Browse Items (2310 total)
- Tags: Humans
Evidence For Implementation Strategies To Provide Palliative Care In The Neonatal Intensive Care Unit.
Palliative care is a holistic framework that is designed to improve quality of life by identifying and treating distressing symptoms of life-threatening or complex conditions. Neonatal palliative care (NPC) has potential benefits for…
Tags: 2016, Advances in Neonatal Care, Attitude Of Health Personnel, Clinical Protocols, Evidence-based Practice, Gephart S, Hospice And Palliative Care Nursing/education, Humans, Infant Newborn, Intensive Care Units Neonatal, Neonatal Nursing/education, Neonatal Nursing/methods, October 2016 List, Palliative Care/methods, Patient Care Team, Quinn M
Family And Healthcare Professionals’ Perceptions Of A Pilot Hospice At Home Programme For Children: A Qualitative Study
Parents commonly report a significant improvement in quality of life following the provision of hospice and supportive care and have identified a need for such a service in the home. The purpose of this study was to understand the…
Tags: 2016, Adaptation Psychological, Attitude Of Health Personnel, BMC Palliative Care, Child, Child Family Qualitative Research, Child Health Services, Claire Quinn, Critical Illness/psychology, Des Cawley, Disabled Children, Family/psychology, Female, Frances Howlin, Hospice And Palliative Care Nursing, Hospice Care/psychology, Humans, Interviews As Topic, Jay Berry, Male, Maria Brenner, Michael Connolly, Nurses/psychology, October 2016 List, Pilot Projects
Pediatric Palliative Care Pilot Curriculum: Impact Of "pain Cards" On Resident Education
Prior research has shown that less than 40% of pediatric program directors believe their graduating residents competent in palliative care. While many curricula have been developed to address this need, few have demonstrated improved…
Tags: 2016, Adult, American Journal of Hospice and Palliative Medicine, Barnett MD, Communication, Curriculum, Female, Health Knowledge Attitudes Practice, Hospitals Pediatric/organization & Administration, Humans, Internship And Residency/methods, Male, Maurer SH, October 2016 List, Pain Management, Pain Measurement, Palliative Care, Palliative Care Curriculum, Palliative Care Education, Pediatric Palliative Care, Pediatric resident, Pediatrics/education, Pilot Projects, Pocket cards, resident education, Wood GJ
Perceptions Of The Pediatric Hospice Experience Among English- And Spanish-speaking Families
Many children who die are eligible for hospice enrollment but little is known about parental perceptions of the hospice experience, the benefits, and disappointments. The objective of this study was to explore parental perspectives of the…
Tags: 2016, Adolescent, Adult, Attitude To Death/ethnology, Caregivers/psychology, Child, Child Preschool, Communication, Ethnic Groups/psychology, European Continental Ancestry, Family/psychology, Female, Funes M, Group/psychology, Hispanic Americans/psychology, Hospice Care/psychology, Humans, Infant, Journal of Palliative Medicine, Lee SC, Male, Marks E, Martinez-Puente LM, Middle Aged, Neoplasms/nursing, Neoplasms/psychology, October 2016 List, Thienprayoon R, Winick N, Young Adult
Practical Recommendations For Diagnosis And Management Of Respiratory Muscle Weakness In Late-onset Pompe Disease
Tags: 2016, Adult, Barrot Cortés E, Boentert M, Confalonieri M, Cough Assistance, Glycogen Storage Disease Type Ii/diagnosis, Glycogen Storage Disease Type Ii/pathology, Glycogen Storage Disease Type Ii/therapy, Humans, Infant, International Journal of Molecular Sciences, Jones HN, Mechanical Ventilation, Mellies U, Muscle Weakness/pathology, Muscle Weakness/therapy, Neuromuscular Disorders, October 2016 List, Pompe Disease, Prigent H, Respiratory Function Tests, Respiratory Insufficiency/therapy, Respiratory Muscle Weakness, Respiratory Muscles/pathology, Simonds AK, Surveys And Questionnaires, Várdi K, Wenninger S
How Parents And Physicians Experience End-of-life Decision-making For Children With Profound Intellectual And Multiple Disabilities.
End-of-life decisions (EoLD) often concern children with profound intellectual and multiple disabilities (PIMD). Yet, little is known about how parents and physicians discuss and make these decisions.
