Browse Items (111 total)
- Tags: Cross-sectional Studies
When Parents Face The Death Of Their Child: A Nationwide Cross-sectional Survey Of Parental Perspectives On Their Child’s End- Of Life Care.
Parents facing the death of their child have a strong need for compassionate professional support. Care services should be based on empirical evidence, be sensitive to the needs of the families concerned, take into account the…
Tags:
2016, Attitude Of Health Personnel, Attitude To Death, Bergstraesser E, BMC Palliative Care, Chantal Grandjean, Cross-sectional Studies, Death, Decision Making, End Of Life, Engberg S, Eva Cignacco
K, Female, Humans, Infant Newborn, Male, Marfurt-Russenberger, May 2016 List, Nicolas Von der Weid, Parental Perspectives, Parents/psychology, Patricia Fahrni-Nater, Pediatrics, Pediatrics/standards, Perception, Questionnaire Survey, Ramelet AS, Resuscitation Orders/psychology, Surveys And Questionnaires, Switzerland, Terminal Care, Terminal Care/standards, Von der Weid N, Zimmermann K
Structural equation and log-linear modeling: a comparison of methods in the analysis of a study on caregivers' health
Tags: 2006, Adaptation, Adult, Backlog, Bmc Medical Research Methodology, Caregivers/psychology/statistics & numerical data, Cerebral Palsy, Child, Cross-sectional Studies, Disabled Children, Family/psychology, Female, Health Status, Humans, Journal Article, Linear Models, Logistic Models, Male, Ontario, Psychological, Questionnaires, Raina P, Rosenbaum P, Russell DJ, Self Concept, Social Support, Socioeconomic Factors, Telemeres, Walter SD, Zhu B
Emotion regulation in patients with rheumatic diseases: validity and responsiveness of the Emotional Approach Coping Scale (EAC)
Tags: 2009, 80 And Over, Activities of Daily Living, Adaptation, Adolescent, Adult, Aged, Backlog, Bmc Musculoskeletal Disorders, Cross-sectional Studies, Emotions, Female, Finset A, Garratt A, Hagen KB, Humans, Journal Article, Male, Middle Aged, Mowinckel P, Pain Measurement, Psychological, Rheumatic Diseases, Stanton AL, Stress, Young Adult, Zangi HA
Provision Of Services In Perinatal Palliative Care: A Multicenter Survey In The United States.
Congenital anomalies account for 20% of neonatal and infant deaths in the United States. Perinatal palliative care is a recent addition to palliative care and is meant to meet the needs of families who choose to continue a pregnancy…
Tags: 2016, Bereavement, Côté-Arsenault D, Critical Care/organization & Administration, Cross-sectional Studies, Denney-Koelsch E, Female, Fetal Mortality, Humans, Infant Newborn, Journal of Palliative Medicine, Kavanaugh K, Kim S, March 2016 List, Palliative Care/organization & Administration, Parents/psychology, Perinatal Care/organization & Administration, Perry Black B, Pregnancy, Professional-family Relations, Surveys And Questionnaires, United States, Wool C
Pediatric patients receiving palliative care in Canada: results of a multicenter review
Tags: 2007, Archives Of Pediatrics & Adolescent Medicine, Backlog, Beaune L, Bishop M, Canada, Child, Congenital Abnormalities/mortality, Cross-sectional Studies, Daoust L, Davies D, Drouin DJ, Farran RP, Humans, Humbert N, Infant, Journal Article, Nalewajek F, Neoplasms/mortality, Nervous System Diseases/mortality, Palliative Care/utilization, Preschool, Rattray M, Retrospective Studies, Rugg M, Widger K
