Browse Items (58 total)
- Tags: Quality Of Health Care
Telehealth Needs and Concerns of Stakeholders in Pediatric Palliative Home Care
Tags: 2023, Adult, Children, Data Analysis Software, Deckers MJ, Descriptive Statistics, Family Attitudes, Female, Fisch-Jessen M, Funding Source, Hauch H, Health Services Needs And Demand, Heilmann ML, Home Health Care, Human, Kruempelmann S, Male, Middle Age, Moeller H, Nagel L, Nathrath M, November List 2023, Palliative Care, Patient Attitudes, Pediatric Care, Pilot Studies, Qualitative Studies, Quality Of Health Care, Quantitative Studies, Semi-Structured Interview, Telehealth, Telemedicine, Vaillant V, Voelker T, Zimmermann J
Specialized pediatric palliative care services for children dying from cancer: A repeated cohort study on the developments of symptom management and quality of care over a 10-year period
Tags: 2018, Baumann-Kohler M, Brune T, Cancer, Hubner-Mohler B, Irnich M, Janßen G, Jorch N, Kiener R, Kremens B, Kuhlen M, Langler A, Lassay L, Niehues T, Oncology 2019 List, Oommen P T, Palliative Care, Palliative Medicine, Paulussen M, Pediatrics, Poppelmann M, Prokop A, Quality Of Health Care, Rose M, Schmidt P, Schneider D T, Schundeln M, Sinha K, Symptom Assessment, Szybalski K, Thorer H, Wager J, Weber C, Wieland R, Wolfe J, Zernikow B
Using industrial processes to improve patient care
Tags: 2004, Backlog, Bmj (clinical Research Ed.), Brailsford S, Connell C, Davies R, Decision Making, Great Britain, Harper P, Humans, Industry/methods/standards, Journal Article, Klein JH, Occupational Health, Patient Care/standards, Quality Of Health Care, State Medicine/standards, Waiting Lists, Young T
Parent Reported Outcomes Of Quality Care And Satisfaction In The Context Of A Life-limiting Fetal Diagnosis.
Methods: A cross-sectional design using a validated tool was administered using a Web-based platform. Parents (n = 405) who experienced a life-limiting fetal…
Symptoms and Suffering at the End of Life in Children with Cancer
Tags: 2000, Anorexia/etiology/therapy, Backlog, Boston, Child, Children's Hospital (Boston), Clodronate, Constipation/etiology/therapy, Dana-Farber Cancer Institute (Boston), Death and Euthanasia, Diarrhea/etiology/therapy, Dyspnea/etiology/therapy, Ellenbogen JM, Emanuel EJ, Empirical Approach, Fatigue/etiology/therapy, Grier Holcombe E, Health Care Surveys, home care services, Humans, Journal Article, Klar Neil, Levin SB, Logistic Models, Longitudinal Studies, Neoplasms/complications/therapy, New England Journal Of Medicine, Non-U.S. Gov't, Oncology at EOL, P.H.S., Pain/etiology/therapy, Palliative Care/standards/statistics & Numerical Data, Parents, Physicians, Professional Patient Relationship, Psychological, Quality Of Health Care, Quality Of Life, Questionnaires, Research Support, Salem-Schatz S, Stress, Terminal Care, U.S. Gov't, Weeks Jane C, Withholding Treatment, Wolfe J
Transition of care from paediatric to adult services: one part of improved health services for adolescents
Tags: 2008, Adolescent, Adolescent Health Services/standards, Adolescent Transitions, Archives of Disease in Childhood, Backlog, Continuity of Patient Care/standards, Delivery of Health Care/standards, Great Britain, Humans, Journal Article, Quality Of Health Care, State Medicine/standards, Viner RM
