Browse Items (209 total)
- Tags: Questionnaires
Young people's satisfaction of transitional care in adolescent rheumatology in the UK
Tags: 2007, Adolescent, Adolescent Health Services/organization & administration, Adolescent Rheumatology, Adolescent Transitions, Adult, Arthritis, Backlog, British Society of Paediatric, Child, Child: Care, Health and Development, Chronic Disease, Cohort Studies, Continuity Of Patient Care/organization & Administration, Female, Great Britain, Humans, Journal Article, Juvenile Rheumatoid/psychology/rehabilitation, Male, McDonagh JE, Parents, Patient Satisfaction, Program Development, Quality Of Life, Questionnaires, Self Care/methods, Shaw KL, Sickness Impact Profile, Southwood TR
Development and preliminary validation of the 'Mind the Gap' scale to assess satisfaction with transitional health care among adolescents with juvenile idiopathic arthritis
Tags: 2007, Adolescent, Adolescent Health Services/organization & administration, Adolescent Rheumatology, Adolescent Transitions, Adult, Aged, Arthritis, Backlog, British Society of Paediatric, Child, Child: Care, Health and Development, Chronic Disease/psychology, Cohort Studies, Continuity Of Patient Care/organization & Administration, Great Britain, Humans, Journal Article, Juvenile Rheumatoid/psychology/rehabilitation, McDonagh JE, Middle Aged, Parents, Patient Satisfaction, Quality Of Life, Questionnaires, Self Care/methods, Shaw KL, Sickness Impact Profile, Southwood TR
Nurses' Perceptions of the Palliative Care Needs of Neonates With Multiple Congenital Anomalies
Tags: 2020, Abnormalities, Age Factors, Consent (Research), Content Analysis, Data Analysis Software, Descriptive Statistics, Educational Status, Feedback, Female, Gürol A, Health Services Needs and Demand – In Infancy and Childhood, Human, Infant, Intensive Care Units, Interviews, Journal of Hospice and Palliative Nursing, June 2020 List, Male, Multiple, Neonatal, Neonatal Intensive Care Nursing, Newborn, Nurse Attitudes – Evaluation, Palliative Care, Polat S, Quality Of Life, Questionnaires, Semi-Structured Interview, Şener Taplak A, Thematic Analysis, Time Factors
Constipation in paediatric oncology
Tags: 2006, Backlog, Cathartics/therapeutic use, Causality, Child, Child Nutrition/education, Constipation/diagnosis/etiology/prevention & control, Dietary Fiber, European Journal Of Oncology Nursing, Evidence-based Medicine, Great Britain, Health Services Needs And Demand, Humans, Information Services, Internet, Journal Article, Neoplasms/complications, Nurse's Role, Nursing Assessment/methods/standards, Nursing Evaluation Research, Oncologic Nursing/methods/standards, Palliative Care/methods, Pediatric Nursing/methods/standards, PedPal Lit, Practice Guidelines, Questionnaires, Selwood K
Supporting Pediatric Patients and Their Families at the End of Life: Perspectives From Bereaved Parents
Tags: 2020, Academic Medical Centers, American Journal of Hospice & Palliative Medicine, Anticipatory Guidance, Bereavement, Chi Square Test, Child, Childhood Neoplasms, Communication, Cousino M K, Data Analysis Software, Decision Making, Descriptive Statistics, Family, Female, Funding Source, Health Resource Utilization, Human, Hutchinson R, Male, McCaffery H, Midwestern United States, November 2020 List, Parental Attitudes – Evaluation, Patient Preference, Paul T K, Pituch K, Professional-family Relations, Professional-patient Relations, psychosocial, Quality Of Life, Questionnaires, Record Review, Retrospective Design, Sedig L K, Shared, Spruit J L, Support, Terminal Care – In Infancy and Childhood
At the crossroads: making the transition to hospice