Transition from paediatric to adult care for persons with cystic fibrosis: patient and parent perspectives
Tags: 1999, Adolescent, Adolescent Transitions, Adult, Backlog, Child, Child Health Services/organization & administration, Cross-sectional Studies, Cystic Fibrosis/rehabilitation, Female, Health Promotion, Health Transition, Henley L, Humans, Journal Article, Journal of Paediatrics and Child Health, Male, Parents, Patient Satisfaction, Preschool, Questionnaires, Westwood A, Willcox P
Task force 1: the changing profile of congenital heart disease in adult life
Tags: 2001, Adolescent, Adolescent Transitions, Adult, Aged, Backlog, Child, Congenital/mortality/rehabilitation, Cross-sectional Studies, Danielson GK, Dore A, Female, Great Britain/epidemiology, Harris L, Heart Defects, Hoffman JI, Humans, Incidence, Infant, Journal Article, Journal of the American College of Cardiology, Liberthson R, Male, Middle Aged, Newborn, Patient Care Team, Preschool, Prognosis, Somerville J, Survival Rate, United States/epidemiology, Warnes CA, Webb GD, Williams RG
Paediatric fever management: continuing education for clinical nurses
Tags: 2006, Analgesics, Attitude Of Health Personnel, Attitudes, Backlog, Certification, Child, Clinical Competence/standards, Continuing/organization & administration, Courtney MD, Cross-sectional Studies, Education, Educational Status, Edwards HE, Evidence-Based Medicine/education, Female, Fever/nursing/prevention & control, Health Knowledge, Health Services Needs And Demand, Hospital/education/psychology, Hospitals, Humans, Journal Article, Male, Monaghan SJ, Negativism, Non-Narcotic/therapeutic use, Nurse Education Today, Nurse's Role, Nursing, Nursing Process, Nursing Staff, Pediatric, Pediatric Nursing/education, PedPal Lit, Practice, Questionnaires, Time Factors, Urban, Walsh AM, Wilson JE
Listening To Parents: The Role Of Symptom Perception In Pediatric Palliative Home Care
This study analyzes symptom perception by parents and healthcare professionals and the quality of symptom management in a pediatric palliative home care setting and identifies which factors contribute to a high quality of palliative and…
Tags: 2016, Adult, Borasio GD, Brandstatter M, Cross-sectional Studies, Death, Duroux A, Dyspnea/diagnosis, Dyspnea/psychology, End-of-life Symptoms, Female, Führer M, Grasser M, Home Care Services/standards, Humans, Male, November 2016 List, Pain/diagnosis, Pain/psychology, Palliative & Supportive Care, Palliative Care/methods, Palliative Care/psychology, Parents/psychology, Pediatric Palliative Home Care, Pediatrics/methods, Perception, Quality Of Life/psychology, Retrospective Studies, Surveys And Questionnaires, Symptom Assessment/psychology, Symptom Perception, Vollenbroich R
A multi-dimensional approach to the transition of children with developmental disabilities into young adulthood: the acquisition of adult social roles
Tags: 2006, Adolescent, Adolescent Transitions, Adult, Backlog, Child, Cross-sectional Studies, Developmental Disabilities/psychology, Disability And Rehabilitation, Disabled Persons/psychology, Female, Georgia, Humans, Journal Article, Logistic Models, Lollar D, Male, Questionnaires, Social Adjustment, Social Behavior, Van Naarden Braun K, Yeargin-Allsopp M
Parents' experiences of pediatric palliative care and the impact on long-term parental grief.