Referring a patient and family to high-quality palliative care at the close of life: "We met a new personality... with this level of compassion and empathy"
Tags: 2009, Backlog, Connor SR, Empathy, Family Relations, Hospices, Humans, Journal Article, Journal Of The American Medical Association, Male, Middle Aged, Neoplasms, Palliative Care/standards, Patient Care Team, Primary Health Care, Quality Of Health Care, Referral And Consultation, Social Support, Teno JM
Research agenda for developing measures to examine quality of care and quality of life of patients diagnosed with life-limiting illness
Learning that leads to action: impact and characteristics of a professional education approach to improve the care of critically ill children and their families
Tags: 2010, Archives Of Pediatrics & Adolescent Medicine, Backlog, Browning DM, Canada, Child, Continuing/methods, Curriculum, Dokken DL, Education, Educational, Humans, Interdisciplinary Communication, Journal Article, Merriman MP, Models, Palliative Care, Patient Advocacy, Pediatrics/education, Professional-family Relations, Program Evaluation, Quality Of Health Care, Rushton CH, Solomon MZ, United States
Mapping the journey of cancer patients through the health care system. Part 2: Methodological approaches and basic findings
Tags: 2004, Aged, Backlog, Blood P, Canadian Oncology Nursing Journal, Cancer Care Facilities, Clinch J, Data Collection/methods, Databases, Delivery of Health Care/organization & administration, El Sayed S, Factual/utilization, Female, Health Services Research/methods, Humans, Journal Article, Khoo K, Length Of Stay/statistics & Numerical Data, Male, Manitoba/epidemiology, Medical Oncology, Medical Record Linkage/methods, Middle Aged, Nemecek A, Neoplasms/diagnosis/mortality/therapy, Non-U.S. Gov't, Patient Admission/statistics & numerical data, Proportional Hazards Models, Quality Of Health Care, Registries, Research Support, Scott-Findlay S, Sloan JA, Survival Analysis, Trylinski C, Whittaker H
Children's hospices: organizational and staff issues
Tags: 2002, Adolescent, Adult, Attitude Of Health Personnel, Backlog, Child, Child Health Services/organization & administration/trends, Great Britain, Hospices/organization & administration, Human, Journal Article, Organizational Culture, Palliative Care/organization & administration/trends, Palliative Medicine, Personal Satisfaction, Quality Of Health Care, Sheldon F, Speck P
The impact of care pathways for patients with proximal femur fracture: rationale and design of a cluster-randomized controlled trial.
Tags: 2012, Aged, Backlog, BMC Health Services Research, Boonen S, Boto P, Critical Pathways, Deneckere S, EQCP study group, Femoral Fractures/mo [Mortality], Femoral Fractures/th [Therapy], Humans, Journal Article, Leigheb F, Lodewijckx C, Mendes RV, Outcome And Process Assessment (health Care), Panella M, Peers J, Quality Of Health Care, Research Design, Sermeus W, Sermon An
Patterns Of Palliative Care Service Consultation In A Sample Of Critically Ill Icu Patients At High Risk Of Dying
End-of-life care in the intensive care unit: a research agenda.
