies, Questionnaires, Reflection, Rego J, Saini B, Self Concept, Students Undergraduate, surveys, Thematic Analysis, Ung T, Yates P
Complementary and alternative therapy use in pediatric oncology patients with failure of frontline chemotherapy
Tags: 2011, Adolescent, Adult, Antineoplastic Agents/therapeutic use, Backlog, Child, Complementary Therapies, Female, Humans, Infant, Insogna IG, Journal Article, Kang T, Male, Neoplasms/therapy, Newborn, Paisley MA, Pediatric Blood & Cancer, Preschool, Questionnaires, Religion, Rheingold SR, Salvage Therapy, Survival Rate, Treatment Failure, Treatment Outcome, Young Adult
Training health professionals in caring for dying children and grieving families
Safety of polyethylene glycol 3350 for the treatment of chronic constipation in children
Tags: 2003, Adolescent, Alanine Transaminase/blood, Archives Of Pediatrics & Adolescent Medicine, Backlog, Bishop WP, Cathartics/therapeutic use, Child, Chronic Disease, Constipation/drug therapy, Encopresis/drug therapy, Female, Humans, Journal Article, Loening-Baucke V, Male, Non-U.S. Gov't, Pashankar DS, Patient Compliance, Polyethylene Glycols/therapeutic use, Preschool, Prospective Studies, Questionnaires, Research Support
Bereaved Jewish mothers of children who died of cancer: the relationship between the mother and the deceased child and the mother's perceived functioning
Palliative care on the net: an online survey of health care professionals
Tags: 2001, Adult, Aged, Attitude Of Health Personnel, Attitude to Computers, Attitudes, Backlog, Bruera E, Computer Communication Networks, Databases, Factual/utilization, Female, Health Knowledge, Health Personnel/psychology/statistics & numerical data, Human, Information Services/utilization, Internet/utilization, Journal Article, Journal Of Palliative Care, Male, Middle Aged, Nurses/psychology/statistics & numerical data, Online Systems/utilization, Pereira J, Periodicals, Pharmacists/psychology/statistics & numerical data, Physicians/psychology/statistics & numerical data, Practice, Quan H, Questionnaires, Terminal Care/statistics & Numerical Data
Symptoms of anxiety and depression in family members of intensive care unit patients: ethical hypothesis regarding decision-making capacity
Tags: 2001, Anxiety/epidemiology/etiology, Azoulay E, Backlog, Canoui P, Chevret S, Critical Care Medicine, Critical Illness/therapy, Decision Making, Depressive Disorder/epidemiology/etiology, Dhainaut JF, Ethics, Euthanasia, Family/psychology, Female, France/epidemiology, Grassin M, Group French FAMIREA, Hubert P, Humans, Intensive Care Units, Journal Article, LeGall JR, Lemaire F, Life Support Care/utilization, Logistic Models, Male, Medical, Multivariate Analysis, Nonparametric, Passive, Pochard F, Prevalence, Prospective Studies, Questionnaires, Schlemmer B, Statistics, Zittoun R
An assessment of gender differences in the perception of benefit resulting from the loss of a child.
Tags: 2000, Adaptation, Adult, Aged, Backlog, Bereavement, Child, Esprey Y, Female, Gender Identity, Grief, Growth, Humans, Journal Article, Journal Of Traumatic Stress, Life Change Events, Longitudinal Studies, Male, Middle Aged, Perception, Polantinsky S, Psychological, Questionnaires, Sex Factors
Transition of care: health care professionals' view
Tags: 2004, Adolescent, Adolescent Health Services/standards, Adolescent Medicine/standards, Adolescent Transitions, Adult, Attitude Of Health Personnel, Backlog, Barrow J, Burr P, Child, Child Health Services/standards, Chronic Disease/psychology/therapy, Continuity of Patient Care/standards, Dennard L, Focus Groups, Golberg B, Hospital/psychology, Hospitals, Humans, Journal Article, Journal Of Nursing Management, Lennox V, London, Needs Assessment, Nursing Methodology Research, Patient Transfer/standards, Pediatrics/standards, Personnel, Por J, Questionnaires, Teaching
Can art therapy reduce death anxiety and burnout in end-of-life care workers? a quasi-experimental study