Tags: 2014, Adult, Backlog, Cancer, Children, Communication, Continuity Of Patient Care, Cross-sectional Studies, Darlington Anne-Sophie E, Female, Grief, Humans, Journal Article, Journal of Pain and Symptom Management, Male, Michiels EMC, Middle Aged, Multivariate Analysis, Neoplasms/therapy, Palliative Care, Palliative Care/psychology, Parental Grief, Parents/psychology, Pediatrics, Pieters R, Retrospective Studies, Streng IC, Surveys And Questionnaires, Symptom Management, van den Heuvel-Eibrink MM, van der Geest IMM
Vaccine Preventable Diseases in Pediatric Palliative Care - A Multicenter Cross-Sectional Study
Pediatric nurses' individual and group assessments of palliative, end-of-life, and bereavement care
Tags: 2011, Attitude Of Health Personnel, Backlog, Bereavement, Cross-sectional Studies, Feinstein JA, Female, Feudtner C, Hexem KR, Hospital/psychology, Hospitals, Humans, Journal Article, Journal of Palliative Medicine, Kang T, Male, Nurses/psychology, Nursing Staff, Palliative Care, Pediatric, Santucci G, Terminal Care, Tubbs-Cooley HL
Physical functioning in female caregivers of children with physical disabilities compared with female caregivers of children with a chronic medical condition
Tags: 2002, Adult, Aged, Archives Of Pediatrics & Adolescent Medicine, Back Pain/etiology, Backlog, Caregivers/psychology, Child, Chronic Disease, Cross-sectional Studies, Depression/etiology, Disabled Persons, Female, Haig AJ, Humans, Journal Article, Kandala G, Middle Aged, Mothers/psychology, Nelson VS, Physical Fitness, Regression Analysis, Shin KY, Tong HC, Yamakawa KS
Parent reports of quality of life for pediatric patients with cancer with no realistic chance of cure
Sex, drugs and chronic illness: health behaviours among chronically ill youth
Tags: 2005, Adolescent, Adolescent Behavior, Adolescent Transitions, Adult, Backlog, Chronic Disease/psychology, Cross-sectional Studies, European Journal Of Public Health, Female, Humans, Journal Article, Male, Parera N, Questionnaires, Risk-Taking, Sexual Behavior/statistics & numerical data, Spain/epidemiology, Substance-Related Disorders/epidemiology, Suris JC
Prevalence and severity of feeding and nutritional problems in children with neurological impairment: Oxford Feeding Study
Tags: 2000, Adolescent, Backlog, Child, Cross-sectional Studies, Developmental Medicine and Child Neurology, Disabled Children, Feeding and Eating Disorders of Childhood/epidemiology/etiology, Female, Ford-Adams ME, Griffiths P, Humans, Johnson A, Journal Article, Lambert B, Male, Nervous System Diseases/complications, Non-U.S. Gov't, Nutrition Disorders/epidemiology/etiology, Parent-child Relations, Preschool, Prevalence, Research Support, Rose M, Severity Of Illness Index, Sullivan P
Follow-up in children with Joubert syndrome
Tags: 1997, Adolescent, Adult, Ataxia/diagnosis/genetics/physiopathology, Backlog, Boltshauser E, Cerebellum/abnormalities, Child, Cross-sectional Studies, Developmental Disabilities/diagnosis/genetics/physiopathology, Disease Progression, Disease Specific, Facies, Female, Follow-up Studies, Humans, Infant, Journal Article, Kidney Diseases/complications, Landau K, Male, Mental Retardation/complications, Mesencephalon/abnormalities, Muscle Hypotonia/diagnosis/genetics/physiopathology, Neuropediatrics, Newborn, Ocular Motility Disorders/complications, Preschool, Respiration Disorders/complications, Retrospective Studies, Schmid M, Steinlin M, Survivors/classification, Syndrome
Missing clinical information during primary care visits
Tags: 2005, Araya-Guerra R, Backlog, Bublitz C, Communication, Cross-sectional Studies, Dickinson LM, Family Practice/organization & administration, Humans, JAMA, Journal Article, Medical Records, Pace WD, Parnes B, Primary Health Care/organization & administration, Smith PC, United States, Van Vorst R, Westfall JM
Basic neonatal resuscitation skills of midwives and nurses in Eastern Ethiopia are not well retained: An observational study