Tags: 2004, Adult, Aged, Backlog, Bradley E, Caregivers/psychology, Cherlin E, Connecticut, Curry L, Decision Making, Family Relations, Female, Hospice Care/psychology, Humans, Interpersonal Relations, Johnson-Hurzeler R, Journal Article, Male, McCorkle R, Middle Aged, Narration, Neoplasms/nursing, Non-P.H.S., Non-U.S. Gov't, Palliative & Supportive Care, Palliative Care/psychology, Parent-child Relations, Questionnaires, Research Support, Schulman-Green D, U.S. Gov't
Addressing transition to adult health care for adolescents with special health care needs
Tags: 2005, Adolescent, African Americans/statistics & numerical data, Aging, Backlog, Case Management, Chronic Disease/epidemiology/therapy, Continuity Of Patient Care/organization & Administration, Cross-sectional Studies, European Continental Ancestry Group/statistics & numerical data, Family Characteristics, Female, Health Services Needs And Demand, Health Surveys, Hispanic Americans/sn [Statistics & Numerical Data], Humans, Insurance Coverage/statistics & numerical data, Ireland M, Journal Article, Male, Parents/psychology, Pediatrics, Poverty, Professional-family Relations, Questionnaires, Sampling Studies, Scal P, Socioeconomic Factors, United States/epidemiology
Trends in transition from pediatric to adult health care services for young adults with chronic conditions
Tags: 1999, Adolescent, Adolescent Health Services/classification, Adolescent Transitions, Adult, AID - S1054-139X(98)00127-X [pii], Backlog, Blozis S, Blum R, Chronic Disease/therapy, Continuity of Patient Care/classification/economics/statistics & numerical data, Counseling, CRDT- 1999/05/05 00:00, EDAT- 1999/05/05, Evans T, Health Services/classification, Humans, Journal Article, MHDA- 1999/05/05 00:01, Okinow N, Pilot Projects, PST - ppublish, Questionnaires, Scal P, The Journal Of Adolescent Health : Official Publication Of The Society For Adolescent Medicine Jid - 9102136, United States
Trends in the use of opioids at the end of life and the expected effects on hastening death
Tags: 2009, Active/statistics & numerical data/trends, Administration, Analgesics, Attitude Of Health Personnel, Backlog, Borgsteede SD, Decision Making, Euthanasia, Humans, Journal Article, Journal of Pain and Symptom Management, Netherlands/epidemiology, Onwuteaka-Philipsen BD, Opioid/administration & dosage, Oral, Pain/mortality/prevention & control, Physician's Practice Patterns/statistics & numerical data/trends, Physicians/statistics & numerical data, Questionnaires, Risk Assessment, Risk Factors, Rurup ML, Survival Analysis, Survival Rate, Terminal Care/statistics & Numerical Data, van der Heide A, van der Maas PJ
Satisfaction with information provided to Danish cancer patients: validation and survey results
Tags: 2013, 80 And Over, Adolescent, Adult, Aged, Backlog, Cross-sectional Studies, Denmark, Female, Groenvold M, Humans, Interviews As Topic, Johnsen AT, Journal Article, Lundstrøm LH, Male, Middle Aged, Neoplasms, Patient Education and Counseling, Patient Education as Topic, Patient Satisfaction, Petersen MA, Questionnaires, Ross L
Treatment adherence of youth and young adults with and without a chronic illness
Tags: 2003, Acute Disease/psychology, Adaptation, Adolescent, Adolescent Behavior/psychology, Adolescent Psychology, Adult, Age Factors, Attitudes, Backlog, Case-Control Studies, Child, Chronic Disease/psychology, Crisp J, Female, Health Knowledge, Humans, Internal-External Control, Journal Article, Male, Mental Health, Needs Assessment, Nursing & Health Sciences, Patient Compliance/psychology, Patient Education, Practice, Predictive Value of Tests, Psychological, Questionnaires, Rosina R, Self Care/psychology, Steinbeck K
What's Missing in Missing Data? Omissions in Survey Responses among Parents of Children with Advanced Cancer
Tags: 2014, Adolescent, Adult, Backlog, Disease Progression, Dussel V, Female, Feudtner C, Geyer JR, Humans, Journal Article, Journal of Palliative Medicine, Kang TI, Life Expectancy, Male, Neoplasms, Orellana L, Parents, prog, Prognosis, Quality Of Life, Questionnaires, Research, Rosenberg AR, surveys, Wolfe J