Tags: 2001, Attitude To Death, Backlog, Critical Care Medicine, Evidence-based Medicine, Female, Health Services Research/organization & administration, Humans, Intensive Care Units, Intensive Care/standards, Intensive Care/trends, Journal Article, Male, Outcome Assessment (health Care), Palliative Care/standards, Palliative Care/trends, Program Evaluation, Quality Of Health Care, Randall CJ, Rubenfeld GD, The End-of-Life Care in the ICU Working Group, United States
Quality of life for children with life-limiting and life-threatening illnesses: description and evaluation of a regional, collaborative model for pediatric palliative care
Tags: 2011, Adolescent, Backlog, Biomedical Research, Carpenter P, Child, Continuity Of Patient Care, District of Columbia, Farley J, Female, Gomez CF, Health Personnel, Holson D, Humans, Infant, Inservice Training, Journal Article, Male, Markowitz M, Newborn, Nigra Peter, Palliative Care, PEDI Study, Pediatrics, Preschool, Program Evaluation, Quality Of Health Care, Quality Of Life, Referral And Consultation, Rogers SK, Rood B, Smith K, Terminal Care, The American Journal of Hospice & Palliative Care
Care of the Bereaved Mother
Tags: 2018, Bereavement -- Evaluation, Care Of The Bereaved Mother, December 2018 List, Grief -- Evaluation, Human, Interviews, Mothers -- Psychosocial Factors, Neonatal Intensive Care Nursing -- Education, Nurse-patient Relations, nursing role, Parental Attitudes, Patient Centered Care, Perinatal Death -- Psychosocial Factors, Quality Of Health Care, Rocio GI, Support Psychosocial, Support Groups
[Difficulties in communication with parents of pediatric cancer patients during the transition to palliative care]
Tags: 2017, Article, Attitude Of Health Personnel, Cancer Mortality, Cancer Palliative Therapy, Cancer Patient, Cancer Therapy, Child, Childhood Cancer, Communication Barrier, Communication Barriers, Critical Illness/nu [nursing], Critical Illness/px [psychology], Disease Management, Dying, Empathy, Female, Hauser P, Hegedus K, Human, Humans, Interpersonal Communication, Medical Expert, Nyiro J, Oncologist, Oncology 2017 List, Orvosi Hetilap, Palliative Care/mt [methods], Palliative Care/px [psychology], Parent-child Relations, Parental Attitude, Parents/px [psychology], Pediatrician, Physician-patient Relations, Psychologist, Quality Of Health Care, Self Defense, Structured Interview, Zorgo S
Survey of specialized tertiary care facilities for adults with congenital heart disease
Tags: 2004, Adolescent, Adolescent Transitions, Adult, Backlog, Cardiac Care Facilities/organization & administration/utilization, Congenital/diagnosis/mortality/surgery, Europe/epidemiology, Female, Gatzoulis MA, Health Care Surveys, Heart Defects, Hospitalization/statistics & numerical data, Humans, International Journal Of Cardiology, Journal Article, Liberthson R, Male, Middle Aged, Murphy D, Niwa K, North America/epidemiology, Patient Admission/statistics & numerical data, Patient Care Team, Perloff JK, Program Evaluation, Quality Of Health Care, Questionnaires, Reoperation/utilization, Resource Allocation, Survival Analysis, Treatment Outcome, Warnes CA, Webb GD
Grief Journey: Perception and Response Based on Cultural Beliefs in Thai Women Experiencing Perinatal Death
Tags: 2022, Adolescence, Adult, anxiety, April List 2023, Bih-Ching S, Content Analysis, cultural competence, cultural sensitivity, Culture, Descriptive Research, Emotions, Evaluation, Fear, Female, field notes, Forgiveness, Grief, Health Knowledge, Health Personnel, Hope, Hospitals Community, Human, Interviews, Medical Records, Nedruetai P, Pacific Rim International Journal of Nursing Research, Perinatal Death, Psychosocial Factors, Puangpaka K, Purposive Sample, Qualitative Studies, Quality Of Health Care, Reflection, Self Concept, Self-Talk, Social Norms, Thailand, Women
A Systematic Review of Measures of End-of-Life Care and Its Outcomes
Tags: 2007, Backlog, Dy SM, Dying, End-of-life Care, Essential Data Set, Health Services Research, Hilton LK, Hughes RG, Journal Article, Lorenz KA, Lynn J, Maglione M, measures, Morton SC, Mularski RA, Outcome And Process Assessment (health Care), Quality Of Health Care, Rhodes SL, Rolon C, Shekelle PG, Shugarman LR, Sun VC, Wilkinson A
Measuring the quality of dying
Tags: 2001, Attitude Of Health Personnel, Attitude To Death, Attitude To Health, Backlog, Chronic/psychology, Family/psychology, Health Services Research/methods/standards, Human, Journal Article, Journal of Palliative Medicine, Kidney Failure, Moss AH, Quality Of Health Care, Quality Of Life, Research Design/standards, Terminal Care/psychology/standards