Tags: 2020, Adolescent, Adult, Asphyxia Neonatorum/*therapy, Checklist, Clinical Competence, Cross-sectional Studies, Desalew A, Developing World 2020 List, Education, Ethiopia, Female, Geda B, Humans, Infant, Male, Mezmur H, Middle Aged, Midwifery/*education, Mulatu T, Neonatal Nursing/*education, Newborn, Nursing/statistics & numerical data, PLoS One, Pregnancy, Resuscitation/*methods, Shiferaw K, Sintayehu Y, Tiruye G, Young Adult
A randomized comparison of patients' understanding of number needed to treat and other common risk reduction formats
Disorders of Upper Limb Movements in Ataxia-Telangiectasia
Tags: 2013, abnormal involuntary movements, accelerometry, Adolescent, Adult, Age Factors, ataxia telangiectasia, Ataxia Telangiectasia/pp [Physiopathology], Biomechanical Phenomena, characteristics, Child, Child Preschool, Crawford T O, Cross-sectional Studies, Female, Humans, kinetic tremor, Lederman H M, Male, Mandir A S, Motor Activity, Motor Activity/ph [Physiology], Movement, Movement Disorders/pp [Physiopathology], Movement/ph [Physiology], Periodicity, PLoS One, postural tremor, Posture/ph [Physiology], resting tremor, Severity Of Illness Index, Shaikh A G, tone and motor problems, Trajectory, Tremor/pp [Physiopathology], Upper Extremity, Upper Extremity/pp [Physiopathology], Young Adult, Zee D S
Opinions of members of the National Civil (Family Proceedings) and Criminal Courts in withholding or withdrawing of life support situations in pediatrics
Tags: 2016, Archivos Argentinos De Pediatria, Argentina, Attitude To Death, Child, Ciruzzi MS, Cross-sectional Studies, Decision-making, Ethics, Garcia HO, Health Care Surveys, Humans, Ledesma F, Legislation And Jurisprudence, Life Support Care/ legislation & jurisprudence, March 2018 List, Menendez C, Pediatric Intensive Care Unit, Pediatrics/ legislation & jurisprudence, Roitman AJ, Selandari JO, Withholding Treatment, Withholding Treatment/ legislation & jurisprudence
Psychiatric and physical morbidity effects of dementia caregiving: prevalence, correlates, and causes
Tags: 1995, 80 And Over, Activities of Daily Living/classification/psychology, Adult, Aged, Anxiety Disorders/epidemiology/psychology, Backlog, Bookwala J, Caregivers/statistics & numerical data, Cost Of Illness, Cross-sectional Studies, Dementia/epidemiology/psychology, Depressive Disorder/epidemiology/psychology, Female, Fleissner K, Humans, Incidence, Journal Article, Male, Middle Aged, O'Brien AT, P.H.S., Psychophysiologic Disorders/epidemiology/psychology, Research Support, Risk Factors, Schulz R, The Gerontologist, U.S. Gov't, United States/epidemiology
The effect of multidrug-resistant organisms on social participation and quality of life in children with life-limiting conditions
Tags: 2021, Child, Child Preschool, Cross Infection/prevention & control, Cross-sectional Studies, Drug Resistance Multiple, Female, Hartenstein-Pinter A, Hasan C, Hospital Units, Humans, hygiene, Infant, Infection Control/organization & administration, Inservice Training, International Journal of Palliative Nursing, Interviews As Topic, Male, May 2021 List, Nursing Assessment, Paediatrics, Palliative Care, Parents, Patient Isolation, Patient Safety, Quality Of Life, Schmidt P, Social Participation, Stening K, Stereotyping, Surveys And Questionnaires, Terminally Ill, Wager J, Zernikow B
Period prevalence of epilepsy in children in BC: a population-based study
Tags: 2009, Adolescent, Age Distribution, Backlog, British Columbia/epidemiology, Child, Community Health Planning, Cross-sectional Studies, Databases, Epilepsy/epidemiology, Factual/statistics & numerical data, Farrell K, Female, Hoube JS, Humans, Infant, International Classification of Diseases, Journal Article, Lisonkova S, Longitudinal Studies, Male, Newborn, Preschool, Prevalence, Retrospective Studies, Schiariti V, Socioeconomic Factors, The Canadian Journal Of Neurological Sciences.Le Journal Canadien Des Sciences Neurologiques, Young Adult
Addressing transition to adult health care for adolescents with special health care needs
