Estimates of life expectancy by adolescents and young adults with congenital heart disease

Title

Estimates of life expectancy by adolescents and young adults with congenital heart disease

Creator

Reid GJ; Webb GD; Barzel M; McCrindle BW; Irvine MJ; Siu SC

Publisher

Journal Of The American College Of Cardiology

Date

2006

Subject

Female; Humans; Male; Adult; Logistic Models; Questionnaires; Health Status; Awareness; Health Behavior; Practice; adolescent; Attitudes; Adolescent Transitions; Health Knowledge; Heart Defects; Life Expectancy; Congenital/epidemiology

Description

OBJECTIVES: This study sought to determine what adolescents and young adults with moderate to complex congenital heart disease (CHD) believe their life span to be and to examine correlates of their beliefs. BACKGROUND: Patients with moderate to complex CHD have a shortened life expectancy. Patients' perceptions of their life expectancy have not been examined. METHODS: Young adults and older adolescents with moderate or complex CHD (n = 296) estimated their own life expectancy and that of healthy peers, and rated their health status and risk of CHD complications. Adults with CHD discussed reasons for life expectancy ratings in an interview. RESULTS: Patients with CHD expected to live to age 75 +/- 11 years, only 4 years less than their healthy peers. Over 85% of patients expected to live longer than our estimates of their life expectancy. Poorer health status and higher perceived risk of CHD complications related to shorter perceived life expectancy. Young adults lacked awareness and understanding of CHD-specific risks, and their life expectancy perceptions often related to risk factors for coronary artery disease. CONCLUSIONS: Patients with moderate to complex CHD expect to live almost as long as their healthy peers. For most patients, this is unlikely. The implications of these beliefs on health behaviors and life choices are unknown, but should be examined. Nevertheless, patients need accurate information delivered in a sensitive manner to make informed life choices regarding education, careers, and family.
2006

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Type

Journal Article

Citation List Month

Backlog

Citation

Reid GJ; Webb GD; Barzel M; McCrindle BW; Irvine MJ; Siu SC, “Estimates of life expectancy by adolescents and young adults with congenital heart disease,” Pediatric Palliative Care Library, accessed December 4, 2022, https://pedpalascnetlibrary.omeka.net/items/show/13719.

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