AIMS:
The objective of this research…
Tags: 2016, Adolescent, Adult, Attitude Of Health Personnel, Attitude To Health, Caregiver, Cerebral Palsy, Child, Child Preschool, de Vos MA, Decision Making, Disabled Children, Dissent And Disputes, End Of Life, Ewals FV, Female, Healthcare Professional, Humans, Infant, Infant Newborn, Intellectual Disability, Male, Middle Aged, Neurologists, Palliative Care, Parents, Pediatricians, Professional-family Relations, Qualitative Research, Research in Developmental Disabilities, Resuscitation Orders, Retrospective Studies, September 2016 List, Severity Of Illness Index, Shared Decision-making, Terminal Care, van Goudoever JB, Willems DL, Young Adult, Zaal-Schuller IH
Improvements In Communication And Relationship Building Are Essential
Acceptability Of Family-centered Advanced Care Planning For Adolescents With Hiv
Tags: 2016, Adolescent, Adolescent Health Services/sn [statistics & Numerical Data], Adolescent Palliative Care Consortium, Advance Care Planning, Cheng Y I, Dallas R H, Family Nursing, Family/px [psychology], Female, Garcia A, Hiv Infections/px [psychology], Hiv Infections/th [therapy], Humans, Kimmel A, Lyon M, Male, Patient Acceptance Of Health Care/sn [statistics & Numerical Data], Pediatrics, Prospective Studies, Rana S, September 2017 List, Surveys And Questionnaires, United States, Wang J, Wilkins M L, Young Adult
Caring For Premature Life And Death: The Relational Dynamics Of Detachment In A Nicu
Exhaust All Measures: Ethical Issues In Pediatric End-of-life Care
Tags: 2016, Cimino AN, Decision Making, Family, Health Personnel/px [psychology], Humans, Interviews As Topic, Journal of Social Work in End-of-Life & Palliative Care, Parents/px [psychology], Pediatrics, Professional-family Relations, Rueda HA, September 2017 List, Social Workers/px [psychology], Terminal Care/es [ethics], Terminal Care/px [psychology], Terminal Care/st [standards], Thieleman KJ, Wallace C, Withholding Treatment/es [ethics]
Succession Planning In Children's Palliative Care Services
Why Palliative Care For Children Is Preferable To Euthanasia
Tags: 2016, Beneficence, Carter Brian S, Child, Child Welfare/ethnology, End Of Life, Ethics, Europe, Euthanasia, Euthanasia/ethics, Humans, May 2017 List, Palliative Care, Palliative Care/ethics, Pediatrics, Pediatrics/standards, Terminal Care/ethics, The American Journal of Hospice & Palliative Care
Limiting And Withdrawing Life Support In The Picu: For Whom Are These Options Discussed?
Tags: 2016, Berg RA, Carcillo J, Child, Child Preschool, Critical Care/mt [methods], Dalton H, Dean JM, Eunice Kennedy Shriver National Institute of Child Health and Human Development Collaborative Pediatric Critical Care Research Network, Female, Funai T, Harrison R, Holubkov R, Humans, Infant, Intensive Care Units Pediatric, January 2017 List, Keele L, Length Of Stay, Life Support Care/ut [utilization], Logistic Models, Male, Meert KL, Morrison W, Newth CJ, Pediatric Critical Care Medicine, Pollack M, Prospective Studies, Resuscitation Orders, Severity Of Illness Index, Shanley T, Terminal Care/mt [methods], Wessel DL
Palliative Care In The Nicu And Why Education Matters
Tags: 2017, Discenza D, Emotional Intelligence, Humans, Infant Newborn, Intensive Care Units Neonatal/og [organization & Administration], Neonatal Network - Journal of Neonatal Nursing, Palliative Care, Palliative Care/mt [methods], Palliative Care/px [psychology], Parents, Parents/ed [education], Parents/px [psychology], September 2017 List, Social Support