The relationship between grief adjustment and continuing bonds for parents who have lost a child
Tags: 2009, Adaptation, Adolescent, Adult, Attitude To Death, Backlog, Davies B, Female, Field NP, Grief, Humans, Infant, Interpersonal Relations, Journal Article, Kramer R, Life Change Events, Long JK, Male, Newborn, Object Attachment, Omega, Packman W, Parent-child Relations, Parents/psychology, Psychological, Quality Of Life, Questionnaires, Ronen R
Sharing the care: the key-working experiences of professionals and the parents of life-limited children
Tags: 2014, Adolescent, Adult, Backlog, Caregivers, Child, Child Health Services, Female, Focus Groups, Great Britain, Health Personnel, Health Services Needs And Demand, Humans, International Journal of Palliative Nursing, Journal Article, King N, Male, Middle Aged, Parents, Patient Care Planning, Professional-family Relations, Psychological, Questionnaires, Rodriguez A, Stress, Terminal Care
The health-line--a method for collecting data on self-rated health over time: a pilot study
Tags: 2001, Adolescent Transitions, Adult, Alexanderson KA, Attitude To Health, Backlog, Borg KE, Chi-Square Distribution, Female, Health Status, Hensing GK, Humans, Journal Article, Male, Pilot Projects, Questionnaires, Ringsberg KC, Scandinavian Journal Of Public Health, Self-Assessment, Sick Leave/statistics & numerical data, Sweden/epidemiology
Using drugs to end life without an explicit request of the patient
Tags: 2007, 80 And Over, Adolescent, Adult, Aged, Assisted/ethics/legislation & jurisprudence/psychology, Backlog, Belgium, Bilsen J, Death studies, Decision Making, Denmark, Ethics, Euthanasia/ethics/legislation & jurisprudence/psychology, Female, Fischer S, Humans, Informed Consent, Intention, Journal Article, Male, Medical, Mental Competency/legislation & jurisprudence, Miccinessi G, Middle Aged, Netherlands, Norup M, Onwuteaka-Philipsen BD, Patient Participation/legislation & jurisprudence/psychology, Physician's Practice Patterns/ethics, Questionnaires, Rietjens JA, Suicide, Switzerland, Terminal Care/ethics/legislation & jurisprudence/psychology, van der Heide A, van der Maas PJ, van der Wal G, Vrakking AM
Estimates of life expectancy by adolescents and young adults with congenital heart disease
Tags: 2006, Adolescent, Adolescent Transitions, Adult, Attitudes, Awareness, Backlog, Barzel M, Congenital/epidemiology, Female, Health Behavior, Health Knowledge, Health Status, Heart Defects, Humans, Irvine MJ, Journal Article, Journal of the American College of Cardiology, Life Expectancy, Logistic Models, Male, McCrindle BW, Practice, Questionnaires, Reid GJ, Siu SC, Webb GD
Factors explaining variability among caregivers in the intent to restrict life-support interventions in a pediatric intensive care unit
Tags: 1997, Activities of Daily Living, Adult, Attitude Of Health Personnel, Backlog, Child, Critical Care Medicine, Cross-sectional Studies, Death and Euthanasia, Decision Making, Empirical Approach, Euthanasia, Family/psychology, Hospital/psychology, Humans, ICU Decision Making, Intensive Care Units, Intervention, Interventions, Journal Article, Life Support Care, Linear Models, Medical Staff, Nursing Staff, Passive, Pediatric, Professional Patient Relationship, Prognosis, Questionnaires, Randolph AG, Wigton RS, Yeh TS, Zollo MB
Variability in physician opinion on limiting pediatric life support
Tags: 1999, Backlog, Child, Cross-sectional Studies, Death and Euthanasia, Decision Making, Egger MJ, Empirical Approach, Euthanasia, Fellowships And Scholarships, Female, Guyatt GH, Hospital/psychology/statistics & numerical data, Humans, ICU Decision Making, Intensive Care Units, Intensive Care/psychology, Journal Article, Male, Medical Oncology/statistics & numerical data, Medical Staff, Nelson RM, Neoplasms/therapy, Passive/psychology, Pediatric, Pediatrics, Pediatrics/statistics & numerical data, Prognosis, Questionnaires, Randolph AG, Regression Analysis, Stidham GL, Terminal Care/psychology, Zollo MB