Tags: 2005, Adolescent, African Americans/statistics & numerical data, Aging, Backlog, Case Management, Chronic Disease/epidemiology/therapy, Continuity Of Patient Care/organization & Administration, Cross-sectional Studies, European Continental Ancestry Group/statistics & numerical data, Family Characteristics, Female, Health Services Needs And Demand, Health Surveys, Hispanic Americans/sn [Statistics & Numerical Data], Humans, Insurance Coverage/statistics & numerical data, Ireland M, Journal Article, Male, Parents/psychology, Pediatrics, Poverty, Professional-family Relations, Questionnaires, Sampling Studies, Scal P, Socioeconomic Factors, United States/epidemiology
Gender differences in violence exposure among university students attending campus health clinics in the United States and Canada
Tags: 2009, Adolescent, Backlog, Brown D, Canada, Cross-sectional Studies, Female, Fleming MF, Humans, Journal Article, Male, Midwestern United States, Mundt MP, Pacific States, Plane M, Saewyc EM, Sex Factors, Student Health Services, Students/psychology, The Journal Of Adolescent Health : Official Publication Of The Society For Adolescent Medicine, Violence/psychology, Wiegel J, Young Adult, Zakletskaia L
Satisfaction with information provided to Danish cancer patients: validation and survey results
Tags: 2013, 80 And Over, Adolescent, Adult, Aged, Backlog, Cross-sectional Studies, Denmark, Female, Groenvold M, Humans, Interviews As Topic, Johnsen AT, Journal Article, Lundstrøm LH, Male, Middle Aged, Neoplasms, Patient Education and Counseling, Patient Education as Topic, Patient Satisfaction, Petersen MA, Questionnaires, Ross L
Switching from morphine to oral methadone in treating cancer pain: what is the equianalgesic dose ratio?
Tags: 1998, Administration, Aged, Analgesia, Analgesics, Backlog, Brunelli C, Cross-sectional Studies, De Conno F, Dose-Response Relationship, Drug, Female, Groff L, Humans, Journal Article, Journal Of Clinical Oncology, Male, Methadone/administration & Dosage, Middle Aged, Morphine/administration & dosage, Neoplasms/complications, Non-U.S. Gov't, Opioid/administration & dosage, Oral, Pain/drug Therapy, Polastri D, Prospective Studies, Research Support, Ripamonti C, Stavrakis A, Therapeutic Equivalency, Time Factors
Protecting adolescents from harm. Findings from the National Longitudinal Study on Adolescent Health
Tags: 1997, Adolescent, Adolescent Behavior, Adolescent Transitions, Backlog, Bauman KE, Bearinger LH, Bearman PS, Beuhring T, Blum RW, Cross-sectional Studies, Female, Harris KM, Health Behavior, Health Surveys, Humans, Ireland M, JAMA, Jones J, Journal Article, Longitudinal Studies, Male, Mental Health, Multivariate Analysis, Pregnancy, Pregnancy in Adolescence, Regression Analysis, Resnick MD, Risk-Taking, Sexuality, Shew M, Sieving RE, Substance-Related Disorders/epidemiology, Tabor J, Udry JR, United States/epidemiology, Violence/statistics & numerical data
Impact of holding the baby following stillbirth on maternal mental health and well-being: findings from a national survey
Tags: 2016, Adolescent, Adult, Anxiety/epidemiology, Bereavement, Bmj Open, care practice, Cross-sectional Studies, Depression/epidemiology, England, Family Conflict/psychology, February 2018 List, Female, Gestational Age, Health Surveys, Henderson J, Hennegan JM, hold, Humans, Infant, infant contact, Mother-Child Relations/ psychology, Mothers/ Psychology, Newborn, Post-traumatic, Post-Traumatic/epidemiology, Postpartum Period/ psychology, Pregnancy, Qualitative Research, Redshaw M, Self Report, Self-Fertilization, Stillbirth, Stillbirth/ psychology, Stress Disorders, touch, Young Adult
Neuropathic cancer pain: prevalence, severity, analgesics and impact from the European Palliative Care Research Collaborative-Computerised Symptom Assessment study