Tags: 2014, Adolescent, Adult, anxiety, Art Therapy, Backlog, Burnout, Chan F, Cheng C, Female, Health Personnel, Humans, Hy Ho A, International Journal of Palliative Nursing, Journal Article, Lu Wang Xiao, Male, Middle Aged, Potash J, Professional, Questionnaires, Self Efficacy, Terminal Care, Young Adult
The comprehensive care team: a controlled trial of outpatient palliative medicine consultation
Tags: 2004, Advance Care Planning/statistics & Numerical Data, Aged, Archives Of Internal Medicine, Backlog, California, Chronic Obstructive/complications/psychology/therapy, Dibble SL, Female, Heart Failure/complications/psychology/therapy, Hospital/organization & administration/utilization, Humans, Journal Article, Male, McPhee SJ, Neoplasms/complications/psychology/therapy, Office Visits/statistics & numerical data, Outcome And Process Assessment (health Care), Outpatient Clinics, Palliative Care/organization & Administration, Pantilat SZ, Patient Care Team, Primary Health Care/organization & administration/utilization, Pulmonary Disease, Quality Of Life, Questionnaires, Rabow MW
Meeting the needs of parents around the time of diagnosis of disability among their children: evaluation of a novel program for information, support, and liaison by key workers
Tags: 2004, Backlog, Child, Child Health Services/manpower/organization & administration, Disabled Children, Female, Health Personnel, Hospital Departments, Humans, Hundt GL, Infant, Journal Article, London, Male, Manaras I, Miller 2009 BMC HSR Refs, Parents/psychology, Patient Care Team, Patient Satisfaction, Pediatrics, Preschool, Questionnaires, Rahi JS, Social Work, Tuomainen H, Vision Disorders/diagnosis/psychology
The health and well-being of caregivers of children with cerebral palsy.
Tags: 2005, Adaptation, Adult, Backlog, Brehaut J, Caregivers/psychology, Cerebral Palsy/psychology, Child, Child Behavior Disorders/etiology, Cohort Studies, Disabled Children, Family Health, Female, Foster Home Care, Humans, Journal Article, Longitudinal Studies, Male, Middle Aged, Models, O'Donnell M, Ontario, Parent-child Relations, Parents, Pediatrics, Professional-patient Relations, Psychological, Psychological/epidemiology/etiology, Questionnaires, Raina P, Rosenbaum P, Russell D, Self Concept, Severity Of Illness Index, Social Support, Stress, Swinton M, Theoretical, Walter SD, Wood E, Zhu Bin
Practitioner Empathy and the Duration of the Common Cold
Tags: 2009, Backlog, Barrett BP, CARE MEASURE, Chewning B, Common Cold - immunology, Common Cold - pathology, Common Cold - therapy, Consultation, Craig BM, family medicine, General & Internal, GENERAL-PRACTICE, health outcomes, Hoeft T, Interleukin-8 - isolation & purification, Journal Article, Medicine, Model, Nasal Lavage Fluid - immunology, Niu M, PATIENT ENABLEMENT, PLACEBO, Primary Health Care - methods, Questionnaires, Rakel DP, RELATIONAL EMPATHY, Satisfaction
Variability in physician opinion on limiting pediatric life support
Tags: 1999, Backlog, Child, Cross-sectional Studies, Death and Euthanasia, Decision Making, Egger MJ, Empirical Approach, Euthanasia, Fellowships And Scholarships, Female, Guyatt GH, Hospital/psychology/statistics & numerical data, Humans, ICU Decision Making, Intensive Care Units, Intensive Care/psychology, Journal Article, Male, Medical Oncology/statistics & numerical data, Medical Staff, Nelson RM, Neoplasms/therapy, Passive/psychology, Pediatric, Pediatrics, Pediatrics/statistics & numerical data, Prognosis, Questionnaires, Randolph AG, Regression Analysis, Stidham GL, Terminal Care/psychology, Zollo MB
Factors explaining variability among caregivers in the intent to restrict life-support interventions in a pediatric intensive care unit
Tags: 1997, Activities of Daily Living, Adult, Attitude Of Health Personnel, Backlog, Child, Critical Care Medicine, Cross-sectional Studies, Death and Euthanasia, Decision Making, Empirical Approach, Euthanasia, Family/psychology, Hospital/psychology, Humans, ICU Decision Making, Intensive Care Units, Intervention, Interventions, Journal Article, Life Support Care, Linear Models, Medical Staff, Nursing Staff, Passive, Pediatric, Professional Patient Relationship, Prognosis, Questionnaires, Randolph AG, Wigton RS, Yeh TS, Zollo MB