Practitioner Empathy and the Duration of the Common Cold
Tags: 2009, Backlog, Barrett BP, CARE MEASURE, Chewning B, Common Cold - immunology, Common Cold - pathology, Common Cold - therapy, Consultation, Craig BM, family medicine, General & Internal, GENERAL-PRACTICE, health outcomes, Hoeft T, Interleukin-8 - isolation & purification, Journal Article, Medicine, Model, Nasal Lavage Fluid - immunology, Niu M, PATIENT ENABLEMENT, PLACEBO, Primary Health Care - methods, Questionnaires, Rakel DP, RELATIONAL EMPATHY, Satisfaction
The health and well-being of caregivers of children with cerebral palsy.
Tags: 2005, Adaptation, Adult, Backlog, Brehaut J, Caregivers/psychology, Cerebral Palsy/psychology, Child, Child Behavior Disorders/etiology, Cohort Studies, Disabled Children, Family Health, Female, Foster Home Care, Humans, Journal Article, Longitudinal Studies, Male, Middle Aged, Models, O'Donnell M, Ontario, Parent-child Relations, Parents, Pediatrics, Professional-patient Relations, Psychological, Psychological/epidemiology/etiology, Questionnaires, Raina P, Rosenbaum P, Russell D, Self Concept, Severity Of Illness Index, Social Support, Stress, Swinton M, Theoretical, Walter SD, Wood E, Zhu Bin
Meeting the needs of parents around the time of diagnosis of disability among their children: evaluation of a novel program for information, support, and liaison by key workers
Tags: 2004, Backlog, Child, Child Health Services/manpower/organization & administration, Disabled Children, Female, Health Personnel, Hospital Departments, Humans, Hundt GL, Infant, Journal Article, London, Male, Manaras I, Miller 2009 BMC HSR Refs, Parents/psychology, Patient Care Team, Patient Satisfaction, Pediatrics, Preschool, Questionnaires, Rahi JS, Social Work, Tuomainen H, Vision Disorders/diagnosis/psychology
The comprehensive care team: a controlled trial of outpatient palliative medicine consultation
Tags: 2004, Advance Care Planning/statistics & Numerical Data, Aged, Archives Of Internal Medicine, Backlog, California, Chronic Obstructive/complications/psychology/therapy, Dibble SL, Female, Heart Failure/complications/psychology/therapy, Hospital/organization & administration/utilization, Humans, Journal Article, Male, McPhee SJ, Neoplasms/complications/psychology/therapy, Office Visits/statistics & numerical data, Outcome And Process Assessment (health Care), Outpatient Clinics, Palliative Care/organization & Administration, Pantilat SZ, Patient Care Team, Primary Health Care/organization & administration/utilization, Pulmonary Disease, Quality Of Life, Questionnaires, Rabow MW
Can art therapy reduce death anxiety and burnout in end-of-life care workers? a quasi-experimental study
Tags: 2014, Adolescent, Adult, anxiety, Art Therapy, Backlog, Burnout, Chan F, Cheng C, Female, Health Personnel, Humans, Hy Ho A, International Journal of Palliative Nursing, Journal Article, Lu Wang Xiao, Male, Middle Aged, Potash J, Professional, Questionnaires, Self Efficacy, Terminal Care, Young Adult
Transition of care: health care professionals' view
Tags: 2004, Adolescent, Adolescent Health Services/standards, Adolescent Medicine/standards, Adolescent Transitions, Adult, Attitude Of Health Personnel, Backlog, Barrow J, Burr P, Child, Child Health Services/standards, Chronic Disease/psychology/therapy, Continuity of Patient Care/standards, Dennard L, Focus Groups, Golberg B, Hospital/psychology, Hospitals, Humans, Journal Article, Journal Of Nursing Management, Lennox V, London, Needs Assessment, Nursing Methodology Research, Patient Transfer/standards, Pediatrics/standards, Personnel, Por J, Questionnaires, Teaching
An assessment of gender differences in the perception of benefit resulting from the loss of a child.