Tags: (EPCRC) European Palliative Care Research Collaborative, 2013, 80 And Over, Aass N, Adolescent, Adult, Aged, Analgesics, Backlog, Bennett MI, Caraceni A, Cross-sectional Studies, Fainsinger R, Female, Heitzer E, Hjermstad MJ, Humans, Journal Article, Kaasa S, Life Expectancy, Male, Middle Aged, Neoplasm Metastasis, Neoplasms, Neuralgia, Pain Measurement, Palliative Medicine, Prevalence, Quality Of Life, Rayment C, Strasser F, Symptom Assessment, Young Adult
Factors explaining variability among caregivers in the intent to restrict life-support interventions in a pediatric intensive care unit
Tags: 1997, Activities of Daily Living, Adult, Attitude Of Health Personnel, Backlog, Child, Critical Care Medicine, Cross-sectional Studies, Death and Euthanasia, Decision Making, Empirical Approach, Euthanasia, Family/psychology, Hospital/psychology, Humans, ICU Decision Making, Intensive Care Units, Intervention, Interventions, Journal Article, Life Support Care, Linear Models, Medical Staff, Nursing Staff, Passive, Pediatric, Professional Patient Relationship, Prognosis, Questionnaires, Randolph AG, Wigton RS, Yeh TS, Zollo MB
Variability in physician opinion on limiting pediatric life support
Tags: 1999, Backlog, Child, Cross-sectional Studies, Death and Euthanasia, Decision Making, Egger MJ, Empirical Approach, Euthanasia, Fellowships And Scholarships, Female, Guyatt GH, Hospital/psychology/statistics & numerical data, Humans, ICU Decision Making, Intensive Care Units, Intensive Care/psychology, Journal Article, Male, Medical Oncology/statistics & numerical data, Medical Staff, Nelson RM, Neoplasms/therapy, Passive/psychology, Pediatric, Pediatrics, Pediatrics/statistics & numerical data, Prognosis, Questionnaires, Randolph AG, Regression Analysis, Stidham GL, Terminal Care/psychology, Zollo MB
A cross-sectional study on prevalence of pain and breakthrough pain among an unselected group of outpatients in a tertiary cancer clinic
Tags: 2014, Adolescent, Adult, Aged, Ambulatory Care Facilities, Backlog, Breakthrough Pain, Brunelli C, Cohort Studies, Comorbidity, Cross-sectional Studies, Female, Hjermstad MJ, Humans, Journal Article, Kaasa S, Klepstad P, Male, Middle Aged, Neoplasms, Norway, Outpatients, Pain Measurement, Prevalence, Raj Sunil X, Supportive Care In Cancer : Official Journal Of The Multinational Association Of Supportive Care In Cancer, Thronaes M, Young Adult
Child and adolescent self-report symptom measurement in pediatric oncology research: a systematic literature review
Tags: 2018, Adolescent, Adult, Adverse event self-report, Baker JN, Biomedical Research, Child, Cross-sectional Studies, Freyer DR, Hinds PS, Humans, Lucas N, Mack JW, McFatrich M, Medical Oncology/standards, Oncology 2018 List, Pediatric Oncology, Pinheiro LC, Psychometrics, Quality of Life Research, Quality Of Life/psychology, Reeve BB, Reproducibility of Results, Self Report, Self-report instruments, Sung L, Tomlinson D, Walker JS, Withycombe JS, Young Adult
Evaluation of Comfort and Confidence of Neonatal Clinicians in Providing Palliative Care
Tags: 2018, Adult, Age Factors, April 2020 List, Chang Y C, Clinical Competence, confidence and comfort, Cross-sectional Studies, Educational Status, Female, Humans, Journal of Palliative Medicine, Lee H Y, Liang H F, Liu H F, Male, Marital Status, Neonatal Palliative Care, neonatal professional, Neonatology, Palliative Care, Peng N H, Self Concept, Social Support, Surveys And Questionnaires, Taiwan, Wang T M
Bereaved Jewish mothers of children who died of cancer: the relationship between the mother and the deceased child and the mother's perceived functioning
Comfort of general internists and general pediatricians in providing care for young adults with chronic illnesses of childhood
Tags: 2008, Adolescent, Adolescent Transitions, Adult, Aged, Attitude Of Health Personnel, Backlog, Cabana MD, Chronic Disease/psychology/therapy, Cross-sectional Studies, Davis MM, Demonner S, Family Practice/methods/trends, Female, Heisler M, Humans, Journal Article, Journal Of General Internal Medicine, Kerr EA, Male, Middle Aged, Okumura MJ, Pediatrics/methods/trends, Physician's Role/psychology, Young Adult