Updated Perinatal Palliative Standards Emphasise Choice And Bereavement Support
Pediatrician Ambiguity In Understanding Palliative Sedation At The End Of Life
Tags: 2017, Adult, Aged, American Journal of Hospice and Palliative Medicine, Child, Conscious Sedation/mt [methods], Female, FitzGerald M, Health Knowledge Attitudes Practice, Henderson C M, Hoehn K S, Humans, Male, Middle Aged, Palliative Care/mt [methods], Pediatrics/mt [methods], Pediatrics/sn [statistics & Numerical Data], Practice Patterns Physicians'/sn [statistics & Numerical Data], September 2017 List, Surveys And Questionnaires, Terminal Care/mt [methods], Weidner N
Palliative Medicines For Children - A New Frontier In Paediatric Research
Tags: 0 (pharmaceutical Preparations), 2017, Biomedical Research/mt [methods], Biomedical Research/td [trends], Brombley K, Child, Christiansen N, Craig F, Drug Delivery Systems/mt [methods], Harrop E, Humans, Jamieson L, Journal of Pharmacy & Pharmacology, Palliative Care/mt [methods], Palliative Care/td [trends], Palliative Medicine/mt [methods], Palliative Medicine/td [trends], Pediatrics/mt [methods], Pediatrics/td [trends], Pharmaceutical Preparations/ad [administration & Dosage], September 2017 List, Tuleu C, Wong I C
Pediatric Primary Care Involvement In End-of-life Care For Children
Tags: 2017, Adolescent, Age Factors, American Journal of Hospice and Palliative Medicine, California, Child, Child Preschool, Female, Home Care Services/sn [statistics & Numerical Data], Hospice Care/sn [statistics & Numerical Data], Humans, Infant, Lindley LC, Male, Nageswaran S, Primary Health Care/sn [statistics & Numerical Data], Retrospective Studies, September 2017 List, Terminal Care/sn [statistics & Numerical Data], Young Adult
Antenatal Palliative Care Consultation: Implications For Decision-making And Perinatal Outcomes In A Single-centre Experience
Tags: 2017, Adult, Archives of Disease in Childhood. Fetal and Neonatal Edition, Decision Making, Female, Follow-up Studies, Gollehon N, Humans, Infant Newborn, Kukora S, Laventhal N, Male, March 2017 List, Palliative Care/methods, Pregnancy, Pregnancy Outcome, Prenatal Care/methods, Referral And Consultation/organization & Administration, Retrospective Studies, Young Adult
Advance Care Planning: Outpatient Antenatal Palliative Care Consultation
Tags: 2017, Adult, Advance Care Planning/organization & Administration, Archives of Disease in Childhood. Fetal and Neonatal Edition, Carter BS, Female, Humans, Infant Newborn, March 2017 List, Outpatients, Palliative Care/organization & Administration, Pregnancy, Prenatal Care/organization & Administration, Referral And Consultation
Paediatric Palliative Care In The Asia Pacific Region: Where Are We Now?
Tags: 2017, April 2017 List, Asia Southeastern, BMJ Supportive & Palliative Care, Child, Child Health Services/standards/statistics & Numerical Data, Chong PH, Far East, Goh C, Hamsah E, Humans, Oceania, Paediatrics, Palliative Care/standards/statistics & Numerical Data, Service Evaluation, Supportive Care, Terminal Care
The Family's Experience Of The Child And/or Teenager In Palliative Care: Fluctuating Between Hope And Hopelessness In A World Changed By Losses
Experiences In Palliative Home Care Of Infants With Life-limiting Conditions.