Parental perspectives on end-of-life care in the pediatric intensive care unit
Tags: 2002, Adult, Backlog, Boston, Burns JP, Child, Critical Care Medicine, Death and Euthanasia, Decision Making, Empirical Approach, Female, Griffith JL, Humans, ICU Decision Making, Intensive Care Units, Journal Article, Male, Meyer EC, Pain, Parents/psychology, Pediatric, Prognosis, Quality Of Health Care, Quality Of Life, Questionnaires, Terminal Care, Truog RD, Withholding Treatment
Improving health care for adult survivors of childhood cancer: recommendations from a delphi panel of health policy experts
Tags: 2004, Adult, Backlog, Cotter KL, Delphi Technique, Eshelman D, Foster BM, Health Policy, Health Policy (amsterdam, Netherlands), Health Services Research, Hudson MM, Humans, Journal Article, Loftis L, Mertens AC, Neoplasms, Non-U.S. Gov't, Oeffinger KC, Quality Of Health Care, Research Support, Sozio M, Survivors, United States, Zebrack BJ
Long-stay patients in the pediatric intensive care unit
Tags: 2001, Age Distribution, algorithms, Analysis of Variance, Backlog, Child, Comorbidity, Cost Savings, Critical Care Medicine, Decision Trees, Discriminant Analysis, Emergencies, Female, Health Services Research, Hospital Mortality, Humans, ICU Decision Making, Infant, Intensive Care Units, Intensive Care/economics/standards, Journal Article, Length Of Stay/statistics & Numerical Data, Logistic Models, Male, Marcin JP, Patient Admission/statistics & numerical data, Pediatric/utilization, Pollack MM, Predictive Value of Tests, Preschool, Quality Of Health Care, Risk Factors, Ruttimann UE, Sensitivity and Specificity, Severity Of Illness Index, Slonim AD, Treatment Outcome, United States/epidemiology
Transition from pediatric to adult care: experience of a cystic fibrosis care center]
Tags: 2009, Adolescent, Adolescent Health Services, Adolescent Transitions, Archives de Pediatrie, Backlog, Bonnemains C, Chiffoleau M, Continuity Of Patient Care, Cystic Fibrosis/therapy, Darviot E, Female, France, Ginies JL, Humans, Journal Article, Malbrunot-Wagner AC, Male, Person C, Quality Of Health Care, Troussier F, Urban T, Young Adult
Parent and physician perspectives on quality of care at the end of life in children with cancer
Tags: 2005, Adolescent, Adult, Backlog, Child, Communication, Extramural, Female, Grier HE, Health Care Surveys, Hilden JM, Humans, Infant, Journal Article, Journal Of Clinical Oncology, Mack JW, Male, Moore C, N.I.H., Newborn, Non-U.S. Gov't, Odds Ratio, Pain, Parent-child Relations, Physician-patient Relations, Physicians/standards, Preschool, Quality Of Health Care, Quality Of Life, Research Support, Terminal Care/standards, Turner B, Watterson J, Weeks JC, Wolfe J
Learning to care for people with chronic illness facing the end of life
Tags: 2000, Backlog, Death and Euthanasia, Health Services Accessibility, Health Services Research, JAMA, Journal Article, Lynn J, Palliative Care/economics/standards/trends, Policy Making, Professional Patient Relationship, Quality Of Health Care, RDF Project, Terminal Care/economics/standards/trends, United States
The importance of 'knowing the patient': community nurses' constructions of quality in providing palliative care
Tags: 2000, Austin L, Backlog, Caress A, Community Health Nursing, Death and Euthanasia, Empirical Approach, England, Hallett CE, Health Care Reform, Humans, Journal Article, Journal Of Advanced Nursing, Luker KA, Nurse-patient Relations, Palliative Care/standards, Quality Of Health Care, Questionnaires
Individualised advance care planning in children with life-limiting conditions
Tags: 2018, Advance Care Planning/og [Organization & Administration], Advance Care Planning/st [Standards], April 2019 List, Archives of Disease in Childhood, Attitude To Health, Child, Child Health Services/og [organization & Administration], Child Health Services/st [Standards], de Kruiff CC, Evidence-Based Medicine/mt [Methods], Female, Humans, Kremer L C M, Loeffen EAH, Male, Netherlands, Palliative Care/og [Organization & Administration], Palliative Care/px [psychology], Palliative Care/st [standards], Parents/px [psychology], Patient Satisfaction/sn [Statistics & Numerical Data], Pediatric Palliative Care-Individualized Care Plan Working Group, Pilot Projects, Practice Guidelines As Topic, Quality Of Health Care, Schuiling-Otten MA, Tissing WJE, Verhagen AA
What accounts for differences or disparities in pediatric palliative and end-of-life care? A systematic review focusing on possible multilevel mechanisms
Parental Decision-making On
Utilisation Of Out-of- Home Respite In Children’s Palliative Care: Findings Of
Qualitative Case Study Research - A Proposed New Model.