Tags: 2000, Adaptation, Adult, Aged, Backlog, Bereavement, Child, Esprey Y, Female, Gender Identity, Grief, Growth, Humans, Journal Article, Journal Of Traumatic Stress, Life Change Events, Longitudinal Studies, Male, Middle Aged, Perception, Polantinsky S, Psychological, Questionnaires, Sex Factors
Symptoms of anxiety and depression in family members of intensive care unit patients: ethical hypothesis regarding decision-making capacity
Tags: 2001, Anxiety/epidemiology/etiology, Azoulay E, Backlog, Canoui P, Chevret S, Critical Care Medicine, Critical Illness/therapy, Decision Making, Depressive Disorder/epidemiology/etiology, Dhainaut JF, Ethics, Euthanasia, Family/psychology, Female, France/epidemiology, Grassin M, Group French FAMIREA, Hubert P, Humans, Intensive Care Units, Journal Article, LeGall JR, Lemaire F, Life Support Care/utilization, Logistic Models, Male, Medical, Multivariate Analysis, Nonparametric, Passive, Pochard F, Prevalence, Prospective Studies, Questionnaires, Schlemmer B, Statistics, Zittoun R
Palliative care on the net: an online survey of health care professionals
Tags: 2001, Adult, Aged, Attitude Of Health Personnel, Attitude to Computers, Attitudes, Backlog, Bruera E, Computer Communication Networks, Databases, Factual/utilization, Female, Health Knowledge, Health Personnel/psychology/statistics & numerical data, Human, Information Services/utilization, Internet/utilization, Journal Article, Journal Of Palliative Care, Male, Middle Aged, Nurses/psychology/statistics & numerical data, Online Systems/utilization, Pereira J, Periodicals, Pharmacists/psychology/statistics & numerical data, Physicians/psychology/statistics & numerical data, Practice, Quan H, Questionnaires, Terminal Care/statistics & Numerical Data
Bereaved Jewish mothers of children who died of cancer: the relationship between the mother and the deceased child and the mother's perceived functioning
Safety of polyethylene glycol 3350 for the treatment of chronic constipation in children
Tags: 2003, Adolescent, Alanine Transaminase/blood, Archives Of Pediatrics & Adolescent Medicine, Backlog, Bishop WP, Cathartics/therapeutic use, Child, Chronic Disease, Constipation/drug therapy, Encopresis/drug therapy, Female, Humans, Journal Article, Loening-Baucke V, Male, Non-U.S. Gov't, Pashankar DS, Patient Compliance, Polyethylene Glycols/therapeutic use, Preschool, Prospective Studies, Questionnaires, Research Support
Training health professionals in caring for dying children and grieving families
Complementary and alternative therapy use in pediatric oncology patients with failure of frontline chemotherapy
Tags: 2011, Adolescent, Adult, Antineoplastic Agents/therapeutic use, Backlog, Child, Complementary Therapies, Female, Humans, Infant, Insogna IG, Journal Article, Kang T, Male, Neoplasms/therapy, Newborn, Paisley MA, Pediatric Blood & Cancer, Preschool, Questionnaires, Religion, Rheingold SR, Salvage Therapy, Survival Rate, Treatment Failure, Treatment Outcome, Young Adult
Palliative care education in an Australian undergraduate pharmacy curriculum: an exploratory descriptive study
Tags: 2023, Adolescence, Adult, Ash K, Australia, clinical reasoning, Communication, Confidence, Curriculum, Descriptive Research, Descriptive Statistics, Education, Education Pharmacy, Empathy, Exploratory Research, Female, Human, International Journal of Pharmacy Practice, June 2022 List, Kumar S, Male, Mann-Whitney U Test, Ong JA, Palliative Care, Prospective Studies, Qualitative Studies, Questionnaires, Reflection, Rego J, Saini B, Self Concept, Students Undergraduate, surveys, Thematic Analysis, Ung T, Yates P