The aim of this study was to determine the distinct issues neonates/infants with life-limiting conditions and their families face during palliative home care and to enable physicians/caregivers to carefully address their needs. Data on…
Tags: 2015, Borkhardt A, Caregivers, December 2016 List, European Journal of Pediatrics, Female, Germany, Höll J, Home Care, Home Care Services/statistics & Numerical Data, Hospitals Pediatric, Humans, Infant, Infant Mortality, Infant Newborn, Infants, Jansen G, Kuhlen M, Life-limiting Conditions, Male, Neonates, Palliative Care, Palliative Care/statistics & Numerical Data, Patient Comfort/statistics & Numerical Data, Sabir H, Terminal Care/statistics & Numerical Data
On The Child's Own Initiative: Parents Communicate With Their Dying Child About Death
Tags: 2015, Adolescent, Adult, Attitude To Death, Behavioral Research, Child, Child Behavior, Child Care/psychology, Child Preschool, Death studies, Female, Henter JI, Humans, Infant, Jalmsell L, Kontio T, Kreicbergs U, Male, March 2016 List, Neoplasms/psychology, Neoplasms/therapy, Palliative Care/psychology, Parent-child Relations, Parents/psychology, Qualitative Research, Stein M, Sweden, Terminally Ill/psychology
"it Scares Me To Know That We Might Not Have Been There!": A Qualitative Study Into The Experiences Of Parents Of Seriously Ill Children Participating In Ethical Case Discussions
The Relationship Between The Nursing Environment And Delivering Culturally Sensitive Perinatal Hospice Care
Tags: 2015, Delivery of Health Care, End-of-life Care, Female, Fetal Death, Fornehed Mary Lou, Hospice And Palliative Care Nursing, Hospice Organisation, Hospices/statistics & Numerical Data, Humans, Infant, International Journal of Palliative Nursing, Lindley L, May 2017 List, Mixer Sandra J, Nursing Administration, Nursing Leadership, Nursing Staff, Perinatal Care, Perinatal Death, Pregnancy, Retrospective Studies, Surveys And Questionnaires, Transcultural Nursing, United States, Wallace Heather, Wool Charlotte, Workplace
Understanding Death With Limited Experience In Life: Dying Children's And Adolescents' Understanding Of Their Own Terminal Illness And Death
Tags: 2015, Adolescent, Attitude To Death, Bates Alan T, Child, Communication, Current Opinion in Supportive and Palliative Care, Fear, Humans, Kearney Julia A, May 2017 List, Palliative Care/organization & Administration, Palliative Care/psychology, Professional-family Relations, Prognosis, Terminal Care/organization & Administration, Terminal Care/psychology, Terminally Ill/legislation & jurisprudence, Terminally Ill/psychology, Time Factors
A Longitudinal, Randomized, Controlled Trial Of Advance Care Planning For Teens With Cancer: Anxiety, Depression, Quality Of Life, Advance Directives, Spirituality
METHODS:
Adolescent (age 14-20 years)/family dyads (N = 30) with a cancer…
Tags: 2014, Adolescent, Adult, Advance Care Planning, Advance Care Planning/statistics & Numerical Data, Advance Directive, Advance Directives/psychology, Advance Directives/statistics & Numerical Data, African-american, Anxiety/complications, Anxiety/psychology, Cancer, Communication, Decision-making, Depression/complications, Depression/psychology, End Of Life, Family, Family Intervention, Feasibility Studies, Female, Follow-up Studies, Humans, Journal of Adolescent Health, July 2016 List, Longitudinal Studies, M.E. Lyon, Male, Neoplasms/complications, Neoplasms/psychology, Patient Satisfaction/statistics & Numerical Data, Pediatric Palliative Care, Quality Of Life/psychology, Spirituality, Surveys And Questionnaires, United States, Wang J, Young Adult
The Provision Of Spiritual And Pastoral Care Following Stillbirth In Ireland: A Mixed Methods Study
Tags: 2014, Attitude To Death, Bereavement, BMJ Supportive & Palliative Care, Chaplain, Chaplaincy Service Hospital/standards, Daniel Nuzum, Female, Hospitals Maternity/organization & Administration, Humans, Ireland, June 2016 List, Keelin O'Donoghue, Male, Pastoral Care, Pregnancy, Professional-family Relations, Sarah Meaney, Spiritual Care, Spirituality, Stillbirth, Stillbirth/psychology
Developing A Perinatal Memory-making Program At A Children's Hospital
Tags: 2014, American journal of maternal/child nursing, Child Health, Female, Fornehed ML, Hospice Care/methods, Hospice Care/psychology, Hospitals, Humans, Infant Newborn, Lindley LC, March 2016 List, Memory, Miller LH, Mixer SJ, Niederhauser VP., Perinatal Death, Postnatal Care/psychology, Pregnancy