Respite in children's palliative care aims to provide a break for family's from the routine of caring. Parental decision-making regarding the utilisation of out-of-home respite is dependent on many interlinking factors including the…
Tags: 2016, Adolescent, Adult, Child, Child Preschool, Child: Care, Health and Development, Children, Connaire K, Decision Making, Female, Humans, Ireland/epidemiology, Ling J, Longitudinal Studies, Male, May 2016 List, McCarron M, Palliative Care, Palliative Care/psychology, Parents, Parents/psychology, Payne S, Pediatrics, Qualitative Research, Quality Of Health Care, Respite, Respite Care, Social Support, Terminally Ill/psychology
Pediatric Palliative Care in Iran: Applying Regionalization of Health Care Systems
Tags: 2018, Akbari Sari A, Asian Pacific Journal Of Cancer Prevention, Cancer Care Facilities/og [Organization & Administration], Cancer Care Facilities/ut [Utilization], Child, Delivery of Health Care/og [Organization & Administration], Developing World 2018 List, Eshghi P, Follow-up Studies, Health Services Accessibility/og [Organization & Administration], Heravi Karimooi M, Humans, Khanali ML, Neoplasms/th [therapy], Palliative Care/og [Organization & Administration], Prognosis, Qualitative Research, Quality Of Health Care, Rassouli M, Shirin Abadi Farahani A, Tahmasebi M, Zendedel K
Reviewing audit: barriers and facilitating factors for effective clinical audit
Tags: 2000, Alder EM, Attitude Of Health Personnel, Backlog, Bibliographic, Comparative Study, Crombie IK, Databases, Davies HT, Evaluation Studies, Family Practice, General, Great Britain, Hospital, Hospitals, Interprofessional Relations, Job Satisfaction, Johnston G, Journal Article, Leadership, Medical Audit/standards, Medical Records/standards, Medical Staff, Medline, Millard A, Non-U.S. Gov't, Nursing Audit, Partnership Practice, Patient Satisfaction, Physician-patient Relations, Physician's Role, Primary Health Care, Quality In Health Care, Quality Of Health Care, Retrospective Studies, Support
Fatal fetal anomaly: Experiences of women and their partners
Key factors affecting dying children and their families
Tags: 2005, Adolescent, Backlog, Baker JN, Bereavement, Child, Communication, Decision Making, Family/psychology, Hinds PS, Humans, Journal Article, Journal of Palliative Medicine, Palliative Care/standards, Professional-family Relations, Psychological/etiology, Quality Of Health Care, Schum L, Stress, Terminal Care/standards, Wolfe J
Key Factors Affecting Dying Children And Their Families
Tags: 2005, Adolescent, Baker J, Bereavement, Child, Communication, Decision Making, Family/px [psychology], Hinds PS, Humans, Journal of Palliative Medicine, May 2017 List, Only Child, Palliative Care/st [standards], Professional-family Relations, Quality Of Health Care, Schum L, Stress Psychological/et [etiology], Terminal Care, Terminal Care/st [standards], Wolfe J