The Adolescent Adjustment Profile (AAP) in comparisons of patients with obesity, phenylketonuria or neurobehavioural disorders
The development of an interdisciplinary outpatient clinic in specialist palliative care
Tags: 2004, Backlog, England, Hospital/organization & administration, Humans, International Journal of Palliative Nursing, Journal Article, Models, Needs Assessment/organization & administration, Nursing, Nursing Assessment, Nursing Audit, Nursing Evaluation Research, Oliver D, Outpatient Clinics, Palliative Care/organization & Administration, Patient Care Team/organization & administration, Patient Satisfaction, Practice Guidelines as Topic/standards, Program Development/methods, Program Evaluation, Questionnaires
Characteristics of family conferences at the bedside versus the conference room in pediatric critical care
Tags: 2013, Attitude Of Health Personnel, Backlog, Child, Cohort Studies, Decision Making, Female, Health Care Surveys, Hinds PS, Humans, Intensive Care, Intensive Care Units, Journal Article, Male, October TW, Parents, Patient Care Team, Patient Participation, Pediatric, Pediatric Critical Care Medicine, Physicians, Professional-family Relations, Prospective Studies, Questionnaires, Watson Anne C
Advice seeking and appropriate use of a pediatric emergency department
Tags: 1993, Adolescent, Age Factors, algorithms, American Journal Of Diseases Of Children, Backlog, Birth Order, Child, Counseling/statistics & numerical data, Cross-sectional Studies, Dougherty GE, Emergency Service, Female, Health Services Misuse/statistics & numerical data, Health Services Research, Hospital/utilization, Hospitals, Humans, Infant, Journal Article, Male, Newborn, Oberlander T, Parents/education/psychology, Patient Acceptance Of Health Care/statistics & Numerical Data, Pediatric/utilization, Pless IB, Preschool, Quebec, Questionnaires, Severity Of Illness Index, Sex Factors, Teaching/utilization
Mitochondrial disease: needs and problems of children, their parents and family. A systematic review and pilot study into the need for information of parents during the diagnostic phase.
Tags: 2007, Adult, Backlog, Child, Goverde W, Hermans-Peters M, Humans, Interviews As Topic, Journal Article, Journal Of Inherited Metabolic Disease, Kemps H, Longitudinal Studies, Mitochondrial Diseases/diagnosis/psychology, Noorda G, Parent-child Relations, Parents/education, Patient Selection, Pilot Projects, Questionnaires, Reproducibility of Results, Research Design, Schoonhoven L, Smeitink JA, van Achterberg T
Survey of specialized tertiary care facilities for adults with congenital heart disease
Tags: 2004, Adolescent, Adolescent Transitions, Adult, Backlog, Cardiac Care Facilities/organization & administration/utilization, Congenital/diagnosis/mortality/surgery, Europe/epidemiology, Female, Gatzoulis MA, Health Care Surveys, Heart Defects, Hospitalization/statistics & numerical data, Humans, International Journal Of Cardiology, Journal Article, Liberthson R, Male, Middle Aged, Murphy D, Niwa K, North America/epidemiology, Patient Admission/statistics & numerical data, Patient Care Team, Perloff JK, Program Evaluation, Quality Of Health Care, Questionnaires, Reoperation/utilization, Resource Allocation, Survival Analysis, Treatment Outcome, Warnes CA, Webb GD