Resilience And Death: The Nursing Professional In The Care Of Children And Adolescents With Life-limiting Illnesses
Tags: 2014, Adaptation Psychological, Adolescent, Attitude Of Health Personnel, Attitude To Death, Child, Chronic Disease, Ciência & Saúde Coletiva, dos Santos Rosilene Aparecida, Humans, June 2017 List, Moreira Martha Cristina Nunes, Nurses, Pediatric Nursing, Resilience Psychological, Terminal Care
End- Of- Life Decisions And Minors: Do Minors Have The Right To Refuse Life Preserving Medical Treatment? A Comparative Study
Tags: 2009, Adolescent, Canada, Child, Decision Making, Europe, Humans, Informed Consent/lj [legislation & Jurisprudence], Lemmens C, May 2017 List, Medicine & Law, Minors/lj [legislation & Jurisprudence], Terminally Ill/lj [legislation & Jurisprudence], Treatment Refusal, Treatment Refusal/lj [legislation & Jurisprudence], United States
A Comparative Cost-minimization Analysis Of Providing Paediatric Palliative Respite Care Before And After The Opening Of Services At A Paediatric Hospice
Tags: 2010, Child, Costs And Cost Analysis, Cowin L, Dumond LG, Female, Health Care Costs, Healthcare Management Forum, Hospices, Hospices/ec [economics], Humans, Male, May 2017 List, Ni A, Palliative Care, Palliative Care/ec [economics], Pascuet E, Pediatrics/ec [economics], Rattray M, Respite Care/ec [economics], Retrospective Studies, Splinter W, Statistics Nonparametric, Vadeboncoeur C, Vaillancourt R
A Study Into The Educational Needs Of Children's Hospice Doctors: A Descriptive Quantitative And Qualitative Survey
Tags: 2004, Amery J, Child, Clinical Competence/st [standards], Communication, Education Medical Continuing/og [organization & Administration], England, Hospice Care, Hospices, Humans, Inservice Training/og [organization & Administration], Lapwood S, May 2017 List, Only Child, Palliative Care, Palliative Care/st [standards], Palliative Medicine, Patient Care Team, Pediatrics/ed [education], Surveys And Questionnaires
Key Factors Affecting Dying Children And Their Families
Tags: 2005, Adolescent, Baker J, Bereavement, Child, Communication, Decision Making, Family/px [psychology], Hinds PS, Humans, Journal of Palliative Medicine, May 2017 List, Only Child, Palliative Care/st [standards], Professional-family Relations, Quality Of Health Care, Schum L, Stress Psychological/et [etiology], Terminal Care, Terminal Care/st [standards], Wolfe J
The Needs Of Children With Life-limiting Conditions: A Healthcare-provider-based Model
Tags: 2005, Attitude Of Health Personnel, Child, Child Advocacy, Cluster Analysis, Decision Making, Donnelly James P, Family/psychology, Feasibility Studies, Health Services Accessibility/organization & administration, Health Services Needs And Demand/organization & Administration, Huff Susan M, Humans, Lindsey Michael L, May 2017 List, McMahon Kathy A, Medical Futility, Models Organizational, New York, Pain/prevention & control, Patient Care Team/organization & administration, Patient-Centered Care/organization & administration, Pediatrics/organization & Administration, Psychology Child, Qualitative Research, Quality Assurance Health Care, Quality Of Life, Right to Die, Schumacher JDonald, Spirituality, Terminal Care/organization & Administration, The American Journal of Hospice & Palliative Care
A Pilot Study Of The Effectiveness Of Home Teleconsultations In Paediatric Palliative Care
Tags: 2012, Adult, Armfield NR, Bensink ME, Bradford N, Caregivers, Caregivers/px [psychology], Cohort Studies, Female, Health Services Accessibility, Herbert A, Humans, Journal of Telemedicine & Telecare, Male, May 2017 List, Middle Aged, Outcome And Process Assessment (health Care), Palliative Care, Palliative Care/mt [methods], Palliative Care/st [standards], Patient Satisfaction, Pedersen LA, Pediatrics/mt [methods], Pediatrics/st [standards], Pilot Projects, Prospective Studies, Quality Of Life, Referral And Consultation, Remote Consultation/ut [utilization], Rural Population, Smith AC, Young J
Impact Of A Multifaceted Education Program On Implementing A Pediatric Palliative Care Guideline: A Pilot Study
Tags: 2015, BMC medical education, Child, Education Medical Continuing/methods, Guideline Adherence, Humans, Jagt Van Kampen CT, July 2017 List, Kremer LC, Palliative Care/standards, Palliative Medicine/education, Palliative Medicine/standards, Pediatrics/education, Pediatrics/standards, Pilot Projects, Prospective Studies, Quality Indicators Health Care, Schouten-Van Meeteren AYN, Verhagen AA