Estimates of life expectancy by adolescents and young adults with congenital heart disease
Tags: 2006, Adolescent, Adolescent Transitions, Adult, Attitudes, Awareness, Backlog, Barzel M, Congenital/epidemiology, Female, Health Behavior, Health Knowledge, Health Status, Heart Defects, Humans, Irvine MJ, Journal Article, Journal of the American College of Cardiology, Life Expectancy, Logistic Models, Male, McCrindle BW, Practice, Questionnaires, Reid GJ, Siu SC, Webb GD
Using drugs to end life without an explicit request of the patient
Tags: 2007, 80 And Over, Adolescent, Adult, Aged, Assisted/ethics/legislation & jurisprudence/psychology, Backlog, Belgium, Bilsen J, Death studies, Decision Making, Denmark, Ethics, Euthanasia/ethics/legislation & jurisprudence/psychology, Female, Fischer S, Humans, Informed Consent, Intention, Journal Article, Male, Medical, Mental Competency/legislation & jurisprudence, Miccinessi G, Middle Aged, Netherlands, Norup M, Onwuteaka-Philipsen BD, Patient Participation/legislation & jurisprudence/psychology, Physician's Practice Patterns/ethics, Questionnaires, Rietjens JA, Suicide, Switzerland, Terminal Care/ethics/legislation & jurisprudence/psychology, van der Heide A, van der Maas PJ, van der Wal G, Vrakking AM
The health-line--a method for collecting data on self-rated health over time: a pilot study
Tags: 2001, Adolescent Transitions, Adult, Alexanderson KA, Attitude To Health, Backlog, Borg KE, Chi-Square Distribution, Female, Health Status, Hensing GK, Humans, Journal Article, Male, Pilot Projects, Questionnaires, Ringsberg KC, Scandinavian Journal Of Public Health, Self-Assessment, Sick Leave/statistics & numerical data, Sweden/epidemiology
Sharing the care: the key-working experiences of professionals and the parents of life-limited children
Tags: 2014, Adolescent, Adult, Backlog, Caregivers, Child, Child Health Services, Female, Focus Groups, Great Britain, Health Personnel, Health Services Needs And Demand, Humans, International Journal of Palliative Nursing, Journal Article, King N, Male, Middle Aged, Parents, Patient Care Planning, Professional-family Relations, Psychological, Questionnaires, Rodriguez A, Stress, Terminal Care
The relationship between grief adjustment and continuing bonds for parents who have lost a child
Tags: 2009, Adaptation, Adolescent, Adult, Attitude To Death, Backlog, Davies B, Female, Field NP, Grief, Humans, Infant, Interpersonal Relations, Journal Article, Kramer R, Life Change Events, Long JK, Male, Newborn, Object Attachment, Omega, Packman W, Parent-child Relations, Parents/psychology, Psychological, Quality Of Life, Questionnaires, Ronen R
What's Missing in Missing Data? Omissions in Survey Responses among Parents of Children with Advanced Cancer
Tags: 2014, Adolescent, Adult, Backlog, Disease Progression, Dussel V, Female, Feudtner C, Geyer JR, Humans, Journal Article, Journal of Palliative Medicine, Kang TI, Life Expectancy, Male, Neoplasms, Orellana L, Parents, prog, Prognosis, Quality Of Life, Questionnaires, Research, Rosenberg AR, surveys, Wolfe J
Treatment adherence of youth and young adults with and without a chronic illness
Tags: 2003, Acute Disease/psychology, Adaptation, Adolescent, Adolescent Behavior/psychology, Adolescent Psychology, Adult, Age Factors, Attitudes, Backlog, Case-Control Studies, Child, Chronic Disease/psychology, Crisp J, Female, Health Knowledge, Humans, Internal-External Control, Journal Article, Male, Mental Health, Needs Assessment, Nursing & Health Sciences, Patient Compliance/psychology, Patient Education, Practice, Predictive Value of Tests, Psychological, Questionnaires, Rosina R, Self Care/psychology, Steinbeck K
Satisfaction with information provided to Danish cancer patients: validation and survey results
Tags: 2013, 80 And Over, Adolescent, Adult, Aged, Backlog, Cross-sectional Studies, Denmark, Female, Groenvold M, Humans, Interviews As Topic, Johnsen AT, Journal Article, Lundstrøm LH, Male, Middle Aged, Neoplasms, Patient Education and Counseling, Patient Education as Topic, Patient Satisfaction, Petersen MA, Questionnaires, Ross L